#WhyWeDoResearch - Friday 17th May 2019 3pm (GMT Standard Time) #WhyWeDoResearch 19 - Digital health & research

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This chat is guest hosted by @LillyTrials

The #WhyWeDoResearch tweetfest runs from May 13th to May 24th - this discussion is on "Digital health & research" and everyone is welcome to take part. 





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 #WhyWeDoResearch transcript

 
@LillyTrials
17 May 2019 15:01
Hi #whywedoresearch friends! Welcome to our chat about the role of digital health in clinical trials, cohosted with… https://twitter.com/i/web/status/1129386546472394752
@PRIMECentre
17 May 2019 15:01
RT @WeNurses: The next #WhyWeDoResearch Tweetfest Tweetchat starts in 5 minutes Digital health & research .... join in from 3pm https://t…
@LillyTrials
17 May 2019 15:03
??Tips: Don't forget to include the #whywedoresearch hashtag in all your tweets during the discussion. Also, please… https://twitter.com/i/web/status/1129386852866248704
@lynn_laidlaw
17 May 2019 15:03
Hi, I’m Lynn, have a rare disease and joining you from Scotland #WhyWeDoResearch
@DerekCStewart
17 May 2019 15:03
RT @SDenegri: Oh wow, this is a bit cool. Thanks Claire. #WhyWeDoResearch https://twitter.com/ClaireW_UK/status/1129363982026969088
@DerekCStewart
17 May 2019 15:03
RT @LillyTrials: Hi #whywedoresearch friends! Welcome to our chat about the role of digital health in clinical trials, cohosted with @Unpha…
@lynn_laidlaw
17 May 2019 15:03
@UnphasedLtd @LillyTrials ?? #WhyWeDoResearch
@DerekCStewart
17 May 2019 15:04
RT @AnneMckenzieAM: The Strep A Team tell us their reasons for #WhyWeDoResearch to promote International Clinical Trials Day on Monday - t…
@DerekCStewart
17 May 2019 15:04
RT @WeNurses: The next #WhyWeDoResearch Tweetfest Tweetchat starts in 5 minutes Digital health & research .... join in from 3pm https://t…
@datadrivencare
17 May 2019 15:04
RT @PwSiobhan: Calling all #NIHRALP get involved in the conversations via #WhyWeDoResearch tweet fest happening right now. Loads of differe…
@datadrivencare
17 May 2019 15:04
RT @WeNurses: The next #WhyWeDoResearch Tweetfest Tweetchat starts in 5 minutes Digital health & research .... join in from 3pm https://t…
@datadrivencare
17 May 2019 15:04
RT @AnneMckenzieAM: The Strep A Team tell us their reasons for #WhyWeDoResearch to promote International Clinical Trials Day on Monday - t…
@datadrivencare
17 May 2019 15:04
RT @SDenegri: Oh wow, this is a bit cool. Thanks Claire. #WhyWeDoResearch https://twitter.com/ClaireW_UK/status/1129363982026969088
@datadrivencare
17 May 2019 15:05
RT @LillyTrials: Hi #whywedoresearch friends! Welcome to our chat about the role of digital health in clinical trials, cohosted with @Unpha…
@datadrivencare
17 May 2019 15:05
RT @LillyTrials: ??Tips: Don't forget to include the #whywedoresearch hashtag in all your tweets during the discussion. Also, please use A1…
@datadrivencare
17 May 2019 15:05
RT @lynn_laidlaw: Hi, I’m Lynn, have a rare disease and joining you from Scotland #WhyWeDoResearch https://twitter.com/lillytrials/status/1129386546472394752
@ShuUltrasound
17 May 2019 15:05
RT @kimbomeek: Hello tweet peeps. Anyone who missed the #WhyWeDoResearch Radiography takeover earlier (or anyone who would like to look at…
@LillyTrials
17 May 2019 15:06
Let's get started! Q1: "Digital health" is a broad term. How do you define it? #whywedoresearch https://t.co/dZh1UDIxVP
@LillyTrials
17 May 2019 15:06
@lynn_laidlaw Welcome! Great to see you again. #whywedoresearch
@rheumpatient
17 May 2019 15:06
Living in London with RA. Dabble in research and service improvement. #WhyWeDoResearch
@UnphasedLtd
17 May 2019 15:06
@javararesearch @LillyTrials Hi Javara ?? thanks for joining #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 15:07
@LillyTrials You too #WhyWeDoResearch
@rheumpatient
17 May 2019 15:07
RT @WeNurses: There is lots and lots and lots going on this week as part of the #WhyWeDoResearch Tweetfest .... and you don't have to be a…
@womenofteal
17 May 2019 15:08
RT @LillyTrials: Let's get started! Q1: "Digital health" is a broad term. How do you define it? #whywedoresearch https://t.co/dZh1UDIxVP
@LillyTrials
17 May 2019 15:10
@javararesearch Hi! Thanks for joining. What does IRO stand for? #whywedoresearch
@LillyTrials
17 May 2019 15:10
