#stomanursesaddingvalue - Wednesday 29th May 2019 8pm (GMT Standard Time) Coproduction & what matters to me

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Hosted by WeNurses using #stomanursesaddingvalue

This chat is guest hosted by @StomaCareVision

Co-production and ‘what matters to me’ are key initiatives from NHS England to change the ‘them and us’ dynamic in health and social care,coaching and empowering patients to become the experts in the management of their longterm condition and also using their insights and expertise to redesign services.

In this tweet chat we will be exploring how, as Stoma CareNurses, we empower ostomates within this framework to facilitate not only their own stoma management and quality of life with a stoma, but also inform the care and follow up services that we deliver.

    

Here are some links to background information that you may wish to take a look at:

Patients as Partners – The Kings Fund 

Good care needs to be a coproduction – Martin McShane NHS England 

Joining up ‘co-production’ and ‘patient leadership’ for a new relationship with people who use services – David McNally NHS England 

Always Events – NHS England

A co-production model – Coalition For Collaborative care

Experts of experience – Louise Watson NHS England


We will be exploring the following questions during the tweetchat:

  1. In reality, few Stoma Care Nurses have or have had a stoma. How can/do we learn from the lived experience of ostomates and how do we ensure other ostomates can learn from this experience?
  2. Promoting independence not dependancies the aim of our services and in reality it can be a difficult balance to find. What strategies or services do you use which enable your patients to be as independent as they can be?
  3. Thinking of ‘patients as partners’ changes the dynamic and traditional model of service design and delivery. How might we adopt this mindset within stoma care? 
  4. ‘What Matters to Me?” Means that services need to be responsive and flexible - if we consider younger ostomates and their different expectations about how care, information and support will be available to them, How do we signpost ostomates to the resources they want at the right time? 





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Here are some of the tweets from the discussion that resonated with us:

 



























Thank you to everyone who took part.  if you were unable to take part please do share your thoughts and responses to the questions in the comments section below: 





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 #stomanursesaddingvalue transcript

