#WeLDNs - Tuesday 31st March 2020 8:30pm (GMT Standard Time) Supporting each other through Coronavirus

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Hosted by WeLDnurses using #WeLDNs

The current COVID-19 global pandemic is a worrying time for us all. We are currently living in unprecedented times, and people with a Learning Disability need our support more than ever.

With government guidance changing and social distancing and shielding measures being put into place, it is important to reflect as a community and share best practice.

Over recent weeks lots of issues relating to COVID-19 and the Learning Disability population have been raised. From individuals with limited diets not being able to access the foods that they would normally eat,due to limitations in supermarkets. To the recent controversial NICE guidelines,where individuals admitted to hospital will now be assessed on admission using the clinical frailty scale. NICE have now stated: “The CFS should not be used in younger people, people with stable long term disabilities (for example,cerebral palsy), learning disabilities or autism. An individualised assessment is recommended in all cases where CFS is not appropriate.” NICE guidelines(2020). Alongside temporary changes to the Mental Health Act and adult social care, it is a worrying time for us all.

As learning disability nurses, thinking outside the box is what we do best. @WeLDNurses invite you to share your experiences of how you,and people with a learning disability are coping during this pandemic. We want to know how you are changing your working practices to adapt to the current guidance.

Here are some useful resources:

https://www.gov.uk/government/publications/covid-19-residential-care-supported-living-and-home-care-guidance/covid-19-guidance-on-residential-care-provision#if-a-resident-has-symptoms-of-covid-19

https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19

https://www.gov.uk/government/publications/covid-19-ethical-framework-for-adult-social-care/responding-to-covid-19-the-ethical-framework-for-adult-social-care

https://www.england.nhs.uk/coronavirus/wp-content/uploads/sites/52/2020/03/Managing-demand-and-capacity-across-MH-LDA-services_25-March-final.pdf

https://www.nice.org.uk/guidance/ng159

https://www.rethink.org/news-and-stories/blogs/2020/03/coronavirus-temporary-changes-to-the-mental-health-act/

https://www.bild.org.uk/wp-content/uploads/2020/03/LD-Senate-Coronavirus-resources-for-use-by-families-27.3.2020.pdf

https://www.bild.org.uk/wp-content/uploads/2020/03/LD-Senate-Coronavirus-resources-for-use-with-people-with-learning-disabilities-30.3.2020.pdf





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 Chat Summary

 

This was the first chat that @WeLDNurses had hosted about Coronavirus, and understandably a very busy chat with a lot of important points raised and a chance to gain some insight into how other people were feeling or managing similar situations.

The main concerns which came out of the tweet chat were:

  • People assuming that the lives of people with learning disabilities are not important and they do not matter – It is important that we continue to advocate for people with a learning disability. There have been concerns raised that due to the NICE guidance people with a learning disability my be denied hospital treatment.
  • How Coronavirus is being explained to people with learning disabilities, are they receiving information? – lots of links were provided for easy read information, some of which can be found on the EBP links, also use of repetition and a lot of reassurances needed to ensure patients have an understanding of why routines may have been changed at this time.
  • There is a high risk of breakdown of care provision – the care professionals are very vulnerable now, as is the rest of the general public, self-isolation in high risk groups or symptomatic carers is affecting staff numbers which is causing great pressure of supplying a service.
  • The impact that Coronavirus may have on quality of life – the rules of lock down is affecting the lives of everyone, but a person with a learning disability may not understand why they cannot go to the shop or see their family and friends.  The loss of their daily routines will undoubtedly have an adverse effect on their well being and quality of life.
  • Diagnostic overshadowing – may mean that coronavirus is not recognised.  It’s even more important now to recognise the signs that people with learning disabilities are unwell, baseline measurements are vital.  Some mentioned more regular observations, particularly taking temperatures of patients and staff daily or more often.
  • Lack of support for people with a learning disability – services are reduced, and individuals may are unable to see family as they would normally. This could have a detrimental impact on the person with a learning disability. It was mentioned how video calling is being used more. Social stories are also used to explain the reasons why people are unable to see their family.
  • Lack of support for families – with reduced services, families may not be able to access support and there may not be access to respite services. Concerns were raised about how families will cope.
  • People with learning disabilities may not be able to maintain their independence and well-being – changes in routine could be detrimental to the person’s well-being.It was mentioned that self-isolation could lead to no routine for some.
  • Staff may struggle to support at a distance – individuals may struggle with social distancing, particularly individuals who struggle with social norms.
  • There is already evidence that the learning disability population has increased health risks and the biggest cause of death is respiratory illness
  • Lack of PBS support – changes in support may make PBS plans difficult to implement which could potentially lead to behaviours which challenge, and difficulties in being able to manage these behaviours.
  • The impact there could be if there were to be a coronavirus outbreak in a care home– Concerns were raised as to how individuals would self-isolate if they were living with others.

It was also highlighted that direct payments are becoming an issue. Where people receiving direct payments for care and the care is now no longer available these individuals are struggling to find support.

There are concerns around individuals becoming anxious and distressed which could lead to an increase in sedative medication being used. This is a concern as a lot of work has been put into STOMP, which could be undone by the pandemic.

There are concerns that not all hospitals have health liaison nurses so people with a learning disability may be treated by nurses who have limited understanding and training around supporting a person with a learning disability.

Some of the positives which were highlighted were:

  • The amount of easy read material which has been produced and shared widely in a very small space of time.
  • The use of skyping etc. which has been used by community nurses and by people with learning disabilities to stay in touch with family and friends
  • Virtual hospital passports
  • Virtual meetings
  • More streamlined ways of working
  • Sharing coping strategies
  • Greater use of “in house activities”
  • Conversations around a “good death”

Although we are living in a very difficult and uncertain time, the passion of learning disability nursing has really shone through. It is important that we continue to work together to support the lives of individuals with a learning disability in these times of uncertainty.





