#WhyWeDoResearch - Friday 17th May 2019 12pm (GMT Standard Time) #WhyWeDoResearch 19 A patient & researcher walked into a bar

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This chat is guest hosted by @SDenegri

The #WhyWeDoResearch tweetfest runs from May 13th to May 24th - this discussion is on "A patient and a researcher walked into a bar ... funny things that happened to me on the way to involvement" and everyone is welcome to take part. 





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 #WhyWeDoResearch transcript

 
@CLAHRC_N_Thames
17 May 2019 12:00
RT @SDenegri: Only 15 minutes to go until today's first #WhyWeDoResearch tweetchat at 12pm - ‘A patient and a researcher walked into a bar.…
@ClaireW_UK
17 May 2019 12:00
@SDenegri Joining for as long as possible from a walk in centre waiting room... #whywedoresearch
@SDenegri
17 May 2019 12:00
Hi Everyone and welcome to today's first #WhyWeDoResearch tweetchat entitled ‘A patient and a researcher walked int… https://twitter.com/i/web/status/1129340950587858945
@datadrivencare
17 May 2019 12:01
RT @STARTSchools: #ICTD2019 Celebrating #randomisedtrials today with our young #trialists @n_gnursing #whyWeDoResearch @hrbtmrn https://t.c…
@lynn_laidlaw
17 May 2019 12:01
RT @SDenegri: Hi Everyone and welcome to today's first #WhyWeDoResearch tweetchat entitled ‘A patient and a researcher walked into a bar...…
@datadrivencare
17 May 2019 12:01
RT @SDenegri: Only 15 minutes to go until today's first #WhyWeDoResearch tweetchat at 12pm - ‘A patient and a researcher walked into a bar.…
@datadrivencare
17 May 2019 12:01
RT @ClaireW_UK: ?15 MINUTE WARNING? Next tweetchat alert... #WhyWeDoResearch https://twitter.com/SDenegri/status/1129337141815861248
@datadrivencare
17 May 2019 12:01
RT @WeNurses: Starting in 10 mins a #WhyWeDoResearch tweetchat with a rather interesting title: A patient & researcher walked into a bar -…
@datadrivencare
17 May 2019 12:01
RT @CLAHRC_WM: Real energy here @uhbtrust for the research showcase event showing #whywedoresearch. We’re here today showing why it’s impor…
@datadrivencare
17 May 2019 12:01
RT @SDenegri: Hi Everyone and welcome to today's first #WhyWeDoResearch tweetchat entitled ‘A patient and a researcher walked into a bar...…
@JPUHResearch
17 May 2019 12:01
Hi ?????? #WhyWeDoResearch
@JPUHResearch
17 May 2019 12:01
RT @SDenegri: Hi Everyone and welcome to today's first #WhyWeDoResearch tweetchat entitled ‘A patient and a researcher walked into a bar...…
@lynn_laidlaw
17 May 2019 12:02
@ClaireW_UK @SDenegri That’s commitment to the #WhyWeDoResearch cause!
@JPUHResearch
17 May 2019 12:03
RT @lynn_laidlaw: @ClaireW_UK @SDenegri That’s commitment to the #WhyWeDoResearch cause!
@DerekCStewart
17 May 2019 12:03
RT @SDenegri: Hi Everyone and welcome to today's first #WhyWeDoResearch tweetchat entitled ‘A patient and a researcher walked into a bar...…
@lynn_laidlaw
17 May 2019 12:03
@SDenegri ?? Looking forward to the chat. #WhyWeDoResearch
@Sillysally1979
17 May 2019 12:03
RT @SDenegri: Hi Everyone and welcome to today's first #WhyWeDoResearch tweetchat entitled ‘A patient and a researcher walked into a bar...…
@JPUHResearch
17 May 2019 12:04
RT @lynn_laidlaw: @SDenegri ?? Looking forward to the chat. #WhyWeDoResearch
@Res4Me
17 May 2019 12:04
Happy to be able to make this one. Janelle, founder of @Res4Me tweeting from Aus, keen to encourage more #PPI here. #WhyWeDoResearch
@ParamedicHelen
17 May 2019 12:04
@JPUHResearch Hi Simon, Helen here from @JPUHResearch looking forward to the chat ?? #WhyWeDoResearch
@JPUHResearch
17 May 2019 12:05
RT @ParamedicHelen: @JPUHResearch Hi Simon, Helen here from @JPUHResearch looking forward to the chat ?? #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 12:05
@Res4Me Hi Janelle. #WhyWeDoResearch
@Res4Me
17 May 2019 12:05
@SDenegri ?? #WhyWeDoResearch
@JPUHResearch
17 May 2019 12:05
Hello, what time is it in #Australia ? #WhyWeDoResearch ??????
