#WeEOLC - Tuesday 6th October 2015 8pm (GMT Standard Time)
Case study: navigating uncertainty
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Chat Details
Hosted by WeEOLC using #WeEOLC
End of life care is an aspect of care that will be encountered in most clinical settings. Around half a million people die each year in the UK, and many of these deaths are expected.
As well as experiencing difficult symptoms, many people suffer from psychological, social and spiritual concerns. During the last year of a person's life, they are likely to meet a range of health and social care professionals for a range of different reasons. It can be a confusing and turbulent time for the person and those important to them. Carefully coordinated multi-professional care is essential, regardless of where the person may be. However we know that care is not always as good as it might be, for many different reasons.
One of the goals of @WeEOLC is to encourage people from different professions to get involved in discussing end of life care.
We invite any health or social care professional to participate in this TweetChat, in which you will meet Dan (A fictional character), who has just been diagnosed with Motor Neurone Disease. The accompanying reading is optional but might help you understand some of the challenges facing people with life-limiting illnesses, as well as help you to think about some of the innovations that can help to support people like Dan.
Dan's journey will unfold throughout the chat via tweeted updates which will question we'll invite you all to respond to given your interest, experience and area of expertise.
Here's the first update to set the scene and will be introduced in the chat after we've all introduced ourselves:
Dan's journey will unfold throughout the chat via tweeted updates which will question we'll invite you all to respond to given your interest, experience and area of expertise.
Here's the first update to set the scene and will be introduced in the chat after we've all introduced ourselves:
Accompanying Reading:
https://www.mariecurie.org.uk/globalassets/...
http://www.goldstandardsframework.org.uk/...
http://www.mndassociation.org/life-with-mnd/...
Chat Contributers
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Engagement Wheel
Chat Word Cloud
Participant bio cloud
Chat Summary
Coming soon
Post Chat Comments
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You'll need to be logged into via Twitter from the main menu, then you can share your post chat comments...
You'll need to be logged into via Twitter from the main menu, then you can share your post chat comments...
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#WeEOLC transcript
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@WeEOLC
06 October 2015 20:00
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Welcome to the very first #WeEOLC TweetChat - give us a wave...wherever you are http://t.co/p82GEgFofo |
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@KimStuartOT
06 October 2015 20:00
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RT @learnhospice: . I see something new is coming @WeEOLC #WeEOLC http://t.co/CgJywTuxWr |
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@DrNeilPender
06 October 2015 20:00
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UK leads the world in provision of palliative care but standards can still improve. #HospiceCareWeek #WeEOLC http://t.co/vqHHuN9Efa |
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@WeLDnurses
06 October 2015 20:00
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Will @karenwatchman be joining us tonight? #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:00
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#PalliativeCare: for all ages & all diseases http://t.co/fAh4a5WfqT #HiddenLives #hpmglobal #hpm #WeEOLC #PallANZ @WHO @theWPCA @ICPCN |
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@WeLDnurses
06 October 2015 20:00
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RT @WeEOLC: Welcome to the very first #WeEOLC TweetChat - give us a wave...wherever you are http://t.co/p82GEgFofo |
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@WeEOLC
06 October 2015 20:01
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#hellomyname is @heblau, hosting @WeEOLC for tonight's chat. Also here are @BridgetJohnst and @learnhospice #WeEOLC |
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@BridgetJohnst
06 October 2015 20:01
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RT @WeEOLC: Welcome to the very first #WeEOLC TweetChat - give us a wave...wherever you are http://t.co/p82GEgFofo |
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@PennyFawthrop
06 October 2015 20:01
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@WeEOLC hello and waves from Manchester #WeEOLC |
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@BridgetJohnst
06 October 2015 20:01
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RT @WeEOLC: #hellomyname is @heblau, hosting @WeEOLC for tonight's chat. Also here are @BridgetJohnst and @learnhospice #WeEOLC |
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@WeEOLC
06 October 2015 20:01
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@PennyFawthrop Hi Penny & welcome #WeEOLC |
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@samabdulla
06 October 2015 20:01
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@WeEOLC evening from Scotland! #WeEOLC |
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@WeNurses
06 October 2015 20:01
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Hello and #waving :) #WeEOLC https://t.co/5qm3Vn3oHY |
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@AlresfordBear
06 October 2015 20:02
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#WeEOLC Alreet :) |
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@CWPT_LDNurses
06 October 2015 20:02
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@WeEOLC hey ?? #weeolc |
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@LearnPEOLC
06 October 2015 20:02
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@WeEOLC #WeEOLC hi Sarah here tweeting views from this account & #ebp #WeEOLC resources from @WeEOLC account?? |
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@WeEOLC
06 October 2015 20:02
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RT @learnhospice: @WeEOLC #WeEOLC hi Sarah here tweeting views from this account & #ebp #WeEOLC resources from @WeEOLC account?? |
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@anna_eol_doula
06 October 2015 20:02
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RT @WeEOLC: Welcome to the very first #WeEOLC TweetChat - give us a wave...wherever you are http://t.co/p82GEgFofo |
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@LearnPEOLC
06 October 2015 20:02
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RT @WeLDnurses: Will @karenwatchman be joining us tonight? #WeEOLC |
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@AgencyNurse
06 October 2015 20:02
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Hello Teresa here - have nursed a few people with MND so looking forward to learning more this evening #WeEOLC |
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@PhilBallRN
06 October 2015 20:02
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Hi on train home #WeEOLC phone may die soon so join you later @WeEOLC have a good chat :-) https://t.co/2w1IwEZBY5 |
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@LearnPEOLC
06 October 2015 20:02
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@WeEOLC @heblau @BridgetJohnst #WeEOLC hello! |
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@David_Garbutt
06 October 2015 20:02
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#WeEoLC Present but not necessarily correct |
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@WeEOLC
06 October 2015 20:03
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So part 1 ... meet Dan #WeEOLC http://t.co/0g50zJktSr |
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@WeEOLC
06 October 2015 20:03
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So... part one of the case study. Meet Dan.. What problems do you think he might be having? #WeEOLC http://t.co/5W2cR309md |
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@LearnPEOLC
06 October 2015 20:03
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Hello Penny! #WeEOLC https://t.co/r3TPsYNizB |
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@londonbird23
06 October 2015 20:03
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Good evening everyone #WeEOLC |
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@LearnPEOLC
06 October 2015 20:03
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RT @WeEOLC: @PennyFawthrop Hi Penny & welcome #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:03
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@WeEOLC #WeEOLC G’day from Melbourne, Australia. 6am here! Chi here, palliative care physician & research fellow & part of team @Palliverse |
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@BridgetJohnst
06 October 2015 20:03
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Welcome all to our first tweet chat from @WeEOLC tweeting from a wet Scotland #WeEOLC |
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@LearnPEOLC
06 October 2015 20:03
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@samabdulla @WeEOLC #WeEOLC ???? |
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@WeLDnurses
06 October 2015 20:03
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RT @WeEOLC: So part 1 ... meet Dan #WeEOLC http://t.co/0g50zJktSr |
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@DrNeilPender
06 October 2015 20:04
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#WeEOLC I find giving a prognosis as a NUMBER followed by days/weeks/months/years is sometimes unhelpful. |
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@WeLDnurses
06 October 2015 20:04
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RT @WeEOLC: So... part one of the case study. Meet Dan.. What problems do you think he might be having? #WeEOLC http://t.co/5W2cR309md |
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@WeEOLC
06 October 2015 20:04
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@Dr_Chi_Li @Palliverse Now THAT's dedication #WeEOLC |
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@LearnPEOLC
06 October 2015 20:04
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@WeNurses @WeEOLC #WeEOLC ???? |
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@PennyFawthrop
06 October 2015 20:04
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@AgencyNurse my last placement was on a neurological ward, hope to enhance my knowledge too #WeEOLC |
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@shizc1
06 October 2015 20:04
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#WeEOLC evening waving from cambs |
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@AlresfordBear
06 October 2015 20:04
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@WeEOLC The understanding of prospective transition in role and relationships with increasing support needs. #WeEOLC |
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@WeNurses
06 October 2015 20:04
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Heres the first lot of details folks ... meet Dan #WeEOLC https://t.co/JYetEEGg9t |
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@WeEOLC
06 October 2015 20:04
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What do you think? Would you want to know even if it was inaccurate? #WeEOLC https://t.co/ZgvTIyU0VY |
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@Patient_Leader
06 October 2015 20:04
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@WeEOLC @heblau @BridgetJohnst @learnhospice sry forgot #WeEOLC |
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@LearnPEOLC
06 October 2015 20:04
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RT @AgencyNurse: Hello Teresa here - have nursed a few people with MND so looking forward to learning more this evening #WeEOLC |
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@robbradley01
06 October 2015 20:04
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@WeEOLC he probably worried about how long he got left will his family be ok? #WeEOLC |
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@WeEOLC
06 October 2015 20:04
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RT @robbradley01: @WeEOLC he probably worried about how long he got left will his family be ok? #WeEOLC |
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@AlresfordBear
06 October 2015 20:05
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@WeEOLC The consideration of reflective on the life course and the experiences he may perceive that he may not have #WeEOLC |
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@heblau
06 October 2015 20:05
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RT @AlresfordBear: @WeEOLC The understanding of prospective transition in role and relationships with increasing support needs. #WeEOLC |
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@LearnPEOLC
06 October 2015 20:05
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@hospicemanager @WeEOLC look forward to that! ???? #WeEOLC |
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@AlresfordBear
06 October 2015 20:05
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@WeEOLC And the occupational pragmatism of earning and finances. #WeEOLC |
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@ewrrll
06 October 2015 20:05
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#WeEoLC Hello from Bolton! |
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@LearnPEOLC
06 October 2015 20:05
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@David_Garbutt ???? #WeEOLC |
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@BridgetJohnst
06 October 2015 20:05
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RT @robbradley01: @WeEOLC he probably worried about how long he got left will his family be ok? #WeEOLC |
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@LearnPEOLC
06 October 2015 20:05
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RT @WeEOLC: So part 1 ... meet Dan #WeEOLC http://t.co/0g50zJktSr |
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@anna_eol_doula
06 October 2015 20:05
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RT @WeEOLC: What do you think? Would you want to know even if it was inaccurate? #WeEOLC https://t.co/ZgvTIyU0VY |
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@LearnPEOLC
06 October 2015 20:05
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RT @WeEOLC: So... part one of the case study. Meet Dan.. What problems do you think he might be having? #WeEOLC http://t.co/5W2cR309md |
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@WeNurses
06 October 2015 20:06
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RT @robbradley01: @WeEOLC he probably worried about how long he got left will his family be ok? #WeEOLC |
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@samabdulla
06 October 2015 20:06
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@WeEOLC from a practical point of view? Loss of income. Emotionally? Huge implications #WeEOLC |
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@David_Garbutt
06 October 2015 20:06
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#WeEOLC Always found best to focus on the now but some people need structure and to plan |
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@PennyFawthrop
06 October 2015 20:06
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@WeEOLC adjusting to this life changing news, and how it will effect his family #WeEOLC |
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@LearnPEOLC
06 October 2015 20:06
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@londonbird23 #WeEOLC ???? |
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@Patient_Leader
06 October 2015 20:06
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@WeMHNurses Yes @WeEOLC just started at 8pm. It's not too late #WeEOLC ?? |
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@stevecripe57
06 October 2015 20:06
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RT @WeEOLC: Welcome to the very first #WeEOLC TweetChat - give us a wave...wherever you are http://t.co/p82GEgFofo |
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@anna_eol_doula
06 October 2015 20:06
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RT @David_Garbutt: #WeEOLC Always found best to focus on the now but some people need structure and to plan |
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@WeLDnurses
06 October 2015 20:06
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RT @WeEOLC: What do you think? Would you want to know even if it was inaccurate? #WeEOLC https://t.co/ZgvTIyU0VY |
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@NursingResearch
06 October 2015 20:06
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RT @WeNurses: Heres the first lot of details folks ... meet Dan #WeEOLC https://t.co/JYetEEGg9t |
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@DrNeilPender
06 October 2015 20:06
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#WeEOLC Helping people & families cope with uncertainty is a key factor. Average prognosis only means 50% die before and 50% die after. |
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@Dr_Chi_Li
06 October 2015 20:06
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You know me @heblau - I’m a sucker for a good tweet chat! #WeEOLC https://t.co/WbRbicfmxz |
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@karenwatchman
06 October 2015 20:06
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#WeEOLC hello, sorry I am late |
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@SeanSaid_
06 October 2015 20:06
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@WeEOLC An overload of information. Needs to get head around diagnosis before can decide if wants to know 'how long'? #WeEOLC |
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@BridgetJohnst
06 October 2015 20:06
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@WeEOLC @DrNeilPender what do the nurses with us tonight think about giving prognosis in terms of time #WeEOLC |
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@LearnPEOLC
06 October 2015 20:06
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@Dr_Chi_Li @WeEOLC @palliverse g'day! #WeEOLC ?? |
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@LearnPEOLC
06 October 2015 20:07
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RT @BridgetJohnst: Welcome all to our first tweet chat from @WeEOLC tweeting from a wet Scotland #WeEOLC |
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@LearnPEOLC
06 October 2015 20:07
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RT @DrNeilPender: #WeEOLC I find giving a prognosis as a NUMBER followed by days/weeks/months/years is sometimes unhelpful. |
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@PhilBallRN
06 October 2015 20:07
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RT @AlresfordBear: @WeEOLC And the occupational pragmatism of earning and finances. #WeEOLC |
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@WeEOLC
06 October 2015 20:07
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@AlresfordBear yes, I imagine money will be a concern - support not always there when people are self-employed #WeEOLC |
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@LearnPEOLC
06 October 2015 20:07
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RT @WeEOLC: @Dr_Chi_Li @Palliverse Now THAT's dedication #WeEOLC |
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@LynneBowers2
06 October 2015 20:07
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#WeEOLC Hello Health & Social Care worker. Family impacted by MND. I'd want to know https://t.co/eQdgVTZA0w |
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@fionaDmurphy
06 October 2015 20:07
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@learnhospice @WeEOLC sorry I'm late #WeEoLc?? |
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@shizc1
06 October 2015 20:07
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#WeEOLC worries about family and finances maybe self employed or laid off concerned about how will they manage without him |
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@WeEOLC
06 October 2015 20:07
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RT @DrNeilPender: #WeEOLC Helping people & families cope with uncertainty is a key factor. Average prognosis only means 50% die before and… |
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@BridgetJohnst
06 October 2015 20:07
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Do we have any patients or carers with us with MND experience? #WeEOLC |
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@WeEOLC
06 October 2015 20:07
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RT @BridgetJohnst: @WeEOLC @DrNeilPender what do the nurses with us tonight think about giving prognosis in terms of time #WeEOLC |
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@LearnPEOLC
06 October 2015 20:07
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@WeEOLC @Dr_Chi_Li @palliverse #WeEOLC ???? |
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@AlresfordBear
06 October 2015 20:07
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There are also difficult conversations to be had in planning for loss and how emotional expression is conveyed and understood. #WeEOLC |
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@BridgetJohnst
06 October 2015 20:07
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RT @David_Garbutt: #WeEOLC Always found best to focus on the now but some people need structure and to plan |