@womenofteal Great to see you! #whywedoresearch
@LillyTrials
17 May 2019 15:10
@rheumpatient Thanks for joining! #whywedoresearch
@lynn_laidlaw
17 May 2019 15:11
@javararesearch Ok, what does that actually mean in practice though? #WhyWeDoResearch
@UnphasedLtd
17 May 2019 15:12
@javararesearch Love the use of the word ‘empower’ in your answer. It’s exactly what technology should be used for. #WhyWeDoResearch
@UnphasedLtd
17 May 2019 15:13
@lynn_laidlaw @LillyTrials Really support this view, technology should add and support instead of replace #WhyWeDoResearch
@DerekCStewart
17 May 2019 15:14
RT @LillyTrials: Let's get started! Q1: "Digital health" is a broad term. How do you define it? #whywedoresearch https://t.co/dZh1UDIxVP
@DerekCStewart
17 May 2019 15:15
RT @rheumpatient: Living in London with RA. Dabble in research and service improvement. #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 15:15
@UnphasedLtd @LillyTrials Absolutely, patients should have control over that process too. Do it with us not for us #WhyWeDoResearch
@LillyTrials
17 May 2019 15:16
@UnphasedLtd We agree! This is especially true when it comes to the human connection in clinical research. #whywedoresearch
@womenofteal
17 May 2019 15:16
RT @LillyTrials: Moving on to Q2: Have you seen examples of #digitalhealth approaches being used in clinical research? #whywedoresearch htt…
@UnphasedLtd
17 May 2019 15:16
@vascuk Hi John, thanks for joining! #WhyWeDoResearch
@LillyTrials
17 May 2019 15:17
@vascuk Welcome and Thanks for that perspective. It's not one that we particularly thought of but is a great point. #whywedoresearch
@lynn_laidlaw
17 May 2019 15:17
@LillyTrials A2 Lots and lots and lots of apps! Not always helpful, useful and many not developed with patient input. #WhyWeDoResearch
@UnphasedLtd
17 May 2019 15:18
Q2. Can you share examples of digital health approaches used in clinical research? #WhyWeDoResearch
@UnphasedLtd
17 May 2019 15:19
@DerekCStewart @LillyTrials Hi Derek ?? good to have you here again! #WhyWeDoResearch
@UnphasedLtd
17 May 2019 15:21
"Ask me if I'm empowered, don't tell me I am" - words to live by from @lynn_laidlaw #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 15:21
@rheumpatient @LillyTrials Great point, scary thought isn’t it. And potentially s complete waste of resources. #WhyWeDoResearch
@DerekCStewart
17 May 2019 15:22
@jacknunn @LillyTrials Different ‘digits’, @jacknunn No need to tell us more #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 15:22
@UnphasedLtd ?? #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 15:22
RT @UnphasedLtd: "Ask me if I'm empowered, don't tell me I am" - words to live by from @lynn_laidlaw #WhyWeDoResearch https://t.co/X6js2C8v…
@UnphasedLtd
17 May 2019 15:22
@WeAreSRUK @isansys Great definition, would you include improving the quality of care within ‘Digital Health’ #WhyWeDoResearch
@LillyTrials
17 May 2019 15:22
@lynn_laidlaw Yes—apps are a hot topic right now! What was the purpose of the apps that you have experience with? #whywedoresearch
@rheumpatient
17 May 2019 15:22
@lynn_laidlaw @LillyTrials I'm sure he has a vested interest in all this tech. #WhyWeDoResearch
@SABPResearch
17 May 2019 15:23
@LillyTrials A1: New technologies improving practice to ensure we give our patients the best possible care #WhyWeDoResearch
@LillyTrials
17 May 2019 15:23
A2. Tweet chats—like #whywedoresearch—are a great example of using digital health to build bridges in clinical rese… https://twitter.com/i/web/status/1129392060295991298
@lynn_laidlaw
17 May 2019 15:25
@LillyTrials Mainly when lay reviewing grant applications. Any I have tried myself have been disappointing so I gave up #WhyWeDoResearch
@btrfly12
17 May 2019 15:25
RT @LillyTrials: A2. Tweet chats—like #whywedoresearch—are a great example of using digital health to build bridges in clinical research. D…
@rheumpatient
17 May 2019 15:26
@LillyTrials Sometimes do #patientchat. #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 15:26
@UnphasedLtd @LillyTrials Yes, make sure you are meeting an actual patient need not what you perceive as a need. #WhyWeDoResearch
@LillyTrials
17 May 2019 15:26
Time for Q3! Do you think there are any barriers to implementing technology in clinical research? #whywedoresearch https://t.co/6XbOqH9ymV
@negronjb
17 May 2019 15:27
