#WeCYPNs - Wednesday 18th July 2018 8pm (GMT Standard Time) Death - Children and Young People

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Hosted by WeCYPnurses using #WeCYPNs

This chat is guest hosted by @SachaLG

Together for short lives estimate there to be 49,000children and young people with a life-limiting or life-threatening condition inthe UK aged 0-18 years. More than 5,000 children aged 0-18 die every yearin England and Wales, about half of these die from life-limiting or life-threatening conditions. The highest rates arein newborn babies under one month old (www.togetherforshortlives.org.uk)

Children/young people with life limiting or life threatening conditionsmay require palliative care support from the time of diagnosis or recognition of the condition until death.  For some this may be days and for others many years.

The death of a child is something that no family should haveto face.  As children’s nurses we may meet families facing this unfortunate situation in a variety of settings - hospital (ED, PICU, children’s wards), hospice or at home.  Depending on where you work, looking after children and young people at the end of their lives may be something that you don’t face very often.  We are very privileged to have Sacha Langton-Gilks author of Follow the Child co-hosting this chat with us.

Points to consider:-

  • Role of community nurses
  • Transitional care
  • Advance care planning (ReSPECT)
  • Digital Legacy
  • Organ and tissue donation

Useful Resources

Nice Guideline (2016) End oflife care for infants, children and young people with life- limitingconditions: planning and management

https://www.nice.org.uk/guidance/ng61/resources/end-of-life-care-for-infants-children-and-young-people-withlifelimiting-conditions-planning-and-management-1837568722885

Children and Young Person’s Advance Care Plan Collaborative

http://cypacp.uk/

Child Bereavement UK

https://childbereavementuk.org/

Together for Short Lives

https://www.togetherforshortlives.org.uk/

Digital Legacy Association

https://digitallegacyassociation.org/

@PallCareVoices has some great Vlogs on you tube





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 Chat Summary

 

We was very fortunate that @SachaLG author of Follow the Child co-hosted this chat with us and we had the invaluable insights from many bereaved families and @LucyAlexandria a young person living with a life limiting illness.  Thanks so much to you all


@Stacys_mum_ We had a whole module in our last year regarding EoL care and symptom management (particularly in the community) but not so much about it in the acute setting! I’ve found I’ve learnt more on placement about EoL care in acute

@SachaLG feels that families could be trained to look after children at home more

@LucyAlexandria as a YP says 'You just don't get taught. You learn bit by bit the care procedures & activities, but no one ever explains the journey, provides the full information, sits down with you & answers questions about the road ahead on a general scale, you just go bit by bit, day by day'

@MrsRB14 'I completed a number or 1 day study days post reg (locally run) and also the foundation in paediatric palliative care course run at GOSH but practical experience, palliative care MDTs, shadowing palliative care consultant was vital to increase knowledge and reduce theory practice gap'.

@hepworth_becky 'I did a short course when I first became a CCN. A lot is learnt on the job as a CCN. Learning from more experienced colleagues'

@owen_theowen 'many skills and knowledge in EoL are transferable from other experiences or training... communication, technical (pumps etc), fundamental nursing care etc'



@SachaLG 'I know far too many that never had the conversation about the fact their child was about to die let alone about what sort of treatments'

@LivingwithLen5 as a parent aIso hasn’t come across many children with an ACP.

@hepworth_becky uses the http://cypacp.uk/ website

@kwelsh1 shared here blog post https://katywelsh473383320.wordpress.com/2018/07/18/24-7-a-walk-in-my-shoes-caring-for-a-child-with-complex-needs/

@4AdsthePoet reminds us that there's more to ACPs than DNAR

@SachaLG says they did have 24/7 phone support and were extremely lucky that training at GPs too. They called in for night support

@MrsRB14 said 'in last couple of years hospices are now providing outreach workers to provide overnight care for families and plugging this gap to help facilitate families being able to stay at home if this is where they wish to be'

@EHUKate says There are some great models where children’s hospices are providing stepped up care with CCNs for our of hours eol care.