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@CopseyNan
06 October 2015 20:07
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RT @DrNeilPender: Oi followers! The first ever @WeEOLC tweet chat TONIGHT. Starts at 8pm. RETWEETS required! #WeEOLC http://t.co/3HJJ1khuz9 |
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@Gray3Gray
06 October 2015 20:07
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Hi Trisha here, Dan would feel so overwhelmed life expectancy, job, family,financial #WeEOLC |
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@WeEOLC
06 October 2015 20:08
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RT @LynneBowers2: #WeEOLC Hello Health & Social Care worker. Family impacted by MND. I'd want to know https://t.co/eQdgVTZA0w |
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@WeNurses
06 October 2015 20:08
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RT @BridgetJohnst: @WeEOLC @DrNeilPender what do the nurses with us tonight think about giving prognosis in terms of time #WeEOLC |
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@Patient_Leader
06 October 2015 20:08
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RT @David_Garbutt: #WeEOLC Always found best to focus on the now but some people need structure and to plan |
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@BridgetJohnst
06 October 2015 20:08
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RT @Dr_Chi_Li: You know me @heblau - I’m a sucker for a good tweet chat! #WeEOLC https://t.co/WbRbicfmxz |
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@LearnPEOLC
06 October 2015 20:08
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@PennyFawthrop @AgencyNurse #WeEOLC we have some #ebp resources to share too |
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@therealcaty
06 October 2015 20:08
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@WeEOLC Likely devastation at the uncertainty of the future, his loss of body image/relationship with wife/children #WeEOLC |
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@londonbird23
06 October 2015 20:08
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RT @shizc1: #WeEOLC worries about family and finances maybe self employed or laid off concerned about how will they manage without him |
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@BridgetJohnst
06 October 2015 20:08
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RT @SeanSaid_: @WeEOLC An overload of information. Needs to get head around diagnosis before can decide if wants to know 'how long'? #WeEOLC |
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@lgoodbu
06 October 2015 20:08
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RT @DrNeilPender: #WeEOLC Helping people & families cope with uncertainty is a key factor. Average prognosis only means 50% die before and… |
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@WeNurses
06 October 2015 20:08
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RT @DrNeilPender: #WeEOLC Helping people & families cope with uncertainty is a key factor. Average prognosis only means 50% die before and… |
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@noelleblackman1
06 October 2015 20:08
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RT @WeLDnurses: Will @karenwatchman be joining us tonight? #WeEOLC |
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@LearnPEOLC
06 October 2015 20:08
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RT @shizc1: #WeEOLC evening waving from cambs |
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@londonbird23
06 October 2015 20:08
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RT @Gray3Gray: Hi Trisha here, Dan would feel so overwhelmed life expectancy, job, family,financial #WeEOLC |
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@LearnPEOLC
06 October 2015 20:08
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@shizc1 #WeEOLC ???? |
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@WeNurses
06 October 2015 20:08
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RT @PennyFawthrop: @WeEOLC adjusting to this life changing news, and how it will effect his family #WeEOLC |
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@BridgetJohnst
06 October 2015 20:08
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RT @LynneBowers2: #WeEOLC Hello Health & Social Care worker. Family impacted by MND. I'd want to know https://t.co/eQdgVTZA0w |
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@WeEOLC
06 October 2015 20:08
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RT @BridgetJohnst: Do we have any patients or carers with us with MND experience? #WeEOLC |
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@WeEOLC
06 October 2015 20:08
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RT @Gray3Gray: Hi Trisha here, Dan would feel so overwhelmed life expectancy, job, family,financial #WeEOLC |
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@PennyFawthrop
06 October 2015 20:08
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@WeEOLC Yes, then have the time to say goodbye and gain good memories #WeEOLC |
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@BridgetJohnst
06 October 2015 20:09
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RT @Gray3Gray: Hi Trisha here, Dan would feel so overwhelmed life expectancy, job, family,financial #WeEOLC |
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@Sparklystar55
06 October 2015 20:09
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RT @WeEOLC: Just in case you missed the background reading for tonight's chat - see you at 8pm MDT http://t.co/aq23krfOjf #WeEOLC |
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@WeEOLC
06 October 2015 20:09
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**** what happened next **** #WeEOLC http://t.co/oFdzTdfEl4 |
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@salsa442
06 October 2015 20:09
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Late and playing catch up but hello all #Waves #WeEOLC |
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@David_Garbutt
06 October 2015 20:09
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#WeEoLC Patients and families look to us for honesty, we don't know most of the time |
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@DrNeilPender
06 October 2015 20:09
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#WeEOLC I have seen patients accept uncertainty better with prognosis posed as "best case" and "worst case" scenarios. |
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@Patient_Leader
06 October 2015 20:09
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@David_Garbutt In MH services we have or are suppose to have a care plan so the pt knows & understands treatment ##WeEOLC |
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@PhilBallRN
06 October 2015 20:09
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Dan might also be only driver in family #WeEOLC planning future work? #problems to consider @WeEOLC |
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@LynneBowers2
06 October 2015 20:09
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#WeEOLC a range of disciplines can be involved in care https://t.co/j8GHRkQlxv |
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@shizc1
06 October 2015 20:09
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#WeEOLC i wouldn't want to know how long i'd prefer to tackle problems as they arose |
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@WeLDnurses
06 October 2015 20:09
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RT @WeEOLC: **** what happened next **** #WeEOLC http://t.co/oFdzTdfEl4 |
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@BridgetJohnst
06 October 2015 20:09
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@therealcaty @WeEOLC #WeEOLC how can hcps help people and their families deal with loss? |
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@Dr_Chi_Li
06 October 2015 20:09
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RT @SeanSaid_: @WeEOLC An overload of information. Needs to get head around diagnosis before can decide if wants to know 'how long'? #WeEOLC |
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@londonbird23
06 October 2015 20:10
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RT @David_Garbutt: #WeEoLC Patients and families look to us for honesty, we don't know most of the time |
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@WeLDnurses
06 October 2015 20:10
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Any thoughts gang? #WeEOLC https://t.co/GUJjsiRo1M |
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@robbradley01
06 October 2015 20:10
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@BridgetJohnst @DrNeilPender can be good for some but with it being not definite can be worrying 4 others #WeEOLC |
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@WeEOLC
06 October 2015 20:10
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#WeEOLC RESOURCE! @mndassoc EOLC Resources http://t.co/r25s6cB95p |
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@BridgetJohnst
06 October 2015 20:10
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RT @shizc1: #WeEOLC i wouldn't want to know how long i'd prefer to tackle problems as they arose |
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@LearnPEOLC
06 October 2015 20:10
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RT @David_Garbutt: #WeEOLC Always found best to focus on the now but some people need structure and to plan |
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@WeNurses
06 October 2015 20:10
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The next instalment #DansCare #WeEOLC https://t.co/S2JV0xlEqF |
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@D_McKH
06 October 2015 20:10
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@WeEOLC @heblau @BridgetJohnst @learnhospice hello#weEolc I am parmacist butalso a relative since my father had MND |
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@WeEOLC
06 October 2015 20:10
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RT @WeNurses: The next instalment #DansCare #WeEOLC https://t.co/S2JV0xlEqF |
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@Nicki_Haywood
06 October 2015 20:11
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@WeEOLC the problems Dan may encounter is timely access to healthcare services and resources #WeEOLC |
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@WeEOLC
06 October 2015 20:11
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RT @robbradley01: @BridgetJohnst @DrNeilPender can be good for some but with it being not definite can be worrying 4 others #WeEOLC |
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@BridgetJohnst
06 October 2015 20:11
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@robbradley01 @DrNeilPender good point #personcentredcare #weeolc |
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@LearnPEOLC
06 October 2015 20:11
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@David_Garbutt g8 point David- do u think there is any diff btwn MND & other diagnosis? #WeEOLC |
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@WeNurses
06 October 2015 20:11
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RT @WeEOLC: #WeEOLC RESOURCE! @mndassoc EOLC Resources http://t.co/r25s6cB95p |
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@Cgrimes3
06 October 2015 20:11
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Hello every one. Corrina here. I work in Pall care N. Ireland Sorry to be joining late.#weEOLC @WeEOLC |
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@LearnPEOLC
06 October 2015 20:11
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RT @PennyFawthrop: @WeEOLC adjusting to this life changing news, and how it will effect his family #WeEOLC |
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@WeNurses
06 October 2015 20:11
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RT @shizc1: #WeEOLC i wouldn't want to know how long i'd prefer to tackle problems as they arose |
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@BridgetJohnst
06 October 2015 20:11
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RT @WeEOLC: #WeEOLC RESOURCE! @mndassoc EOLC Resources http://t.co/r25s6cB95p |
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@Patient_Leader
06 October 2015 20:11
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RT @WeEOLC: **** what happened next **** #WeEOLC http://t.co/oFdzTdfEl4 |
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@robbradley01
06 October 2015 20:11
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@WeEOLC #WeEOLC can some on offer signposting to financial advice, and mdt not discussing things in front of daughter but she aware of help |
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@WeNurses
06 October 2015 20:11
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RT @hospicemanager: Dan might also be only driver in family #WeEOLC planning future work? #problems to consider @WeEOLC |
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@Cgrimes3
06 October 2015 20:11
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RT @David_Garbutt: #WeEoLC Patients and families look to us for honesty, we don't know most of the time |
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@WeNurses
06 October 2015 20:11
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RT @DrNeilPender: #WeEOLC I have seen patients accept uncertainty better with prognosis posed as "best case" and "worst case" scenarios. |
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@PennyFawthrop
06 October 2015 20:11
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@WeEOLC counselling, financial and a MND specialist nurse. Reassurance needs to be a priority #WeEOLC |
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@salsa442
06 October 2015 20:12
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@WeEOLC @DrNeilPender I think having a number can be useful in terms of planning... Although must stress the inaccuracy of it #WeEOLC |
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@LearnPEOLC
06 October 2015 20:12
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@Patient_Leader @WeMHNurses @WeEOLC nice to see you Dominic!!! #WeEOLC ???? |
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@WeEOLC
06 October 2015 20:12
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RT @David_Garbutt: #WeEOLC Always found best to focus on the now but some people need structure and to plan |
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@fionaDmurphy
06 October 2015 20:12
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@BridgetJohnst @WeEOLC @DrNeilPender often think it's unhelpful almost impossible to say feel through exp hear & now with plan vital #WeEOLC |
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@SeanSaid_
06 October 2015 20:12
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@WeEOLC Can his key worker answer these q's. Some are factual others are about process and information. Who can help with answers? #weeolc |
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@Gray3Gray
06 October 2015 20:12
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Tend to work in partnership with secondary care specialist unit to support with community teams #weeolc |
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@WeEOLC
06 October 2015 20:12
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@PennyFawthrop can you say a little more about what you mean by reassurance? #WeEOLC |
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@salsa442
06 October 2015 20:12
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RT @DrNeilPender: #WeEOLC I have seen patients accept uncertainty better with prognosis posed as "best case" and "worst case" scenarios. |
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@DrNeilPender
06 October 2015 20:12
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@BloodyPolitics I quite agree. Anyone who sees patients with palliative needs knows a HUGE amount of work is still required #WeEOLC |
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@LynneBowers2
06 October 2015 20:12
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#WeEOLC advice & signpost to finance support. Info re disease progression (paced). Discuss counselling & school supp https://t.co/i85XHrjawE |
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@londonbird23
06 October 2015 20:13
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#WeEOLCi also don't like the idea of a time frame prognosis. It adds more stress to an already stressful situation. |
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@shizc1
06 October 2015 20:13
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#WeEOLC macmillan nurse, DS1500, allowance, put in touch with MND association/nurse. important to listen give him a chance to express fears |
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@salsa442
06 October 2015 20:13
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RT @WeLDnurses: Any thoughts gang? #WeEOLC https://t.co/GUJjsiRo1M |
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@londonbird23
06 October 2015 20:13
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RT @shizc1: #WeEOLC i wouldn't want to know how long i'd prefer to tackle problems as they arose |
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@robbradley01
06 October 2015 20:13
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@BridgetJohnst extra worry would not be what anyone needs in this situation #WeEOLC |
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@melja14
06 October 2015 20:13
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@BridgetJohnst @WeEOLC @DrNeilPender depends on the individual patient and the timing of the conversation #WeEOLC |
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@WeEOLC
06 October 2015 20:13
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Good question - what are the sources of support available to him at the moment? #WeEOLC https://t.co/2EIZTLurAU |
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@Patient_Leader
06 October 2015 20:13
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@learnhospice Great to be back & glad to see you in #WeEOLC chat Sarah @WeMHNurses @WeEOLC |
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@BridgetJohnst
06 October 2015 20:13
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Isn't it best to be honest with patients and families? and help facilitate family conversations #WeEOLC |
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@WeEOLC
06 October 2015 20:13
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RT @LynneBowers2: #WeEOLC advice & signpost to finance support. Info re disease progression (paced). Discuss counselling & school supp http… |
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@WeEOLC
06 October 2015 20:13
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#WeEOLC #EBP RESOURCE - Uncertainty & Non Cancer http://t.co/0Lee4uQb42 https://t.co/VEpWEcVeRj |
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@samabdulla
06 October 2015 20:13
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@WeNurses @WeEOLC signposting to financial support? Daughter might be aware important she has space to talk #WeEOLC |
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@JoyWharton1
06 October 2015 20:13
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#WeEOLC Hi Joy here from Cumbria, sorry I'm late! ???????????? |
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@dorcaselambert
06 October 2015 20:13
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Hello #WeEOLC I'm here(ish), in and amongst youngest's bedtime and eldest's taxi service ?? |
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@LynneBowers2
06 October 2015 20:13
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#WeEOLC access support for all family. They are not alone https://t.co/i85XHrjawE |
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@Gray3Gray
06 October 2015 20:14
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But you can't plan ahead if you aren't given details of expected prognosis #WeEOLC |
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@WeEOLC
06 October 2015 20:14
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@LynneBowers2 does anyone have experience of talking to older people about #MND they would like to share? #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:14
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@WeEOLC Lots of issues here! But there is still time to work together & get things right with early referral to #PalliativeCare #WeEOLC |
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@LearnPEOLC
06 October 2015 20:14
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@karenwatchman hi Karen!!! #WeEOLC |
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@BridgetJohnst
06 October 2015 20:14
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Thank You to everyone just joining us @WeEOLC please wave and use #WeEOLC |
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@LearnPEOLC
06 October 2015 20:14
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RT @SeanSaid_: @WeEOLC An overload of information. Needs to get head around diagnosis before can decide if wants to know 'how long'? #WeEOLC |
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@WeNurses
06 October 2015 20:14
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Interesting point - what are peoples thoughts #WeEOLC https://t.co/6nU6ZFtPBD |
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@Dr_Chi_Li
06 October 2015 20:14