 
@AgencyNurse
29 May 2019 20:01
@StomaCareVision Hello Teresa here tweeting in #StomaNursesAddingValue ... not a stoma nurse ??
@StomaCareVision
29 May 2019 20:02
Lets get started with our first question .... have a read and share your thoughts .... #StomaNursesAddingValue https://t.co/IAYuwcW9pt
@WeNurses
29 May 2019 20:03
who fancies joining #stomanursesaddingvalue this eve? Let's put our coproduction hats on and join in, or lurk and l… https://twitter.com/i/web/status/1133811138125324290
@WeNurses
29 May 2019 20:04
Hello !! Listening in here #StomaNursesAddingValue
@gbtpo
29 May 2019 20:04
@StomaCareVision hello #StomaNursesAddingValue its Terri here https://t.co/k86Tm0nLAA
@StomaCareVision
29 May 2019 20:04
RT @AgencyNurse: @StomaCareVision Hello Teresa here tweeting in #StomaNursesAddingValue ... not a stoma nurse ??
@MsBlinn
29 May 2019 20:04
#StomaNursesAddingValue joining in. District nursing people with stomas.
@RoyLilley
29 May 2019 20:04
RT @StomaCareVision: 10 minutes until we get started - grab a cuppa and join us Calling all #StomaNursesAddingValue Tonight at 8pm a t…
@StomaCareVision
29 May 2019 20:05
For those new to tweet chatting :) Simply click on #stomanursesaddingvalue to see the chat and add… https://t.co/LjPxK07u3n
@StomaCareVision
29 May 2019 20:06
@MsBlinn welcome :) thanks for joining #StomaNursesAddingValue
@DWMNO
29 May 2019 20:06
RT @StomaCareVision: Lets get started with our first question .... have a read and share your thoughts .... #StomaNursesAddingValue https:…
@StomaCareVision
29 May 2019 20:07
@AgencyNurse thanks for joining Teresa #StomaNursesAddingValue
@AgencyNurse
29 May 2019 20:08
RT @StomaCareVision: For those new to tweet chatting :) Simply click on #stomanursesaddingvalue to see the chat and add #stomanursesaddingv…
@AgencyNurse
29 May 2019 20:08
@MsBlinn @StomaCareVision Wow that’s good to hear ... it’s so important to listen to people’s stories #StomaNursesAddingValue
@Coloplast_UK
29 May 2019 20:09
RT @StomaCareVision: Lets get started with our first question .... have a read and share your thoughts .... #StomaNursesAddingValue https:…
@StomaCareVision
29 May 2019 20:09
#StomaNursesAddingValue
@WeNurses
29 May 2019 20:09
Absolutely #StomaNursesAddingValue
@StomaCareVision
29 May 2019 20:11
So far, so good ... well done everyone .... are you ready for Question 2 ?? Here it is: #StomaNursesAddingValue https://t.co/3xjYyeY3J0
@NRCUK
29 May 2019 20:11
@RoyLilley @WeNurses as ever, simplicity strikes a chord :) #StomaNursesAddingValue
@karentomlinRN
29 May 2019 20:11
@StomaCareVision Hello, sorry I’m late! #StomaNursesAddingValue
@StomaCareVision
29 May 2019 20:11
@karentomlinRN you made it Karen, well done :) #StomaNursesAddingValue
@Coloplast_UK
29 May 2019 20:12
@MsBlinn Welcome and looking forward to sharing with you #StomaNursesAddingValue
@AgencyNurse
29 May 2019 20:12
RT @StomaCareVision: So far, so good ... well done everyone .... are you ready for Question 2 ?? Here it is: #StomaNursesAddingValue http…
@StomaCareVision
29 May 2019 20:12
#StomaNursesAddingValue
@AgencyNurse
29 May 2019 20:12
@karentomlinRN @StomaCareVision Hi Karen #StomaNursesAddingValue
@gbtpo
29 May 2019 20:14
#StomaNursesAddingValue
@gbtpo
29 May 2019 20:15
@karentomlinRN @StomaCareVision you made it Karen well done #StomaNursesAddingValue and joining the party!
@gbtpo
29 May 2019 20:16
@RoyLilley @WeNurses thanks Roy, totally agree we have so much to learn from experts by experience #StomaNursesAddingValue
@gbtpo
29 May 2019 20:16
#StomaNursesAddingValue
@SuzanneRastrick
29 May 2019 20:16
@StomaCareVision Hello #StomaNursesAddingValue ?? here in my lived experience as an ileostomist.
@donabalafia
29 May 2019 20:17
RT @WeNurses: Join in from 8pm #StomaNursesAddingValue https://twitter.com/stomacarevision/status/1133807724381261825
@AgencyNurse
29 May 2019 20:17
Thanks Kate #StomaNursesAddingValue
@gbtpo
29 May 2019 20:17
@NRCUK @RoyLilley @WeNurses #StomaNursesAddingValue https://t.co/p2MZAu1Ydv
@AgencyNurse
29 May 2019 20:18
@MsBlinn @StomaCareVision Are there any strategies younuse to do this ?? #StomaNursesAddingValue
@RoyLilley
29 May 2019 20:18
#stomanursesaddingvalue
@RoyLilley
29 May 2019 20:19
#stomanursesaddingvalue
@StomaCareVision
29 May 2019 20:20
Question 3 is next .... what do you think ?? How do we adopt this mindset? #StomaNursesAddingValue https://t.co/PP5VdAUWWR
@RoyLilley
29 May 2019 20:21
@helenwalker123 @StomaCareVision @WeNurses #stomanursesaddingvalue the coproduction thing is interesting, it’s beco… https://twitter.com/i/web/status/1133815714396147712
@RoyLilley
29 May 2019 20:22
@Coloplast_UK #stomanursesaddingvalue I’m an interloper but it is a really interesting conversation
@WeNurses
29 May 2019 20:24