Many areas have CCN teams that provide 24/7 cover for E0L care when required

@LucyAlexandria says 'As a young adult, I don't have 24/7 support. I could maybe phone the adult hospice the young adult hospice are now part of. But it's wait until working hours or go to A&E most of the time'.

@hepworthbecky told us that thier adult hospice on IOW has a new Transition Nurse who is already making a big differences to young people

@LucyAlexandria says she's very fortunate to have in her area for 16-40. However, they're only available working hours & limited amount of hands-on nursing & huge demand. however, they've been invaluable, liaising, fighting, supporting, advocating


Digital legacy is becoming more imprtant now more of us, espcially young people have a more active online profile.  The digital legacy association has some useful advice

https://digitallegacyassociation.org/

Many people said that the local hospice and outreach workers do a lot with memorey making

Other Resources

Nice Guideline (2016) End of life care for infants, children and young people with life- limiting conditions: planning and management

https://www.nice.org.uk/guidance/ng61/resources/end-of-life-care-for-infants-children-and-young-people-withlifelimiting-conditions-planning-and-management-1837568722885

Child Bereavement UK

https://childbereavementuk.org/

Together for Short Lives

https://www.togetherforshortlives.org.uk/





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 #WeCYPNs transcript

 
@WeCYPnurses
18 July 2018 20:00
Welcome to tonight's chat with @SachaLG who's joining us? Don't forget to use #wecypns in your replies https://t.co/AumKvtNJFd
@LucyAlexandria
18 July 2018 20:00
RT @WeCYPnurses: 30 minutes to get ready for tonight’s #Wecypns chat on how we can improve EoL care for CYP with @SachaLG https://t.co/J3hW…
@hepworth_becky
18 July 2018 20:02
@WeCYPnurses @SachaLG Hello ?? ?? Waving my CCN flag tonight! #WeCYPNs
@SachaLG
18 July 2018 20:02
@WeCYPnurses #wecypns HELLO. I'm so grateful you're hosting this chat and know families are joining and one of my l… https://twitter.com/i/web/status/1019658797554520064
@LivingwithLen5
18 July 2018 20:02
@WeCYPnurses @SachaLG Hi ???? #wecypns
@hepworth_becky
18 July 2018 20:03
Lurking @WellChild nurse alert! @Paula74cat #WeCYPNs https://twitter.com/paula74cat/status/1019658693502291969
@cdodd09
18 July 2018 20:03
@WeCYPnurses @SachaLG Caroline here gen paeds nurse thankfully not much exp in EoL care as mostly done at home by #Weccns #wecypns
@nguyenbryan2016
18 July 2018 20:03
RT @WeCYPnurses: Welcome to tonight's chat with @SachaLG who's joining us? Don't forget to use #wecypns in your replies https://t.co/AumKv…
@nguyenbryan2016
18 July 2018 20:03
RT @WeCYPnurses: 30 minutes to get ready for tonight’s #Wecypns chat on how we can improve EoL care for CYP with @SachaLG https://t.co/J3hW…
@robbradley01
18 July 2018 20:03
@WeCYPnurses @SachaLG Hello, Rob here a Charge Nurse on a children's surgical ward #weCYPNs
@nguyenbryan2016
18 July 2018 20:04
RT @Tog4ShortLives: Don't miss @SachaLG's Tweet chat on how EoL can be improved with @WeCYPnurses tonight at 8pm. Make sure to use #WeCYPNs…
@LucyAlexandria
18 July 2018 20:04