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RT @David_Garbutt: #WeEoLC Patients and families look to us for honesty, we don't know most of the time |
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@WeEOLC
06 October 2015 20:14
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Does anyone have experience of talking to older children about #MND? #WeEOLC https://t.co/zlFdojsUSx |
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@Dr_Chi_Li
06 October 2015 20:14
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RT @DrNeilPender: #WeEOLC I have seen patients accept uncertainty better with prognosis posed as "best case" and "worst case" scenarios. |
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@Cgrimes3
06 October 2015 20:14
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RT @BridgetJohnst: Isn't it best to be honest with patients and families? and help facilitate family conversations #WeEOLC |
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@WeNurses
06 October 2015 20:14
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RT @WeEOLC: #WeEOLC #EBP RESOURCE - Uncertainty & Non Cancer http://t.co/0Lee4uQb42 https://t.co/VEpWEcVeRj |
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@David_Garbutt
06 October 2015 20:14
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@BridgetJohnst #WeEoLC yes but maybe can only go at pace of acceptance, not everyone wants to know |
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@BridgetJohnst
06 October 2015 20:15
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RT @robbradley01: @BridgetJohnst extra worry would not be what anyone needs in this situation #WeEOLC |
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@ewrrll
06 October 2015 20:15
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@WeEOLC dan could be offered counselling and more information giving if he is receptive? #advancecareplanning respects his wishes #WeEOLC |
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@WeEOLC
06 October 2015 20:15
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Good point - planning requires some idea of prognosis #WeEOLC https://t.co/eal9jvpXMT |
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@LearnPEOLC
06 October 2015 20:15
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#WeEOLC just to remind all that #WeEOLC RESOURCE tweeted throughout chat so u can pick up later |
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@LearnPEOLC
06 October 2015 20:15
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RT @BridgetJohnst: @WeEOLC @DrNeilPender what do the nurses with us tonight think about giving prognosis in terms of time #WeEOLC |
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@WeCommissioners
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/DzHfPh7p08 right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeCYPnurses
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/gaPmZB4Z5T right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeHealthVisitor
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/DbJVrXiTlU right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeAHPs
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/DtXFQv3yog right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeGPNs
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/KC0tnjkucu right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeMHNurses
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/loJIL6xHtK right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeEOLC
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/aq23krfOjf right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeDocs
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/IaNLLSPTjw right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeCommNurses
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/mqOOU9xpIc right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeNurses
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/CzVeoQTkyp right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeSchoolNurses
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/GdmxoEiQRh right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WePharmacists
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/mENjuh3A8q right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@WeLDnurses
06 October 2015 20:15
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Chatting through a virtual casestudy http://t.co/5BVQ9Nzyhb right now via #WeEOLC are all the WeCommunties join & share your thoughts |
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@BridgetJohnst
06 October 2015 20:15
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RT @WeEOLC: Good question - what are the sources of support available to him at the moment? #WeEOLC https://t.co/2EIZTLurAU |
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@BridgetJohnst
06 October 2015 20:15
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RT @WeEOLC: #WeEOLC #EBP RESOURCE - Uncertainty & Non Cancer http://t.co/0Lee4uQb42 https://t.co/VEpWEcVeRj |
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@PennyFawthrop
06 October 2015 20:15
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@WeEOLC that someone understands what he is going through and can give practical support #WeEOLC |
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@Sparklystar55
06 October 2015 20:15
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RT @WeEOLC: Does anyone have experience of talking to older children about #MND? #WeEOLC https://t.co/zlFdojsUSx |
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@GEHNurses
06 October 2015 20:15
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Great chat happening now follow #WeEOLC #endoflifecare https://t.co/44a8p9O5GA |
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@AgencyNurse
06 October 2015 20:15
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I think Dan needs some serious practical help - we need to try and alleviate some of these worries with him and his family #WeEOLC |
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@LearnPEOLC
06 October 2015 20:15
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RT @LynneBowers2: #WeEOLC Hello Health & Social Care worker. Family impacted by MND. I'd want to know https://t.co/eQdgVTZA0w |
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@londonbird23
06 October 2015 20:15
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RT @David_Garbutt: @BridgetJohnst #WeEoLC yes but maybe can only go at pace of acceptance, not everyone wants to know |
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@AlresfordBear
06 October 2015 20:16
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@BridgetJohnst Sometimes the unspoken is key to self-determination. #WeEOLC The preserver of autonomy and dignity. |
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@Nicki_Haywood
06 October 2015 20:16
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@WeEOLC Lack of knowledge with regards to MND by some healthcare professionals #WeEOLC |
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@WeMHNurses
06 October 2015 20:16
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#WeEOLC what about the daughter's needs? She does know what is happening? |
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@salsa442
06 October 2015 20:16
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RT @WeLDnurses: Chatting through a virtual casestudy http://t.co/5BVQ9Nzyhb right now via #WeEOLC are all the WeCommunties join & share you… |
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@BridgetJohnst
06 October 2015 20:16
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@dorcaselambert thanks for joining us #WeEOLC jugglers welcome |
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@WeNurses
06 October 2015 20:16
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RT @WeEOLC: Does anyone have experience of talking to older children about #MND? #WeEOLC https://t.co/zlFdojsUSx |
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@LearnPEOLC
06 October 2015 20:16
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@fionaDmurphy @WeEOLC good to see you Fiona- live to know your thoughts especially in hospital #WeEOLC |
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@WeEOLC
06 October 2015 20:16
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Often someone like Dan will have many specialists involved - what is benefit of early ref to #palliativecare #WeEOLC https://t.co/SgiHwQOpWP |
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@LearnPEOLC
06 October 2015 20:16
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@shizc1 #WeEOLC excellent point |
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@BridgetJohnst
06 October 2015 20:16
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RT @WeEOLC: Does anyone have experience of talking to older children about #MND? #WeEOLC https://t.co/zlFdojsUSx |
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@AlresfordBear
06 October 2015 20:16
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@SeanSaid_ @WeEOLC Whoever is funded. Thats often the challenge. #WeEOLC |
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@HealthUKTD
06 October 2015 20:16
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RT @WeEOLC: **** what happened next **** #WeEOLC http://t.co/oFdzTdfEl4 |
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@LearnPEOLC
06 October 2015 20:16
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RT @BridgetJohnst: Do we have any patients or carers with us with MND experience? #WeEOLC |
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@salsa442
06 October 2015 20:16
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RT @WeEOLC: Good point - planning requires some idea of prognosis #WeEOLC https://t.co/eal9jvpXMT |
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@WeEOLC
06 October 2015 20:16
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RT @learnhospice: #WeEOLC just to remind all that #WeEOLC RESOURCE tweeted throughout chat so u can pick up later |
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@LearnPEOLC
06 October 2015 20:16
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RT @Gray3Gray: Hi Trisha here, Dan would feel so overwhelmed life expectancy, job, family,financial #WeEOLC |
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@PennyFawthrop
06 October 2015 20:17
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@learnhospice @David_Garbutt Any life limiting condition should have the same approach #WeEOLC |
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@LearnPEOLC
06 October 2015 20:17
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RT @therealcaty: @WeEOLC Likely devastation at the uncertainty of the future, his loss of body image/relationship with wife/children #WeEOLC |
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@Patient_Leader
06 October 2015 20:17
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@samabdulla @WeNurses @WeEOLC Yes, when my late father was dying I went into meltdown. Family needs support too #WeEOLC |
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@AgencyNurse
06 October 2015 20:17
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RT @WeEOLC: Good point - planning requires some idea of prognosis #WeEOLC https://t.co/eal9jvpXMT |
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@BridgetJohnst
06 October 2015 20:17
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@David_Garbutt agree @WeEOLC but requires skilled communicators #WeEOLC |
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@SeanSaid_
06 October 2015 20:17
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@WeEOLC His family and MDT? Would be cautious about signposting. Work with him to forefront and family as part of support. #WeEOLC |
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@LearnPEOLC
06 October 2015 20:17
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RT @PennyFawthrop: @WeEOLC Yes, then have the time to say goodbye and gain good memories #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:17
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#MND end-of-life care resource from the UK #WeEOLC #PallANZ #hpmglobal #hpm @mndaustralia @Pall_Care_Aus https://t.co/1jnr2USdDp |
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@LynneBowers2
06 October 2015 20:17
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#WeEOLC even in these challenged times there amazing people working in this area https://t.co/2vnMQLHH3A |
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@LearnPEOLC
06 October 2015 20:17
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RT @salsa442: Late and playing catch up but hello all #Waves #WeEOLC |
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@Patient_Leader
06 October 2015 20:17
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RT @WeNurses: Interesting point - what are peoples thoughts #WeEOLC https://t.co/6nU6ZFtPBD |
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@LearnPEOLC
06 October 2015 20:17
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@salsa442 #WeEOLC ???????? |
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@WeEOLC
06 October 2015 20:17
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@Nicki_Haywood Can you say more about what is lacking? What do people need to know? #WeEOLC |
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@AgencyNurse
06 October 2015 20:18
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Really important point - we need to care for the whole family here #WeEOLC https://t.co/ZtDP2W8mjR |
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@WeEOLC
06 October 2015 20:18
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*** next development *** #WeEOLC http://t.co/uYlFWZwAgY |
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@nursegow
06 October 2015 20:18
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RT @therealcaty: @WeEOLC Likely devastation at the uncertainty of the future, his loss of body image/relationship with wife/children #WeEOLC |
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@LynneBowers2
06 October 2015 20:18
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RT @Nicki_Haywood: @WeEOLC Lack of knowledge with regards to MND by some healthcare professionals #WeEOLC |
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@Nicki_Haywood
06 October 2015 20:18
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@WeEOLC advanced care planning to make timely decisions #WeEOLC |
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@DrNeilPender
06 October 2015 20:18
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#WeEOLC I think I have been misinterpreted. OF COURSE giving a prognosis is helpful. But it needs to be done expressing uncertainty. |
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@WeEOLC
06 October 2015 20:18
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Interesting point. Often we think we know what's best for younger people ... what do you think? #WeEOLC https://t.co/iLFxB9iziB |
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@salsa442
06 October 2015 20:18
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In my exp relatives often have a suspicion so best to be open and honest? #WeEOLC https://t.co/yuRULAO4rr |
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@BridgetJohnst
06 October 2015 20:18
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What do people think about MND support groups? #WeEOLC |
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@londonbird23
06 October 2015 20:18
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RT @Dr_Chi_Li: #MND end-of-life care resource from the UK #WeEOLC #PallANZ #hpmglobal #hpm @mndaustralia @Pall_Care_Aus https://t.co/1jnr2… |
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@samabdulla
06 October 2015 20:18
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@Patient_Leader @WeNurses @WeEOLC there is an assumption children don't pick up on things. More astute than given credit for #WeEOLC |
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@PennyFawthrop
06 October 2015 20:18
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@EllzSummary @WeEOLC maybe honesty is the best policy, teenagers notice more than we think. Maybe she would want to support her dad #WeEOLC |
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@mynameismo_
06 October 2015 20:18
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RT @WeEOLC: So... part one of the case study. Meet Dan.. What problems do you think he might be having? #WeEOLC http://t.co/5W2cR309md |
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@SeanSaid_
06 October 2015 20:19
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@AlresfordBear @WeEOLC Hello Gerry. That is unfortunately a factor in so many situations. #weeolc |
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@WeEOLC
06 October 2015 20:19
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family-centred rather than patient-centred care? This is a complex situation #WeEOLC https://t.co/TBn09uoIEQ |
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@lgoodbu
06 October 2015 20:19
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RT @AgencyNurse: Really important point - we need to care for the whole family here #WeEOLC https://t.co/ZtDP2W8mjR |
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@robbradley01
06 October 2015 20:19
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@WeEOLC #WeEOLC very difficult to answer need to give Dan time to talk |
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@AlresfordBear
06 October 2015 20:19
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@WeEOLC We often assume by essentialist definitions of the life course, the reflective abilities and appraisal which is offered. #WeEOLC |
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@Cgrimes3
06 October 2015 20:19
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RT @PennyFawthrop: @learnhospice @David_Garbutt Any life limiting condition should have the same approach #WeEOLC |
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@BridgetJohnst
06 October 2015 20:19
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RT @salsa442: In my exp relatives often have a suspicion so best to be open and honest? #WeEOLC https://t.co/yuRULAO4rr |
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@shizc1
06 October 2015 20:19
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#WeEOLC help to treat symptoms as they arise and support/prevent admissions to hospital |
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@LynneBowers2
06 October 2015 20:19
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#WeEOLC discussions that are helpful can take longer than might be expected https://t.co/exdIuHB6sB |
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@AlresfordBear
06 October 2015 20:19
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@SeanSaid_ @WeEOLC Howdy bud :) #WeEOLC |
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@WeEOLC
06 October 2015 20:19
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#WeEOLC #EBP RESOURCE lit review of family caregiving for MND http://t.co/teqivViF5w https://t.co/kvzivvFgz8 |
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@Gray3Gray
06 October 2015 20:19
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Dan needs financial support, know that professionals are there to listen and care and have knowledge of possible symptoms #WeEOLC |
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@ShazzaHudson
06 October 2015 20:19
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RT @WeEOLC: *** next development *** #WeEOLC http://t.co/uYlFWZwAgY |
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@WeNurses
06 October 2015 20:19
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Development 3 #WeEOLC - Challenging situation here > https://t.co/A5Qoa6UO0l |
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@Dr_Chi_Li
06 October 2015 20:19
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@rachdalloway @WeEOLC Absolutely! Lots of scary terms for Dan & family to deal with including “MND”, “death”, “unemployment”, etc #WeEOLC |
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@KatsuyamaSarah
06 October 2015 20:20
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@WeEOLC Hello, a bit late and mainly lurking. MW by profession, interested in 6Cs across all care. #WeEOLC |
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@WeEOLC
06 October 2015 20:20
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Next development ... #WeEOLC http://t.co/sh7UOPNe1c |
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@Cgrimes3
06 October 2015 20:20
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RT @Nicki_Haywood: @WeEOLC advanced care planning to make timely decisions #WeEOLC |
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@WeNurses
06 October 2015 20:20
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RT @WeEOLC: family-centred rather than patient-centred care? This is a complex situation #WeEOLC https://t.co/TBn09uoIEQ |
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@BridgetJohnst
06 October 2015 20:20
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I personally think keeping people in the dark is much worse than the truth @PennyFawthrop @EllzSummary @WeEOLC #WeEOLC |
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@robbradley01
06 October 2015 20:20
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@WeEOLC @WeMHNurses will need help and support maybe clinical psychology OR counselling #WeEOLC |
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@AlresfordBear
06 October 2015 20:20
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@WeEOLC Could be safe space to explore the internalised concerns and emotions he may express as this could help to dissipate these. #WeEOLC |