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 #WeLDNs transcript

 
@WeLDnurses
31 March 2020 20:30
Hi everyone, A very warm welcome to tonight's chat. Lets start with a round of hello's and where are you joining us from tonight and what is your job role? #WeLDNs
@WeLDnurses
31 March 2020 20:30
RT @WelchySquelchy: @WeLDnurses Blimey am actually on time!!! #WeLDNs
@WeLDnurses
31 March 2020 20:30
@WelchySquelchy Glad you could join us Jo #WeLDNs
@powwow22
31 March 2020 20:31
@WeLDnurses Hello in fromnn surreyn3rd year student nurse @NursingKingston #WeLDNs
@chris_dlamini
31 March 2020 20:31
@WeLDnurses Hello from me. #lurking as usual because l know nothing about #COVID19 #WeLDNs
@WeLDnurses
31 March 2020 20:32
We love a lurker but if you do decide to join in don't forget to use the hashtag #WeLDNs in every tweet, and if you share any evidence or resources please use the hashtag #EBP as well.
@MASowden
31 March 2020 20:32
@WeLDnurses Hello #WeLDNs usually service manager for MH/LD but currently supporting LEDER backlog
@LastDaysoflifeR
31 March 2020 20:32
@WeLDnurses Yes yes use hashtag #WeLDNs
@florenceella
31 March 2020 20:32
@WeLDnurses Good evening! Flo here waving from Birmingham ???? I’m a staff nurse (RNLD) #WeLDNs
@paularich1977
31 March 2020 20:32
@WeLDnurses Evening from South Wales. I’m a staff nurse in an inpatient unit for people with learning disabilities who exhibit behaviours that could be described as challenging #WeLDNs
@PaulaHopes1
31 March 2020 20:32
@WeLDnurses Hi all Paula here, in West Wales with a glass of Wine! #WeLDNs
@LiamFreeman1991
31 March 2020 20:32
@WeLDnurses Hey, Liam from Birmingham #WeLDNs https://t.co/dhQ96sNNmt
@ross_6479_RNLD
31 March 2020 20:32
RT @WeLDnurses: We love a lurker but if you do decide to join in don't forget to use the hashtag #WeLDNs in every tweet, and if you share a…
@WeLDnurses
31 March 2020 20:32
RT @LastDaysoflifeR: @WeLDnurses Yes yes use hashtag #WeLDNs
@chris_dlamini
31 March 2020 20:32
@WeLDnurses #WeLDNs https://t.co/5om7Knx6v8
@PaulaHopes1
31 March 2020 20:32
RT @LastDaysoflifeR: @WeLDnurses Yes yes use hashtag #WeLDNs
@PaulaHopes1
31 March 2020 20:32
RT @MASowden: @WeLDnurses Hello #WeLDNs usually service manager for MH/LD but currently supporting LEDER backlog
@WeLDnurses
31 March 2020 20:33
@LastDaysoflifeR Good evening Stuart thanks for joining #WeLDNs
@dmarsden49
31 March 2020 20:33
@WeLDnurses Evening everyone, I'm isolated in my loft office, looking forward to tonight's #weldns chat https://t.co/I8iJcdHQxK
@Clare37240768
31 March 2020 20:33
@WeLDnurses #WeLDNs community nurse from Berkshire ????
@ross_6479_RNLD
31 March 2020 20:33
@WeLDnurses Hello #waves Ross here, community pbs nurse from up north :) #weldns
@PaulaHopes1
31 March 2020 20:33
RT @florenceella: @WeLDnurses Good evening! Flo here waving from Birmingham ???? I’m a staff nurse (RNLD) #WeLDNs
@chris_dlamini
31 March 2020 20:33
@WelchySquelchy @WeLDnurses Surprised yourself there #WeLDNs
@WeLDnurses
31 March 2020 20:33
@chris_dlamini We love it when you lurk Chris, even better when you're a noisy lurker though #WeLDNs
@chrishattoncedr
31 March 2020 20:33
@WeLDnurses Hi, I'm Chris joining from Kendal - I'm an academic working with people with learning disabilities. Will be mainly listening, hopefully. #WeLDNs
@StephanieRossLN
31 March 2020 20:33
@WeLDnurses Hi, good to join you all tonight #WeLDNs
@JoamyDavis
31 March 2020 20:33
@WeLDnurses Im jo and I’m a community learning disability nurse in @SwanseabayNHS #WeLDNs
@WeLDnurses
31 March 2020 20:34
@MASowden Thanks for joining Michelle #WeLDNs
@WelchySquelchy
31 March 2020 20:34
@WeLDnurses Hi Jo from Winchester University #WeLDNs
@SueBprof1
31 March 2020 20:34
@WeLDnurses Sue in Suffolk, useless at this so mainly lurking #WeLDNs
@RebeccaCrossle2
31 March 2020 20:34
Rebecca crossley in the house beauticians shut so rocking the tash #WeLDNs https://t.co/FBcsQlmKFi
@lynnewalsall
31 March 2020 20:34
Evening everyone Lynne with a cuppa in Walsall #weLDNs
@WeLDnurses
31 March 2020 20:34
@chrishattoncedr Hi Chris #WeLDNs
@PaulaHopes1
31 March 2020 20:34
RT @WeLDnurses: We love a lurker but if you do decide to join in don't forget to use the hashtag #WeLDNs in every tweet, and if you share a…
@chris_dlamini
31 March 2020 20:34
@WeLDnurses #backbencher #lurker #WeLDNs https://t.co/qyTfu9zVde
@NorthwayRuth
31 March 2020 20:34
Hello everyone #WeLDNs
@salsa442
31 March 2020 20:34
Hi all, Sal here waving from Leicester #WeLDNs
@WeLDnurses
31 March 2020 20:34
Don't forget the #WeLDNs hashtag Ruth. We don't want to miss your tweets tonight https://twitter.com/IechydDaBangor/status/1245071871151943680
@chris_dlamini
31 March 2020 20:35
@salsa442 My favourite person on twitter #WeLDNs
@PaulaHopes1
31 March 2020 20:35
RT @WeLDnurses: Don't forget the #WeLDNs hashtag Ruth. We don't want to miss your tweets tonight
@samabdulla
31 March 2020 20:35
@WeLDnurses Evening! Sam here, nurse lecturer in Edinburgh #WeLDNs
@WeLDnurses
31 March 2020 20:35
@CommunityLd Hi Glenn, thanks for joining, don't forget the hashtag #WeLDNs in all your tweets, we wouldn't want to miss your contributions
@helenglais
31 March 2020 20:35
@WeLDnurses Hello, I’m a speech and language therapist passionate about joint working #weldns
@PaulaHopes1
31 March 2020 20:35
RT @lynnewalsall: Evening everyone Lynne with a cuppa in Walsall #weLDNs
@WeLDnurses
31 March 2020 20:36
Question 1. What are your biggest concerns for the learning disability population? #WeLDNs
@WeLDnurses
31 March 2020 20:36
@IechydDaBangor @ImprovementCym Hi Ruth, please don't forget the hashtag #WeLDNs tonight
@_donnacoombs_
31 March 2020 20:36
@WeLDnurses evening all,???? lurking #WeLDNs
@chris_dlamini
31 March 2020 20:36
@WeLDnurses #WeLDNs https://t.co/aMg1IZsjgN
@Markliamb
31 March 2020 20:36
Hi Mark from @RightfulLives #WeLDNs
@salsa442
31 March 2020 20:36
@chris_dlamini Right back at you #WeLDNs
@PaulaHopes1
31 March 2020 20:36
@RebeccaCrossle2 Lol! #weldns the future is hairy!
@StaceyReesRNLD
31 March 2020 20:36
@WeLDnurses Hello all #WeLDNs
@ross_6479_RNLD
31 March 2020 20:36
RT @WeLDnurses: Question 1. What are your biggest concerns for the learning disability population? #WeLDNs
@RebeccaCrossle2
31 March 2020 20:36
@WeLDnurses Not knowing number who may present #weldns
@IechydDaBangor
31 March 2020 20:36
RT @WeLDnurses: Question 1. What are your biggest concerns for the learning disability population? #WeLDNs
@WeLDnurses
31 March 2020 20:36
@lynnewalsall Hi Lynne, good to see you #WeLDNs
@lynnewalsall
31 March 2020 20:37
RT @WeLDnurses: Question 1. What are your biggest concerns for the learning disability population? #WeLDNs
@WelchySquelchy
31 March 2020 20:37
@WeLDnurses People will assume they are not important and do not matter #weldns
@chris_dlamini
31 March 2020 20:37
@WeLDnurses How is this new illness being explained to people with severe and pmlds #WeLDNs
@MASowden
31 March 2020 20:37
@WeLDnurses #WeLDNs
@ross_6479_RNLD
31 March 2020 20:38
@WeLDnurses Breakdown of every day care provision and the impact that has on their quality of life and wellbeing #WeLDNs
@WeLDnurses
31 March 2020 20:38
Everybody is important and it is important that we make sure the LD population is heard. #WeLDNs https://twitter.com/WelchySquelchy/status/1245072713565249541
@RebeccaCrossle2
31 March 2020 20:38
@WelchySquelchy @WeLDnurses Respect form crucial #WeLDNs
@lynnewalsall
31 March 2020 20:38
@WeLDnurses #WeLDNs loneliness, concussion and change to routine
@NorthwayRuth
31 March 2020 20:38
@WeLDnurses #WeLDNs For me one of the biggest concerns is that diagnostic overshadowing may mean that #Covid19 is not recognised
@chris_dlamini
31 March 2020 20:38
@salsa442 Good to see you here today Sal. Hope you are well #WeLDNs
@salsa442
31 March 2020 20:38
RT @WeLDnurses: Question 1. What are your biggest concerns for the learning disability population? #WeLDNs
@florenceella
31 March 2020 20:38
@WeLDnurses Lack of support/ services being available to support #WeLDNs
@DebDMA
31 March 2020 20:38
Hi Deb from Scarborough (Nurse) #WeLDNs
@samabdulla
31 March 2020 20:38
@WeLDnurses Lack of support meaning people with a need for routine become loose their packages due to changes in presentation #WeLDNs
@florenceella
31 March 2020 20:38
RT @ross_6479_RNLD: @WeLDnurses Breakdown of every day care provision and the impact that has on their quality of life and wellbeing #WeLDNs
@PaulaHopes1
31 March 2020 20:38
@WeLDnurses Increased respiratory challenges in the population, difficulty for the person to communicate change in health status. Restrictions on liberty & difficulty in understanding...... how long have we got? #weldns
@IechydDaBangor
31 March 2020 20:38
@WeLDnurses #WeLDNs support for families who have to home school and lack of respite, plus continuation of positive behaviour support plans
@dmarsden49
31 March 2020 20:38
@WeLDnurses 1) Organisational reconfiguration and shared care responsibilities 2) maintaining independence & well being in an isolated world 3) facilitating and navigating services with people with learning disabilities at distance #weldns
@chris_dlamini
31 March 2020 20:38
@StaceyReesRNLD @WeLDnurses Hi Stacey #WeLDNs
@lynnewalsall
31 March 2020 20:39
RT @chris_dlamini: @WeLDnurses How is this new illness being explained to people with severe and pmlds #WeLDNs
@PaulaHopes1
31 March 2020 20:39
RT @chris_dlamini: @WeLDnurses How is this new illness being explained to people with severe and pmlds #WeLDNs
@_donnacoombs_
31 March 2020 20:39
@WeLDnurses @ross_6479_RNLD The evidence we already have the people with learning disability have poorer health outcomes than the general population #WeLDNs
@PaulaHopes1
31 March 2020 20:39
RT @ross_6479_RNLD: @WeLDnurses Breakdown of every day care provision and the impact that has on their quality of life and wellbeing #WeLDNs
@CommunityLd
31 March 2020 20:39
@WeLDnurses Community services are been scaled back so those with support around PBS, forensics etc may not have access to services #weldns
@lynnewalsall
31 March 2020 20:39
RT @WelchySquelchy: @WeLDnurses People will assume they are not important and do not matter #weldns
@PaulaHopes1
31 March 2020 20:39
RT @WelchySquelchy: @WeLDnurses People will assume they are not important and do not matter #weldns
@paularich1977
31 March 2020 20:39
@WeLDnurses Not knowing/missing the signs of when our patients are experiencing symptoms, everyone presents differently when unwell. Worried about not picking up subtle cues #WeLDNs
@PaulaHopes1
31 March 2020 20:39
RT @RebeccaCrossle2: @WelchySquelchy @WeLDnurses Respect form crucial #WeLDNs
@StephanieRossLN
31 March 2020 20:39
@WeLDnurses Stressed support systems when people might be at their most vulnerable #WeLDNs
@chrishattoncedr
31 March 2020 20:39
@WeLDnurses Bloody hell, so many right now. 1) Denied hospital treatment. 2) Support disappearing - people left to fend for themselves 3) Families filling the gap but overwhelmed. 4) COVID-19 ripping through care homes & inpatient units #WeLDNs
@StaceyReesRNLD
31 March 2020 20:39
@chris_dlamini @WeLDnurses Hi Chris #WeLDNs ??
@PaulaHopes1
31 March 2020 20:39
RT @NorthwayRuth: @WeLDnurses #WeLDNs For me one of the biggest concerns is that diagnostic overshadowing may mean that #Covid19 is not rec…
@PaulaHopes1
31 March 2020 20:39
RT @lynnewalsall: @WeLDnurses #WeLDNs loneliness, concussion and change to routine
@RebeccaCrossle2
31 March 2020 20:39
Carers are staying for duration in isolation my last was for 4 days solid #WeLDNs
@dmarsden49
31 March 2020 20:39
RT @NorthwayRuth: @WeLDnurses #WeLDNs For me one of the biggest concerns is that diagnostic overshadowing may mean that #Covid19 is not rec…
@PaulaHopes1
31 March 2020 20:39
RT @IechydDaBangor: @WeLDnurses #WeLDNs support for families who have to home school and lack of respite, plus continuation of positive beh…
@PaulaHopes1
31 March 2020 20:39
RT @florenceella: @WeLDnurses Lack of support/ services being available to support #WeLDNs
@LastDaysoflifeR
31 March 2020 20:39
@WeLDnurses Thst they may be more vulnerable to infection, greater risk of a more negative response and in a health care system that may already disadvantage them at a time of huge additional pressures #WeLDNs
@WeLDnurses
31 March 2020 20:39
Very important point to make. We must ensure that diagnostic overshadowing doesn't happen #WeLDNs https://twitter.com/NorthwayRuth/status/1245072995548307462
@helenglais
31 March 2020 20:39
@WeLDnurses Being unprepared- have seen some novel data about how this is affecting people with LD - not evidence based so need to be cautious but aware #weLDNs
@paularich1977
31 March 2020 20:39
RT @ross_6479_RNLD: @WeLDnurses Breakdown of every day care provision and the impact that has on their quality of life and wellbeing #WeLDNs
@paularich1977
31 March 2020 20:39
RT @WelchySquelchy: @WeLDnurses People will assume they are not important and do not matter #weldns
@paularich1977
31 March 2020 20:39
RT @IechydDaBangor: @WeLDnurses #WeLDNs support for families who have to home school and lack of respite, plus continuation of positive beh…
@CommunityLd
31 March 2020 20:40
@PaulaHopes1 @WeLDnurses Respiratory disease is leading cause of premature death from last LeDer report #weldns
@LiamFreeman1991
31 March 2020 20:40
@WeLDnurses How to support people with L/D, with why relatives and friends ain't allowed to visit and they ain't allowed out to go shopping and do activities #weldns
@Clare37240768
31 March 2020 20:40
@WeLDnurses Although NICE guidelines are changing their frailty score guidelines for ICU admission for Covid-19, I am still concerned that diagnostic overshadowing, discrimination and unconscious bias will still happen #WeLDNs (sorry I didn't tag first time!)
@salsa442
31 March 2020 20:40
@chris_dlamini All good thanks, how are you? #weldns
@florenceella
31 March 2020 20:40
RT @WeLDnurses: Very important point to make. We must ensure that diagnostic overshadowing doesn't happen #WeLDNs
@chris_dlamini
31 March 2020 20:40
@lynnewalsall @WeLDnurses Yes Lynne. Change of routine may lead to no routine at all #WeLDNs
@PaulaHopes1
31 March 2020 20:40
RT @CommunityLd: @PaulaHopes1 @WeLDnurses Respiratory disease is leading cause of premature death from last LeDer report #weldns
@paularich1977
31 March 2020 20:40
@WelchySquelchy @WeLDnurses That’s a huge concern of mine, worrying that quality of life is not valued #weldns