RT @UnphasedLtd: @lynn_laidlaw @LillyTrials Really support this view, technology should add and support instead of replace #WhyWeDoResearch
@vascuk
17 May 2019 15:28
UKIVAS Registry #WhyWeDoResearch Q2
@UnphasedLtd
17 May 2019 15:28
Q3. Have you seen any barriers? #WhyWeDoResearch
@LillyTrials
17 May 2019 15:28
@womenofteal Excellent suggestion! #whywedoresearch
@LillyTrials
17 May 2019 15:28
@lynn_laidlaw Precisely why PPI and codesign approaches are so important in clinical research. #whywedoresearch
@Know_HG
17 May 2019 15:28
RT @CLAHRC_WM: Real energy here @uhbtrust for the research showcase event showing #whywedoresearch. We’re here today showing why it’s impor…
@IACRN
17 May 2019 15:29
RT @SDenegri: Yes, I think we'd all like to thank #WhyWeDoResearch a million times over wouldn't we. Just amazing initiative, amazing peopl…
@vascuk
17 May 2019 15:30
NCARDRs #WhyWeDoResearch Q2
@WeNurses
17 May 2019 15:30
Patient related outcome measures - #WhyWeDoResearch Tweetchat with @lynn_laidlaw @EmmaYhnell starting at 4pm .... e… https://twitter.com/i/web/status/1129393740358017025
@DerekCStewart
17 May 2019 15:32
@DrAmirKhanGP Your Mum was merely asking that you learn to use evidence that is based on quality research to assess claims. #whywedoresearch
@lynn_laidlaw
17 May 2019 15:33
@UnphasedLtd Do we assume that everyone can “ do “ digital? #WhyWeDoResearch
@rheumpatient
17 May 2019 15:34
@SABPResearch @LillyTrials @TIHM_dementia Has it reduced admissions? Do patients and their families like it? #WhyWeDoResearch
@rheumpatient
17 May 2019 15:35
@WeNurses @lynn_laidlaw @EmmaYhnell We did that on Monday I believe. #WhyWeDoResearch
@UnphasedLtd
17 May 2019 15:35
@jlewisdc Hi John ?? this is a great point. Do you have any examples of dilemmas in which technology to choose? #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 15:36
@rheumpatient @WeNurses @EmmaYhnell It was so good it deserves a re run! #whywedoresearch
@womenofteal
17 May 2019 15:36
@LillyTrials Another one - WiFi or internet access for some patients. #WhyWeDoResearch
@LillyTrials
17 May 2019 15:36
@jlewisdc Yes, so many component parts to consider. #whywedoresearch
@LillyTrials
17 May 2019 15:36
@rheumpatient That's another one of our favorites, too! #whywedoresearch
@lynn_laidlaw
17 May 2019 15:37
@jlewisdc @UnphasedLtd Great point, lots of assumptions made about tech I think. #whywedoresearch
@DrPetra
17 May 2019 15:37
#WhyWeDoResearch
@UCSD_ClinicalEd
17 May 2019 15:38
RT @WeNurses: Patient related outcome measures - #WhyWeDoResearch Tweetchat with @lynn_laidlaw @EmmaYhnell starting at 4pm .... everyone we…
@lynn_laidlaw
17 May 2019 15:40
@UnphasedLtd If it gets people thinking about inclusivity in general then that’s a good thing #whywedoresearch
@Stroppybrunette
17 May 2019 15:40
RT @lynn_laidlaw: @welshflier @SDenegri Yes cake, so important! Should be one of the PPI standards. #WhyWeDoResearch
@LillyTrials
17 May 2019 15:40
A4. Has anyone seen good examples of digital health used to connect with "hard to reach" populations? #whywedoresearch
@Stroppybrunette
17 May 2019 15:41
@welshflier @lynn_laidlaw @SDenegri Especially when they're smartprice custard creams. At least give me a chocolate hobnob #WhyWeDoResearch
@erin_michalak
17 May 2019 15:42
RT @SDenegri: Well, that's it everyone for this particular #WhyWeDoResearch tweetchat 'A patient and a carer walked into a bar...' The nex…
@lynn_laidlaw
17 May 2019 15:42
@LillyTrials Hard to reach or we couldn’t be bothered finding them? #WhyWeDoResearch
@vascuk
17 May 2019 15:43
@LillyTrials Yes the ERN #WhyWeDoResearch is all about hard to reach populations with rare diseases q4 European Reference Network
@UnphasedLtd
17 May 2019 15:43
What’s the positive role technology can play in participation? #WhyWeDoResearch
@rheumpatient
17 May 2019 15:43
RT @lynn_laidlaw: @LillyTrials Hard to reach or we couldn’t be bothered finding them? #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 15:44
Quote of the day from @Stroppybrunette, put some effort and thought into catering for Involvement. #WhyWeDoResearch
@rheumpatient
17 May 2019 15:44
@lynn_laidlaw @LillyTrials Laughing so hard I nearly fell off my chair ??????#WhyWeDoResearch
@NuriaDeArgila
17 May 2019 15:44
??Mañana a las 19h #WhyWeDoResearch con @carmenvillarb Estas son las preguntas:??