@SDenegri
17 May 2019 12:06
Please use the #WhyWeDoResearch hashtag, try to remember to answer Q1 with A1, be polite, RT and share with others and enjoy
@Res4Me
17 May 2019 12:06
@lynn_laidlaw G’Day Lynn!#WhyWeDoResearch
@gillyminn
17 May 2019 12:06
@SDenegri What if you're a patient AND a researcher? #WhyWeDoResearch Evening all! ?? https://t.co/1ZSpRczfXB
@EmmaYhnell
17 May 2019 12:06
@SDenegri Sounds great to me! Emma here from Cardiff, sorry for being a little late to the party #WhyWeDoResearch
@SusanCorr1
17 May 2019 12:06
RT @BMJPatientEd: #WhyWeDoResearch —raising research awareness and opportunities for patients, public, and staff @ClaireW_UK @JPUHResearch…
@Res4Me
17 May 2019 12:07
@JPUHResearch 9pm #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 12:07
@SDenegri Sounds great, make mine a flavoured gin please. ?? #WhyWeDoResearch
@gillyminn
17 May 2019 12:07
@SDenegri What if you're a patient AND a researcher? #WhyWeDoResearch Evening all! ?? https://t.co/gy53PUlIQp
@ParamedicHelen
17 May 2019 12:07
@SDenegri Got it ?? #WhyWeDoResearch
@rheumpatient
17 May 2019 12:07
@SDenegri Love the name of the bar! Not a fan of the 'Co-production' phrase but it goes well when followed by 'Arms'. #WhyWeDoResearch
@sectest9
17 May 2019 12:07
RT @AIMESHealth: Find out more about our Trustworthy Research Environment below: ??https://www.aimes.uk/news-1560?? #AIMESNews #WhyWeDoResearch…
@EmmaYhnell
17 May 2019 12:08
RT @SDenegri: Hi Everyone and welcome to today's first #WhyWeDoResearch tweetchat entitled ‘A patient and a researcher walked into a bar...…
@UnphasedLtd
17 May 2019 12:08
?? Chris here, Head of Product at Unphased - looking forward to hearing your stories! #whywedoresearch
@LillyTrials
17 May 2019 12:09
@SDenegri Hello from the US. We've learned a lot from #whywedoresearch conversations about approaches to public inv… https://twitter.com/i/web/status/1129343243479605250
@DME_Jun
17 May 2019 12:10
RT @AIMESHealth: Find out more about our Trustworthy Research Environment below: ??https://www.aimes.uk/news-1560?? #AIMESNews #WhyWeDoResearch…
@SDenegri
17 May 2019 12:10
So good to have you with us from across the water. What do you enjoy most about public involvement? #WhyWeDoResearch
@drbobphillips
17 May 2019 12:10
@SDenegri #whywedoresearch The breadth of experiences and how working with PPI outside of the Dr-Patient mode means… https://twitter.com/i/web/status/1129343497390166017
@EmmaYhnell
17 May 2019 12:11
RT @SDenegri: I'm your host for the next hour! It's Friday lunchtime. It's been a long but gr8 week. We are in the #WhyWeDoResearch bar of…
@UnphasedLtd
17 May 2019 12:11
A1: There’s always something unexpected! The public always pick up on something you’ve never considered #whywedoresearch
@tessajlrichards
17 May 2019 12:12
RT @UnphasedLtd: A1: There’s always something unexpected! The public always pick up on something you’ve never considered #whywedoresearch
@DerekCStewart
17 May 2019 12:12
@SDenegri A1 #WhyWeDoResearch #ArmsBar Learning so much more about my health, meeting other people (Patients, Carer… https://twitter.com/i/web/status/1129343967882076160
@welshflier
17 May 2019 12:13
@SDenegri A1 #whywedoresearch But the people I involve say they measure the enjoyment by the quality of coffee and… https://twitter.com/i/web/status/1129344118403084289
@SDenegri
17 May 2019 12:13
RT @DerekCStewart: @SDenegri A1 #WhyWeDoResearch #ArmsBar Learning so much more about my health, meeting other people (Patients, Carers and…
@lynn_laidlaw
17 May 2019 12:14
@welshflier @SDenegri Yes cake, so important! Should be one of the PPI standards. #WhyWeDoResearch
@SDenegri
17 May 2019 12:14
Sometimes the made up ones are the best....#WhyWeDoResearch
@rheumpatient
17 May 2019 12:15
@EmmaYhnell @SDenegri Are you sure that's not gin? #WhyWeDoResearch
@UnphasedLtd
17 May 2019 12:15
@rheumpatient @SDenegri Is there any one process that stands out as the most challenging? #WhyWeDoResearch
@SDenegri
17 May 2019 12:16
Do you think are mantra should then be 'Let us eat cake!' #WhyWeDoResearch ?