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@WeEOLC
06 October 2015 20:20
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@KatsuyamaSarah Welcome ... lurking or otherwise #WeEOLC |
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@salsa442
06 October 2015 20:20
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@WeEOLC @WeMHNurses Depends on individual,but lots of teens have really good insight & need to be able to plan too #WeEOLC |
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@JuliaKayEllis
06 October 2015 20:20
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RT @AgencyNurse: Really important point - we need to care for the whole family here #WeEOLC https://t.co/ZtDP2W8mjR |
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@WeEOLC
06 October 2015 20:20
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RT @BridgetJohnst: I personally think keeping people in the dark is much worse than the truth @PennyFawthrop @EllzSummary @WeEOLC #WeEOLC |
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@salsa442
06 October 2015 20:20
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RT @BridgetJohnst: What do people think about MND support groups? #WeEOLC |
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@WeLDnurses
06 October 2015 20:20
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RT @WeEOLC: family-centred rather than patient-centred care? This is a complex situation #WeEOLC https://t.co/TBn09uoIEQ |
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@WeEOLC
06 October 2015 20:20
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#WeEOLC RESOURCE @mndassoc re ACP http://t.co/vKCyJmZ2rT https://t.co/urgPW6N6R5 |
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@SeanSaid_
06 October 2015 20:20
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@BridgetJohnst Don't know. But person themselves can have info and maybe meet a member to gauge if fit for them. #WeEOLC |
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@BridgetJohnst
06 October 2015 20:20
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RT @WeEOLC: #WeEOLC #EBP RESOURCE lit review of family caregiving for MND http://t.co/teqivViF5w https://t.co/kvzivvFgz8 |
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@WeEOLC
06 October 2015 20:21
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Okay.... a thorny situation ... #WeEOLC |
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@LynneBowers2
06 October 2015 20:21
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#WeEOLC what is lacking is the variation in best practice availability https://t.co/xz1HdFfU01 |
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@PennyFawthrop
06 October 2015 20:21
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@AlresfordBear @WeEOLC it's crucial to involve the whole family #WeEOLC |
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@londonbird23
06 October 2015 20:21
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RT @WeEOLC: Next development ... #WeEOLC http://t.co/sh7UOPNe1c |
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@melja14
06 October 2015 20:21
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@WeEOLC have the family been able to have a frank discussion about the future and wishes together? #WeEOLC |
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@WeLDnurses
06 October 2015 20:21
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RT @WeNurses: Development 3 #WeEOLC - Challenging situation here > https://t.co/A5Qoa6UO0l |
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@WeMHNurses
06 October 2015 20:21
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'Dan, when you say you think you will be a burden on your family, what do you mean?' #WeEOLC |
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@AlresfordBear
06 October 2015 20:21
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@WeEOLC It is also important to anticipate and explore, what the "D" word means to differing people within the family context. #WeEOLC |
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@JoyWharton1
06 October 2015 20:21
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@BridgetJohnst @learnhospice @WeEOLC @DrNeilPender #weEOLC I always stress the uncertainty and use ranges, and nearly always only if asked |
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@WeEOLC
06 October 2015 20:21
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Has anyone encountered this kind of conversation in practice? #WeEOLC #assisteddying https://t.co/OcTNFQzKZk |
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@dorcaselambert
06 October 2015 20:21
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@WeEOLC @Gray3Gray True. Think lack of prognosis can delay people's ability to accept the reality/closeness of their death #WeEOLC |
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@ShazzaHudson
06 October 2015 20:21
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@WeEOLC Give opportunity to explore this, important to not dismiss his thoughts #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:21
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@SeanSaid_ @WeEOLC What about a good general practitioner / primary care physician? #WeEOLC |
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@salsa442
06 October 2015 20:21
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@WeEOLC @Patient_Leader @samabdulla @WeNurses We need to consider the needs of the family #holistic #familymatters #WeEOLC |
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@AgencyNurse
06 October 2015 20:21
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@WeEOLC @samabdulla @Patient_Leader think there is much to be learned from CYP nurses here re being family centred #WeEOLC |
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@Gray3Gray
06 October 2015 20:21
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Key Worker needs to lead and bring key people onboard both for Dan and his family #WeEOLC |
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@AlresfordBear
06 October 2015 20:21
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@PennyFawthrop @WeEOLC It is, but perhaps not overtly depending on their right to autonomy and self-determination. #WeEOLC |
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@BridgetJohnst
06 October 2015 20:22
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@KatsuyamaSarah @WeEOLC thank you for joining us Lurkers very welcome #WeEOLC |
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@WeNurses
06 October 2015 20:22
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RT @WeEOLC: #WeEOLC RESOURCE @mndassoc re ACP http://t.co/vKCyJmZ2rT https://t.co/urgPW6N6R5 |
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@BridgetJohnst
06 October 2015 20:22
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RT @WeEOLC: #WeEOLC RESOURCE @mndassoc re ACP http://t.co/vKCyJmZ2rT https://t.co/urgPW6N6R5 |
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@WeNurses
06 October 2015 20:22
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RT @salsa442: @WeEOLC @WeMHNurses Depends on individual,but lots of teens have really good insight & need to be able to plan too #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:22
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RT @shizc1: #WeEOLC macmillan nurse, DS1500, allowance, put in touch with MND association/nurse. important to listen give him a chance to e… |
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@LearnPEOLC
06 October 2015 20:22
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@DrNeilPender #WeEOLC the 'what if' q can allow some emotional distance btwn fact & reality |
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@BridgetJohnst
06 October 2015 20:22
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RT @SeanSaid_: @BridgetJohnst Don't know. But person themselves can have info and maybe meet a member to gauge if fit for them. #WeEOLC |
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@Patient_Leader
06 October 2015 20:22
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RT @AgencyNurse: @WeEOLC @samabdulla @Patient_Leader think there is much to be learned from CYP nurses here re being family centred #WeEOLC |
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@David_Garbutt
06 October 2015 20:22
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#WeEOLC Need to create a safe space for Dan to ask anything, his concerns must guide conversation |
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@WeEOLC
06 October 2015 20:22
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Excellent suggestion - finding out a little more about what he means #WeEOLC https://t.co/kmQOGxb2JA |
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@WeNurses
06 October 2015 20:22
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RT @robbradley01: @WeEOLC @WeMHNurses will need help and support maybe clinical psychology OR counselling #WeEOLC |
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@WeEOLC
06 October 2015 20:22
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RT @melja14: @WeEOLC have the family been able to have a frank discussion about the future and wishes together? #WeEOLC |
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@AlresfordBear
06 October 2015 20:22
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@PennyFawthrop @WeEOLC Had this with my mother, who knew I knew more than she thought. But my role was to play as quiet confidente. #WeEOLC |
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@LearnPEOLC
06 October 2015 20:22
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RT @hospicemanager: Dan might also be only driver in family #WeEOLC planning future work? #problems to consider @WeEOLC |
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@BridgetJohnst
06 October 2015 20:22
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RT @JoyWharton1: @BridgetJohnst @learnhospice @WeEOLC @DrNeilPender #weEOLC I always stress the uncertainty and use ranges, and nearly alwa… |
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@LearnPEOLC
06 October 2015 20:22
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RT @shizc1: #WeEOLC i wouldn't want to know how long i'd prefer to tackle problems as they arose |
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@WeNurses
06 October 2015 20:22
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important point - what does everyone else think ? #WeEOLC https://t.co/j8vj883tjE |
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@robbradley01
06 October 2015 20:23
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@AgencyNurse @WeEOLC @samabdulla @Patient_Leader definitely need to look at the family as a whole #WeEOLC |
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@LearnPEOLC
06 October 2015 20:23
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@shizc1 impt point re personal choice #WeEOLC |
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@AlresfordBear
06 October 2015 20:23
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@PennyFawthrop @WeEOLC An unspoken understanding that there would never be a meaningful overt goodbye. That was empowering for her. #WeEOLC |
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@KatsuyamaSarah
06 October 2015 20:23
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@BridgetJohnst @PennyFawthrop @EllzSummary @WeEOLC He needs support to tell his daughter and daughter's school, in time #WeEOLC |
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@kind_curious
06 October 2015 20:23
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Lurking... #WeEOLC |
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@ShazzaHudson
06 October 2015 20:23
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@BridgetJohnst @KatsuyamaSarah @WeEOLC Just arrived! Very busy EoL process mapping day ??#WeEOLC |
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@WeNurses
06 October 2015 20:23
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RT @WeEOLC: Excellent suggestion - finding out a little more about what he means #WeEOLC https://t.co/kmQOGxb2JA |
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@LynneBowers2
06 October 2015 20:23
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#WeEOLC age appropriate of course But this time is so precious these memories are with the child for rest of life https://t.co/fFjuDFEPXQ |
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@LearnPEOLC
06 October 2015 20:23
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RT @David_Garbutt: #WeEOLC Need to create a safe space for Dan to ask anything, his concerns must guide conversation |
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@Dr_Chi_Li
06 October 2015 20:23
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RT @WeEOLC: #WeEOLC #EBP RESOURCE - Uncertainty & Non Cancer http://t.co/0Lee4uQb42 https://t.co/VEpWEcVeRj |
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@LearnPEOLC
06 October 2015 20:23
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RT @BridgetJohnst: @KatsuyamaSarah @WeEOLC thank you for joining us Lurkers very welcome #WeEOLC |
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@kind_curious
06 October 2015 20:23
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RT @WeEOLC: family-centred rather than patient-centred care? This is a complex situation #WeEOLC https://t.co/TBn09uoIEQ |
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@heblau
06 October 2015 20:23
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Would be interested to hear your thoughts and experiences #WeEOLC https://t.co/t34kHMMYp5 |
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@ewrrll
06 October 2015 20:23
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@WeEOLC maybe fear plays a role - of what is to come for family & self. Healthy to express fears so easier to address? #WeEOLC |
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@DrNeilPender
06 October 2015 20:23
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@WeEOLC such a difficult scenario. Open conversation addressing all areas of care to ensure all needs are being met holistically. #WeEOLC |
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@LearnPEOLC
06 October 2015 20:23
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RT @AgencyNurse: @WeEOLC @samabdulla @Patient_Leader think there is much to be learned from CYP nurses here re being family centred #WeEOLC |
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@AgencyNurse
06 October 2015 20:23
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RT @robbradley01: @AgencyNurse @WeEOLC @samabdulla @Patient_Leader definitely need to look at the family as a whole #WeEOLC |
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@AlresfordBear
06 October 2015 20:23
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@PennyFawthrop @WeEOLC The reading of minds and emotions and the provision of space to make these transitions on ones own terms. #WeEOLC |
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@LearnPEOLC
06 October 2015 20:23
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RT @salsa442: @WeEOLC @Patient_Leader @samabdulla @WeNurses We need to consider the needs of the family #holistic #familymatters #WeEOLC |
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@LearnPEOLC
06 October 2015 20:23
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RT @Dr_Chi_Li: @SeanSaid_ @WeEOLC What about a good general practitioner / primary care physician? #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:23
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RT @samabdulla: @WeNurses @WeEOLC signposting to financial support? Daughter might be aware important she has space to talk #WeEOLC |
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@shizc1
06 October 2015 20:24
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#WeEOLC important to listen, discuss advanced care plan DNR, just in case meds, preferred place care/death hospice/support available |
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@AgencyNurse
06 October 2015 20:24
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Absolutely #WeEOLC https://t.co/FiZHoSb3Mo |
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@WeEOLC
06 October 2015 20:24
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RT @David_Garbutt: #WeEOLC Need to create a safe space for Dan to ask anything, his concerns must guide conversation |
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@WeEOLC
06 October 2015 20:24
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RT @learnhospice: @DrNeilPender #WeEOLC the 'what if' q can allow some emotional distance btwn fact & reality |
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@WeEOLC
06 October 2015 20:24
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RT @WeNurses: important point - what does everyone else think ? #WeEOLC https://t.co/j8vj883tjE |
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@LynneBowers2
06 October 2015 20:24
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#WeEOLC for most people v helpful not for all Don't assume https://t.co/PkHO0yCbAI |
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@WeNurses
06 October 2015 20:24
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#WeEOLC > https://t.co/r5qsxADB8o |
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@SeanSaid_
06 October 2015 20:24
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@WeEOLC And why not? Dan will have whole gamut of thinking. So long as choice is informed - that support is for him and family. #weeolc |
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@emmatom37
06 October 2015 20:24
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RT @robbradley01: @AgencyNurse @WeEOLC @samabdulla @Patient_Leader definitely need to look at the family as a whole #WeEOLC |
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@Gray3Gray
06 October 2015 20:24
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Dan needs to be given facts of disease progression in order to make those choices, such as advanced decision to refuse treatment #WeEOLC |
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@salsa442
06 October 2015 20:24
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@WeNurses @BridgetJohnst @PennyFawthrop @EllzSummary @WeEOLC I agree #honestythebestpolicy #WeEOLC |
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@KatsuyamaSarah
06 October 2015 20:24
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RT @David_Garbutt: #WeEOLC Need to create a safe space for Dan to ask anything, his concerns must guide conversation |
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@GillDickson0611
06 October 2015 20:24
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@WeEOLC #WeEOLC addedd pressure to encourage Dan to express own thoughts as verbal communication may be affected sooner rather than later |
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@KatsuyamaSarah
06 October 2015 20:24
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RT @WeNurses: #WeEOLC > https://t.co/r5qsxADB8o |
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@LearnPEOLC
06 October 2015 20:25
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@WeEOLC @WeMHNurses #WeEOLC self perceived burden on family often reported |
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@melja14
06 October 2015 20:25
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RT @WeEOLC: Excellent suggestion - finding out a little more about what he means #WeEOLC https://t.co/kmQOGxb2JA |
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@BridgetJohnst
06 October 2015 20:25
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Resource @WeEOLC #ebp #WeEOLC re burden to others http://t.co/BsNgvB9Qja |
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@WeNurses
06 October 2015 20:25
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RT @LynneBowers2: #WeEOLC for most people v helpful not for all Don't assume https://t.co/PkHO0yCbAI |
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@ShazzaHudson
06 October 2015 20:25
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@WeNurses @BridgetJohnst @PennyFawthrop @EllzSummary @WeEOLC Depends on response to prompts and cues. #WeEOLC |
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@WeNurses
06 October 2015 20:25
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RT @shizc1: #WeEOLC important to listen, discuss advanced care plan DNR, just in case meds, preferred place care/death hospice/support avai… |
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@AlresfordBear
06 October 2015 20:25
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@David_Garbutt And the emotional reflexivity is key in exploring these issues or not exploring as the safe space may be used. #WeEOLC |
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@londonbird23
06 October 2015 20:25
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RT @WeNurses: #WeEOLC > https://t.co/r5qsxADB8o |
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@David_Garbutt
06 October 2015 20:25
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#WeEOLC Often these conversations are shied away from for fear of distressing Pt and family. Cues missed |
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@LearnPEOLC
06 October 2015 20:25
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@AlresfordBear @PennyFawthrop @WeEOLC #WeEOLC that's impt - space to think & discuss |
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@WeMHNurses
06 October 2015 20:25
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' What would your family want to say to you about your worry that you'd be a burden?' #WeEOLC |
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@BridgetJohnst
06 October 2015 20:25
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@LynneBowers2 good point #WeEOLC |