@lynnewalsall
31 March 2020 20:40
@WeLDnurses Concussion - sorry will put myself on the spelling naughty step #WeLDNs
@SueBprof1
31 March 2020 20:40
@WeLDnurses We know from LeDeR about high level of deaths from respiratory issues so COVID brings real concern about how vulnerable people are and yet not seen as a high risk priority #WeLDNs #EDP
@chris_dlamini
31 March 2020 20:40
@DebDMA Hi Deb #WeLDNs
@RebeccaCrossle2
31 March 2020 20:40
@chrishattoncedr @WeLDnurses We Need to know where and who they are #WeLDNs
@Markliamb
31 March 2020 20:40
@WeLDnurses Many people that I know are supported when they go into hospital is that going to be problematic with #COVID19 ? #WeLDNs
@lynnewalsall
31 March 2020 20:40
RT @NorthwayRuth: @WeLDnurses #WeLDNs For me one of the biggest concerns is that diagnostic overshadowing may mean that #Covid19 is not rec…
@paularich1977
31 March 2020 20:40
RT @WeLDnurses: Very important point to make. We must ensure that diagnostic overshadowing doesn't happen #WeLDNs
@JoamyDavis
31 March 2020 20:40
@WeLDnurses anxiety&change 2 routine is difficult 2 comprehend.this will be a struggle as many face changes in service,change in carers& change to structure of http://day.in addition,complexities of many physical health difficulties place them at high risk of vulnerability #WeLDNs
@helen_laverty
31 March 2020 20:40
@WeLDnurses #WeLDNs sorry I’m late
@VickiG1086
31 March 2020 20:41
@WeLDnurses That people with Learning Disabilities will be seen as less when it comes to treatment! #WeLDNs
@lynnewalsall
31 March 2020 20:41
RT @florenceella: @WeLDnurses Lack of support/ services being available to support #WeLDNs
@PaulaHopes1
31 March 2020 20:41
Respect forms mentioned #EBP #WeLDNs @WeLDnurses https://t.co/ChNmD32RFu
@helen_laverty
31 March 2020 20:41
RT @NorthwayRuth: @WeLDnurses #WeLDNs For me one of the biggest concerns is that diagnostic overshadowing may mean that #Covid19 is not rec…
@RebeccaCrossle2
31 March 2020 20:41
@WeLDnurses Yep cldts need to share who they are #weldns
@WeLDnurses
31 March 2020 20:41
There is lots of concern for families at this time #WeLDNs https://twitter.com/IechydDaBangor/status/1245073085709107200
@chris_dlamini
31 March 2020 20:41
@dmarsden49 @WeLDnurses My learned friend. Good to see you again #WeLDNs
@florenceella
31 March 2020 20:41
@JoamyDavis @WeLDnurses I fully agree with this! Change in routine can be detrimental to wellbeing! #WeLDNs
@WeLDnurses
31 March 2020 20:41
@helen_laverty Thanks for joining us Helen, as expected the chat is busy and in full swing already #WeLDNs
@Mwharvey
31 March 2020 20:41
@WeLDnurses Real risk with Learning disability accommodation based care like supported living and residential and lack of up to date infection control knowledge #WeLDNs
@lynnewalsall
31 March 2020 20:42
RT @IechydDaBangor: @WeLDnurses #WeLDNs support for families who have to home school and lack of respite, plus continuation of positive beh…
@WeLDnurses
31 March 2020 20:42
Question 2. How have you supported individuals with a Learning disability to understand the current government guidance? #WeLDNs
@salsa442
31 March 2020 20:42
RT @WeLDnurses: Very important point to make. We must ensure that diagnostic overshadowing doesn't happen #WeLDNs
@PaulaHopes1
31 March 2020 20:42
RT @WeLDnurses: @helen_laverty Thanks for joining us Helen, as expected the chat is busy and in full swing already #WeLDNs
@PaulaHopes1
31 March 2020 20:42
RT @florenceella: @JoamyDavis @WeLDnurses I fully agree with this! Change in routine can be detrimental to wellbeing! #WeLDNs
@florenceella
31 March 2020 20:42
RT @PaulaHopes1: Respect forms mentioned #EBP #WeLDNs @WeLDnurses https://t.co/ChNmD32RFu
@dmarsden49
31 March 2020 20:42
@NorthwayRuth @WeLDnurses The concerns around carers and families being able/allowed to offer the same support in acute care could leave front line staff more vulnerable to making assumptions about the individual, and making choices on their behalf #WeLDNs
@chris_dlamini
31 March 2020 20:42
@CommunityLd @WeLDnurses Great point Glenn #WeLDNs
@chrishattoncedr
31 March 2020 20:42
@WeLDnurses A health system under great pressure will ignore/not know about the reasonable adjustments needed, and learning disability nurses will be ignored/overstretched/redeployed #WeLDNs
@JoamyDavis
31 March 2020 20:42
@WeLDnurses Diagnostic overshadowing is a real concern #WeLDNs
@WelchySquelchy
31 March 2020 20:42
@Clare37240768 @WeLDnurses Good point has already happened in the states #WeLDNs
@PaulaHopes1
31 March 2020 20:42
RT @VickiG1086: @WeLDnurses That people with Learning Disabilities will be seen as less when it comes to treatment! #WeLDNs
@chris_dlamini
31 March 2020 20:42
@_donnacoombs_ @WeLDnurses @ross_6479_RNLD Great point Donna #WeLDNs
@AWebster67
31 March 2020 20:42
@WeLDnurses Hi #weldns sorry I’m a bit late. Anne here from Bedfordshire.
@helen_laverty
31 March 2020 20:42
@IechydDaBangor @WeLDnurses #WeLDNs it’s that lack of a gift of time that frightens me alongside all the rest
@helen_laverty
31 March 2020 20:43
RT @WeLDnurses: @helen_laverty Thanks for joining us Helen, as expected the chat is busy and in full swing already #WeLDNs
@MASowden
31 March 2020 20:43
@PaulaHopes1 @WeLDnurses Great 1 page tool , hopefully used and acknowledged as it’s a challenge at best of times #WeLDNs
@WeLDnurses
31 March 2020 20:43
RT @CommunityLd: @PaulaHopes1 @WeLDnurses Respiratory disease is leading cause of premature death from last LeDer report #weldns
@lynnewalsall
31 March 2020 20:43
RT @StephanieRossLN: @WeLDnurses Stressed support systems when people might be at their most vulnerable #WeLDNs
@SaSaint76
31 March 2020 20:43
@WeLDnurses , I am Sandy , student learning disability nurse, listening in.#WeLDNs
@christnetowers
31 March 2020 20:43
@WeLDnurses #WeLDNs Family and paid carers not knowing when to go to hospital Practitioners not having the time to spend with people and understand their health needs
@ross_6479_RNLD
31 March 2020 20:43
@WeLDnurses Easy read info, social stories, support for their support network #WeLDNs
@chris_dlamini
31 March 2020 20:43
@helen_laverty @WeLDnurses Hello Helen. The tribe is here #WeLDNs
@samabdulla
31 March 2020 20:43
Part of a bigger problem being highlighted, we don’t support social care to identify health needs and support better health enough. This will show that #WeLDNs https://twitter.com/mwharvey/status/1245073870182383616
@LastDaysoflifeR
31 March 2020 20:43
@chrishattoncedr @WeLDnurses Think the situation of people in care settings could easily be overlooked- and add how people with cope short and long term will the implications of all of this #WeLDNs
@lynnewalsall
31 March 2020 20:43
RT @RebeccaCrossle2: Carers are staying for duration in isolation my last was for 4 days solid #WeLDNs
@StaceyReesRNLD
31 March 2020 20:43
@WeLDnurses Ppl with learning disabilities die avoidable deaths, even at the best of times. What will happen in the worst of times? #weldns
@helen_laverty
31 March 2020 20:44
RT @chris_dlamini: @helen_laverty @WeLDnurses Hello Helen. The tribe is here #WeLDNs
@lynnewalsall
31 March 2020 20:44
RT @WeLDnurses: Very important point to make. We must ensure that diagnostic overshadowing doesn't happen #WeLDNs https://twitter.com/NorthwayRuth/status/1245072995548307462
@KScior
31 March 2020 20:44
@WeLDnurses shared east read resources widely with clinicians and researchers, and supported individuals with suspected C-19 individually @LisaR_Psy #WeLDNs
@WeLDnurses
31 March 2020 20:44
Are there any plans in place for this should it happen? #WeLDNs https://twitter.com/Markliamb/status/1245073579470983168
@PaulaHopes1
31 March 2020 20:44
@Markliamb @WeLDnurses I think so, DGHs are limiting footfall & this could be misinterpreted for #PWLD more than ever we have to advocate for #reasonableAdjustments @WeLDnurses #WeLDNs
@CommunityLd
31 March 2020 20:44
@chrishattoncedr @WeLDnurses In reply to 4) I’ve been redeployed to inpatient areas are LeDer on hold. Lots if issues with been able to socially distance from patients who don’t understand social norms etc #weldns
@paularich1977
31 March 2020 20:44
@WeLDnurses We’ve used easy read guides to explain what is going on, explained as often as we need to and provided lots of reassurance, extra calls to loved ones who they cannot see at the moment. #WeLDNs
@chris_dlamini
31 March 2020 20:44
More new people in hospitals some of whom have no experience of working directly with people with learning disabilities #WeLDNs
@samabdulla
31 March 2020 20:44
One of the most wonderful things I’ve seen is the amount of easy read and accessible information learning disabilities practitioners have very rapidly developed! #WeLDNs https://twitter.com/weldnurses/status/1245073881066401792
@JohnBaker_Leeds
31 March 2020 20:44
RT @WeLDnurses: Question 1. What are your biggest concerns for the learning disability population? #WeLDNs
@RebeccaCrossle2
31 March 2020 20:44
@StaceyReesRNLD @WeLDnurses Without knowing who might be coming from cldts big risk here #WeLDNs
@NorthwayRuth
31 March 2020 20:44
@VickiG1086 @WeLDnurses Yes we need to ensure that people are seen as different (in terms of the support they need) but equal in terms of their value as individuals #WeLDNs
@Mwharvey
31 March 2020 20:44
Good quality acute care should admission be required and no increase in inappropriate DNACPRs #WeLDNs
@SueBprof1
31 March 2020 20:44
@WeLDnurses Producing easy read materials, communication cards and collating them for care homes LDNs etc, #WeLDNs
@Markliamb
31 March 2020 20:44
#WeLDNs https://twitter.com/HelenAshby72/status/1245074164693774336
@lynnewalsall
31 March 2020 20:45
So true #WeLDNs https://twitter.com/CommunityLd/status/1245073388558864384
@dmarsden49
31 March 2020 20:45
@Mwharvey @WeLDnurses Testing for social care staff as well as the people they support is a vital component, otherwise we're basing our more strategic decision making on assumption and supposition #weldns
@florenceella
31 March 2020 20:45
@WeLDnurses I’ve seen some fab social stories! #WeLDNs
@Markliamb
31 March 2020 20:45
RT @WeLDnurses: Are there any plans in place for this should it happen? #WeLDNs https://twitter.com/Markliamb/status/1245073579470983168
@NorthwayRuth
31 March 2020 20:45
@SaSaint76 @WeLDnurses Hello Sandy #WeLDNs
@RebeccaCrossle2
31 March 2020 20:45
@WeLDnurses Yep we've had paid carers who can't leave 4 days #weldns we need contingency plans for those people/staff
@JoamyDavis
31 March 2020 20:45
@WeLDnurses Our team have issues easy read guides, and make regular welfare calls to “check in” on our service users living in the community #WeLDNs
@salsa442
31 March 2020 20:45
RT @ross_6479_RNLD: @WeLDnurses Easy read info, social stories, support for their support network #WeLDNs
@lynnewalsall
31 March 2020 20:45
RT @chris_dlamini: @lynnewalsall @WeLDnurses Yes Lynne. Change of routine may lead to no routine at all #WeLDNs
@chris_dlamini
31 March 2020 20:46
@chrishattoncedr @WeLDnurses A big point #WeLDNs
@helen_laverty
31 March 2020 20:46
@PaulaHopes1 @WeLDnurses #WeLDNs particularly when you think respiratory arrest is the biggest cause of death in adults with a learning disability
@NorthwayRuth
31 March 2020 20:46
@samabdulla Good point Sam #WeLDNs
@VickiG1086
31 March 2020 20:46
@WeLDnurses #WeLDNs
@WeLDnurses
31 March 2020 20:46
There are some amazing resources out there already, but please don't forget to include the hashtag so we don't miss your point #WeLDNs https://twitter.com/JoamyDavis/status/1245074603745165316
@dmarsden49
31 March 2020 20:46
@WeLDnurses Spoken to people with learning disabilities and parent carers, with mixed responses, significant anxiety, some relaxed, all appear to be following the guidance. #weldns
@RebeccaCrossle2
31 March 2020 20:46
@chris_dlamini Yep redeploy to acute trusts #WeLDNs
@lynnewalsall
31 March 2020 20:47
RT @VickiG1086: @WeLDnurses That people with Learning Disabilities will be seen as less when it comes to treatment! #WeLDNs
@lynnewalsall
31 March 2020 20:47
RT @PaulaHopes1: Respect forms mentioned #EBP #WeLDNs @WeLDnurses https://t.co/ChNmD32RFu
@samabdulla
31 March 2020 20:47
@NorthwayRuth One that I hate having to make! #weldns
@helenglais
31 March 2020 20:47
@WeLDnurses Capacity assessment around self isolation, strategy around easy read information, active listening and compassion #weLDNs
@KeayCath
31 March 2020 20:47
@SueBprof1 @WeLDnurses Agreed Sue, we are trying to coordinate accessible resource collection in our CCG team to share with LD colleagues; providers and also via the C(E)TR process, would be great to have a centralised resource? #WeLDNs
@dmarsden49
31 March 2020 20:47
@chris_dlamini @WeLDnurses Loving your work, as always Chris. One of these days we'll get to meet! #weldns
@StaceyReesRNLD
31 March 2020 20:47
RT @CommunityLd: @PaulaHopes1 @WeLDnurses Respiratory disease is leading cause of premature death from last LeDer report #weldns
@PaulaHopes1
31 March 2020 20:47
RT @helen_laverty: @PaulaHopes1 @WeLDnurses #WeLDNs particularly when you think respiratory arrest is the biggest cause of death in adults…
@IechydDaBangor
31 March 2020 20:47
@WeLDnurses #WeLDNs families have asked for advice on how to self isolate within the family home although still necessary to provide ‘physical’ care. The 7 days 14 days has also caused confusion
@lynnewalsall
31 March 2020 20:47
RT @WeLDnurses: @helen_laverty Thanks for joining us Helen, as expected the chat is busy and in full swing already #WeLDNs
@samabdulla
31 March 2020 20:47
@Mwharvey Completely agree about balance but we know that people with learning disabilities have these high health needs, it’s important those with them most recognise change and are heard #weldns
@StaceyReesRNLD
31 March 2020 20:47
RT @WeLDnurses: There is lots of concern for families at this time #WeLDNs https://t.co/rvqEhI9ftr
@LastDaysoflifeR
31 March 2020 20:48
Important question - I am a researcher I know- but it's going to be important to address how we could and might answer this - I mean to gather the evidence - well for those who can #WeLDNs https://t.co/MXvE5DCh8y
@_donnacoombs_
31 March 2020 20:48
@WeLDnurses @ross_6479_RNLD Social stories, easy read info, support and reassurance for patients, family and carers. Finding appropriate stay at home activities and occupation #WeLDNs