RT @SachaLG: @WeCYPnurses #wecypns HELLO. I'm so grateful you're hosting this chat and know families are joining and one of my late son's f…
@WeCYPnurses
18 July 2018 20:04
@Paula74cat @hepworth_becky DON'T FORGET #WECYPNS Paula!
@hepworth_becky
18 July 2018 20:04
@LivingwithLen5 @WeCYPnurses @SachaLG Hi Nikki. Thanks for joining us #WeCYPNs
@WeCYPnurses
18 July 2018 20:05
Don't forget to use #wecypns so everyone can see your tweets https://t.co/LkCscH6xlY
@WeCYPnurses
18 July 2018 20:05
@SachaLG glad you're here to share your experiences and thanks gor writing a great book #wecypns #followthechild
@nguyenbryan2016
18 July 2018 20:05
@robbradley01 @WeCYPnurses @SachaLG #weCYPNs glad to be here
@nguyenbryan2016
18 July 2018 20:06
@WeCYPnurses Yes! Don’t forget #wecypns to use it! Greetings from the United States ????
@LucyAlexandria
18 July 2018 20:06
RT @WeCYPnurses: Don't forget to use #wecypns so everyone can see your tweets https://t.co/LkCscH6xlY
@nguyenbryan2016
18 July 2018 20:06
RT @WeCYPnurses: Don't forget to use #wecypns so everyone can see your tweets https://t.co/LkCscH6xlY
@LucyAlexandria
18 July 2018 20:06
RT @WeCYPnurses: @SachaLG glad you're here to share your experiences and thanks gor writing a great book #wecypns #followthechild
@WeCYPnurses
18 July 2018 20:06
@LucyAlexandria glad you're here Lucy to share your experiences #wecypns #YAexp
@LucyAlexandria
18 July 2018 20:07
RT @WeCYPnurses: @LucyAlexandria glad you're here Lucy to share your experiences #wecypns #YAexp
@WeCYPnurses
18 July 2018 20:07
@owen_theowen @SachaLG Thanks for joining Dave #WeCYPNs
@sn_barnes
18 July 2018 20:07
@WeCYPnurses @SachaLG Hello! ???? End of life care is not something I’ve experienced so I’ll be lurking in interest!! #Wecypns
@owen_theowen
18 July 2018 20:07
@hepworth_becky @WeCYPnurses @SachaLG Do you ever stop waving it? ??#Wecypns
@hepworth_becky
18 July 2018 20:08
@owen_theowen @WeCYPnurses @SachaLG Never!!! #WeCYPNs
@WeCYPnurses
18 July 2018 20:09
1st question for you all #wecypns https://t.co/t3hk73uqre
@LucyAlexandria
18 July 2018 20:10
Who's joining #WeCYPns tonight? First question up below ?????? https://t.co/zYdDkqXzwf
@cdodd09
18 July 2018 20:10
@WeCYPnurses Can’t remember any during training but did a palliative care module later on as part of an oncology course #Wecypns
@nguyenbryan2016
18 July 2018 20:10
@WeCYPnurses To answer #weCYPNs I haven’t. Also hello all I’m Bryan I live in the United States but still w lol ans… https://twitter.com/i/web/status/1019660825877884928
@lindawr06210728
18 July 2018 20:11
RT @WeCYPnurses: 1st question for you all #wecypns https://t.co/t3hk73uqre
@nguyenbryan2016
18 July 2018 20:11
RT @WeCYPnurses: 1st question for you all #wecypns https://t.co/t3hk73uqre
@hepworth_becky
18 July 2018 20:11
Yay! Don’t forget the #WeCYPns so that we can all see your tweets @nickifitz https://twitter.com/nickifitz/status/1019660639453794304
@4AdsthePoet
18 July 2018 20:12
#Wecypns even! https://twitter.com/4adsthepoet/status/1019660442204024833
@4AdsthePoet
18 July 2018 20:12
RT @LucyAlexandria: Who's joining #WeCYPns tonight? First question up below ?????? https://twitter.com/WeCYPnurses/status/1019660347584778240
@Jenna_Spry
18 July 2018 20:13
#Wecypns Hi! I’m lurking as this is my 1st chat I’m a PICU nurse and researcher at university of Birmingham, CYPAC… https://twitter.com/i/web/status/1019661372437749764