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@SeanSaid_
06 October 2015 20:25
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@Dr_Chi_Li @WeEOLC Indeed. They are central to knowing family system and wider issues. #WeEOLC |
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@salsa442
06 October 2015 20:25
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Yes, advanced care plans so important and can give Dan extra control in decision making #WeEOLC https://t.co/uphyFJyoBX |
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@LynneBowers2
06 October 2015 20:25
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#WeEOLC absolutely busy acute ward not a helpful environment https://t.co/Wo1WPXQ2N0 |
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@WeEOLC
06 October 2015 20:25
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What are your thoughts re the latest point .... he is asking about assisted dying #WeEOLC |
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@LearnPEOLC
06 October 2015 20:25
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RT @robbradley01: @AgencyNurse @WeEOLC @samabdulla @Patient_Leader definitely need to look at the family as a whole #WeEOLC |
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@WeNurses
06 October 2015 20:26
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Good point #WeEOLC https://t.co/7jLiajiy5q |
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@LynneBowers2
06 October 2015 20:26
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RT @WeEOLC: #WeEOLC #EBP RESOURCE lit review of family caregiving for MND http://t.co/teqivViF5w https://t.co/kvzivvFgz8 |
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@kind_curious
06 October 2015 20:26
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RT @BridgetJohnst: Resource @WeEOLC #ebp #WeEOLC re burden to others http://t.co/BsNgvB9Qja |
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@BridgetJohnst
06 October 2015 20:26
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RT @ShazzaHudson: @WeNurses @BridgetJohnst @PennyFawthrop @EllzSummary @WeEOLC Depends on response to prompts and cues. #WeEOLC |
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@AlresfordBear
06 October 2015 20:26
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@learnhospice @PennyFawthrop @WeEOLC And to feel with the application of unconditional positive regard. #WeEOLC |
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@WeNurses
06 October 2015 20:26
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RT @BridgetJohnst: Resource @WeEOLC #ebp #WeEOLC re burden to others http://t.co/BsNgvB9Qja |
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@LearnPEOLC
06 October 2015 20:26
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@KatsuyamaSarah @BridgetJohnst @PennyFawthrop @EllzSummary @WeEOLC g8 point #WeEOLC |
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@PennyFawthrop
06 October 2015 20:26
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@studentnurse_em @WeEOLC try to find out why he feels that way #WeEOLC |
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@WeMHNurses
06 October 2015 20:26
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@learnhospice @WeEOLC see next tweet! #WeEOLC |
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@JoyWharton1
06 October 2015 20:26
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@WeEOLC @londonbird23 #weEOLC Very difficult, and tricky for us to discuss without risking assisting suicide ourselves 1/2 |
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@BridgetJohnst
06 October 2015 20:26
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RT @David_Garbutt: #WeEOLC Often these conversations are shied away from for fear of distressing Pt and family. Cues missed |
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@Gray3Gray
06 October 2015 20:26
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RT @shizc1: #WeEOLC important to listen, discuss advanced care plan DNR, just in case meds, preferred place care/death hospice/support avai… |
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@LearnPEOLC
06 October 2015 20:26
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RT @ShazzaHudson: @BridgetJohnst @KatsuyamaSarah @WeEOLC Just arrived! Very busy EoL process mapping day ??#WeEOLC |
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@LearnPEOLC
06 October 2015 20:26
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@ShazzaHudson @BridgetJohnst @KatsuyamaSarah @WeEOLC #WeEOLC ?? |
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@Cgrimes3
06 October 2015 20:26
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RT @WeEOLC: Excellent suggestion - finding out a little more about what he means #WeEOLC https://t.co/kmQOGxb2JA |
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@LearnPEOLC
06 October 2015 20:27
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@nursingbard #WeEOLC ?? |
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@WeEOLC
06 October 2015 20:27
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*** next development **** what now? #WeEOLC http://t.co/tzHqnNoHRr |
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@londonbird23
06 October 2015 20:27
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RT @WeNurses: Good point #WeEOLC https://t.co/7jLiajiy5q |
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@LearnPEOLC
06 October 2015 20:27
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RT @LynneBowers2: #WeEOLC age appropriate of course But this time is so precious these memories are with the child for rest of life https:… |
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@WeNurses
06 October 2015 20:27
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So very helpful & wise words from @WeMHnurses - multidisciplinary view so important here #WeEOLC https://t.co/wsqisUlDPi |
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@Cgrimes3
06 October 2015 20:27
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RT @learnhospice: @shizc1 impt point re personal choice #WeEOLC |
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@WeNurses
06 October 2015 20:27
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RT @WeEOLC: What are your thoughts re the latest point .... he is asking about assisted dying #WeEOLC |
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@SachaLG
06 October 2015 20:27
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@WeNurses @WeEOLC If they don't know, often what their imagination comes up with is even worse than reality. Truth best.#WeEOLC |
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@LearnPEOLC
06 October 2015 20:27
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@heblau @D_McKH @WeEOLC @BridgetJohnst #WeEOLC definitely! Impt role in MND |
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@WeEOLC
06 October 2015 20:27
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RT @SachaLG: @WeNurses @WeEOLC If they don't know, often what their imagination comes up with is even worse than reality. Truth best.#WeEOLC |
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@BridgetJohnst
06 October 2015 20:27
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@WeEOLC I have had conversations about assisted dying in clinical practice home, hospice and hospital and they are not easy #WeEOLC |
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@LynneBowers2
06 October 2015 20:28
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RT @David_Garbutt: #WeEOLC Need to create a safe space for Dan to ask anything, his concerns must guide conversation |
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@LearnPEOLC
06 October 2015 20:28
|
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RT @shizc1: #WeEOLC important to listen, discuss advanced care plan DNR, just in case meds, preferred place care/death hospice/support avai… |
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@ShazzaHudson
06 October 2015 20:28
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@WeEOLC In part but also about what to expect and future planning. I fear we close down AD discussion #WeEOLC |
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@salsa442
06 October 2015 20:28
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RT @WeNurses: So very helpful & wise words from @WeMHnurses - multidisciplinary view so important here #WeEOLC https://t.co/wsqisUlDPi |
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@Gray3Gray
06 October 2015 20:28
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RT @SachaLG: @WeNurses @WeEOLC If they don't know, often what their imagination comes up with is even worse than reality. Truth best.#WeEOLC |
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@WeNurses
06 October 2015 20:28
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Development 4 - advanced care planning ... what do we need to think about now ? #WeEOLC https://t.co/RRVFXRG6oc |
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@BridgetJohnst
06 October 2015 20:28
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RT @WeNurses: So very helpful & wise words from @WeMHnurses - multidisciplinary view so important here #WeEOLC https://t.co/wsqisUlDPi |
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@LearnPEOLC
06 October 2015 20:28
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@LynneBowers2 @BridgetJohnst say more? #WeEOLC |
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@JoyWharton1
06 October 2015 20:28
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@WeEOLC @londonbird23 #weEOLC 2/2 I think I read that the majority of UK nationals going to Switzerland for assisted suicide have MND |
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@Patient_Leader
06 October 2015 20:28
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The more I'm following #WeEOLC I'm thinking @WeMHNurses should be working alongside @WeNurses in delivering family centred care |
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@BridgetJohnst
06 October 2015 20:28
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RT @SachaLG: @WeNurses @WeEOLC If they don't know, often what their imagination comes up with is even worse than reality. Truth best.#WeEOLC |
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@David_Garbutt
06 October 2015 20:28
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#WeEOLC RCN Guidance on requests to die http://t.co/cHHOClriDi |
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@AlresfordBear
06 October 2015 20:28
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@DrNeilPender @learnhospice @WeEOLC Which requires the subtle reflexivity of assessment and resources as well. #WeEOLC |
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@WeEOLC
06 October 2015 20:28
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Yep. People worry that if they mention suicidal thoughts they will give someone the idea-no evidence of this #WeEOLC https://t.co/4Yn8BzzaMK |
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@WeEOLC
06 October 2015 20:28
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RT @AlresfordBear: @DrNeilPender @learnhospice @WeEOLC Which requires the subtle reflexivity of assessment and resources as well. #WeEOLC |
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@WeNurses
06 October 2015 20:28
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RT @Patient_Leader: The more I'm following #WeEOLC I'm thinking @WeMHNurses should be working alongside @WeNurses in delivering family cen… |
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@ShazzaHudson
06 October 2015 20:29
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RT @WeEOLC: *** next development **** what now? #WeEOLC http://t.co/tzHqnNoHRr |
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@JoyWharton1
06 October 2015 20:29
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RT @David_Garbutt: #WeEOLC Need to create a safe space for Dan to ask anything, his concerns must guide conversation |
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@DrNeilPender
06 October 2015 20:29
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#WeEOLC advance care planning is a real skill to make decisions relevant, clear and concise. |
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@LearnPEOLC
06 October 2015 20:29
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@therealcaty @WeNurses #WeEOLC that's an impt point & degrees of wanting to know as in death awareness etc |
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@WeEOLC
06 October 2015 20:29
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#EBP #WeEOLC important resource for nurses https://t.co/bC6gTQGYjC |
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@Cgrimes3
06 October 2015 20:29
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@learnhospice @WeEOLC @WeMHNurses I agree with self perceived aspect, important to explore perception and then realities #WeEOLC |
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@SachaLG
06 October 2015 20:29
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@therealcaty @WeNurses #WeEOLC but what if that means they will end up in a scarier situation with crises because they don't realise? |
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@LynneBowers2
06 October 2015 20:29
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RT @shizc1: #WeEOLC important to listen, discuss advanced care plan DNR, just in case meds, preferred place care/death hospice/support avai… |
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@melja14
06 October 2015 20:29
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@WeEOLC.. what will happen? What care is available for me and family... I'm concerned about the future #WeEOLC |
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@AgencyNurse
06 October 2015 20:29
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@Patient_Leader @WeMHNurses @WeNurses it really does make you realise why a multi disciplinary approach is so important #WeEOLC |
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@lgoodbu
06 October 2015 20:29
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RT @SachaLG: @WeNurses @WeEOLC If they don't know, often what their imagination comes up with is even worse than reality. Truth best.#WeEOLC |
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@WeNurses
06 October 2015 20:29
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RT @SachaLG: @WeNurses @WeEOLC If they don't know, often what their imagination comes up with is even worse than reality. Truth best.#WeEOLC |
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@ShazzaHudson
06 October 2015 20:29
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RT @Patient_Leader: The more I'm following #WeEOLC I'm thinking @WeMHNurses should be working alongside @WeNurses in delivering family cen… |
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@LynneBowers2
06 October 2015 20:29
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RT @WeNurses: #WeEOLC > https://t.co/r5qsxADB8o |
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@Gray3Gray
06 October 2015 20:29
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Try not to suggest in medical terms ask what's important to Dan and his family then guide #WeEOLC |
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@WeMHNurses
06 October 2015 20:29
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Acceptance of a range of emotional responses for the whole family. Helping with tolerance of distress important. #WeEOLC |
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@salsa442
06 October 2015 20:29
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@WeEOLC I think it can be really empowering,& that control can actually motivate people to take control of other aspects #WeEOLC |
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@cewalshe
06 October 2015 20:30
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Hi #WeEOLC calling in briefly in between parenting duties. |
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@Dr_Chi_Li
06 October 2015 20:30
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@WeEOLC #PalliativeCare offers a patient- & family-centred (rather than disease-centred) approach, plus space to reflect & grieve #WeEOLC |
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@LynneBowers2
06 October 2015 20:30
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RT @BridgetJohnst: Resource @WeEOLC #ebp #WeEOLC re burden to others http://t.co/BsNgvB9Qja |
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@AlresfordBear
06 October 2015 20:30
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@WeEOLC The discussion of decisions is certainly important to a sense of autonomy and practical planning. #WeEOLC |
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@Sparklystar55
06 October 2015 20:30
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@WeEOLC Prob decisions about antibiotics if septic or artificial feeding... #WeEOLC |
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@WeEOLC
06 October 2015 20:30
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RT @melja14: @WeEOLC.. what will happen? What care is available for me and family... I'm concerned about the future #WeEOLC |
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@WeNurses
06 October 2015 20:30
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RT @DrNeilPender: #WeEOLC advance care planning is a real skill to make decisions relevant, clear and concise. |
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@ShazzaHudson
06 October 2015 20:30
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@Patient_Leader @WeMHNurses @WeNurses Have this in our new ICT's #SolihullVanguard #WeEOLC |
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@LynneBowers2
06 October 2015 20:30
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RT @David_Garbutt: #WeEOLC Often these conversations are shied away from for fear of distressing Pt and family. Cues missed |
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@BridgetJohnst
06 October 2015 20:30
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@LynneBowers2 but shouldn't we always offer @learnhospice support groups can be a powerful community #WeEOLC |
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@londonbird23
06 October 2015 20:30
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RT @Gray3Gray: Try not to suggest in medical terms ask what's important to Dan and his family then guide #WeEOLC |
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@HealthUKTD
06 October 2015 20:30
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RT @BridgetJohnst: Resource @WeEOLC #ebp #WeEOLC re burden to others http://t.co/BsNgvB9Qja |
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@WeNurses
06 October 2015 20:30
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RT @WeEOLC: #EBP #WeEOLC important resource for nurses https://t.co/bC6gTQGYjC |
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@Gray3Gray
06 October 2015 20:30
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RT @Patient_Leader: The more I'm following #WeEOLC I'm thinking @WeMHNurses should be working alongside @WeNurses in delivering family cen… |
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@SeanSaid_
06 October 2015 20:30
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@WeEOLC What is important to him to have in place and what he does not want? Also, would he have chat with loved ones in finish? #weeolc |
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@AlresfordBear
06 October 2015 20:30
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@Patient_Leader @WeMHNurses @WeNurses What is the family, does it often inhibit the discussions we may wish to have around EOL #WeEOLC |
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@ShazzaHudson
06 October 2015 20:30
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RT @WeEOLC: #EBP #WeEOLC important resource for nurses https://t.co/bC6gTQGYjC |
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@David_Garbutt
06 October 2015 20:30
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#WeEOLC "A request for assisted suicide should prompt a discussion to draw out the reasoning behind the request" RCN |
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@PennyFawthrop
06 October 2015 20:30
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@WeEOLC where he would prefer to die, what type of funeral service he would like, what sort of care he would like to receive #WeEOLC |
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@WeEOLC
06 October 2015 20:31
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RT @David_Garbutt: #WeEOLC "A request for assisted suicide should prompt a discussion to draw out the reasoning behind the request" RCN |
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@AlresfordBear
06 October 2015 20:31
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@SachaLG @WeNurses @WeEOLC What is truth if interpreted by differing emotions and underpinning discourses. #WeEOLC |
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@BridgetJohnst
06 October 2015 20:31
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RT @Sparklystar55: @WeEOLC Prob decisions about antibiotics if septic or artificial feeding... #WeEOLC |
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@MellowOchre
06 October 2015 20:31
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RT @WeEOLC: Excellent suggestion - finding out a little more about what he means #WeEOLC https://t.co/kmQOGxb2JA |
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@Cgrimes3
06 October 2015 20:31
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RT @ShazzaHudson: @WeNurses @BridgetJohnst @PennyFawthrop @EllzSummary @WeEOLC Depends on response to prompts and cues. #WeEOLC |