@BridgetJohnst
17 May 2019 15:46
RT @ClaireW_UK: @BridgetJohnst @LucyLew79 @RebeccaJPW can you help??? #whywedoresearch community - request for help please.. https://t.co/…
@UnphasedLtd
17 May 2019 15:46
@lynn_laidlaw @LillyTrials That one got us laughing too ?? you’ve got a point Lynn! #WhyWeDoResearch
@UnphasedLtd
17 May 2019 15:47
Q5. And our final question of the day, how might technology hinder participation? #WhyWeDoResearch
@UnphasedLtd
17 May 2019 15:48
@vascuk Thanks for joining during your busy schedule John! Have a great weekend. #WhyWeDoResearch
@benshore
17 May 2019 15:49
RT @ClaireW_UK: So many people I owe a bottle of champers...#WhyWeDoResearch @SDenegri @lynn_laidlaw @hotmail_kay @rheumpatient @SimonRSton…
@benshore
17 May 2019 15:49
RT @EmmaYhnell: Yesssssss ?????????? you are AMAZING @ClaireW_UK - a research superstar!!! #WhyWeDoResearch https://twitter.com/DerekCStewart/status/1129359185295151105
@benshore
17 May 2019 15:50
RT @ClaireW_UK: And I'd like to say the biggest public thank you to everyone in the #WhyWeDoResearch community - I may have started the cam…
@lynn_laidlaw
17 May 2019 15:50
@rheumpatient @Stroppybrunette @SDenegri @bmj_latest Wow, where was that? #WhyWeDoResearch
@benshore
17 May 2019 15:51
RT @ClaireW_UK: And surely goes without saying but I'm saying it anyway, every patient I've ever met #WhyWeDoResearch https://t.co/9To1CPP3…
@benshore
17 May 2019 15:52
RT @WeNurses: Patient related outcome measures - #WhyWeDoResearch Tweetchat with @lynn_laidlaw @EmmaYhnell starting at 4pm .... everyone we…
@benshore
17 May 2019 15:52
RT @ClaireW_UK: @receivingconsnt @SDenegri Thank you ??. Better to make an offer than not, always #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 15:53
@rheumpatient Yes, nothing about NHS IT in the UK fills us with confidence. #WhyWeDoResearch
@rheumpatient
17 May 2019 15:53
@lynn_laidlaw @Stroppybrunette @SDenegri @bmj_latest 'Twas the lovely @drjamesgalloway at @KCLImmunoMicro. #WhyWeDoResearch
@lynn_laidlaw
17 May 2019 15:54
@rheumpatient @Stroppybrunette @SDenegri @bmj_latest @drjamesgalloway @KCLImmunoMicro Tell him to get the kettle on... #whywedoresearch
@LillyTrials
17 May 2019 15:55
Hi, Melissa! #whywedoresearch
@LillyTrials
17 May 2019 15:55
@WeAreSRUK Thanks for sharing. We will take a look at this. #whywedoresearch
@lynn_laidlaw
17 May 2019 15:56
@LillyTrials If you don’t choose the tech wisely and in collaboration and assume tech makes everything better. #WhyWeDoResearch
@rheumpatient
17 May 2019 15:59
@lynn_laidlaw @Stroppybrunette @SDenegri @bmj_latest @drjamesgalloway @KCLImmunoMicro Is the whole #WhyWeDoResearch… https://twitter.com/i/web/status/1129400994452914177
@LillyTrials
17 May 2019 15:59
@womenofteal Good point. Training for the site staff and the patients may be necessary. #whywedoresearch
@lynn_laidlaw
17 May 2019 15:59
@rheumpatient Too easy to brush the harms aside. #WhyWeDoResearch
@erin_michalak
17 May 2019 15:59
RT @UnphasedLtd: Q5. And our final question of the day, how might technology hinder participation? #WhyWeDoResearch https://twitter.com/LillyTrials/status/1129397624241569792




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 Total tweets: 109
 Total reach: 394,170

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