@WeCYPnurses
18 July 2018 20:13
@4AdsthePoet @SachaLG thanks so much for joining Zoe glad you could make it to share your experiences #adsmum #WeCYPNs
@MrsRB14
18 July 2018 20:13
@WeCYPnurses Sorry post reg and #wecypns
@Csage110
18 July 2018 20:14
@WeCYPnurses In-house training not very much on symptom management #wecypns
@WeCYPnurses
18 July 2018 20:14
#wecypns https://twitter.com/MrsRB14/status/1019661149602709505
@hepworth_becky
18 July 2018 20:15
Don’t forget the #WeCYPNs https://twitter.com/mrsrb14/status/1019661149602709505
@WeCYPnurses
18 July 2018 20:15
@Jenna_Spry Glad you could make it Jenna #WeCYPNs
@Csage110
18 July 2018 20:16
@hepworth_becky @WeCYPnurses Learning from others is really valuable #everychildisdifferent #wecypns
@LucyAlexandria
18 July 2018 20:17
RT @Csage110: @hepworth_becky @WeCYPnurses Learning from others is really valuable #everychildisdifferent #wecypns
@WeCYPnurses
18 July 2018 20:18
#wecypns https://twitter.com/Stacys_mom_/status/1019662587775082497
@hepworth_becky
18 July 2018 20:18
@Csage110 @WeCYPnurses Every family is different and every situation is absolutely individual. #WeCYPns
@owen_theowen
18 July 2018 20:18
@WeCYPnurses #wecypns not officially in pre reg, might have touched on it, however if you think about it many skill… https://t.co/nlfWuPvzuN
@4AdsthePoet
18 July 2018 20:19
RT @hepworth_becky: @Csage110 @WeCYPnurses Every family is different and every situation is absolutely individual. #WeCYPns
@WeCYPnurses
18 July 2018 20:19
RT @hepworth_becky: @Csage110 @WeCYPnurses Every family is different and every situation is absolutely individual. #WeCYPns
@hepworth_becky
18 July 2018 20:19
@MrsRB14 Search up #WeCYPNs and you can then see the conversation. Well done for trying! ??
@nguyenbryan2016
18 July 2018 20:19
@LucyAlexandria @SachaLG @WeCYPnurses In my opinion, Lucy had a good answer #WeCYPns thanks for willing to share it! -:)
@SachaLG
18 July 2018 20:20
@LucyAlexandria @WeCYPnurses Would you have liked someone to explain a bit more? #wecypns
@WeCYPnurses
18 July 2018 20:22
next question #wecypns https://t.co/e7MZTwlI1s
@4AdsthePoet
18 July 2018 20:23
RT @WeCYPnurses: next question #wecypns https://t.co/e7MZTwlI1s
@cdodd09
18 July 2018 20:23
@WeCYPnurses Wonder how much ‘training’ drs get and there’s certainly a big lack of paediatric palliative care doctors #wecypns
@WeCYPnurses
18 July 2018 20:24
RT @SachaLG: @LucyAlexandria @WeCYPnurses Would you have liked someone to explain a bit more? #wecypns
@WeCYPnurses
18 July 2018 20:24
RT @cdodd09: @WeCYPnurses Wonder how much ‘training’ drs get and there’s certainly a big lack of paediatric palliative care doctors #wecypns
@WeCYPnurses
18 July 2018 20:25
exactly 1st hand experience always more powerful #wecypns https://twitter.com/hepworth_becky/status/1019664048005238784
@LivingwithLen5
18 July 2018 20:26
@WeCYPnurses #wecypns
@WeCYPnurses
18 July 2018 20:26
I think sometimes HCP are almost scared to 'tell the truth' almost like it's a failure on their part? #wecypns https://twitter.com/SachaLG/status/1019664268558520322
@hepworth_becky
18 July 2018 20:26
@WeCYPnurses We use the http://cypacp.uk/ #wecypns https://t.co/PXuGJVaXwb
@kwelsh1
18 July 2018 20:26