RT @RoyLilley: @Coloplast_UK #stomanursesaddingvalue I’m an interloper but it is a really interesting conversation
@RoyLilley
29 May 2019 20:24
@karentomlinRN @AgencyNurse @StomaCareVision #stomanursesaddingvalue it strikes me this is such a shock, life chang… https://t.co/hQ1NzIZ2O5
@StomaCareVision
29 May 2019 20:24
RT @RoyLilley: @helenwalker123 @StomaCareVision @WeNurses #stomanursesaddingvalue the coproduction thing is interesting, it’s become a stra…
@StomaCareVision
29 May 2019 20:24
@RoyLilley @Coloplast_UK interlope away Roy, thanks for joining : ) #StomaNursesAddingValue
@Coloplast_UK
29 May 2019 20:25
RT @gbtpo: #StomaNursesAddingValue https://twitter.com/RoyLilley/status/1133812340653211648
@RoyLilley
29 May 2019 20:25
@StomaCareVision #StomaNursesAddingValue It reminds me of that car insurance add;’quote me happy’ we are in the ter… https://twitter.com/i/web/status/1133816645741363201
@AgencyNurse
29 May 2019 20:25
It’s about really believing it and making it part of whatvwe do every day #stomanursesaddingvalue
@StomaCareVision
29 May 2019 20:26
And our final question for this evening is Question 4: How do we signpost when needed ? #StomaNursesAddingValue https://t.co/f0tmAr6tQT
@AgencyNurse
29 May 2019 20:27
Absolutely agree and it's also about taking time to discuss #StomaNursesAddingValue https://t.co/slgkEhBjiY
@RoyLilley
29 May 2019 20:27
@WeNurses #StomaNursesAddingValue I’d really like to hear what people think. I’ve abandoned the doughnut slide wher… https://t.co/LCTccSnmSc
@RoyLilley
29 May 2019 20:28
@AgencyNurse @StomaCareVision #StomaNursesAddingValue it’s in the narrative; what works for you?
@AgencyNurse
29 May 2019 20:28
@karentomlinRN @StomaCareVision Yes I do try to avoid "patient" these days and often say "the people I care for " #StomaNursesAddingValue
@AgencyNurse
29 May 2019 20:29
RT @RoyLilley: @WeNurses #StomaNursesAddingValue I’d really like to hear what people think. I’ve abandoned the doughnut slide where we wrap…
@WeNurses
29 May 2019 20:29
"what matters to me" and signposting - what are your thoughts? #StomaNursesAddingValue
@RoyLilley
29 May 2019 20:29
RT @SamanthaNurse: #StomaNursesAddingValue just completed first week on Twitter https://t.co/8V5Dpt7btB
@irenep671
29 May 2019 20:29
RT @RoyLilley: @WeNurses #StomaNursesAddingValue I’d really like to hear what people think. I’ve abandoned the doughnut slide where we wrap…
@AgencyNurse
29 May 2019 20:29
@RoyLilley @StomaCareVision Agree #StomaNursesAddingValue
@Coloplast_UK
29 May 2019 20:29
@StomaCareVision Isn’t that the only way to work - equal partners with a shared vision? #StomaNursesAddingValue and… https://twitter.com/i/web/status/1133817776056000512
@Coloplast_UK
29 May 2019 20:30
RT @StomaCareVision: Question 3 is next .... what do you think ?? How do we adopt this mindset? #StomaNursesAddingValue https://t.co/PP5V…
@NRCUK
29 May 2019 20:30
@karentomlinRN @gbtpo @RoyLilley @WeNurses totally agree!!!! #StomaNursesAddingValue Drives you bonkers, so glad "… https://twitter.com/i/web/status/1133817982289887233
@RoyLilley
29 May 2019 20:30
@karentomlinRN @StomaCareVision #StomaNursesAddingValue you are right and it have always troubled me What is the al… https://twitter.com/i/web/status/1133818023180214274
@Coloplast_UK
29 May 2019 20:31
RT @RoyLilley: @helenwalker123 @StomaCareVision @WeNurses #stomanursesaddingvalue the coproduction thing is interesting, it’s become a stra…
@WeNurses
29 May 2019 20:31
@alimully @StomaCareVision and how do we redress the balance, can we, should we? #StomaNursesAddingValue
@StomaCareVision
29 May 2019 20:32
@alimully and thanks so much for joining Alison and sharing your experience and view :) #StomaNursesAddingValue
@Coloplast_UK
29 May 2019 20:33
RT @AgencyNurse: It’s about really believing it and making it part of whatvwe do every day #stomanursesaddingvalue https://twitter.com/stomacarevision/status/1133815269812387840
@RoyLilley
29 May 2019 20:33
@StomaCareVision #StomaNursesAddingValue Good question First find out just what we can offer and means being bang u… https://twitter.com/i/web/status/1133818738262892551
@AgencyNurse
29 May 2019 20:34
@karentomlinRN @StomaCareVision We do ... As Rose by any other name ??? #StomaNursesAddingValue
@AgencyNurse
29 May 2019 20:35
@StomaCareVision Some interesting tweets shared #StomaNursesAddingValue
@AgencyNurse
29 May 2019 20:35
100% yes - we need to do more of this #StomaNursesAddingValue
@RoyLilley
29 May 2019 20:35
@WeNurses #StomaNursesAddingValue it is easy to overlook the life changing impact and shock of this procedure. Bein… https://twitter.com/i/web/status/1133819254120341505
@AgencyNurse
29 May 2019 20:36