@drliberty
31 March 2020 20:48
@WeLDnurses #WeLDNs social and information stories in easy ready, supporting family to have visits via IT like FaceTime etc. Information around what might happen if people get poorly
@Markliamb
31 March 2020 20:48
@HelenAshby72 @RebeccaCrossle2 @WeLDnurses I agree #WeLDNs
@RebeccaCrossle2
31 March 2020 20:48
I'm a 24/7 now please and cldts having and preparing for those escalation and withdraw of treatment #WeLDNs
@SueBprof1
31 March 2020 20:48
@KeayCath @WeLDnurses Absolutely! They are going on our CCG and self-advocacy websites but one central resource would be great! #WeLDNs #EBP
@PaulaMc007
31 March 2020 20:48
@WeLDnurses #Oliverscampaign #WeLDNs That people with a learning disability will actually be given a respirator if they need one. That their essential life saving treatment will be overlooked in favour of someone who doesn't have a learning disability. The list goes on
@MASowden
31 March 2020 20:48
@WeLDnurses Focusing on supporting teams to be proactive in identifying vulnerable, however a challenge within already under resourced services and not included as an emphasis for community provision #WeLDNs
@WeLDnurses
31 March 2020 20:49
Question 3. What difficulties have you faced in ensuring the needs of people with a Learning Disability are met? #WeLDNs
@sarasiobhan
31 March 2020 20:49
RT @WeLDnurses: Question 1. What are your biggest concerns for the learning disability population? #WeLDNs
@chris_dlamini
31 March 2020 20:49
@dmarsden49 @WeLDnurses Indeed my friend #WeLDNs
@VickiG1086
31 March 2020 20:49
@WeLDnurses Being in placement and explaining these was really difficult being a PMLD setting the Individuals didn’t have the understanding to take the information in. Was even more difficult when we had to nurse them in isolation..what advise do you have? #WeLDNs
@PaulaHopes1
31 March 2020 20:49
@IechydDaBangor @WeLDnurses I think the letters from the government have also caused confusion & could lead to increased restrictions & contribute further to stress in the community @JoamyDavis @helenglais @obrienphotos discussed today @weldns #WeLDNs
@samabdulla
31 March 2020 20:49
RT @IechydDaBangor: @WeLDnurses #WeLDNs families have asked for advice on how to self isolate within the family home although still necessa…
@WelchySquelchy
31 March 2020 20:49
@RebeccaCrossle2 @chris_dlamini I think so this would be good use of resources #WeLDNs
@lynnewalsall
31 March 2020 20:49
RT @helen_laverty: @IechydDaBangor @WeLDnurses #WeLDNs it’s that lack of a gift of time that frightens me alongside all the rest
@chris_dlamini
31 March 2020 20:49
@samabdulla @Mwharvey Indeed #WeLDNs
@lynnewalsall
31 March 2020 20:50
RT @MASowden: @PaulaHopes1 @WeLDnurses Great 1 page tool , hopefully used and acknowledged as it’s a challenge at best of times #WeLDNs
@WeLDnurses
31 March 2020 20:50
Has anyone else had confusion regarding #selfisolation? #WeLDNs https://twitter.com/IechydDaBangor/status/1245075340344647680
@Markliamb
31 March 2020 20:50
RT @RebeccaCrossle2: @WeLDnurses Yep we've had paid carers who can't leave 4 days #weldns we need contingency plans for those people/staff
@chrishattoncedr
31 March 2020 20:50
@samabdulla @Mwharvey Most adults with learning disabilities are living with families, or in supported living or tenancies. And many, many adults not getting any support at all. #WeLDNs
@lynnewalsall
31 March 2020 20:50
RT @christnetowers: @WeLDnurses #WeLDNs Family and paid carers not knowing when to go to hospital Practitioners not having the time to spe…
@CommunityLd
31 March 2020 20:50
@PaulaHopes1 @WeLDnurses @ClaireLDNurse @karaknowles15 @Llinda_P @TeresaHassell @pphillips2020 I offered my services to @TEWV to support liaison services but was told they were adequately resourced #weldns
@PaulaHopes1
31 March 2020 20:50
RT @ross_6479_RNLD: @WeLDnurses Easy read info, social stories, support for their support network #WeLDNs
@lynnewalsall
31 March 2020 20:50
RT @ross_6479_RNLD: @WeLDnurses Easy read info, social stories, support for their support network #WeLDNs
@salsa442
31 March 2020 20:50
RT @WeLDnurses: Question 3. What difficulties have you faced in ensuring the needs of people with a Learning Disability are met? #WeLDNs
@paularich1977
31 March 2020 20:50
@WeLDnurses At present the restrictions in going out and not being able to see family members, changes in routines causing huge anxieties and increase in behaviours #WeLDNs
@paularich1977
31 March 2020 20:50
RT @WeLDnurses: Question 3. What difficulties have you faced in ensuring the needs of people with a Learning Disability are met? #WeLDNs
@eileenshepherd
31 March 2020 20:50
RT @VickiG1086: @WeLDnurses That people with Learning Disabilities will be seen as less when it comes to treatment! #WeLDNs
@RebeccaCrossle2
31 March 2020 20:50
@WeLDnurses Some people in group accommodation cannot and will not self isolate #WeLDNs
@dmarsden49
31 March 2020 20:51
@Mwharvey @WeLDnurses I spoke to a friend this morning about 'cohorting' in the guidance & they advised that there are too many risks associated with specialist services undertaking a venture like this, partly due to not knowing who is the cohort, but also mission creep https://www.england.nhs.uk/coronavirus/wp-content/uploads/sites/52/2020/03/Managing-demand-and-capacity-across-MH-LDA-services_25-March-final.pdf #weldns
@PaulaHopes1
31 March 2020 20:51
RT @SueBprof1: @WeLDnurses Producing easy read materials, communication cards and collating them for care homes LDNs etc, #WeLDNs
@_donnacoombs_
31 March 2020 20:51
As usual being a rubbish lurker #WeLDNs ???????
@ElaineLJames
31 March 2020 20:51
@WeLDnurses #WeLDNs brilliant support from @BTMOrg @SueatBTM to create easier to access resources like this https://twitter.com/BTMOrg/status/1244999826867204097?s=19
@ZoeWill19468321
31 March 2020 20:51
Being denied hospital treatment. Recieved an email with a RESPECT form today “for my information” stating “no treatment if required, palliative care in a care home”. No capacity assessment, no reference to their views and wishes, no reasoning. this is not ok. #WeLDNs https://twitter.com/weldnurses/status/1245072370953408512
@ElaineLJames
31 March 2020 20:51
@WeLDnurses @BTMOrg @SueatBTM #WeLDNs And this https://twitter.com/BTMOrg/status/1241014695026405377?s=19
@WeLDnurses
31 March 2020 20:51
Thanks for sharing this #EBP with us Elaine #WeLDNs https://twitter.com/ElaineLJames/status/1245076188848152577
@VickiG1086
31 March 2020 20:52
@WeLDnurses Getting the GPs to come see the patients has been difficult. I Understand they looking after their safety but someone with PMLD it could be very life-threatening surely there is a duty of care to see them??? #WeLDNs
@IechydDaBangor
31 March 2020 20:52
@WeLDnurses #WeLDNs with daily updates from the Gov it’s difficult for families to keep up with the guidance. We also have the issue in Wales that our news s focused on what is published by Westminster and are not necessarily Welsh Gov guidance
@CommunityLd
31 March 2020 20:52
@WeLDnurses Trying to explain that what they would regard is ‘essential’ isn’t regarded as ‘essential’ from public health perspective #weldns
@lynnewalsall
31 March 2020 20:52
RT @helen_laverty: @PaulaHopes1 @WeLDnurses #WeLDNs particularly when you think respiratory arrest is the biggest cause of death in adults…
@MASowden
31 March 2020 20:52
@WeLDnurses where to start , resources, time, understanding , communication a biggie #WeLDNs
@WeLDnurses
31 March 2020 20:52
What is everyone's views on the 'cohorting in the guidance? #WeLDNs https://twitter.com/dmarsden49/status/1245076162134577153
@WeLDnurses
31 March 2020 20:52
We love the #EBP you're sharing, will come in handy for many of us in our roles. Thank you #WELDNs https://twitter.com/ElaineLJames/status/1245076377780486151
@chris_dlamini
31 March 2020 20:52
@WeLDnurses Respite care services are on #lockdown as are cldts so who is supporting patients, carers. Nurses either redeployed. Causing frustration for all #WeLDNs
@PaulaHopes1
31 March 2020 20:52
@WeLDnurses So many things, last week I set up the #Covid19 Facebook support group specific to people with learning disabilities & this has grown, my friend @purplishspider co-admins & we loom to share good quality resources to help with communication #WeLDNs
@StephanieRossLN
31 March 2020 20:53
@WeLDnurses #WeLDNs
@CommunityLd
31 March 2020 20:53
@VickiG1086 @WeLDnurses GP’s in my area are advocating greater use of Skype or similar for consultations #WeLDNs
@chrishattoncedr
31 March 2020 20:53
@LastDaysoflifeR I do worry that information systems for tracking if people get ill or die from COVID-19 will render people with learning disabilities invisible, especially with LeDeR under understandable pressure. And nothing timely enough to change tack #WeLDNs
@Clare37240768
31 March 2020 20:53
@WeLDnurses #WeLDNs I think with social media, it has been so easy to access accessible information (super grateful to everyone who has made these so quickly!) which I have been sending to people (alongside providers, carers and families). The confusion is where guidance changes so quickly!
@salsa442
31 March 2020 20:53
@WeLDnurses The principle is fairly straight forward, whether people can cope with it is another matter - 7days if u symptomatic, 14days if someone in your house is symptomatic - sounds simple but is really tough for people with LD to manage #WeLDNs
@AWebster67
31 March 2020 20:53
@Markliamb @WeLDnurses Oops forgot #WeLDNs
@IechydDaBangor
31 March 2020 20:53
RT @WeLDnurses: Question 3. What difficulties have you faced in ensuring the needs of people with a Learning Disability are met? #WeLDNs
@WeLDnurses
31 March 2020 20:53
This is a great resource with many great pieces of work being shared. #WeLDNs https://twitter.com/PaulaHopes1/status/1245076597142667273
@JoamyDavis
31 March 2020 20:54
@WeLDnurses There is a lot of confusion with self isolating.i have supported several families & provided advice on this. But ultimately the challenges come from living in shared accommodation & some of the complexities of the other service users living within the home. #WeLDNs
@lynnewalsall
31 March 2020 20:54
RT @IechydDaBangor: @WeLDnurses #WeLDNs families have asked for advice on how to self isolate within the family home although still necessa…
@salsa442
31 March 2020 20:54
Definitely aware of the increase in anxiety, particularly for people with LD living alone with very limited care packages #WeLDNs https://twitter.com/paularich1977/status/1245076100864229381
@dmarsden49
31 March 2020 20:54
@LastDaysoflifeR Have heard of people with learning disabilities having died of #COVID19 in London, and others in ITU's around the country. We must ensure that these are notified to @leder_team #weldns
@MASowden
31 March 2020 20:54
@salsa442 @WeLDnurses Sedation already being discussed to manage this ? MCA , least restrictive ? #WeLDNs
@chris_dlamini
31 March 2020 20:54
@CommunityLd @PaulaHopes1 @WeLDnurses @ClaireLDNurse @karaknowles15 @Llinda_P @TeresaHassell @pphillips2020 @TEWV Sad as they are not. Also put self forward but heard nothing from them Glenn #WeLDNs
@lynnewalsall
31 March 2020 20:54
RT @WeLDnurses: This has been great. It has fab to see how everyone has worked together to share resources #WeLDNs https://twitter.com/samabdulla/status/1245074520769257473
@dmarsden49
31 March 2020 20:55
@LastDaysoflifeR With #LeDeR up in the air, is there an opportunity for a piece of work @LastDaysoflifeR #weldns
@Sunnydownlane
31 March 2020 20:55
RT @WelchySquelchy: @WeLDnurses People will assume they are not important and do not matter #weldns
@WeLDnurses
31 March 2020 20:55
Fantastic point raised about unfamiliar staff working in units while staff self-isolate, don't forget to include the hashtag though, we don't want to miss your points #WeLDNs https://twitter.com/SaSaint76/status/1245076845537701895
@chris_dlamini
31 March 2020 20:55
@paularich1977 @WeLDnurses Imagine someone with autism being suddenly told to #lockdown #WeLDNs
@JoamyDavis
31 March 2020 20:55
@PaulaHopes1 @IechydDaBangor @WeLDnurses @helenglais @obrienphotos @weldns This is definitely the case. Luckily I had colleagues to liaise with to support with this.but it is leading to confusion, particularly amongst families.#WeLDNs
@Markliamb
31 March 2020 20:55
@AWebster67 @WeLDnurses Hi Anne - yeah I quoted that in my blog on the issue. I suspect that the issue is going to be the extent to which the reality on the ground matches the policy. Although I have heard of a few that are doing this which is promising. #WeLDNs
@VickiG1086
31 March 2020 20:55
@ZoeWill19468321 That disgusting and clearly a breech if human rights?? #WeLDNs
@ElaineLJames
31 March 2020 20:55
@chrishattoncedr @samabdulla @Mwharvey #WeLDNs @SteveBroach did a really helpful webinar this week for families on rights to direct payments and other implications to care and support planning. You can access it here. https://twitter.com/39EssexChambers/status/1244947721779380224?s=19
@chris_dlamini
31 March 2020 20:56
@RebeccaCrossle2 @WeLDnurses Not very easy to do #WeLDNs
@IechydDaBangor
31 March 2020 20:56
@WeLDnurses #WeLDNs I think redeployment of staff from community to acute areas will be a possible issue, LD Children’s nurses are being approach, thus what is essential LD community service across the lifespan?
@LiamFreeman1991
31 March 2020 20:56
@WeLDnurses Had a individual who was admitted into hospital, after he wasn't alert, for them to discharged him the next day (still not alert and jerking) to be send back due to fail discharge & doctors stating it is corona, after staff arguing how the individual presents themselves #weldns
@chris_dlamini
31 March 2020 20:56
RT @WeLDnurses: We love the #EBP you're sharing, will come in handy for many of us in our roles. Thank you #WELDNs
@CommunityLd
31 March 2020 20:56
@chris_dlamini @PaulaHopes1 @WeLDnurses @ClaireLDNurse @karaknowles15 @Llinda_P @TeresaHassell @pphillips2020 @TEWV I’ve ended up in forensics which is my ‘bread and butter’ but was very surprised when they said they had enough cover. I’m essentially a free resource as my wages are covered by my employer who has redeployed me #weldns
@salsa442
31 March 2020 20:56
@MASowden @WeLDnurses I am struggling with how sedating someone for potentially 14 days is the least restrictive option, although I accept it may be from some. Sad times #WeLDNs