@WeCYPnurses @4AdsthePoet #wecypns Thought I’d share my experience via my blog that I posted today. https://katywelsh473383320.wordpress.com/2018/07/18/24-7-a-walk-in-my-shoes-caring-for-a-child-with-complex-needs/
@MrsRB14
18 July 2018 20:27
@WeCYPnurses #wecypns yes we have specific ACP documentation and paperwork (not been at work since January so can't… https://twitter.com/i/web/status/1019664907934011395
@hepworth_becky
18 July 2018 20:27
@cdodd09 @WeCYPnurses We have a lovely one! @naomiandjack but she is spread thinly across a big area #WeCYPNs
@LucyAlexandria
18 July 2018 20:27
RT @cdodd09: @WeCYPnurses Wonder how much ‘training’ drs get and there’s certainly a big lack of paediatric palliative care doctors #wecypns
@WeCYPnurses
18 July 2018 20:27
Some are now adding ReSPECT into the ACPS #wecypns https://t.co/zNvVBtkto1 https://t.co/A2QdfejH8I
@LucyAlexandria
18 July 2018 20:27
RT @WeCYPnurses: exactly 1st hand experience always more powerful #wecypns https://t.co/HhHrtQdZkQ
@WeCYPnurses
18 July 2018 20:28
anyone else experienced this? #wecypns https://t.co/iTcwjakBUZ
@WeCYPnurses
18 July 2018 20:29
That's shocking Nikki #wecypns https://t.co/tVKbV9jWTs
@LivingwithLen5
18 July 2018 20:29
@WeCYPnurses I always found hcp’s preferred to prepare us for worst case scenarios ???? #wecypns
@WeCYPnurses
18 July 2018 20:29
Thanks for sharing Katy #wecypns https://twitter.com/kwelsh1/status/1019664844239360006
@WeCYPnurses
18 July 2018 20:29
RT @MrsRB14: @WeCYPnurses #wecypns yes we have specific ACP documentation and paperwork (not been at work since January so can't comment on…
@hepworth_becky
18 July 2018 20:30
@WeCYPnurses Will have to have a read of this. Looks interesting #WeCYPns
@4AdsthePoet
18 July 2018 20:30
@WeCYPnurses We definitely noticed ‘HCP’ tend to avoid conversations when times are difficult #wecypns
@hepworth_becky
18 July 2018 20:32
@LivingwithLen5 @WeCYPnurses Why was that Nikki? #wecypns lack of support available?
@WeCYPnurses
18 July 2018 20:33
got a question about transition in a thanks Lucy min #wecypns https://twitter.com/LucyAlexandria/status/1019665616515620864
@owen_theowen
18 July 2018 20:33
What she said (she’s the boss) ?? #wecypns https://twitter.com/hepworth_becky/status/1019664755374657536
@SachaLG
18 July 2018 20:34
@WeCYPnurses That is absolutely what I've mostly heard from parents and what must change. #wecypns To be fair my bi… https://twitter.com/i/web/status/1019666630639542273
@WeCYPnurses
18 July 2018 20:34
Definitely many more families need ACP than have them how can we improve this? #wecypns https://twitter.com/SachaLG/status/1019666170629296128
@LucyAlexandria
18 July 2018 20:34
RT @hepworth_becky: @WeCYPnurses We use the http://cypacp.uk/ #wecypns https://t.co/PXuGJVaXwb
@LucyAlexandria
18 July 2018 20:34
RT @kwelsh1: @WeCYPnurses @4AdsthePoet #wecypns Thought I’d share my experience via my blog that I posted today. https://katywelsh473383320.wordpress.com/2018/07/18/24-7-a-walk-in-my-shoes-caring-for-a-child-with-complex-needs/
@hepworth_becky
18 July 2018 20:34
@owen_theowen Don’t forget it! #WeCYPns
@LucyAlexandria
18 July 2018 20:35
RT @4AdsthePoet: @WeCYPnurses We definitely noticed ‘HCP’ tend to avoid conversations when times are difficult #wecypns
@WeCYPnurses
18 July 2018 20:35