@lynn_laidlaw
17 May 2019 12:17
RT @SDenegri: Do you think are mantra should then be 'Let us eat cake!' #WhyWeDoResearch ? https://twitter.com/lynn_laidlaw/status/1129344452269621250
@LillyTrials
17 May 2019 12:17
@rheumpatient Just curious, what don't you like about the "co-production" phrase? #whywedoresearch
@carmenvillarb
17 May 2019 12:18
RT @keeling_michael: #WhyWeDoResearch #TweetFest19 day 5.. The final day of the first week of TweetFest19 See below for todays fabulous li…
@ParamedicHelen
17 May 2019 12:18
@welshflier @lynn_laidlaw @SDenegri Why are biscuits bad? #WhyWeDoResearch
@rheumpatient
17 May 2019 12:18
@welshflier @SDenegri I don't usually get ?? or ??. Maybe that's where it's going wrong for me. ?? #WhyWeDoResearch
@LillyTrials
17 May 2019 12:19
A1. We enjoy hearing about the patient experience in clinical research in the patients' own words. #whywedoresearch
@rheumpatient
17 May 2019 12:19
@EmmaYhnell @SDenegri ?? #WhyWeDoResearch
@SaraOsborne1
17 May 2019 12:22
@DerekCStewart @SDenegri Seeing @DerekCStewart post pictures of his latest coffee and flapjacks always a highlight! #WhyWeDoResearch
@SDenegri
17 May 2019 12:22
Couldn't agree more. #WhyWeDoResearch https://t.co/qvxgcJuVNf
@JBBC
17 May 2019 12:23
@welshflier @SDenegri @KayCurtin1 wrote an excellent blog on this topic! https://melanomainme.com/2018/04/26/ppi-can-patients-afford-it #whywedoresearch
@rheumpatient
17 May 2019 12:23
@LillyTrials Makes me think of the theatre - singing and dancing. #WhyWeDoResearch
@TransformUre
17 May 2019 12:24
RT @SDenegri: Hi Everyone and welcome to today's first #WhyWeDoResearch tweetchat entitled ‘A patient and a researcher walked into a bar...…
@welshflier
17 May 2019 12:24
RT @rheumpatient: @welshflier @SDenegri I don't usually get ?? or ??. Maybe that's where it's going wrong for me. ?? #WhyWeDoResearch
@rheumpatient
17 May 2019 12:25
@lynn_laidlaw @welshflier @SDenegri I've been to meetings with a bowl of fruit ??????. What's that all about??? #WhyWeDoResearch
@welshflier
17 May 2019 12:25
@rheumpatient @SDenegri I’d say that’s as good a place to start as any for unpicking why #PPI can go wrong #WhyWeDoResearch
@UltrasoundPG
17 May 2019 12:26
RT @jstjohnmatthews: Maybe of intrest to those following tonight's chat on #whywedoresearch #crowdsourcing potential in radiography educati…
@rheumpatient
17 May 2019 12:27
@EmmaYhnell @SDenegri Yay! Inspirational. #WomenInSTEM #WhyWeDoResearch
@DerekCStewart
17 May 2019 12:27
RT @rheumpatient: @welshflier @SDenegri I don't usually get ?? or ??. Maybe that's where it's going wrong for me. ?? #WhyWeDoResearch
@DerekCStewart
17 May 2019 12:27