@Markliamb
31 March 2020 20:56
@beckyquin @WeLDnurses That's good to hear #WeLDNs
@RebeccaCrossle2
31 March 2020 20:56
Acute LD nurses need to be informed of who are high and respect forms are needed to be completed now #adnvanceddirectives #IMCA #WeLDNs
@lynnewalsall
31 March 2020 20:56
So true Hello Paula #WeLDNs https://twitter.com/PaulaMc007/status/1245075583521812480
@drliberty
31 March 2020 20:56
@WeLDnurses Maintaining routines within guidance, GP visits, planning for staffing to try and maintain safe staffing levels with no idea who will go off #WeLDNs
@PaulaHopes1
31 March 2020 20:57
@WeLDnurses https://www.facebook.com/groups/834750680326442/?ref=share link here #WeLDNs
@mhldnurse_amy
31 March 2020 20:57
@WeLDnurses As a society we’ve had information and warning about covid for a number of months. It feels like the info has only recently been flooded to those in inpatient settings now it affects them directly. ^ anxiety for people - understandably. #WeLDNs
@samabdulla
31 March 2020 20:57
@CommunityLd @chris_dlamini @PaulaHopes1 @WeLDnurses @ClaireLDNurse @karaknowles15 @Llinda_P @TeresaHassell @pphillips2020 @TEWV I can’t help but wonder if the university will do something similar #WeLDNs
@dmarsden49
31 March 2020 20:57
@beckyquin @NorthwayRuth @WeLDnurses @BSUH_NHS Really pleased to hear this Becky, however I have heard from other reliable sources that they are less confident than you and your organisation. #weldns
@lynnewalsall
31 March 2020 20:57
RT @WeLDnurses: Question 3. What difficulties have you faced in ensuring the needs of people with a Learning Disability are met? #WeLDNs
@beckyquin
31 March 2020 20:57
@Clare37240768 @WeLDnurses They have changed and many acute liaison nurses are working really hard to make sure that message is being shared #WeLDNs
@LiamFreeman1991
31 March 2020 20:57
@WeLDnurses Due to restricts, they can't send staff with the individual, as there could be risk of them bringing back #COVID19 #WeLDNs
@ermate
31 March 2020 20:57
@chrishattoncedr @samabdulla @Mwharvey Direct Payments are a big challenge at the moment with people being left without support&no back up plan with arrangements falling apart. Our community nurses have been absolutely phenomenal in terms of supporting complex health needs, medication & trusting relationships #weldns
@WeLDnurses
31 March 2020 20:57
This is very worrying to hear #WeLDNs https://twitter.com/salsa442/status/1245077588772618243
@salsa442
31 March 2020 20:57
@WeLDnurses Presents with challenges in acute care, no idea how this could work in specialist LD units #WeLDNs
@chris_dlamini
31 March 2020 20:57
RT @dmarsden49: @LastDaysoflifeR With #LeDeR up in the air, is there an opportunity for a piece of work @LastDaysoflifeR #weldns
@WeLDnurses
31 March 2020 20:57
Thanks for sharing Paula #WeLDNs https://twitter.com/PaulaHopes1/status/1245077681596702721
@RebeccaCrossle2
31 March 2020 20:57
@salsa442 @MASowden @WeLDnurses Not if symptomatic due to respiratory risk #WeLDNs
@MASowden
31 March 2020 20:58
@salsa442 @WeLDnurses Me too Sally - my worry was this was within a strategic level discussion and seen as main option - healthy debate followed ! #WeLDNs
@PaulaHopes1
31 March 2020 20:58
@samabdulla @CommunityLd @chris_dlamini @WeLDnurses @ClaireLDNurse @karaknowles15 @Llinda_P @TeresaHassell @pphillips2020 @TEWV I think where colleagues have honorary contracts this is definitely an option #WeLDNs
@LastDaysoflifeR
31 March 2020 20:58
@chrishattoncedr Yes that is going to be a real concern - will take imaginative use of databases I guess and perhaps not robust but rapid data gathering - but that is real concern- that the story of covid19 misses this population - it did in 1919-19 pandemic #WeLDNs
@sarasiobhan
31 March 2020 20:58
RT @WeLDnurses: This is very worrying to hear #WeLDNs https://twitter.com/salsa442/status/1245077588772618243
@CommunityLd
31 March 2020 20:58
@samabdulla @chris_dlamini @PaulaHopes1 @WeLDnurses @ClaireLDNurse @karaknowles15 @Llinda_P @TeresaHassell @pphillips2020 @TEWV My University was offering this before I left #weldns
@SueBprof1
31 March 2020 20:58
@chris_dlamini @paularich1977 @WeLDnurses and not seeing people you need in your life because you have very few relationships , the change in routine creates so much distress and anxiety....#WeLDNs
@DanBeale1
31 March 2020 20:58
RT @WeLDnurses: Question 1. What are your biggest concerns for the learning disability population? #WeLDNs
@beckyquin
31 March 2020 20:58
@chris_dlamini @WeLDnurses Lots of amazing resources being created #WeLDNs
@PaulaMc007
31 March 2020 20:58
@PaulaHopes1 @WeLDnurses @purplishspider #Oliverscampaign would you mind inviting me into this group please #WeLDNs
@WeLDnurses
31 March 2020 20:58
#WeLDNs https://twitter.com/purplishspider/status/1245077811691491328
@samabdulla
31 March 2020 20:58
@ermate @chrishattoncedr @Mwharvey That’s really complex, the same problem here for people who employs PAs through direct payment #WeLDNs
@chrishattoncedr
31 March 2020 20:58
@dmarsden49 @LastDaysoflifeR @leder_team Think we need to get people with learning disabilities into multiple COVID-19 tracking systems so we don't rely on one. There is a primary care tracking system, and ADASS are working on getting tracking info direct from care homes and hopefully supported living #WeLDNs
@WeLDnurses
31 March 2020 20:59
Question 4. How are the individuals you support coping with the changes? #WeLDNs
@SueBprof1
31 March 2020 20:59
RT @PaulaHopes1: @WeLDnurses https://www.facebook.com/groups/834750680326442/?ref=share link here #WeLDNs
@chris_dlamini
31 March 2020 20:59
@salsa442 @MASowden @WeLDnurses Ecactly. There goes STOMP out of the window again #WeLDNs
@IechydDaBangor
31 March 2020 20:59
@salsa442 @MASowden @WeLDnurses #WeLDNs it would be good to monitor the prescribing of antipsychotic medication during this period
@mhldnurse_amy
31 March 2020 20:59
@WeLDnurses Working in old wards that are generally not fit for purpose, but especially so when it comes to self-isolating. #WeLDNs
@VickiG1086
31 March 2020 20:59
@WeLDnurses #WeLDNs
@PaulaHopes1
31 March 2020 20:59
#WeLDNs #EasyRead #AccessibleInformation also.... Happy Birthday ?? https://twitter.com/purplishspider/status/1245077811691491328
@StephanieRossLN
31 March 2020 20:59
@beckyquin @dmarsden49 @NorthwayRuth @WeLDnurses @BSUH_NHS Yes, able to, but it brings a different set of issues and we have providers who don't have support workers available to be coming in. #WeLDNs
@WeLDnurses
31 March 2020 20:59
Some great and important conversations taking place, however please remember to include the hashtag #WeLDNs so that we don't miss any of your contributions.
@SJaneBernal
31 March 2020 20:59
#WeLDNs I'm a researcher. Also do some Reviews for LeDeR locally. Methodology wasn't developed for this & relied on face2face discussions. We are being asked to record known or possible covid19 status. https://twitter.com/chrishattoncedr/status/1245076733939851269
@ross_6479_RNLD
31 March 2020 20:59
@PaulaHopes1 @WeLDnurses @purplishspider This sounds like a great resource Paula #weldns
@LiamFreeman1991
31 March 2020 20:59
RT @WeLDnurses: Question 4. How are the individuals you support coping with the changes? #WeLDNs
@ross_6479_RNLD
31 March 2020 20:59
RT @WeLDnurses: Question 4. How are the individuals you support coping with the changes? #WeLDNs
@PaulaHopes1
31 March 2020 20:59
@PaulaMc007 @WeLDnurses @purplishspider Will do #WeLDNs
@MASowden
31 March 2020 21:00
@IechydDaBangor @salsa442 @WeLDnurses Great idea #WeLDNs
@chrishattoncedr
31 March 2020 21:00
@LastDaysoflifeR Yes, couldn't agree more #WeLDNs
@CommunityLd
31 March 2020 21:00
@WeLDnurses Wards I’m aware of has increased occupational therapy provision to support activities #Weldns
@lynnewalsall
31 March 2020 21:01
RT @MASowden: @WeLDnurses where to start , resources, time, understanding , communication a biggie #WeLDNs
@ross_6479_RNLD
31 March 2020 21:01
@WeLDnurses Some are doing ok as they have great support networks working tirelessly to keep them distracted and creatively finding alternative activities, i loudly applaud all the fantastic carers (family, paid or otherwise) out there ?????? #WeLDNs
@paularich1977
31 March 2020 21:01
@SueBprof1 @chris_dlamini @WeLDnurses I’m struggling not seeing my mum so can only imagine what it’s like for a patient who’s most anticipated event each week is a trip out with Mum #WeLDNs
@WeLDnurses
31 March 2020 21:01
RT @IechydDaBangor: @salsa442 @MASowden @WeLDnurses #WeLDNs it would be good to monitor the prescribing of antipsychotic medication during…
@salsa442
31 March 2020 21:01
@MASowden @WeLDnurses Sounds like healthy debate was needed, especially if sedating due to concerns about a fellow Tennant being symptomatic, sedation could mask any early warning signs of deterioration and/or respiratory distress #WeLDNs
@dmarsden49
31 March 2020 21:01
@Markliamb @AWebster67 @WeLDnurses Mark, I share your concern about translation of the guidance into practice, it's great that @NICEComms have adapted their guidance, but I'm keen to understand what an 'individualised assessment' might look like. #weldns
@salsa442
31 March 2020 21:01
RT @IechydDaBangor: @salsa442 @MASowden @WeLDnurses #WeLDNs it would be good to monitor the prescribing of antipsychotic medication during…
@salsa442
31 March 2020 21:02
@IechydDaBangor @MASowden @WeLDnurses Yes that would be interesting #WeLdNs
@ross_6479_RNLD
31 March 2020 21:02
@WeLDnurses Ok the other hand, I’m working with ppl where things are really tough and those supporting them are really struggling and the things we would usually do to support are so limited, this side breaks my heart #WeLDNs
@chris_dlamini
31 March 2020 21:02
@samabdulla @CommunityLd @PaulaHopes1 @WeLDnurses @ClaireLDNurse @karaknowles15 @Llinda_P @TeresaHassell @pphillips2020 @TEWV My brother was asking me if l would go back to nurse. I feel bad as l am contracted elsewhere and at the moment that conversation has not taken place #WeLDNs
@florenceella
31 March 2020 21:02
@JoamyDavis @WeLDnurses Many I work with will be impacted by change in routine, no daycare, changes in respite provision, increased anxieties as well as having to be at home for an extended period of time with limited understanding of why #WeLDNs
@Markliamb
31 March 2020 21:02
@dmarsden49 @AWebster67 @WeLDnurses @NICEComms Especially as the pressure on staff increases #WeLDNs
@dmarsden49
31 March 2020 21:02
@chrishattoncedr @LastDaysoflifeR @leder_team Really, wasn't aware of this. Thanks Chris #weldns
@salsa442
31 March 2020 21:02
RT @WeLDnurses: Some great and important conversations taking place, however please remember to include the hashtag #WeLDNs so that we don'…
@WeLDnurses
31 March 2020 21:02
Is anybody aware of what an 'individualised assessment' might look like? #WeLDNs https://t.co/MdAlnGFkFP
@LiamFreeman1991
31 March 2020 21:02
@WeLDnurses Just reassuring and putting on more on house activities and escaping into the garden. But there is a lot emotions around why their families haven't come to see them, there are phones calls but missing that family contact (hugs!) #weldns
@RebeccaCrossle2
31 March 2020 21:02
@dmarsden49 @Markliamb @AWebster67 @WeLDnurses @NICEComms It will be down to aclns fighting but we need the information of those before they attend #WeLDNs
@florenceella
31 March 2020 21:03
I’ll join you in that loud applause ???? #WeLDNs https://t.co/FjgLwTBLFX
@PaulaHopes1
31 March 2020 21:03
#WeLDNs @ImprovementCym @WeLDnurses https://t.co/T4xToT48Vz
@salsa442
31 March 2020 21:03
RT @WeLDnurses: Question 4. How are the individuals you support coping with the changes? #WeLDNs
@CommunityLd
31 March 2020 21:03
@IechydDaBangor @WeLDnurses @salsa442 @MASowden Yes! Could undo a lot of positive #stomp work if done as a reactive measure. Although, some may need short term intervention based on specific circumstances #weldns
@samabdulla
31 March 2020 21:03
@chris_dlamini @CommunityLd @PaulaHopes1 @WeLDnurses @ClaireLDNurse @karaknowles15 @Llinda_P @TeresaHassell @pphillips2020 @TEWV I’ve mentioned it to a few non-nurse people, who have responded “someone still has to get the students ready” #WeLDNs
@mhldnurse_amy
31 March 2020 21:03
@WeLDnurses With a massive amount of resilience. Despite fear, anxiety and confusion. #WeLDNs
@salsa442
31 March 2020 21:03
RT @WeLDnurses: Is anybody aware of what an 'individualised assessment' might look like? #WeLDNs
@WeLDnurses
31 March 2020 21:04
Question 5. Once the pandemic is over is there anything which we can learn from and take forward into more streamlined ways of working? #WeLDNs
@CommunityLd
31 March 2020 21:04
@chris_dlamini @samabdulla @PaulaHopes1 @WeLDnurses @ClaireLDNurse @karaknowles15 @Llinda_P @TeresaHassell @pphillips2020 @TEWV Have you considered the nurse bank #weldns
@PaulaHopes1
31 March 2020 21:04
RT @mhldnurse_amy: @WeLDnurses With a massive amount of resilience. Despite fear, anxiety and confusion. #WeLDNs
@HelenAshby72
31 March 2020 21:04
@WeLDnurses Agency nurses and care staff notoriously cherry pick their jobs - right now my worry is they wont choose to work with the 2 and 3 and higher to one people who need support whose staff teams are decimated by self isolation. The Corona Bill does not protect these people #WeLDNs
@IechydDaBangor
31 March 2020 21:04
#WeLDNs https://twitter.com/obrienphotos/status/1245078927795802116
@dmarsden49
31 March 2020 21:04
@StephanieRossLN @beckyquin @NorthwayRuth @WeLDnurses @BSUH_NHS Organisational agreements are so key, and often depend on the social care provider being ready and willing to support, which is not always the case. #weldns
@RebeccaCrossle2
31 March 2020 21:04
@WeLDnurses It will be base pre existing conditions but we need to know if they are life limiting #WeLDNs
@lynnewalsall
31 March 2020 21:04
RT @dmarsden49: @LastDaysoflifeR With #LeDeR up in the air, is there an opportunity for a piece of work @LastDaysoflifeR #weldns
@PaulaMc007
31 March 2020 21:04
@IechydDaBangor @WeLDnurses @salsa442 @MASowden #Oliverscampaign totally agree with you, it's something that #LeDeR @leder_team should be watching closely #WeLDNs
@PaulaMc007
31 March 2020 21:04
RT @IechydDaBangor: @salsa442 @MASowden @WeLDnurses #WeLDNs it would be good to monitor the prescribing of antipsychotic medication during…