@owen_theowen don't argue with the boss! #wecypns
@LivingwithLen5
18 July 2018 20:35
@SachaLG @Stacys_mom_ @WeCYPnurses We had conversations, many of them. But nothing in writing ???? #wecypns
@LucyAlexandria
18 July 2018 20:35
RT @SachaLG: @WeCYPnurses That is absolutely what I've mostly heard from parents and what must change. #wecypns To be fair my biggest fight…
@WeCYPnurses
18 July 2018 20:36
RT @SachaLG: @WeCYPnurses That is absolutely what I've mostly heard from parents and what must change. #wecypns To be fair my biggest fight…
@WeCYPnurses
18 July 2018 20:37
next question #wecypns https://t.co/YXiGRda4z4
@LivingwithLen5
18 July 2018 20:37
@SachaLG @Stacys_mom_ @WeCYPnurses I haven’t come across many children with an ACP... ???? #wecypns
@hepworth_becky
18 July 2018 20:38
#WeCYPNs https://twitter.com/stacys_mom_/status/1019667026183360512
@LivingwithLen5
18 July 2018 20:38
@WeCYPnurses Yes in our area - hospice, CCHC and CCN #wecypns
@WeCYPnurses
18 July 2018 20:40
RT @LivingwithLen5: @WeCYPnurses Yes in our area - hospice, CCHC and CCN #wecypns
@cdodd09
18 July 2018 20:41
@WeCYPnurses Unfortunately relies on good will of #weccns to provide 24/7 cover when required #WeCYPNs
@WeCYPnurses
18 July 2018 20:41
RT @cdodd09: @WeCYPnurses Unfortunately relies on good will of #weccns to provide 24/7 cover when required #WeCYPNs
@Csage110
18 July 2018 20:43
@WeCYPnurses We share this with a local hospice- works really well #weCYPNs
@4AdsthePoet
18 July 2018 20:44
#WeCYPNs in my PhD research found resistance to #ACP from medics as misunderstood as #DNRs. Education needed as to fact individual to CYP
@Csage110
18 July 2018 20:44
@hepworth_becky @WeCYPnurses Same in our area #weCYPNs
@WeCYPnurses
18 July 2018 20:45
Even we forget #wecypns sometimes https://twitter.com/wecypnurses/status/1019669077705584646
@LucyAlexandria
18 July 2018 20:45
RT @4AdsthePoet: #WeCYPNs in my PhD research found resistance to #ACP from medics as misunderstood as #DNRs. Education needed as to fact in…
@WeCYPnurses
18 July 2018 20:45
@LucyAlexandria has touched on some of this already #wecypns https://twitter.com/WeCYPnurses/status/1019669418496978945
@4AdsthePoet
18 July 2018 20:46
#WeCYPNs Q3 in our area no. #NICE found it very patchy but recommended should be available.
@Csage110
18 July 2018 20:46
@LucyAlexandria Same for children in our area they only get 24hour on-call support when imminent EOL not for palliative #weCYPNs
@hepworth_becky
18 July 2018 20:46
@WeCYPnurses Tut tut @cdodd09 Naughty step for you!! #weCYPNs
@4AdsthePoet
18 July 2018 20:48
#WeCYPNs Q4 our area no. Again very patchy but so important.
@cdodd09
18 July 2018 20:48
@WeCYPnurses transition very much a grey I feel, some services go to 16yrs some 18yrs some children's hospices now going past 18yrs #wecypns
@LucyAlexandria
18 July 2018 20:49
RT @4AdsthePoet: #WeCYPNs Q3 in our area no. #NICE found it very patchy but recommended should be available.
@WeCYPnurses
18 July 2018 20:49
That's excellent Becky everywhere should have one #wecypns https://twitter.com/hepworth_becky/status/1019670205067399169
@DrUmeshPrabhu
18 July 2018 20:50
RT @4AdsthePoet: #WeCYPNs Q4 our area no. Again very patchy but so important.
@LivingwithLen5
18 July 2018 20:50