RT @welshflier: @rheumpatient @SDenegri I’d say that’s as good a place to start as any for unpicking why #PPI can go wrong #WhyWeDoResearch
@rheumpatient
17 May 2019 12:30
@welshflier @lynn_laidlaw @SDenegri I don't like the biscuits, unless they're M & S biscuits of course ?? #WhyWeDoResearch
@SDenegri
17 May 2019 12:31
You are so right.....#WhyWeDoResearch
@SDenegri
17 May 2019 12:32
Nice pics. Are you a professional photographer? #WhyWeDoResearch
@DerekCStewart
17 May 2019 12:32
@SABPResearch Use the Rosetta Stone as guide - pictures, plain language and government (research) speak all together #WhyWeDoResearch
@rheumpatient
17 May 2019 12:34
@lynn_laidlaw @welshflier @SDenegri Have to be up in Scotland to get the good stuff! With a wee dram of whisky . #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 12:35
@rheumpatient @welshflier @SDenegri Purely medicinal I am sure. #WhyWeDoResearch
@DerekCStewart
17 May 2019 12:36
@rheumpatient @lynn_laidlaw @welshflier @SDenegri Wi some guid scones as well! #WhyWeDoResearch or #whyWeDaeIt
@DerekCStewart
17 May 2019 12:36
RT @lynn_laidlaw: @rheumpatient @welshflier @SDenegri Purely medicinal I am sure. #WhyWeDoResearch
@rheumpatient
17 May 2019 12:37
RT @JBBC: @welshflier @SDenegri @KayCurtin1 wrote an excellent blog on this topic! https://melanomainme.com/2018/04/26/ppi-can-patients-afford-it #whywedoresearch
@katecotter72
17 May 2019 12:38
RT @YPSGWMids: #WhyWeDoResearch https://t.co/yyQF8vJL2X
@receivingconsnt
17 May 2019 12:38
@SDenegri @bmj_latest This is very true and the staff feel it too #whywedoresearch
@SDenegri
17 May 2019 12:39
RT @receivingconsnt: @SDenegri @bmj_latest This is very true and the staff feel it too #whywedoresearch
@lynn_laidlaw
17 May 2019 12:39
@SLGInvolvement ?? Thank you. #WhyWeDoResearch
@SDenegri
17 May 2019 12:42
yes. Yes! YES!!!!!!!!!!!! You absolute star. #WhyWeDoResearch
@receivingconsnt
17 May 2019 12:43
Love this #WhyWeDoResearch https://t.co/tmvt36O1iz
@LillyTrials
17 May 2019 12:43
@SDenegri Could be an interesting tie-in to our chat later today about the role of digital health in research. #whywedoresearch
@SDenegri
17 May 2019 12:43
#WhyWeDoResearch https://t.co/cqPMiQZDcz
@lynn_laidlaw
17 May 2019 12:43
RT @SDenegri: yes. Yes! YES!!!!!!!!!!!! You absolute star. #WhyWeDoResearch https://t.co/jXCaPCCgZi
@rheumpatient
17 May 2019 12:44
@lynn_laidlaw Awww...thanks Lynn! ??#WhyWeDoResearch
@lynn_laidlaw
17 May 2019 12:45
@Sarah_Mc_Ca @SDenegri It’s all about people isn’t it, fabulous photos. #WhyWeDoResearch
@SDenegri
17 May 2019 12:46
That's lovely Lynn. #WhyWeDoResearch - you#ve pre-empted my Q3 that I have just posted.