@MASowden
31 March 2020 21:04
@WeLDnurses No and given in some settings LD liaison is only to be considered in exceptional circumstances it’s hard to see how this individual approach will fully support LD needs #WeLDNs
@Gpnsnn
31 March 2020 21:05
RT @IechydDaBangor: @WeLDnurses #WeLDNs families have asked for advice on how to self isolate within the family home although still necessa…
@SarahPr57058520
31 March 2020 21:05
@WeLDnurses Been in various situations but the main one i would say is around DNAR and mental capacity. #WeLDNs
@Gpnsnn
31 March 2020 21:05
RT @NorthwayRuth: @WeLDnurses #WeLDNs For me one of the biggest concerns is that diagnostic overshadowing may mean that #Covid19 is not rec…
@AWebster67
31 March 2020 21:05
@WeLDnurses #WeLDNs sorry I have to go but will look out for the transcript. When will it be available. It will be really helpful for our current Covid-19 work.
@Gpnsnn
31 March 2020 21:05
RT @IechydDaBangor: @WeLDnurses #WeLDNs support for families who have to home school and lack of respite, plus continuation of positive beh…
@WeLDnurses
31 March 2020 21:05
RT @NorthwayRuth: @WeLDnurses #WeLDNs For me one of the biggest concerns is that diagnostic overshadowing may mean that #Covid19 is not rec…
@Gpnsnn
31 March 2020 21:05
RT @mhldnurse_amy: @WeLDnurses With a massive amount of resilience. Despite fear, anxiety and confusion. #WeLDNs
@RebeccaCrossle2
31 March 2020 21:05
Grab bag for everyone hospital passport, respect forms and activities bags to ensure xannilation and swabbing can happen timely #WeLDNs
@PaulaHopes1
31 March 2020 21:05
@RebeccaCrossle2 @dmarsden49 @Markliamb @AWebster67 @WeLDnurses @NICEComms Our community teams @MHLD_SBUHB work closely with #ALNs to support, share info & advocate, we have seen close work8ng across CTLD & inpatient areas to make preparations @kath_hart @JoBo2104 @clareybell558 #WeLDNs
@chris_dlamini
31 March 2020 21:06
I wonder the rate of mental ill health diagnoses will be during #COVID19 #WeLDNs
@salsa442
31 March 2020 21:06
@WeLDnurses I think this will completely alter the way we deliver primary and secondary care, more virtual clinics, increased use of tech. Really focus on timely assessment of need and admission avoidance #WeLDNs
@PaulaMc007
31 March 2020 21:06
@WeLDnurses #Oliverscampaign most are confused and scared and with good reason #WeLDNs
@lynnewalsall
31 March 2020 21:06
RT @IechydDaBangor: @WeLDnurses #WeLDNs I think redeployment of staff from community to acute areas will be a possible issue, LD Children’s…
@Clare37240768
31 March 2020 21:06
@WeLDnurses #WeLDNs I know some people who are struggling with a disruption to their routines, also over cautious carers who do know want to "expose" people to the outside world due to the virus. It is a very difficult situation as carers want to protect people, but how do we balance?
@drliberty
31 March 2020 21:06
@WeLDnurses Some doing well with changes other struggling. Meeting today made very obvious to people planning lessening if CLDT cover how quickly individuals will move from being ok and supported (priority 3) to not being ok (priority 1). Needs very clever thinking about support #weldns
@chrishattoncedr
31 March 2020 21:06
@RebeccaCrossle2 @dmarsden49 @Markliamb @AWebster67 @WeLDnurses @NICEComms Yes - I suppose as always, it's learning disability nurses having to drag a health system back to considering how to support people with learning disabilities effectively #WeLDNs
@ross_6479_RNLD
31 March 2020 21:06
@salsa442 @WeLDnurses I totally agree, the digital way of working has really come to light this last week and there is some great technology that will have huge benefits #WeLDNs
@WeLDnurses
31 March 2020 21:06
A real concern here, our patients need advocating for and supporting to fight for their rights more than ever right now #WeLDNs https://twitter.com/KatieJRedstar/status/1245079552604491776
@samabdulla
31 March 2020 21:07
@salsa442 @WeLDnurses I’m really hoping it changes the way social care an non-registered health care are viewed by wider society. #weldns
@chris_dlamini
31 March 2020 21:07
#WeLDNs while we #FlattenTheCurve l wonder what the curve for mental ill health would look like in people with learning disabilities
@dmarsden49
31 March 2020 21:07
@RebeccaCrossle2 @Markliamb @AWebster67 @WeLDnurses @NICEComms Exactly, while a healthcare passport won't do any harm, it will require strong advocacy at the point of triage. #weldns
@SarahPr57058520
31 March 2020 21:07
@ross_6479_RNLD @WeLDnurses Alot of easy read information and stuff that could be done indoors and on computer. #WeLDNs
@MASowden
31 March 2020 21:07
@WeLDnurses Development of simpler tech friendly resources such as passports , bern able to pull together virtual teams in hours , accessible passports/flags surely shouldn’t still challenge systems #WeLDNs
@RebeccaCrossle2
31 March 2020 21:08
@WeLDnurses Again I'm a discussion and respect forms with families now #WeLDNs
@ClaireLDNurse
31 March 2020 21:08
@WeLDnurses Increase in anxiety and isolation when admitted and not understanding why family and caters can’t visit and support. Frightening for most people being hospitalised without Covid #WeLDNs
@PaulaHopes1
31 March 2020 21:08
@ross_6479_RNLD @WeLDnurses @purplishspider There’s wide representations including people with learning disabilities & family members, MDT represented & a nice feel to the group too. People are sharing & caring @gakko1986 has shared a fantastic resource in there #WeLDNs
@salsa442
31 March 2020 21:08
RT @chris_dlamini: #WeLDNs while we #FlattenTheCurve l wonder what the curve for mental ill health would look like in people with learning…
@WeLDnurses
31 March 2020 21:08
#WeLDNs https://twitter.com/SJaneBernal/status/1245080312780075010
@dmarsden49
31 March 2020 21:08
@chrishattoncedr @Markliamb @AWebster67 @WeLDnurses @NICEComms Which is? #weldns
@StephanieRossLN
31 March 2020 21:08
@chrishattoncedr @dmarsden49 @Markliamb @AWebster67 @WeLDnurses @NICEComms Seeing a clear medical rational that links to the persons physical health; asking would you make the same decision if they didn't have a learning disability... I'd be interested to know how others are supporting medical staff to make decisions #WeLDNs
@drliberty
31 March 2020 21:08
@WeLDnurses More streamlined working and greater use of virtual meetings - already more joined up in a small amount of time. May lead to greater rotational working so everyone has experience of different areas #WeLDNs
@salsa442
31 March 2020 21:08
#WeLDNs https://twitter.com/_donnacoombs_/status/1245080523942363140
@RebeccaCrossle2
31 March 2020 21:08
@WeLDnurses IMCA #WeLDNs
@Markliamb
31 March 2020 21:08
@dmarsden49 @RebeccaCrossle2 @AWebster67 @WeLDnurses @NICEComms and that is the point at which the system will either succeed or fail for people with learning disabilities. #weldns
@SarahPr57058520
31 March 2020 21:09
@WeLDnurses One of my biggest fear, is people being isolated and the state of their mental health. I know ive been going crazy, but its 10 worse for ppl with LD. #WeLDNs
@PaulaHopes1
31 March 2020 21:09
RT @WeLDnurses: #WeLDNs
@WeLDnurses
31 March 2020 21:09
I think we can all hope that this happens. Social care staff and non-registered health care staff definitely need more credit #WeLDNs https://twitter.com/samabdulla/status/1245080211290456079
@dmarsden49
31 March 2020 21:09
@beckyquin @NorthwayRuth @WeLDnurses @BSUH_NHS @Triciahandley Don't forget the hashtag Becky! #weldns
@JohnBaker_Leeds
31 March 2020 21:09
RT @WeLDnurses: Question 4. How are the individuals you support coping with the changes? #WeLDNs
@chris_dlamini
31 March 2020 21:09
There are ldnurses waiting in the wings of academia waiting to either volunteer or support on ld units #WeLDNs
@JohnBaker_Leeds
31 March 2020 21:09
RT @WeLDnurses: Question 3. What difficulties have you faced in ensuring the needs of people with a Learning Disability are met? #WeLDNs
@PaulaHopes1
31 March 2020 21:09
RT @SarahPr57058520: @ross_6479_RNLD @WeLDnurses Alot of easy read information and stuff that could be done indoors and on computer. #WeLDNs
@ross_6479_RNLD
31 March 2020 21:09
@WeLDnurses I think the biggest take away will not be what we as a tribe learn, but what we can evidence of what we have been saying & trying to have changed for a long time. Im hoping this, along with all the other great work going on, helps to highlight that, If that makes sense #WeLDNs
@mhldnurse_amy
31 March 2020 21:09
@KatieJRedstar @WeLDnurses It’s an absolute scandal, Katie. If there is any message I would like to send to someone with a disability or underlying condition, it is *screaming from the rooftops”, “You matter, you are valued, you are important, and we will fight for your rights together”. #WeLDNs
@CommunityLd
31 March 2020 21:09
@ross_6479_RNLD @salsa442 @WeLDnurses I’ve suggested this as a model of engaging with patients. Lots of them have smartphones now. Also can be used now to offer clinics and supervision, while maintaining social distancing. Adapting practice #weldns
@RebeccaCrossle2
31 March 2020 21:09
@WeLDnurses Yes discussions now about treatment please #WeLDNs
@MASowden
31 March 2020 21:09
@PaulaHopes1 @WeLDnurses @ClaireLDNurse @karaknowles15 @Llinda_P @TeresaHassell @pphillips2020 Absolutely agree - this has to be a priority from the centre and not continued reliance on goodwill and discretionary effort of the few #WeLDNs
@LiamFreeman1991
31 March 2020 21:10
@WeLDnurses How important it is to access the community really is for people with LD, how important it is to make every contact count with families and friends of the people we support #weldns
@IechydDaBangor
31 March 2020 21:10
@WeLDnurses #WeLDNs the importance of gathering data / evidence to inform practice - ask families what could we do differently, but we also need to ask now not just after the event
@CommunityLd
31 March 2020 21:10
@WeLDnurses Ditching all of the ‘5S’ ?? and just getting on with nursing #weldns
@WeLDnurses
31 March 2020 21:11
Question 6. How are you ensuring that the individuals you care for stay physically and mentally healthy? #WeLDNs
@dmarsden49
31 March 2020 21:11
@beckyquin @NorthwayRuth @WeLDnurses @BSUH_NHS @Triciahandley Of course, I don't doubt it. I'm working of anecdotal evidence and fast runnng out of date practice. We have to be advised by people like you & @Triciahandley #weldns
@JoamyDavis
31 March 2020 21:11
@WeLDnurses seeing my team pull together &devise proactive contingency plans has been such a positive.if our team, and more importantly our service users, can get through this period of unease relatively unscathed, then I am confident we have proved the need 4 specialist LD services.#WeLDNs
@ross_6479_RNLD
31 March 2020 21:11
RT @WeLDnurses: Question 6. How are you ensuring that the individuals you care for stay physically and mentally healthy? #WeLDNs
@HelenAshby72
31 March 2020 21:11
@WeLDnurses #WeLDNs in 'normal times' now and next is a brilliant tool and people I have supported need that and right now no ending and no vision of when this will end is making now and next meaningless. Its hard supporting someone to just cope until ....... no end date!
@chris_dlamini
31 March 2020 21:11
RT @CommunityLd: @WeLDnurses Ditching all of the ‘5S’ ?? and just getting on with nursing #weldns
@chrishattoncedr
31 March 2020 21:11
@dmarsden49 @Markliamb @AWebster67 @WeLDnurses @NICEComms Critical care will be scarce,so if you're 'frail' and/or have other health conditions you're less likely to get it #WeLDNs
@salsa442
31 March 2020 21:11
RT @WeLDnurses: Question 6. How are you ensuring that the individuals you care for stay physically and mentally healthy? #WeLDNs
@LiamFreeman1991
31 March 2020 21:11
RT @WeLDnurses: Question 6. How are you ensuring that the individuals you care for stay physically and mentally healthy? #WeLDNs
@RebeccaCrossle2
31 March 2020 21:11
@LiamFreeman1991 @WeLDnurses Yes respect forms and discussions about treatment #WeLDNs give us the tools to barricade against discrimination #cldts
@lynnewalsall
31 March 2020 21:11
RT @WeLDnurses: Question 6. How are you ensuring that the individuals you care for stay physically and mentally healthy? #WeLDNs
@NorthwayRuth
31 March 2020 21:11
@IechydDaBangor @WeLDnurses We also need to be able to respond quickly to what people say they need #WeLDNs
@WeLDnurses
31 March 2020 21:11
RT @HelenAshby72: @WeLDnurses #WeLDNs in 'normal times' now and next is a brilliant tool and people I have supported need that and right no…
@salsa442
31 March 2020 21:12
@WeLDnurses Sharing coping strategies like this #WeLDNs https://t.co/HHCwEEOgEE
@chris_dlamini
31 March 2020 21:12
@WeLDnurses Exercise #WeLDNs
@lynnewalsall
31 March 2020 21:12
RT @CommunityLd: @WeLDnurses Ditching all of the ‘5S’ ?? and just getting on with nursing #weldns
@PaulaHopes1
31 March 2020 21:12
@chrishattoncedr @RebeccaCrossle2 @dmarsden49 @Markliamb @AWebster67 @WeLDnurses @NICEComms We really need to work with a strong #MDT to support decisions & confidence in escalating concerns. @MHLD_SBUHB close liaison with acute services is essential #advocate #advocate #advocate #WeLDNs #reasonableadjustments
@RebeccaCrossle2
31 March 2020 21:12
@PaulaHopes1 @chrishattoncedr @dmarsden49 @Markliamb @AWebster67 @WeLDnurses @NICEComms @MHLD_SBUHB Yes yes yes #WeLDNs
@WeLDnurses
31 March 2020 21:12
It is so important to make every contact count! #WeLDNs https://twitter.com/LiamFreeman1991/status/1245080966726590464
@dmarsden49
31 March 2020 21:13
@Markliamb @RebeccaCrossle2 @AWebster67 @WeLDnurses @NICEComms That is one fulcrum point, the other significant role that the leaning disability nurse can play is ensuring that they don't get there in the first place. #WeLDNs
@lynnewalsall
31 March 2020 21:13
RT @salsa442: @WeLDnurses Sharing coping strategies like this #WeLDNs https://t.co/HHCwEEOgEE
@IechydDaBangor
31 March 2020 21:13
@NorthwayRuth @WeLDnurses #WeLDNs finding ways to connect differently with families that are self isolating is key
@ElaineLJames
31 March 2020 21:13
@dmarsden49 @RebeccaCrossle2 @Markliamb @AWebster67 @WeLDnurses @NICEComms #WeLDNs You can download a hospital passport from @LearningDisEng but is it standard and would all acute Trusts know about it? https://www.learningdisabilityengland.org.uk/what-we-do/keeping-informed-and-in-touch-during-coronavirus/resources-that-can-help/