@4AdsthePoet Wow, that mistake could of had awful consequences #wecypns
@WeCYPnurses
18 July 2018 20:50
Time's running out last question #WeCYPNs https://t.co/DyJd4Lsw4j
@4AdsthePoet
18 July 2018 20:50
@LucyAlexandria #wecypns I agree! Several consultants told me they fear their patients having #ACPs because colleag… https://twitter.com/i/web/status/1019670872485974016
@LucyAlexandria
18 July 2018 20:51
RT @4AdsthePoet: @LucyAlexandria #wecypns I agree! Several consultants told me they fear their patients having #ACPs because colleagues esp…
@owen_theowen
18 July 2018 20:51
@WeCYPnurses As long as she signs my AoP portfolio I’ll agree with everything @hepworth_becky says (ish) #wecypns
@WeCYPnurses
18 July 2018 20:51
Great piece from @LucyAlexandria here https://digitallegacyassociation.org/lucy-watts-social-media-will/ #wecypns https://twitter.com/WeCYPnurses/status/1019670835873964033
@hepworth_becky
18 July 2018 20:52
@WeCYPnurses We are lucky that @MountbattenIW is so forward thinking #WeCYPNs
@SachaLG
18 July 2018 20:52
@Csage110 @WeCYPnurses @LucyAlexandria Just bonkers isn't it? Would prevent so many admissions to acute care, surely? #wecypns
@MountbattenIW
18 July 2018 20:52
RT @hepworth_becky: @WeCYPnurses We are lucky that @MountbattenIW is so forward thinking #WeCYPNs
@4AdsthePoet
18 July 2018 20:52
#WeCYPNs smiling at the thought of a #digital legacy http://intheblinkofaneyepoemsbyadambojelian.blogspot.com/?m=1
@Csage110
18 July 2018 20:53
@SachaLG @WeCYPnurses @LucyAlexandria I’m not sure ... in what way? #weCYPNs
@Jenna_Spry
18 July 2018 20:53
@4AdsthePoet @LucyAlexandria #WeCYPNs ACPS in West Midlands had good implementation phase & I like to think PICU we… https://twitter.com/i/web/status/1019671597366595587
@LivingwithLen5
18 July 2018 20:53
@SachaLG @Csage110 @WeCYPnurses @LucyAlexandria I think so #wecypns
@WeCYPnurses
18 July 2018 20:53
https://digitallegacyassociation.org/home/news/ #wecypns https://twitter.com/MrsRB14/status/1019671453170618368
@hepworth_becky
18 July 2018 20:55
@MrsRB14 @WeCYPnurses Me too @MrsRB14 ! #wecypns
@WeCYPnurses
18 July 2018 20:56
We've covered so much and feel like this chat could last much longer Final thoughts for the last 5 minutes? #wecypns
@LucyAlexandria
18 July 2018 20:56
RT @4AdsthePoet: #WeCYPNs smiling at the thought of a #digital legacy http://intheblinkofaneyepoemsbyadambojelian.blogspot.com/?m=1
@4AdsthePoet
18 July 2018 20:57
#WeCYPNs can I share thisto ensure everyone is familar with the NICE guidance on #EOLC for ICYP https://www.nice.org.uk/guidance/ng61
@sharonjones67
18 July 2018 20:57
@WeCYPnurses ...and no - not heard of digital legacy #Wecypns
@Csage110
18 July 2018 20:57
@LucyAlexandria @SachaLG @WeCYPnurses That must be very frustrating, do your local team not do IVs at home? #weCYPNs
@hepworth_becky
18 July 2018 20:58
Yes!! @livingwithlen5 sums it up beautifully #weCYPNs https://twitter.com/livingwithlen5/status/1019671321733627905
@christinezoo
18 July 2018 20:58
RT @4AdsthePoet: #WeCYPNs can I share thisto ensure everyone is familar with the NICE guidance on #EOLC for ICYP https://www.nice.org.uk/guidance/ng61
@WeCYPnurses
18 July 2018 20:59
Thanks Zoe #wecypns https://twitter.com/4AdsthePoet/status/1019672485174931457




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