@rheumpatient
17 May 2019 12:46
RT @SDenegri: yes. Yes! YES!!!!!!!!!!!! You absolute star. #WhyWeDoResearch https://twitter.com/rheumpatient/status/1129351196777603073
@DrPetra
17 May 2019 12:47
@SDenegri Q1 #WhyWeDoResearch making people laugh, signposting them to help, getting them to question everything, a… https://twitter.com/i/web/status/1129352619485536257
@Nuc69Girl
17 May 2019 12:49
RT @mcknil2: I think lots of rads dont realise thry are involved in research in some way. Perhaps we are 'selling' it wrong?#WhyWeDoResearch
@DerekCStewart
17 May 2019 12:49
RT @receivingconsnt: Love this #WhyWeDoResearch https://twitter.com/derekcstewart/status/1129345450723745792
@ClaireW_UK
17 May 2019 12:49
RT @SDenegri: That's lovely Lynn. #WhyWeDoResearch - you#ve pre-empted my Q3 that I have just posted. https://twitter.com/lynn_laidlaw/status/1129351645744291840
@Doctor_KHarris
17 May 2019 12:50
Our systematic review #paedsrocks #WhyWeDoResearch #fightcancer
@SDenegri
17 May 2019 12:51
Yes, I think we'd all like to thank #WhyWeDoResearch a million times over wouldn't we. Just amazing initiative, ama… https://twitter.com/i/web/status/1129353691843182592
@ClaireW_UK
17 May 2019 12:52
So many people I owe a bottle of champers...#WhyWeDoResearch @SDenegri @lynn_laidlaw @hotmail_kay @rheumpatient… https://twitter.com/i/web/status/1129354075278053378
@Res4Me
17 May 2019 12:52
... set me on a path eventually toward advocacy and support for #PPI back in 2005. #lifechanging #whyWeDoResearch
@lynn_laidlaw
17 May 2019 12:53
RT @ClaireW_UK: So many people I owe a bottle of champers...#WhyWeDoResearch @SDenegri @lynn_laidlaw @hotmail_kay @rheumpatient @SimonRSton…
@hotmail_kay
17 May 2019 12:53
Looking forward to catching up on today’s #whyWeDoResearch lunch time event later.
@ParamedicHelen
17 May 2019 12:53
me too- share a picture please #WhyWeDoResearch #ICTD19
@ClaireW_UK
17 May 2019 12:54
And surely goes without saying but I'm saying it anyway, every patient I've ever met #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 12:54
RT @SDenegri: Yes, I think we'd all like to thank #WhyWeDoResearch a million times over wouldn't we. Just amazing initiative, amazing peopl…
@lynn_laidlaw
17 May 2019 12:54
@rheumpatient ?? #WhyWeDoResearch
@SDenegri
17 May 2019 12:55
A great, great tweet and fabulous example of what public involvement can do. Thank you @Res4Me #WhyWeDoResearch
@Res4Me
17 May 2019 12:56
.... and then of course, hundreds of people in the journey ever since. #WhyWeDoResearch
@gillyminn
17 May 2019 12:56
RT @SDenegri: A great, great tweet and fabulous example of what public involvement can do. Thank you @Res4Me #WhyWeDoResearch https://t.co/…
@SDenegri
17 May 2019 12:56
RT @ClaireW_UK: And surely goes without saying but I'm saying it anyway, every patient I've ever met #WhyWeDoResearch https://t.co/9To1CPP3…
@linda_porter14
17 May 2019 12:57
RT @c_stich2: Please remember the @c_stich2 trial #WhyWeDoResearch . Thank you to all the sites taking part. Keep pulling together! https:/…
@DerekCStewart
17 May 2019 12:57
@SaraOsborne1 @SDenegri @Drakesyard @BewickCarol @MaggieG50 And the learning is mutual #WhyWeDoResearch
@Res4Me
17 May 2019 12:57
@SDenegri Once bitten, there is NO turning back. It’s only looking forward, and learning together #PPI #WhyWeDoResearch
@LillyTrials
17 May 2019 12:59
Hear! Hear! #whywedoresearch @ClaireW_UK ??
@EmmaYhnell
17 May 2019 12:59
@SDenegri Absolutely not ??????but thanks I shall take that as a compliment #WhyWeDoResearch
@JPUHResearch
17 May 2019 12:59
RT @SDenegri: Yes, I think we'd all like to thank #WhyWeDoResearch a million times over wouldn't we. Just amazing initiative, amazing peopl…




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