@SarahPr57058520
31 March 2020 21:13
@WeLDnurses I find it hard especially when it comes to people who have autism and just trying to help with different activities and distractions, where all they want to do is there regular day to day activities. #WeLDNs
@chris_dlamini
31 March 2020 21:13
#WeLDNs 9 to 5 life may have changed now however activities, walks, exercise, kindness, care, compassion will never and should not change
@florenceella
31 March 2020 21:13
@WeLDnurses Implementing a ‘timetable’ or structure to the day - like day services would offer, encouraging the individual to have control and make decisions on what they can do! #WeLDNs
@florenceella
31 March 2020 21:13
RT @salsa442: @WeLDnurses Sharing coping strategies like this #WeLDNs https://t.co/HHCwEEOgEE
@WeLDnurses
31 March 2020 21:13
RT @chris_dlamini: #WeLDNs 9 to 5 life may have changed now however activities, walks, exercise, kindness, care, compassion will never and…
@lynnewalsall
31 March 2020 21:13
RT @WeLDnurses: It is so important to make every contact count! #WeLDNs https://twitter.com/LiamFreeman1991/status/1245080966726590464
@paularich1977
31 March 2020 21:14
@WeLDnurses Checking temperatures more regularly, encouraging hand washing more than ever, ensuring additional cleaning of all areas, trying to engage in more meaningful activities within the constraints of the area. #WeLDNs
@HelenAshby72
31 March 2020 21:14
@WeLDnurses #WeLDNs We are finding an increasing amount of indoor activities involve food. Also the person I'm supporting is literally living meal to meal with no meaningful usual activity to do. So weight gain and associated illness is a worry.
@WelchySquelchy
31 March 2020 21:14
RT @salsa442: @WeLDnurses Sharing coping strategies like this #WeLDNs https://t.co/HHCwEEOgEE
@MASowden
31 March 2020 21:14
@WeLDnurses such a worry, and given findings from LeDeR reviews this is not changing for the better #WeLDNs
@samabdulla
31 March 2020 21:14
The people I care for now are student nurse, I hope they feel cared for as we do everything we can to get them through this safely #WeLDNs https://twitter.com/weldnurses/status/1245081179180748801
@LiamFreeman1991
31 March 2020 21:14
@WeLDnurses Last day of placement tomorrow, so going to bake cake with the service users and had a delicious slice of cake with a cup of tea #weldns ( and other activities)
@NorthwayRuth
31 March 2020 21:14
@IechydDaBangor @WeLDnurses Absolutely #WeLDNs
@ElaineLJames
31 March 2020 21:14
#WeLDNs This https://twitter.com/dmarsden49/status/1245081697667944451
@StephanieRossLN
31 March 2020 21:14
@chrishattoncedr @dmarsden49 @Markliamb @AWebster67 @WeLDnurses @NICEComms important to also have a balance that if this form of treatment is not likely to sustain life, it is not appropriate to put people through it, we need good deaths too #WeLDNs
@chris_dlamini
31 March 2020 21:14
RT @WeLDnurses: It is so important to make every contact count! #WeLDNs
@dmarsden49
31 March 2020 21:14
@chrishattoncedr @Markliamb @AWebster67 @WeLDnurses @NICEComms Someone mentioned a tool that is in use at some hospitals that in their description is very much based on this assumption, am trying to source the name. #weldns
@DigitalNurseNHS
31 March 2020 21:14
RT @WeLDnurses: Question 6. How are you ensuring that the individuals you care for stay physically and mentally healthy? #WeLDNs
@WeLDnurses
31 March 2020 21:14
Some great coping strategies here. Thanks @salsa442 #WeLDNs https://twitter.com/salsa442/status/1245081448861794304
@CommunityLd
31 March 2020 21:14
@SJaneBernal I meant premature in the broadest sense of reduced life expectancy in learning disability #weldns
@LastDaysoflifeR
31 March 2020 21:15
Yes there is another I direct impact here isn't there - people with LD with serious non covid19 related illnesses will also experience additional restrictions in accessing necessary care and treatment - it's going beyond covid19 - #WeLDNs https://twitter.com/chrishattoncedr/status/1245081322026151936
@florenceella
31 March 2020 21:15
RT @WeLDnurses: It is so important to make every contact count! #WeLDNs
@PaulaHopes1
31 March 2020 21:15
@LiamFreeman1991 @WeLDnurses Other lovely ideas for self isolation & shielding #WeLDNs https://t.co/aBMqJfhC11
@IechydDaBangor
31 March 2020 21:15
RT @WeLDnurses: Question 6. How are you ensuring that the individuals you care for stay physically and mentally healthy? #WeLDNs
@samabdulla
31 March 2020 21:15
RT @salsa442: @WeLDnurses Sharing coping strategies like this #WeLDNs https://t.co/HHCwEEOgEE
@JoamyDavis
31 March 2020 21:15
@WeLDnurses The acceptance of being “creative” in our approach. This has been welcomed throughout the NHS currently. This “outside the box” thinking is a key skill of LD specialist services & I feel this way of working will be explored a lot more now #WeLDNs
@CommunityLd
31 March 2020 21:15
@WeLDnurses Never seen so many physical observations, in line with NEWS-2, completed #weldns
@StephanieRossLN
31 March 2020 21:15
@dmarsden49 @chrishattoncedr @Markliamb @AWebster67 @WeLDnurses @NICEComms do you meant the clinical frailty scale NICE guidance? #WeLDNs
@ClaireLDNurse
31 March 2020 21:15
@StephanieRossLN @PaulaHopes1 @chrishattoncedr @dmarsden49 @Markliamb @AWebster67 @WeLDnurses @NICEComms This has become a mantra in my job #WeLDNs
@drliberty
31 March 2020 21:16
@WeLDnurses Exercise, greater use of in house activity, maintaining contact with family using tech, continued use of physical ob monitoring including softer signs not just bp etc. Allowing people time to talk about fears - including staff #weldns
@LiamFreeman1991
31 March 2020 21:16
@PaulaHopes1 @WeLDnurses Ooh I love it #weldns
@Clare37240768
31 March 2020 21:16
@WeLDnurses #WeLDNs I have seen so many carers who are so passionate about their jobs and the people they support! In times like these (and on every other day in fact!) we should celebrate these carers who give their all to support people
@dmarsden49
31 March 2020 21:16
@StephanieRossLN @chrishattoncedr @Markliamb @AWebster67 @WeLDnurses @NICEComms Agreed @TuffreyWijne was talking with my #7101s19 @NursingKingston set about this today. #weldns
@ClaireLDNurse
31 March 2020 21:16
@WeLDnurses 100% #WeLDNs
@salsa442
31 March 2020 21:16
RT @PaulaHopes1: @LiamFreeman1991 @WeLDnurses Other lovely ideas for self isolation & shielding #WeLDNs https://t.co/aBMqJfhC11
@samabdulla
31 March 2020 21:16
@LiamFreeman1991 @WeLDnurses Everything is better with tea and cake #WeLDNs
@florenceella
31 March 2020 21:16
@paularich1977 @WeLDnurses Yes, we’ve also implemented a screening process on admission where the individuals temperature is taken etc. We explain all this to the individual/ parent/ carer prior to admission to reduce anxieties! #WeLDNs
@ShaunAlleman
31 March 2020 21:16
RT @PaulaMc007: @WeLDnurses #Oliverscampaign #WeLDNs That people with a learning disability will actually be given a respirator if they nee…
@SueBprof1
31 March 2020 21:16
RT @PaulaHopes1: @LiamFreeman1991 @WeLDnurses Other lovely ideas for self isolation & shielding #WeLDNs https://t.co/aBMqJfhC11
@theLDphysio
31 March 2020 21:16
@WeLDnurses great tweet chat tonight with lots of highly relevant content. Supplementary question, is there any drive for increasing LD liason nurses in acute hospitals? Also is everyone aware nightingale are recruiting? Having staff with LD knowledge will save lives. #weldns
@chris_dlamini
31 March 2020 21:16
@WeLDnurses Ensuring that our student nurses contribute to this as well. They are creative and energetic. They are the light at the end of this not so bright tunnel #stns #WeLDNs
@lynnewalsall
31 March 2020 21:17
@samabdulla It's so important to support Sam but challenging at a distance utilising new communication systems. Students used to just popping into the office #WeLDNs
@WeLDnurses
31 March 2020 21:17
Being creative and thinking outside the box is definitely a key skill #WeLDNs https://twitter.com/JoamyDavis/status/1245082372997087233
@WeLDnurses
31 March 2020 21:17
@rayofthegarden Don't forget to include the hashtag #WeLDNs in all your tweets during tonights chat. Thanks
@VickiG1086
31 March 2020 21:17
Absolutely #WeLDNs https://twitter.com/clare37240768/status/1245082504761131012
@dmarsden49
31 March 2020 21:17
@StephanieRossLN @chrishattoncedr @Markliamb @AWebster67 @WeLDnurses @NICEComms Unfortunately not. #weldns
@RebeccaCrossle2
31 March 2020 21:17
@Clare37240768 @WeLDnurses Are they recognising the subtle signs #atypicalcovid19 #WeLDNs
@WeLDnurses
31 March 2020 21:17
RT @Clare37240768: @WeLDnurses #WeLDNs I have seen so many carers who are so passionate about their jobs and the people they support! In ti…
@florenceella
31 March 2020 21:17
@LiamFreeman1991 @WeLDnurses I think one of my clients has planned baking for an activity on Thursday ???? #passthecake #WeLDNs
@WeLDnurses
31 March 2020 21:18
Question 7. How are you ensuring that you yourself stay physically and mentally healthy? #WeLDNs
@samabdulla
31 March 2020 21:18
@lynnewalsall You can’t give a hug from 2M away. Not that I ever give hugs, no, that would be unprofessional #weldns https://t.co/OAVUuUu7On
@salsa442
31 March 2020 21:18
RT @WeLDnurses: Question 7. How are you ensuring that you yourself stay physically and mentally healthy? #WeLDNs
@mhldnurse_amy
31 March 2020 21:18
@samabdulla Having been a mentor to student nurses in practice recently, I have felt v. disorganised in terms of planning learning opps., something I haven’t had to experience before. The STN’s have absolutely thrived - showing us their value and what they’re made of. #WeLDNs
@RebeccaCrossle2
31 March 2020 21:18
@WeLDnurses Wine #WeLDNs and using @weldns
@WeLDnurses
31 March 2020 21:18
Everything is definitely better with tea and cake! I hope you all have lots to share in work during this time! #WeLDNs https://twitter.com/samabdulla/status/1245082595655856129
@lynnewalsall
31 March 2020 21:18
RT @WeLDnurses: Being creative and thinking outside the box is definitely a key skill #WeLDNs https://twitter.com/JoamyDavis/status/1245082372997087233
@StephanieRossLN
31 March 2020 21:18
@RebeccaCrossle2 @Clare37240768 @WeLDnurses how would you describe these? #WeLDNs
@chris_dlamini
31 March 2020 21:18
#WeLDNs thank you to all of you at the frontline l appreciate and salute you all and on behalf of the people we serve, a big thank you #WeLDNs
@IechydDaBangor
31 March 2020 21:18
@WeLDnurses #WeLDNs Many organisations are doing great work supporting their members via zoom, Facebook, to keep fit @CC4LD @MencapCymru @mencapmon
@ClaireLDNurse
31 March 2020 21:18
@samabdulla @lynnewalsall Following guidance #WeLDNs
@WeLDnurses
31 March 2020 21:18
#WeLDNs https://twitter.com/claretarling/status/1245082930457821185
@WeLDnurses
31 March 2020 21:19
Has anybody else implemented this? #WeLDNs https://twitter.com/florenceella/status/1245082617214652423
@salsa442
31 March 2020 21:19
RT @chris_dlamini: #WeLDNs thank you to all of you at the frontline l appreciate and salute you all and on behalf of the people we serve, a…
@CommunityLd
31 March 2020 21:19
@WeLDnurses I think it’s also vital for nurses to ensure their own physical and mental wellbeing to ensure best care can be maintained #weldns
@ross_6479_RNLD
31 March 2020 21:19
@florenceella @LiamFreeman1991 @WeLDnurses Did someone say cake ????#WeLDNs
@VickiG1086
31 March 2020 21:19
@RebeccaCrossle2 @Clare37240768 @WeLDnurses This was my point about GPs Skyping this community of people, they may not be able to pick up the subtle signs #WeLDNs
@ross_6479_RNLD
31 March 2020 21:19
RT @WeLDnurses: Question 7. How are you ensuring that you yourself stay physically and mentally healthy? #WeLDNs
@lynnewalsall
31 March 2020 21:19
RT @WeLDnurses: Question 7. How are you ensuring that you yourself stay physically and mentally healthy? #WeLDNs
@NorthwayRuth
31 March 2020 21:19
RT @chris_dlamini: #WeLDNs thank you to all of you at the frontline l appreciate and salute you all and on behalf of the people we serve, a…
@PaulaHopes1
31 March 2020 21:19
RT @salsa442: @WeLDnurses Sharing coping strategies like this #WeLDNs https://t.co/HHCwEEOgEE
@ElaineLJames
31 March 2020 21:19
@WeLDnurses #WeLDNs The same way that the people we support will, by following the guidance provided by @BTMOrg @SueatBTM https://twitter.com/BTMOrg/status/1241030520928186368?s=19
@PaulaHopes1
31 March 2020 21:19
RT @WeLDnurses: Being creative and thinking outside the box is definitely a key skill #WeLDNs
@SueBprof1
31 March 2020 21:19
@WeLDnurses #WeLDNs Keeping as much routine and structure as possible even if it means tweaking the activities etc. Maintaining contact is essential, learning new ways to do this has been important for us all and its key to remember that video calls etc are important for all!
@samabdulla
31 March 2020 21:19
@mhldnurse_amy Knowing they have mentors like you makes me worry much less #weldns
@lynnewalsall
31 March 2020 21:19
RT @samabdulla: @lynnewalsall You can’t give a hug from 2M away. Not that I ever give hugs, no, that would be unprofessional #weldns https:…
@SarahPr57058520
31 March 2020 21:19
@WeLDnurses Im not gonna lie, chocolate is keeping me sane lol #WeLDNs
@MASowden
31 March 2020 21:20
@WeLDnurses Trying to do an early morning walk or run to replace the gym - closely followed by chocolate and gin hmmmm #WeLDNs
@salsa442
31 March 2020 21:20
Loads of virtual dance classes being live streamed on Instagram, Facebook and Zoom, so important to keep active #WeLDNs https://twitter.com/iechyddabangor/status/1245083148196745216
@WeLDnurses
31 March 2020 21:20
Is anyone aware of any drives to increase LD liaison nurses at this time? #WeLDNs https://twitter.com/theLDphysio/status/1245082676803092481
@ElaineLJames
31 March 2020 21:20
RT @WeLDnurses: Is anyone aware of any drives to increase LD liaison nurses at this time? #WeLDNs
@mhldnurse_amy
31 March 2020 21:20
@samabdulla When offered the opportunity to leave practice, they have stayed. They have chosen to help. I take my hat off to them for having the courage to do that in such uncertain circumstances. Daily or weekly check ins with ST/N’s, I hope, has helped them to feel supported. #WeLDNs
@CommunityLd
31 March 2020 21:20
@florenceella @paularich1977 @WeLDnurses I would have expected a physical health assessment would be routine upon admission #weldns