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@VickiJNurse
06 October 2015 20:31
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RT @David_Garbutt: #WeEOLC "A request for assisted suicide should prompt a discussion to draw out the reasoning behind the request" RCN |
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@kind_curious
06 October 2015 20:31
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This is so important and often avoided #WeEOLC https://t.co/gqt8Downot |
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@ShazzaHudson
06 October 2015 20:31
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RT @David_Garbutt: #WeEOLC "A request for assisted suicide should prompt a discussion to draw out the reasoning behind the request" RCN |
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@londonbird23
06 October 2015 20:31
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RT @David_Garbutt: #WeEOLC "A request for assisted suicide should prompt a discussion to draw out the reasoning behind the request" RCN |
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@Dr_Chi_Li
06 October 2015 20:31
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RT @WeEOLC: #WeEOLC #EBP RESOURCE lit review of family caregiving for MND http://t.co/teqivViF5w https://t.co/kvzivvFgz8 |
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@WeNurses
06 October 2015 20:31
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#WeEOLC https://t.co/cE3mPYjGau |
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@BridgetJohnst
06 October 2015 20:32
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@cewalshe you are very welcome @WeEOLC #weEOLC |
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@AlresfordBear
06 October 2015 20:32
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@JoyWharton1 @WeEOLC @londonbird23 By framing the wish to end ones own life in such a context, we may medicalise and oppress. #WeEOLC |
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@WeEOLC
06 October 2015 20:32
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@Nicki_Haywood Yes - so making his choices and preferences known is important but may not always be possible to achieve - honesty #WeEOLC |
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@LearnPEOLC
06 October 2015 20:32
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#WeEOLC RESOURCE http://t.co/xBqNBTvDg0 re death denial & talking about dying |
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@DrNeilPender
06 October 2015 20:32
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#WeEOLC Hope and control are two POWERFUL messages. However, It is possible to maintain both during advance care planning. |
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@GillDickson0611
06 October 2015 20:32
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@WeMHNurses #WeEOLC and often someone in family over positive (usually will mention Stephen Hawking) |
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@LynneBowers2
06 October 2015 20:32
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#WeEOLC just that some people don't like 'groups' / consider themselves 'private'/ other group members not alike? https://t.co/kmgdzWfMdf |
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@WeLDnurses
06 October 2015 20:32
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RT @WeNurses: Development 4 - advanced care planning ... what do we need to think about now ? #WeEOLC https://t.co/RRVFXRG6oc |
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@BridgetJohnst
06 October 2015 20:32
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EBP will add resource #weEOLC https://t.co/iYr2qqMTUG |
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@AlresfordBear
06 October 2015 20:32
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@JoyWharton1 @WeEOLC @londonbird23 We must consider choice and autonomy in all its forms within the life course. #WeEOLC |
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@jennywrenhh
06 October 2015 20:32
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#WeEOLC Very late but hello! |
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@WeNurses
06 October 2015 20:32
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RT @learnhospice: #WeEOLC RESOURCE http://t.co/xBqNBTvDg0 re death denial & talking about dying |
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@AlresfordBear
06 October 2015 20:33
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@JoyWharton1 @WeEOLC @londonbird23 For me where does the "unwise decision" lie as a concept if not here. #WeEOLC |
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@LynneBowers2
06 October 2015 20:33
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#WeEOLC absolutely! ?? https://t.co/DMqlxpc5jA |
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@LearnPEOLC
06 October 2015 20:33
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@David_Garbutt #WeEOLC absolutely! Impt to enable safe space to articulate thoughts |
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@WeMHNurses
06 October 2015 20:33
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Very interesting case study this evening over on channel @WeEOLC #WeEOLC |
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@WeNurses
06 October 2015 20:33
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RT @nursingbard: This is so important and often avoided #WeEOLC https://t.co/gqt8Downot |
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@kind_curious
06 October 2015 20:33
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RT @learnhospice: #WeEOLC RESOURCE http://t.co/xBqNBTvDg0 re death denial & talking about dying |
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@LearnPEOLC
06 October 2015 20:33
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RT @nursingbard: This is so important and often avoided #WeEOLC https://t.co/gqt8Downot |
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@ShazzaHudson
06 October 2015 20:33
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RT @nursingbard: This is so important and often avoided #WeEOLC https://t.co/gqt8Downot |
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@sarah_janemad
06 October 2015 20:33
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RT @learnhospice: #WeEOLC RESOURCE http://t.co/xBqNBTvDg0 re death denial & talking about dying |
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@cewalshe
06 October 2015 20:33
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Preferred priorities for care had little impact on MND in one study? http://t.co/zjhazRF604 #WeEOLC |
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@salsa442
06 October 2015 20:33
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@WeNurses @WeEOLC for me it would be PPC, ceilings of care inc DNACPR, who to contact when, funeral plans #WeEOLC |
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@PhilBallRN
06 October 2015 20:33
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Choice to know or not is critical #WeEOLC most people well aware even if not discussed, @WeEOLC @WeNurses https://t.co/QPXRrZH70b |
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@JillAnneWill
06 October 2015 20:33
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#WeEOLC advise of the legal framework which could support continued fulfillment of his wishes EG- POA @StartTalkingPoA |
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@AgencyNurse
06 October 2015 20:33
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RT @salsa442: @WeNurses @WeEOLC for me it would be PPC, ceilings of care inc DNACPR, who to contact when, funeral plans #WeEOLC |
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@cstephenson523
06 October 2015 20:33
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@WeEOLC #WeEOLC Dan needs to put in his preferences as to when he would like to stop treatment |
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@kind_curious
06 October 2015 20:33
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RT @WeMHNurses: Very interesting case study this evening over on channel @WeEOLC #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:33
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RT @WeEOLC: #WeEOLC RESOURCE @mndassoc re ACP http://t.co/vKCyJmZ2rT https://t.co/urgPW6N6R5 |
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@Gray3Gray
06 October 2015 20:34
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RT @DrNeilPender: #WeEOLC Hope and control are two POWERFUL messages. However, It is possible to maintain both during advance care planning. |
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@WeEOLC
06 October 2015 20:34
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@learnhospice & this by @EricaBorgstrom-"denial" being constructed as a disease object in med students http://t.co/Tm6aEQ3vgy #WeEOLC #EBP |
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@WeEOLC
06 October 2015 20:34
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#WeEOLC #EBP RESOURCE Dignity Therapy & MND http://t.co/LUl9Idcb6d imt re thread re discussions and holistic care |
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@salsa442
06 October 2015 20:34
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RT @WeEOLC: #EBP #WeEOLC important resource for nurses https://t.co/bC6gTQGYjC |
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@dorcaselambert
06 October 2015 20:34
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@WeEOLC He might have one or two ideas himself as he's initiating this. Would encourage him to discuss those first & go from there #WeEOLC |
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@KatsuyamaSarah
06 October 2015 20:34
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RT @WeNurses: So very helpful & wise words from @WeMHnurses - multidisciplinary view so important here #WeEOLC https://t.co/wsqisUlDPi |
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@ewrrll
06 October 2015 20:34
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@ShazzaHudson @WeEOLC how would you discuss AD with him? Speaking as student nurse with limited experience, strategies welcome? #WeEOLC |
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@salsa442
06 October 2015 20:34
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RT @WeMHNurses: Acceptance of a range of emotional responses for the whole family. Helping with tolerance of distress important. #WeEOLC |
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@WeNurses
06 October 2015 20:34
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We have to agree #WeEOLC https://t.co/77fSxjpLKC |
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@JoyWharton1
06 October 2015 20:34
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@WeEOLC #weEOLC In addition to usual things, need to consider decisions related to MND progression eg Peg feeding, Non invasive ventilation |
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@WeEOLC
06 October 2015 20:34
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@DrNeilPender And hope and realism - possible to foster both? #WeEOLC |
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@WeNurses
06 October 2015 20:34
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RT @hospicemanager: Choice to know or not is critical #WeEOLC most people well aware even if not discussed, @WeEOLC @WeNurses https://t.co… |
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@WeNurses
06 October 2015 20:35
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RT @cewalshe: Preferred priorities for care had little impact on MND in one study? http://t.co/zjhazRF604 #WeEOLC |
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@Nicki_Haywood
06 October 2015 20:35
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@WeEOLC from a lived experience of MND, nothing has been timely and services have been patchy #WeEOLC |
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@LynneBowers2
06 October 2015 20:35
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#WeEOLC Agree - Careful. For some however it is a choice regardless of legislation https://t.co/g4cWrgKy3a |
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@Patient_Leader
06 October 2015 20:35
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RT @learnhospice: #WeEOLC RESOURCE http://t.co/xBqNBTvDg0 re death denial & talking about dying |
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@SP_Duckworth
06 October 2015 20:35
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@David_Garbutt Witholding knowledge is an abuse of power, however well intentioned. @BridgetJohnst #WeEOLC |
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@KatsuyamaSarah
06 October 2015 20:35
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RT @Patient_Leader: The more I'm following #WeEOLC I'm thinking @WeMHNurses should be working alongside @WeNurses in delivering family cen… |
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@WeEOLC
06 October 2015 20:35
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WHat are people's experience of using the Preferred Priorities of Care Document (or similar)? #WeEOLC https://t.co/v7EELR3IVY |
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@WeEOLC
06 October 2015 20:35
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#WeEOLC #EBP RESOURCE Deat http://t.co/203vsHswA7 this is worth reading about MND death, dying and bvmt |
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@bellabertie
06 October 2015 20:35
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RT @DrNeilPender: Oi followers! The first ever @WeEOLC tweet chat TONIGHT. Starts at 8pm. RETWEETS required! #WeEOLC http://t.co/3HJJ1khuz9 |
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@PhilBallRN
06 October 2015 20:35
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Hi #WeEOLC am back #phonecharging #cuppa too @WeEOLC @WeNurses http://t.co/E2QM0NHTsc |
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@AlresfordBear
06 October 2015 20:36
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@nursingbard So does planning for assisted dying fit within such a context. #WeEOLC |
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@LearnPEOLC
06 October 2015 20:36
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RT @WeNurses: We have to agree #WeEOLC https://t.co/77fSxjpLKC |
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@DrNeilPender
06 October 2015 20:36
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#WeEOLC an inability for a patient to discuss the future sometimes is their only coping mechanism. Caution to not make them unravel required |
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@AgencyNurse
06 October 2015 20:36
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Have to agree with Dorcas - be led by Dan #WeEOLC https://t.co/FyZsga5cHd |
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@LynneBowers2
06 October 2015 20:36
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RT @JoyWharton1: @WeEOLC @londonbird23 #weEOLC 2/2 I think I read that the majority of UK nationals going to Switzerland for assisted suici… |
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@KatsuyamaSarah
06 October 2015 20:36
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RT @David_Garbutt: #WeEOLC "A request for assisted suicide should prompt a discussion to draw out the reasoning behind the request" RCN |
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@WeEOLC
06 October 2015 20:36
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PS it's here if not familiar with it http://t.co/cH13u0JiMD #EBP #WeEOLC https://t.co/v7EELR3IVY |
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@ShazzaHudson
06 October 2015 20:36
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@studentnurse_em Ask why he is thinking about this and listen. Pick up the cues and explore further. Don't rush with reasons to not #WeEOLC |
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@LynneBowers2
06 October 2015 20:36
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RT @David_Garbutt: #WeEOLC RCN Guidance on requests to die http://t.co/cHHOClriDi |
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@JillAnneWill
06 October 2015 20:36
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#WeEOLC advanced care planning should be about inclusion, empowerment and trust- need for inclusion despite capacity status (dementia) |
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@AlresfordBear
06 October 2015 20:36
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@David_Garbutt Indeed, but the need to provide a reasoning also invokes a subtle infererence of accountable power and risk. #WeEOLC |
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@KatsuyamaSarah
06 October 2015 20:36
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RT @WeNurses: #WeEOLC https://t.co/cE3mPYjGau |
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@WeEOLC
06 October 2015 20:36
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Can you think of any challenges here? #WeEOLC https://t.co/MNoV42qdBS |
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@WeEOLC
06 October 2015 20:37
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*** next development *** #WeEOLC #advancecareplan http://t.co/VHsU1VGK4R |
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@Sparklystar55
06 October 2015 20:37
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RT @learnhospice: #WeEOLC RESOURCE http://t.co/xBqNBTvDg0 re death denial & talking about dying |
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@LearnPEOLC
06 October 2015 20:37
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@Nicki_Haywood @WeEOLC #WeEOLC ?? big challenge is gaps and variances of care .. |
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@BridgetJohnst
06 October 2015 20:37
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@WeEOLC resource referred to by @David_Garbutt #WeEOLC is http://t.co/18787G22CR |
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@LearnPEOLC
06 October 2015 20:37
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RT @Nicki_Haywood: @WeEOLC from a lived experience of MND, nothing has been timely and services have been patchy #WeEOLC |
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@ShazzaHudson
06 October 2015 20:37
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RT @WeNurses: We have to agree #WeEOLC https://t.co/77fSxjpLKC |
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@fliss59
06 October 2015 20:37
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RT @DrNeilPender: UK leads the world in provision of palliative care but standards can still improve. #HospiceCareWeek #WeEOLC http://t.co/… |
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@Patient_Leader
06 October 2015 20:37
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RT @Nicki_Haywood: @WeEOLC from a lived experience of MND, nothing has been timely and services have been patchy #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:37
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RT @David_Garbutt: #WeEOLC Often these conversations are shied away from for fear of distressing Pt and family. Cues missed |
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@ShazzaHudson
06 October 2015 20:37
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RT @Nicki_Haywood: @WeEOLC from a lived experience of MND, nothing has been timely and services have been patchy #WeEOLC |
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@WeEOLC
06 October 2015 20:37
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Good point - he has initiated this convo - don't under-estimate the power of timing #WeEOLC https://t.co/kBVRAT7Rai |
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@LearnPEOLC
06 October 2015 20:37
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RT @WeEOLC: WHat are people's experience of using the Preferred Priorities of Care Document (or similar)? #WeEOLC https://t.co/v7EELR3IVY |
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@kind_curious
06 October 2015 20:37
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Purpose and meaning.. So important #WeEOLC skills needed to not just ask questions but allow Dan & family to explore https://t.co/JHZ4WQXlJV |
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@salsa442
06 October 2015 20:37
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@WeEOLC @cewalshe Really useful for some of my learning disabled patients, enabled MDT approach to planning #personcentred #WeEOLC |
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@Nicki_Haywood
06 October 2015 20:37
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RT @learnhospice: @Nicki_Haywood @WeEOLC #WeEOLC ?? big challenge is gaps and variances of care .. |
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@BridgetJohnst
06 October 2015 20:37
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RT @WeEOLC: PS it's here if not familiar with it http://t.co/cH13u0JiMD #EBP #WeEOLC https://t.co/v7EELR3IVY |
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@WeNurses
06 October 2015 20:37
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RT @JillDelday: #WeEOLC advanced care planning should be about inclusion, empowerment and trust- need for inclusion despite capacity status… |
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@JoyWharton1
06 October 2015 20:37
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@BridgetJohnst @WeEOLC #weEOLC some guidance for nurses from the RCN http://t.co/P5c2mzEZMF on discussing assisted suicide Resource |
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@LearnPEOLC
06 October 2015 20:38
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@WeEOLC @cewalshe #WeEOLC IMHO impt as a catalyst 4 conversation as part of ongoing conversation |
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@ShazzaHudson