RT @RoyLilley: @WeNurses #StomaNursesAddingValue it is easy to overlook the life changing impact and shock of this procedure. Being the kno…
@RoyLilley
29 May 2019 20:36
@AgencyNurse @karentomlinRN @StomaCareVision #StomaNursesAddingValue absolutely. Asking the question; what matters to you....??????
@AgencyNurse
29 May 2019 20:37
@alimully Indeed ... be curious ... In real spaces and in social media spaces #StomaNursesAddingValue
@AgencyNurse
29 May 2019 20:37
RT @RoyLilley: @AgencyNurse @karentomlinRN @StomaCareVision #StomaNursesAddingValue absolutely. Asking the question; what matters to you...…
@Coloplast_UK
29 May 2019 20:38
RT @StomaCareVision: And our final question for this evening is Question 4: How do we signpost when needed ? #StomaNursesAddingValue htt…
@Coloplast_UK
29 May 2019 20:38
RT @AgencyNurse: Absolutely agree and it's also about taking time to discuss #StomaNursesAddingValue https://twitter.com/roylilley/status/1133816340148625408
@RoyLilley
29 May 2019 20:39
@NatashaRolls1 #StomaNursesAddingValue complete the sentence; the good news is... You have a stoma and the good new… https://twitter.com/i/web/status/1133820145825124354
@RoyLilley
29 May 2019 20:39
RT @StomaCareVision: Well done Samantha ... keep impressing him ?? #stomanursesaddingvalue https://twitter.com/SamanthaNurse/status/1132293169373220864
@RoyLilley
29 May 2019 20:39
RT @StomaCareVision: It’s Day 2 of #StomaNursesAddingValue ... and time to explore #’s and @‘s https://t.co/Iw18BY8q9l
@Coloplast_UK
29 May 2019 20:42
@RoyLilley @karentomlinRN @StomaCareVision Ostomate or person living with a Stoma? #StomaNursesAddingValue
@RoyLilley
29 May 2019 20:42
@alimully @AgencyNurse #StomaNursesAddingValue I see this across so much of the NHS. Networking, sharing what you a… https://twitter.com/i/web/status/1133820871380996096
@Coloplast_UK
29 May 2019 20:42
RT @RoyLilley: @karentomlinRN @StomaCareVision #StomaNursesAddingValue you are right and it have always troubled me What is the alternative…
@RoyLilley
29 May 2019 20:42
@NRCUK @gbtpo @WeNurses ?????? #StomaNursesAddingValue
@StomaCareVision
29 May 2019 20:43
@SuzanneRastrick @karentomlinRN thanks for sharing Suzanne - hope your referral was of value :) #StomaNursesAddingValue
@RoyLilley
29 May 2019 20:44
@Coloplast_UK @StomaCareVision #StomaNursesAddingValue information used to cascade, vertically Now it is almost or… https://t.co/FRUm9uQGSk
@RoyLilley
29 May 2019 20:44
RT @StomaCareVision: Starting in 1 hours time !! #StomaNursesAddingValue "Coproduction & what matters to me" > https://t.co/x4ins5x0e7…
@karentomlinRN
29 May 2019 20:45
RT @RoyLilley: @Coloplast_UK @StomaCareVision #StomaNursesAddingValue information used to cascade, vertically Now it is almost organic acr…
@RoyLilley
29 May 2019 20:46
@SuzanneRastrick @karentomlinRN @StomaCareVision #StomaNursesAddingValue yes, it reminds me of the days when we sai… https://twitter.com/i/web/status/1133821898427645952
@RoyLilley
29 May 2019 20:46
RT @AgencyNurse: 100% yes - we need to do more of this #StomaNursesAddingValue https://twitter.com/coloplast_uk/status/1133818999253491719
@RoyLilley
29 May 2019 20:47
RT @AgencyNurse: Perhaps this isn't always achievable ... In which case we have to find a way to work together #StomaNursesAddingValue http…
@SuzanneRastrick
29 May 2019 20:47
@StomaCareVision @karentomlinRN It was! I’m currently trialling systematically ?? the alternative suggestions.... #stomanursesaddingvalue
@RoyLilley
29 May 2019 20:47
@WeNurses #StomaNursesAddingValue it’s not a jew answer but it’s a true one; Ask them
@SuzanneRastrick
29 May 2019 20:48
@RoyLilley @karentomlinRN @StomaCareVision Quite!! ?? #stomanursesaddingvalue
@Coloplast_UK
29 May 2019 20:49
RT @RoyLilley: @WeNurses #StomaNursesAddingValue it is easy to overlook the life changing impact and shock of this procedure. Being the kno…
@RoyLilley
29 May 2019 20:50
@alimully @WeNurses @StomaCareVision #StomaNursesAddingValue I’d there another issue about continuity of care. it i… https://twitter.com/i/web/status/1133822922928340993
@RoyLilley
29 May 2019 20:52
@Coloplast_UK @AgencyNurse #StomaNursesAddingValue It’s the only way to learn
@RoyLilley
29 May 2019 20:52
RT @Coloplast_UK: @StomaCareVision Isn’t that the only way to work - equal partners with a shared vision? #StomaNursesAddingValue and #Expe…
@RoyLilley
29 May 2019 20:55
@Coloplast_UK @StomaCareVision #StomaNursesAddingValue Well spotted. I think all of the channels have a use I like… https://t.co/FOVKL7xXGP
@RoyLilley
29 May 2019 20:55
RT @SuzanneRastrick: @StomaCareVision Hello #StomaNursesAddingValue ?? here in my lived experience as an ileostomist.




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 Total tweets: 98
 Total reach: 2,531,494

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