@PaulaHopes1
31 March 2020 21:20
@JoamyDavis @WeLDnurses #WeLDNs continuing to learn, every day https://t.co/WHiP52Ljwx
@helenglais
31 March 2020 21:20
@PaulaHopes1 @WeLDnurses @chrishattoncedr @RebeccaCrossle2 @dmarsden49 @Markliamb @AWebster67 @NICEComms @MHLD_SBUHB In our team we have all brought something to the table, have all contributed to strategy and resources, have questioned each other productively and constructively and have demonstrated the strength of interdisciplinary working #weLDNs
@RebeccaCrossle2
31 March 2020 21:20
Wish I didn't care about potential discrimination #WeLDNs
@KeayCath
31 March 2020 21:21
RT @salsa442: @WeLDnurses Sharing coping strategies like this #WeLDNs https://t.co/HHCwEEOgEE
@VickiG1086
31 March 2020 21:21
@WeLDnurses A good book and assignments trying keep as normal a routine as possible #WeLdNs
@paularich1977
31 March 2020 21:21
@WeLDnurses Keeping in contact with loved ones, spending quality time with the children and their mountain of homework, which I’m largely ignoring at the moment. Making the most of down time and trying to rest between shifts, making sure days off are that and wine #WeLDNs
@chris_dlamini
31 March 2020 21:21
@WeLDnurses Staying in touch with others. Exercising, cups of tea, watching what and how much l eat, staying positive and checking up on friends regularly #WeLDNs
@SJaneBernal
31 March 2020 21:21
Another big concern #WeLDNs is how best to support families divided by covid19. especially for people with severe/profound/ multiple disabilities. https://twitter.com/RoseUnwin/status/1245083113920835586
@WeLDnurses
31 March 2020 21:21
There are lot of student nurses who are hoping to get back out there very soon #WeLDNs https://twitter.com/chris_dlamini/status/1245082682016575488
@chris_dlamini
31 March 2020 21:21
RT @WeLDnurses: Question 7. How are you ensuring that you yourself stay physically and mentally healthy? #WeLDNs
@lynnewalsall
31 March 2020 21:21
@samabdulla A hug can go along way sometimes, expressing more than words. But at 2 m it's impossible. But can be kind, encouraging and supportive #WeLDNs
@christnetowers
31 March 2020 21:21
@WeLDnurses #WeLDNs Incontrol are running a webinar on this tomorrow morning- 11.00 I think
@SarahPr57058520
31 March 2020 21:21
@WeLDnurses I think Russell hall hospital have liasion nurse 7 days a week. #WeLDNs
@florenceella
31 March 2020 21:21
@WeLDnurses Acknowledging feelings, being honest, talking with my team, talking with friends working in other healthcare areas, talking with friends and family, exercise, wine, Kit Kat chunkys, celebrating good news! #WeLDNs
@samabdulla
31 March 2020 21:21
@mhldnurse_amy It’s not a tear, just something in my eye #weldns
@Markliamb
31 March 2020 21:21
@dmarsden49 @StephanieRossLN @chrishattoncedr @AWebster67 @WeLDnurses @NICEComms @TuffreyWijne @NursingKingston But we also need to ensure that conversations about "a good death" don't become the easier option when a learning disability nurse, family member or advocate isn't around #WeLDNs
@CommunityLd
31 March 2020 21:21
@WeLDnurses No, seemingly not in my area. Although the acute Trust are training LD nurses to work on wards #weldns
@NorthwayRuth
31 March 2020 21:21
@IechydDaBangor @WeLDnurses @CC4LD @MencapCymru @mencapmon It’s also been great to see colleagues with learning disabilities supporting each other via social media - some of their posts have definitely improved my well being- so thank you to all who have done this #WeLDNs
@SueatBTM
31 March 2020 21:22
RT @ElaineLJames: @WeLDnurses #WeLDNs The same way that the people we support will, by following the guidance provided by @BTMOrg @SueatBT…
@florenceella
31 March 2020 21:22
RT @WeLDnurses: Everything is definitely better with tea and cake! I hope you all have lots to share in work during this time! #WeLDNs
@chris_dlamini
31 March 2020 21:22
#WeLDNs do we have a directline during #COVID19 Sometimes l get sad and need to reach out to #WeLDNs
@drliberty
31 March 2020 21:22
@WeLDnurses Making sure some of the day is doing something other than COVID related, debrief, reflection on how we are feeling #WeLDNs
@_jo_hope
31 March 2020 21:22
RT @WeLDnurses: Question 1. What are your biggest concerns for the learning disability population? #WeLDNs
@LiamFreeman1991
31 March 2020 21:22
@theLDphysio @WeLDnurses I heard with the temporary register, there is chance of student nurses (who are studying LD nursing) being placed in acute hospitals during this pandemic #weldns
@VickiG1086
31 March 2020 21:22
@WeLDnurses My placement implemented temp checks twice a day. #WeLDNs
@PaulaHopes1
31 March 2020 21:22
@helenglais @WeLDnurses @chrishattoncedr @RebeccaCrossle2 @dmarsden49 @Markliamb @AWebster67 @NICEComms @MHLD_SBUHB We are checking in with each other, showing how we value & respect each other & caring for each other #weldns https://t.co/C2zvKBCLMf
@WeLDnurses
31 March 2020 21:22
#WeLDNs https://twitter.com/HelenAshby72/status/1245083802063589377
@florenceella
31 March 2020 21:23
Really interested to know this! #WeLDNs https://twitter.com/weldnurses/status/1245083488329531392
@lynnewalsall
31 March 2020 21:23
Yes in our area some amazing imaginative work #WeLDNs https://twitter.com/IechydDaBangor/status/1245083148196745216
@chris_dlamini
31 March 2020 21:23
#WeLDNs the vibe of the tribe
@salsa442
31 March 2020 21:23
@CommunityLd @WeLDnurses Same where I am, but lots of upskilling training to support acute ward teams #WeLDNs
@chris_dlamini
31 March 2020 21:23
RT @WeLDnurses: There are lot of student nurses who are hoping to get back out there very soon #WeLDNs
@samabdulla
31 March 2020 21:23
@LiamFreeman1991 @theLDphysio @WeLDnurses My understanding is you’ll still work on your field of practice #WeLDNs
@CommunityLd
31 March 2020 21:24
@salsa442 @WeLDnurses I’ve done my training and on ‘standby’ for post surgical care #weldns
@ClaireLDNurse
31 March 2020 21:24
@WeLDnurses Taking advantage of hugging those in the household as boy this able to do the same for other friends and family. Getting some sunshine #WeLDNs
@VickiG1086
31 March 2020 21:24
@WeLDnurses I’m definitely one students who wants to be helping not sat at home #WeLDNs
@WeLDnurses
31 March 2020 21:24
@Clare37240768 @RebeccaCrossle2 @weldns #WeLDNs
@mhldnurse_amy
31 March 2020 21:24
@WeLDnurses I’m in isolation at the moment, but prior to this, in the midst of relaxation, increased activity; peer support has been invaluable. Meetings to reinforce the importance of caring for one another and being mindful of the reasons for someone else actions. #WeLDNs
@KeayCath
31 March 2020 21:24
RT @WeLDnurses: Very important point to make. We must ensure that diagnostic overshadowing doesn't happen #WeLDNs
@RebeccaCrossle2
31 March 2020 21:24
@NorthwayRuth @IechydDaBangor @WeLDnurses @CC4LD @MencapCymru @mencapmon Feeling's are tough had to restrain a patient to be covid swabbed it was hard and I hated it #WeLDNs but glad as now we will know #handsoffalways
@dmarsden49
31 March 2020 21:24
@florenceella @paularich1977 @WeLDnurses Very wise @florenceella I assume this kind of assessment is not normally required in respite services? #weldns
@lynnewalsall
31 March 2020 21:24
They do headed by the fantastic @3_jacqui ?? #WeLDNs https://twitter.com/SarahPr57058520/status/1245083889846169605
@salsa442
31 March 2020 21:24
@CommunityLd @WeLDnurses Same here, I’m ready to step back into front line nursing practice #WeLDNs
@WeLDnurses
31 March 2020 21:25
Question 8. Is there anything else you would like to share? What have you taken away from this chat? #WeLDNs
@WeLDnurses
31 March 2020 21:25
Great to hear this #WeLDNs https://twitter.com/NorthwayRuth/status/1245083940861468673
@ross_6479_RNLD
31 March 2020 21:25
RT @WeLDnurses: Question 8. Is there anything else you would like to share? What have you taken away from this chat? #WeLDNs
@LisaR_Psy
31 March 2020 21:25
Interesting chats & resources being shared at #WeLDNs concerns abound that ppl w learning disabilities or autistic ppl will be systemically disregarded when it comes to support & treatment amid #COIVD19 But there's hope & ideas for keeping folks well & where poss out of hospital https://twitter.com/KScior/status/1245073813055946752
@everhopeful1000
31 March 2020 21:25
RT @PaulaMc007: @WeLDnurses #Oliverscampaign #WeLDNs That people with a learning disability will actually be given a respirator if they nee…
@chris_dlamini
31 March 2020 21:25
#WeLDNs https://t.co/YfCPsuIGY5
@JoamyDavis
31 March 2020 21:25
@paularich1977 @WeLDnurses Fabulous technique Paula...the wine I mean ????...and ignoring the mountain of school work! We do need to take the positives in this time & focus on quality time with our kids! #WeLDNs
@mhldnurse_amy
31 March 2020 21:25
@WeLDnurses Also humour. It’s sometimes just the right tonic. Being able to make people smile/laugh for some relief of uncertainty never goes amiss. #WeLDNs
@drliberty
31 March 2020 21:26
@WeLDnurses Not where I am but we have suggested it to the powers that be to support the community hospitals where there is no LD liaison nurses #WeLDNs
@IechydDaBangor
31 March 2020 21:26
RT @WeLDnurses: Question 7. How are you ensuring that you yourself stay physically and mentally healthy? #WeLDNs
@salsa442
31 March 2020 21:26
RT @WeLDnurses: Question 8. Is there anything else you would like to share? What have you taken away from this chat? #WeLDNs
@paularich1977
31 March 2020 21:26
@WeLDnurses WhatsApp groups have also been a godsend keeping the mood light and encouraging a positive team spirit #WeLDNs
@PaulaHopes1
31 March 2020 21:26
& recording on #NEWs #WeLDNs https://twitter.com/vickig1086/status/1245084165055426562
@lynnewalsall
31 March 2020 21:26
In the words of Helen @helen_laverty We are stronger together #WeLDNs https://twitter.com/WeLDnurses/status/1245084702215634951
@salsa442
31 March 2020 21:26
RT @lynnewalsall: In the words of Helen @helen_laverty We are stronger together #WeLDNs
@WeLDnurses
31 March 2020 21:26
We are stronger together #WeLDNs https://twitter.com/lynnewalsall/status/1245085063353679874
@paularich1977
31 March 2020 21:27
@JoamyDavis @WeLDnurses They’ve got so much Jo, it’s unreal. I have over 100 pieces between 3 kids too much pressure on them and for me to get it done right now #weldns
@CommunityLd
31 March 2020 21:27
@WeLDnurses Free training resource for nurses and all health staff #weldns #ebp https://www.e-lfh.org.uk/programmes/coronavirus/
@RebeccaCrossle2
31 March 2020 21:27
@WeLDnurses Cldts please do respect forms and let alns know who are likely to attend hospital so we are armed with info and get IMCA instructed now #WeLDNs
@MASowden
31 March 2020 21:27
@WeLDnurses it's been a very sobering chat for me so I think we should all make sure we look after ourselves in the coming days/weeks so we can continue to keep this momentum and positivity going #WeLDNs
@WeLDnurses
31 March 2020 21:28
Thanks for sharing this #EBP Glenn #WeLDNs https://twitter.com/CommunityLd/status/1245085258179063809
@rayofthegarden
31 March 2020 21:28
#WeLDNs https://twitter.com/rayofthegarden/status/1245082498939445255
@salsa442
31 March 2020 21:28
RT @CommunityLd: @WeLDnurses Free training resource for nurses and all health staff #weldns #ebp https://www.e-lfh.org.uk/programmes/coronavirus/
@lynnewalsall
31 March 2020 21:28
RT @CommunityLd: @WeLDnurses Free training resource for nurses and all health staff #weldns #ebp https://www.e-lfh.org.uk/programmes/coronavirus/
@LiamFreeman1991
31 March 2020 21:28
@samabdulla @theLDphysio @WeLDnurses Due to HEE, doing the placements for 6 months emergency. There is slight chance of it happening, but it does says to bring it to the attention of their personal tutor and practice team. #weldns
@chris_dlamini
31 March 2020 21:28
@WeLDnurses Amazing passion as ever. Someone tell the nmc and government we are ldnurses, we can be consulted about what is best for the patients we serve #WeLDNs
@dmarsden49
31 March 2020 21:28
@HelenAshby72 @claretarling @WeLDnurses @SteveBroach presented an excellent webinar for @incontrolorg yesterday on the changes once all of the #covid19 law comes into affect, it certainly scales down many duties to possibilities, with the possibilities of reductions in support. #weldns
@JoamyDavis
31 March 2020 21:28
@WeLDnurses I have taken away An even bigger feeling of PRIDE in our LD services and the creative and passionate ways we support our service users. We may not be “frontline” as such...but we are most certainly a life line #proudRNLD #WeLDNs
@WeLDnurses
31 March 2020 21:28
It's so important that we all look after ourselves right now so that we can continue looking after others #WeLDNs https://twitter.com/MASowden/status/1245085372666851332
@ross_6479_RNLD
31 March 2020 21:28
@WeLDnurses As always it’s so comforting to hear the tribe, to know the sheer passion and determination out there is heart warming thank you all ?? #WeLDNs
@salsa442
31 March 2020 21:29
You’re all amazing, keep doing what you’re doing, nursing, advocating and educating. If we all step up and stand together we will get through this #weldns
@SalliMidgley
31 March 2020 21:29
RT @AWebster67: @WeLDnurses #WeLDNs sorry I have to go but will look out for the transcript. When will it be available. It will be really h…
@paularich1977
31 March 2020 21:29
@WeLDnurses I just want to say how thankful I am to the #WeLDNs community who always come together in times of crisis. Pleasure to work amongst you all ??
@chris_dlamini
31 March 2020 21:29
RT @CommunityLd: @WeLDnurses Free training resource for nurses and all health staff #weldns #ebp https://www.e-lfh.org.uk/programmes/coronavirus/
@florenceella
31 March 2020 21:29
@dmarsden49 @paularich1977 @WeLDnurses I should’ve clarified apologies - I was referring to greeting a client at the door on admission to respite in PPE to take obs. Not normal practice! #WeLDNs
@ermate
31 March 2020 21:29
@WeLDnurses A profession full of passion, knowledge, integrity, specialism, determination for equal health, demanding of human rights, educating, relationships which impact & never have you been more vital #respect #weldns
@WeLDnurses
31 March 2020 21:30
Wow that hours gone quick! Thank you very much for joining in. Please feel free to keep chatting. Keep up the amazing work that you are doing! #WeLDNs #StaySafe




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