06 October 2015 20:38
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@Nicki_Haywood @WeEOLC What would be helpful and when? #weEOLC |
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@BridgetJohnst
06 October 2015 20:38
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Deat http://t.co/203vsHswA7 this is worth reading about MND death, dying and bvmt |
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@lgoodbu
06 October 2015 20:38
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RT @DrNeilPender: #WeEOLC Hope and control are two POWERFUL messages. However, It is possible to maintain both during advance care planning. |
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@BridgetJohnst
06 October 2015 20:38
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RT @FoxHedgehog: @David_Garbutt Witholding knowledge is an abuse of power, however well intentioned. @BridgetJohnst #WeEOLC |
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@WeEOLC
06 October 2015 20:38
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@studentnurse_em @ShazzaHudson Perhaps finding out more about what is underpinning his wish to die? Needs good comms skills, no more #WeEOLC |
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@D_McKH
06 October 2015 20:38
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#WeEOLC sorry forgot hashtag twice (ran out characters sorry) |
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@SP_Duckworth
06 October 2015 20:38
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@David_Garbutt Oh absolutely. It was an ethical, rather than legal, point. @BridgetJohnst #WeEOLC |
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@AlresfordBear
06 October 2015 20:38
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@learnhospice @Nicki_Haywood @WeEOLC Indeed, which are often denied depending on the expression of distress and presentation. #WeEOLC |
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@WeNurses
06 October 2015 20:38
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RT @WeEOLC: Good point - he has initiated this convo - don't under-estimate the power of timing #WeEOLC https://t.co/kBVRAT7Rai |
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@BridgetJohnst
06 October 2015 20:38
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RT @Nicki_Haywood: @WeEOLC from a lived experience of MND, nothing has been timely and services have been patchy #WeEOLC |
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@AlresfordBear
06 October 2015 20:38
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@learnhospice @Nicki_Haywood @WeEOLC Notions of the stoic informal carer sit within this variance also. #WeEOLC |
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@LynneBowers2
06 October 2015 20:38
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RT @learnhospice: #WeEOLC RESOURCE http://t.co/xBqNBTvDg0 re death denial & talking about dying |
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@ShazzaHudson
06 October 2015 20:38
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@WeEOLC @cewalshe Documents often too prescriptive #WeEOLC |
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@BridgetJohnst
06 October 2015 20:39
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@Nicki_Haywood @WeEOLC thank you Nicki #WeEOLC |
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@LearnPEOLC
06 October 2015 20:39
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@DrNeilPender http://t.co/xBqNBTvDg0 u might like this then #WeEOLC |
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@KatsuyamaSarah
06 October 2015 20:39
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RT @nursingbard: This is so important and often avoided #WeEOLC https://t.co/gqt8Downot |
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@WeEOLC
06 October 2015 20:39
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Have there been any opportunities to plan ahead or have things been reactive to crises? #WeEOLC https://t.co/cISpJ67PZG |
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@WeEOLC
06 October 2015 20:39
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RT @Nicki_Haywood: @WeEOLC from a lived experience of MND, nothing has been timely and services have been patchy #WeEOLC |
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@BridgetJohnst
06 October 2015 20:39
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RT @JoyWharton1: @BridgetJohnst @WeEOLC #weEOLC some guidance for nurses from the RCN http://t.co/P5c2mzEZMF on discussing assisted suicide… |
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@LearnPEOLC
06 October 2015 20:39
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RT @WeEOLC: PS it's here if not familiar with it http://t.co/cH13u0JiMD #EBP #WeEOLC https://t.co/v7EELR3IVY |
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@salsa442
06 October 2015 20:39
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Couldn't agree more, our vulnerable Pts need to be empowered wherever possible #advancedcareplanning #WeEOLC https://t.co/RQwbWCr21Y |
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@BridgetJohnst
06 October 2015 20:39
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RT @FoxHedgehog: @David_Garbutt Oh absolutely. It was an ethical, rather than legal, point. @BridgetJohnst #WeEOLC |
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@AlresfordBear
06 October 2015 20:39
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@JillDelday How is this applied when often people may not consider their need for care, such as change in relationships. #WeEOLC |
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@SeanSaid_
06 October 2015 20:39
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@WeEOLC Are the family and MDT on board re what this means for them? How are their emotions holding up? Need collective approach. #WeEOLC |
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@ShazzaHudson
06 October 2015 20:39
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RT @JillDelday: #WeEOLC advanced care planning should be about inclusion, empowerment and trust- need for inclusion despite capacity status… |
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@AgencyNurse
06 October 2015 20:39
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RT @hospicemanager: Choice to know or not is critical #WeEOLC most people well aware even if not discussed, @WeEOLC @WeNurses https://t.co… |
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@WeLDnurses
06 October 2015 20:39
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RT @WeEOLC: PS it's here if not familiar with it http://t.co/cH13u0JiMD #EBP #WeEOLC https://t.co/v7EELR3IVY |
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@BridgetJohnst
06 October 2015 20:39
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RT @ShazzaHudson: @WeEOLC @cewalshe Documents often too prescriptive #WeEOLC |
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@WeLDnurses
06 October 2015 20:39
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RT @WeEOLC: Have there been any opportunities to plan ahead or have things been reactive to crises? #WeEOLC https://t.co/cISpJ67PZG |
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@BridgetJohnst
06 October 2015 20:39
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RT @learnhospice: @DrNeilPender http://t.co/xBqNBTvDg0 u might like this then #WeEOLC |
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@lgoodbu
06 October 2015 20:40
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RT @nursingbard: Purpose and meaning.. So important #WeEOLC skills needed to not just ask questions but allow Dan & family to explore https… |
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@LearnPEOLC
06 October 2015 20:40
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@JillDelday #WeEOLC & perhaps only 1 type of EOL conversation? |
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@WeGPNs
06 October 2015 20:40
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Deat http://t.co/203vsHswA7 this is worth reading about MND death, dying and bvmt |
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@Nicki_Haywood
06 October 2015 20:40
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RT @AlresfordBear: @learnhospice @Nicki_Haywood @WeEOLC Notions of the stoic informal carer sit within this variance also. #WeEOLC |
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@JoyWharton1
06 October 2015 20:40
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RT @David_Garbutt: #WeEOLC "A request for assisted suicide should prompt a discussion to draw out the reasoning behind the request" RCN |
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@BridgetJohnst
06 October 2015 20:40
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RT @WeEOLC: Have there been any opportunities to plan ahead or have things been reactive to crises? #WeEOLC https://t.co/cISpJ67PZG |
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@AlunAngela
06 October 2015 20:40
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#WeEOLC he needs the facts sensitively given, not opinions, and time Often have these conversations during physiotreatment-less intense |
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@Gray3Gray
06 October 2015 20:40
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@WeEOLC lots of info here some ACP some ADRT #WeEOLC |
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@Cgrimes3
06 October 2015 20:40
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@WeEOLC @Nicki_Haywood useful resource to start convo @learnhospice http://t.co/UrHknmAROL #WeEolc |
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@LynneBowers2
06 October 2015 20:40
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Dignity Therapy & MND http://t.co/LUl9Idcb6d imt re thread re discussions and holistic care |
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@Dr_Chi_Li
06 October 2015 20:40
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RT @learnhospice: #WeEOLC RESOURCE http://t.co/xBqNBTvDg0 re death denial & talking about dying |
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@Patient_Leader
06 October 2015 20:40
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RT @WeEOLC: Have there been any opportunities to plan ahead or have things been reactive to crises? #WeEOLC https://t.co/cISpJ67PZG |
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@BridgetJohnst
06 October 2015 20:40
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RT @salsa442: Couldn't agree more, our vulnerable Pts need to be empowered wherever possible #advancedcareplanning #WeEOLC https://t.co/RQw… |
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@WeEOLC
06 October 2015 20:40
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Not legally, but allowing him to voice his concerns may help you to understand his suffering #WeEOLC https://t.co/O69Ro6Lqhc |
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@EllzSummary
06 October 2015 20:40
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RT @salsa442: Couldn't agree more, our vulnerable Pts need to be empowered wherever possible #advancedcareplanning #WeEOLC https://t.co/RQw… |
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@JoHarding11
06 October 2015 20:40
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RT @WeNurses: So very helpful & wise words from @WeMHnurses - multidisciplinary view so important here #WeEOLC https://t.co/wsqisUlDPi |
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@WeNurses
06 October 2015 20:40
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RT @WeEOLC: *** next development *** #WeEOLC #advancecareplan http://t.co/VHsU1VGK4R |
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@Dr_Chi_Li
06 October 2015 20:41
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RT @DrNeilPender: #WeEOLC Hope and control are two POWERFUL messages. However, It is possible to maintain both during advance care planning. |
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@LearnPEOLC
06 October 2015 20:41
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@WeEOLC @cstephenson523 #WeEOLC evidence tells us that preferences may change & not always possible 2 forsee all eventualities = challenge |
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@cewalshe
06 October 2015 20:41
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Agree @ShazzaHudson @WeEOLC Effective ongoing communication more meaningful than document : http://t.co/jj1NDiSvFb #weeolc |
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@WeEOLC
06 October 2015 20:41
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@D_McKH too much to say! #WeEOLC |
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@Patient_Leader
06 October 2015 20:41
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RT @salsa442: Couldn't agree more, our vulnerable Pts need to be empowered wherever possible #advancedcareplanning #WeEOLC https://t.co/RQw… |
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@AlresfordBear
06 October 2015 20:41
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@WeEOLC The notion of empowerment is moot when we consider the inhibition of choice and control over one`s self expression. #WeEOLC |
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@DrNeilPender
06 October 2015 20:41
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RT @learnhospice: @DrNeilPender http://t.co/xBqNBTvDg0 u might like this then #WeEOLC |
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@PennyFawthrop
06 October 2015 20:41
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@WeEOLC document it, explain that he is able to change his mind at any time. Ask if his family knows, and if he wants them to know #WeEOLC |
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@WeEOLC
06 October 2015 20:41
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RT @FoxHedgehog: @David_Garbutt Oh absolutely. It was an ethical, rather than legal, point. @BridgetJohnst #WeEOLC |
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@WeNurses
06 October 2015 20:41
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RT @AlunAngela: #WeEOLC he needs the facts sensitively given, not opinions, and time Often have these conversations during physiotreatment… |
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@salsa442
06 October 2015 20:41
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RT @AlunAngela: #WeEOLC he needs the facts sensitively given, not opinions, and time Often have these conversations during physiotreatment… |
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@BridgetJohnst
06 October 2015 20:41
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@salsa442 @JillDelday although we have to be careful not to be patronising or paternalistic #personcentredcare #familycentredcare #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:41
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RT @cewalshe: Preferred priorities for care had little impact on MND in one study? http://t.co/zjhazRF604 #WeEOLC |
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@WeNurses
06 October 2015 20:42
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RT @salsa442: Couldn't agree more, our vulnerable Pts need to be empowered wherever possible #advancedcareplanning #WeEOLC https://t.co/RQw… |
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@AlresfordBear
06 October 2015 20:42
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@WeEOLC If we permit, voice and agency which does not have an outcome, but is reframed to acceptance of legal norms. What then? #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:42
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Dignity Therapy & MND http://t.co/LUl9Idcb6d imt re thread re discussions and holistic care |
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@LynneBowers2
06 October 2015 20:42
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Deat http://t.co/203vsHswA7 this is worth reading about MND death, dying and bvmt |
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@Nicki_Haywood
06 October 2015 20:42
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@ShazzaHudson @WeEOLC access to information, having an idea of some of the scenarios we may come across. Being prepared #WeEOLC |
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@D_McKH
06 October 2015 20:42
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@ShazzaHudson @Nicki_Haywood @WeEOLC #WeEOLC meeting others and their family - people at different stages and support |
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@Sparklystar55
06 October 2015 20:42
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@WeEOLC Being practical it needs shared with relevant people eg GP, family to have copy, discussion re dnacpr documentation #WeEOLC |
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@AlresfordBear
06 October 2015 20:42
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@WeEOLC It is an interesting one. The notion of choice, which is framed by the choice of the choice facilitator. #WeEOLC |
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@WeLDnurses
06 October 2015 20:42
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RT @salsa442: Couldn't agree more, our vulnerable Pts need to be empowered wherever possible #advancedcareplanning #WeEOLC https://t.co/RQw… |
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@JoyWharton1
06 October 2015 20:42
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@salsa442 @WeNurses @WeEOLC #weEOLC prefer escalation of treatment plan, or just plan rather than ceiling of care. No ceiling to care. |
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@Eve_miriam
06 October 2015 20:42
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@WeEOLC is there any way to help his suffering without going against his wishes about medicine? #WeEOLC |
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@salsa442
06 October 2015 20:42
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@BridgetJohnst @JillDelday There's a balance to be found,need to get to know the family as a whole as well as individuals #WeEOLC |
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@tagbrocks05
06 October 2015 20:42
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RT @WeEOLC: *** next development *** #WeEOLC #advancecareplan http://t.co/VHsU1VGK4R |
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@ShazzaHudson
06 October 2015 20:42
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Yes, open questions, relationships too #EBP #WeEOLC https://t.co/tyOVSUTJes |
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@JillAnneWill
06 October 2015 20:43
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@PennyFawthrop #WeEOLC also some parts of the country put an out of hours alert onto IT systems for those not regularly involved in care |
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@Dr_Chi_Li
06 October 2015 20:43
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RT @JoyWharton1: @WeEOLC #weEOLC In addition to usual things, need to consider decisions related to MND progression eg Peg feeding, Non inv… |
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@AlresfordBear
06 October 2015 20:43
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@WeEOLC The word allowing suggests a gatekeeping to the sharing of narrative, which we also have to reflectively consider. #WeEOLC |
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@SeanSaid_
06 October 2015 20:43
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@AlresfordBear @WeEOLC Great question. #WeEOLC |
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@ShazzaHudson
06 October 2015 20:43
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RT @D_McKH: @ShazzaHudson @Nicki_Haywood @WeEOLC #WeEOLC meeting others and their family - people at different stages and support |
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@WeEOLC
06 October 2015 20:43
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Yes - unfolding experience - people often change their minds about wishes and concerns and this is ok #WeEOLC https://t.co/dgEfGd5e75 |
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@salsa442
06 October 2015 20:43
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@JoyWharton1 @WeNurses @WeEOLC Of course, I'm sorry, poor terminology due to 140 character limit #WeEOLC |
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@jbfra
06 October 2015 20:43
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RT @WeEOLC: *** next development *** #WeEOLC #advancecareplan http://t.co/VHsU1VGK4R |
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@AlresfordBear
06 October 2015 20:43
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@SeanSaid_ @WeEOLC Aye no` bad. #WeEOLC :) |
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@DrNeilPender
06 October 2015 20:43
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#WeEOLC occasionally talking about, talking about advance care planning is a good way forward if a person cannot explore because of fear. |
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@Dr_Chi_Li
06 October 2015 20:43
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@Nicki_Haywood @WeEOLC What have you found helpful in your experience? #WeEOLC |
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@Nicki_Haywood
06 October 2015 20:43
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RT @D_McKH: @ShazzaHudson @Nicki_Haywood @WeEOLC #WeEOLC meeting others and their family - people at different stages and support |
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@AlresfordBear
06 October 2015 20:44
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@SeanSaid_ @WeEOLC Thank you for your appreciation. It is valued. #WeEOLC |
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@cewalshe
06 October 2015 20:44
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@learnhospice @WeEOLC @cstephenson523 Yep. ACP as a process important in a COPD study involved with: http://t.co/8XhuUZgRJf #WeEOLC |
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@BridgetJohnst
06 October 2015 20:44
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How can health and social care professional help person and family be prepared #WeEOLC https://t.co/Spb7XODduB |
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@LynneBowers2
06 October 2015 20:44
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#WeEOLC the family will be impacted by assisted dying plans whether aware or not. https://t.co/WJSag7Apr2 |
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@Dr_Chi_Li
06 October 2015 20:44
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RT @FoxHedgehog: @David_Garbutt Witholding knowledge is an abuse of power, however well intentioned. @BridgetJohnst #WeEOLC |
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@LearnPEOLC
06 October 2015 20:44
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#WeEOLC RESOURCE http://t.co/GqtxRGAd3s https://t.co/1yKWH9f61K |
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@LearnPEOLC
06 October 2015 20:44
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RT @Cgrimes3: @WeEOLC @Nicki_Haywood useful resource to start convo @learnhospice http://t.co/UrHknmAROL #WeEolc |
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@salsa442
06 October 2015 20:44
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RT @Eve_miriam: @WeEOLC is there any way to help his suffering without going against his wishes about medicine? #WeEOLC |
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@WeEOLC
06 October 2015 20:44
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#EBP related to #ACP in #COPD (how many abbreviations?!) #WeEOLC https://t.co/dCaDdKjDo1 |
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@GillDickson0611
06 October 2015 20:44
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@learnhospice @WeEOLC @cstephenson523 sometimes some system problems too #WeEOLC eg paramedics pressure to admit etc - try to foresee |
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@ShazzaHudson
06 October 2015 20:44
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@Nicki_Haywood @WeEOLC So early access to services or support groups to explore these? #WeEOLC |
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@AlresfordBear
06 October 2015 20:44
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@LynneBowers2 Indeed, but to have them in the mainstream is far better than their construction as a complex stigmatising taboo. #WeEOLC |
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@BridgetJohnst
06 October 2015 20:44
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RT @WeEOLC: Yes - unfolding experience - people often change their minds about wishes and concerns and this is ok #WeEOLC https://t.co/dg… |
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@Cgrimes3
06 October 2015 20:44
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@cewalshe @ShazzaHudson @WeEOLC sharing of conversations with Acute,OOH,Primary care, Amb.s and patient and family important. #ECR #WeEOLC |
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@CEOStGiles
06 October 2015 20:44
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@BridgetJohnst our MND patients seem to prefer being part of a mixed group, a separate group wasn't popular #WeEOLC |
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@Intl_Nurses
06 October 2015 20:45
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RT @WeNurses: We have to agree #WeEOLC https://t.co/77fSxjpLKC |
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@iahcp
06 October 2015 20:45
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RT @WeNurses: We have to agree #WeEOLC https://t.co/77fSxjpLKC |
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@LynneBowers2
06 October 2015 20:45
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#WeEOLC impact undermined by lack of awareness amongst HCPs? https://t.co/HUXy0HowZI |
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@CEOStGiles
06 October 2015 20:45
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@BridgetJohnst our MS group however very successful #WeEOLC |
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@salsa442
06 October 2015 20:45
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RT @BridgetJohnst: How can health and social care professional help person and family be prepared #WeEOLC https://t.co/Spb7XODduB |
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@LearnPEOLC
06 October 2015 20:45
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@WeEOLC @AlresfordBear @nursingbard #WeEOLC been some interesting research about therapeutic impt of expressing a wish to die |
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@Dr_Chi_Li
06 October 2015 20:45
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@FoxHedgehog @David_Garbutt @BridgetJohnst A balance of “first do no harm” and other ethic principles (e.g. autonomy)? #WeEOLC |
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@londonbird23
06 October 2015 20:45
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RT @learnhospice: #WeEOLC RESOURCE http://t.co/GqtxRGAd3s https://t.co/1yKWH9f61K |
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@LearnPEOLC
06 October 2015 20:45
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RT @cewalshe: Agree @ShazzaHudson @WeEOLC Effective ongoing communication more meaningful than document : http://t.co/jj1NDiSvFb #weeolc |
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@WeEOLC
06 October 2015 20:45
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@CEOStGiles @BridgetJohnst That's interesting - why do you think that was the case? #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:45
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Deat http://t.co/203vsHswA7 this is worth reading about MND death, dying and bvmt |
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@WeNurses
06 October 2015 20:45
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RT @WeEOLC: #EBP related to #ACP in #COPD (how many abbreviations?!) #WeEOLC https://t.co/dCaDdKjDo1 |
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@LearnPEOLC
06 October 2015 20:45
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@cewalshe @ShazzaHudson @WeEOLC #WeEOLC Person not Process!! |
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@WeNurses
06 October 2015 20:46
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RT @CEOStGiles: @BridgetJohnst our MND patients seem to prefer being part of a mixed group, a separate group wasn't popular #WeEOLC |
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@WeEOLC
06 October 2015 20:46
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@LynneBowers2 And possibly patients not wanting to be so formalised about their preferences? #WeEOLC |
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@BridgetJohnst
06 October 2015 20:46
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RT @CEOStGiles: @BridgetJohnst our MND patients seem to prefer being part of a mixed group, a separate group wasn't popular #WeEOLC |
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@WeEOLC
06 October 2015 20:46
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RT @learnhospice: @WeEOLC @AlresfordBear @nursingbard #WeEOLC been some interesting research about therapeutic impt of expressing a wish to… |
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@LynneBowers2
06 October 2015 20:46
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#WeEOLC Dan may review his original preference https://t.co/vzHii3VPrL |
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@DrNeilPender
06 October 2015 20:46
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#WeEOLC Writing an ADRT requires experience. Vague, not scenario specific have devastating results. |
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@BridgetJohnst
06 October 2015 20:46
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RT @CEOStGiles: @BridgetJohnst our MS group however very successful #WeEOLC |
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@SachaLG
06 October 2015 20:46
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@therealcaty @WeNurses Promise u haven't! I'm so determined people don't take as long as me 2 accept reality so can enjoy #QOL left! #WeEOLC |
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@AlresfordBear
06 October 2015 20:46
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@learnhospice @WeEOLC @nursingbard It certainly correlates to choice and autonomy. #WeEOLC |
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@SeanSaid_
06 October 2015 20:46
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@AlresfordBear @WeEOLC I would hope I would give limitations for self in law but freedom for person to choose to act for self. #WeEOLC |
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@HealthUKTD
06 October 2015 20:46
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RT @WeEOLC: Have there been any opportunities to plan ahead or have things been reactive to crises? #WeEOLC https://t.co/cISpJ67PZG |
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@HealthUKTD
06 October 2015 20:46
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RT @JillDelday: #WeEOLC advanced care planning should be about inclusion, empowerment and trust- need for inclusion despite capacity status… |
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@HealthUKTD
06 October 2015 20:46
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RT @salsa442: Couldn't agree more, our vulnerable Pts need to be empowered wherever possible #advancedcareplanning #WeEOLC https://t.co/RQw… |
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@JoyWharton1
06 October 2015 20:46
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@WeEOLC #weEOLC vey varied, certainly many people don't want to write things down at first. important to be as individual as possible |
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@LearnPEOLC
06 October 2015 20:46
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@AlresfordBear @WeEOLC #WeEOLC Gerry you might like some of @EricaBorgstrom work re choice & control at EOL |
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@LynneBowers2
06 October 2015 20:46
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#WeEOLC agreed https://t.co/BHolQNIMRo |
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@LearnPEOLC
06 October 2015 20:47
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RT @D_McKH: @ShazzaHudson @Nicki_Haywood @WeEOLC #WeEOLC meeting others and their family - people at different stages and support |
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@CEOStGiles
06 October 2015 20:47
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@DrNeilPender I'm reading Awareness of Dying by Glaser and Stauss very interesting so far re prognosis & interpretation of cues #WeEOLC |
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@AlresfordBear
06 October 2015 20:47
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@learnhospice @WeEOLC @EricaBorgstrom Will have a look :) Be happy to read some work if links could be provided. Thank you. #WeEOLC |
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@LearnPEOLC
06 October 2015 20:47
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@Sparklystar55 @WeEOLC #WeEOLC good point 1 of barriers to ACP is sharing of info |
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@Nicki_Haywood
06 October 2015 20:47
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@Dr_Chi_Li @WeEOLC great support from primary healthcare team; their kindness, compassion and support have been wonderful. #WeEOLC |
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@LearnPEOLC
06 October 2015 20:47
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RT @JoyWharton1: @salsa442 @WeNurses @WeEOLC #weEOLC prefer escalation of treatment plan, or just plan rather than ceiling of care. No ceil… |
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@LearnPEOLC
06 October 2015 20:47
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RT @Eve_miriam: @WeEOLC is there any way to help his suffering without going against his wishes about medicine? #WeEOLC |
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@melja14
06 October 2015 20:48
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@WFDManager @learnhospice @WeEOLC @cstephenson523 also is it still valid? How do we know it's current #WeEOLC |
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@ShazzaHudson
06 October 2015 20:48
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@learnhospice @cewalshe @WeEOLC Interesting phrase in abstract, 'capacity to maintain personhood' #WeEOLC |
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@DrNeilPender
06 October 2015 20:48
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#WeEOLC i would never write an ADRT in isolation. I would always write a statement of preferences and wishes to give a picture of the pt |
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@Gray3Gray
06 October 2015 20:48
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@DrNeilPender have only seen two ADRTs in my community experience of fourteen years #WeEOLC |
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@AlresfordBear
06 October 2015 20:48
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@Dr_Chi_Li #WeEOLC@David_Garbutt @BridgetJohnst Where does the derivative of "first do no harm" apply when the unwise decision is thus |
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@Nicki_Haywood
06 October 2015 20:48
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@Dr_Chi_Li @WeEOLC equipment wise cough assist machine and NIV machine have been Mum's life savers. #WeEOLC |
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@LearnPEOLC
06 October 2015 20:48
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@Eve_miriam @WeEOLC #WeEOLC good point & yes there is- EOLC is about paying attn to the detail & not abandoning ppl even in difficult times |
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@WeEOLC
06 October 2015 20:49
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Final development ... #WeEOLC #MND http://t.co/oTjzQmuOAo |
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@JoyWharton1
06 October 2015 20:49
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@DrNeilPender #weEOLC absolutely agree Neil, HAS to be optional and not compulsory with repeated attempts to get the paperwork in place! |
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@BridgetJohnst
06 October 2015 20:49
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@CEOStGiles @DrNeilPender great read and also alongside book by the nurse who worked with Glaser and Strauss Jeanne Quint Benoliel #WeEOLC |
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@WeEOLC
06 October 2015 20:49
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#WeEOLC #EBP RESOURCE NIV in MND: current UK practice http://t.co/2YzkBV4DKg |
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@Patient_Leader
06 October 2015 20:49
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RT @WeEOLC: Final development ... #WeEOLC #MND http://t.co/oTjzQmuOAo |
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@lgoodbu
06 October 2015 20:49
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RT @learnhospice: @WeEOLC @AlresfordBear @nursingbard #WeEOLC been some interesting research about therapeutic impt of expressing a wish to… |
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@ShazzaHudson
06 October 2015 20:49
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RT @DrNeilPender: #WeEOLC i would never write an ADRT in isolation. I would always write a statement of preferences and wishes to give a pi… |
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@BridgetJohnst
06 October 2015 20:50
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RT @Nicki_Haywood: @Dr_Chi_Li @WeEOLC equipment wise cough assist machine and NIV machine have been Mum's life savers. #WeEOLC |
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@LearnPEOLC
06 October 2015 20:50
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@ShazzaHudson @cewalshe @WeEOLC #WeEOLC it's where circular & hypothetical q's are so helpful |
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@LearnPEOLC
06 October 2015 20:50
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RT @JillDelday: @PennyFawthrop #WeEOLC also some parts of the country put an out of hours alert onto IT systems for those not regularly inv… |
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@BridgetJohnst
06 October 2015 20:50
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RT @learnhospice: @Eve_miriam @WeEOLC #WeEOLC good point & yes there is- EOLC is about paying attn to the detail & not abandoning ppl even … |
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@Cgrimes3
06 October 2015 20:50
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@DrNeilPender absolutely. Specfic and valid ADRT , which is communicated to sectors very important #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:50
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RT @WeEOLC: #WeEOLC #EBP RESOURCE NIV in MND: current UK practice http://t.co/2YzkBV4DKg |
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@LynneBowers2
06 October 2015 20:50
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#WeEOLC what a damning indictment. I'd assumed funding the issue https://t.co/Z9Jr53fkKh |
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@londonbird23
06 October 2015 20:50
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RT @WeEOLC: #WeEOLC #EBP RESOURCE NIV in MND: current UK practice http://t.co/2YzkBV4DKg |
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@LynneBowers2
06 October 2015 20:50
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RT @AlresfordBear: @learnhospice @Nicki_Haywood @WeEOLC Notions of the stoic informal carer sit within this variance also. #WeEOLC |
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@Patient_Leader
06 October 2015 20:51
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@WeEOLC Ensure family who are primary carers have support they need/ask for #WeEOLC |
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@LearnPEOLC
06 October 2015 20:51
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@SachaLG @therealcaty @WeNurses #WeEOLC g8 discussion & impt to provoke thinking! |
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@Gray3Gray
06 October 2015 20:51
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When I met my first patient with MND, MNDAssn was my resource. #WeEOLC |
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@AlresfordBear
06 October 2015 20:51
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@LynneBowers2 There is no indictment. It is an exploration of social construction of presentations of distress and perceived loss. #WeEOLC |
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@LynneBowers2
06 October 2015 20:51
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RT @AlunAngela: #WeEOLC he needs the facts sensitively given, not opinions, and time Often have these conversations during physiotreatment… |
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@WeNurses
06 October 2015 20:51
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The final development in #DansCare #WeEOLC > https://t.co/hatssxesA5 |
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@WeEOLC
06 October 2015 20:51
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@CEOStGiles @BridgetJohnst In a way maybe it is strange to group ppl according to diagnosis ... it's about life-limiting illnesses #WeEOLC |
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@BridgetJohnst
06 October 2015 20:51
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RT @WeEOLC: #WeEOLC #EBP RESOURCE NIV in MND: current UK practice http://t.co/2YzkBV4DKg |
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@WeEOLC
06 October 2015 20:51
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RT @WeNurses: The final development in #DansCare #WeEOLC > https://t.co/hatssxesA5 |
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@WeNurses
06 October 2015 20:51
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RT @WeEOLC: #WeEOLC #EBP RESOURCE NIV in MND: current UK practice http://t.co/2YzkBV4DKg |
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@WeEOLC
06 October 2015 20:51
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Okay - so what do we need to do now? We thought this might happen. And it has ... #WeEOLC |
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@AlresfordBear
06 October 2015 20:51
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@LynneBowers2 Sometimes loss and transitions appear and we use the range of emotional expression to communicate these. #WeEOLC |
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@WeLDnurses
06 October 2015 20:51
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RT @WeEOLC: Final development ... #WeEOLC #MND http://t.co/oTjzQmuOAo |
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@WeNurses
06 October 2015 20:52
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RT @Patient_Leader: @WeEOLC Ensure family who are primary carers have support they need/ask for #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:52
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@AlresfordBear @BridgetJohnst Giving information badly can be harmful, such as prognosis as discussed earlier #WeEOLC |
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@cstephenson523
06 October 2015 20:52
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@WeEOLC #WeEOLC Dan would need to have an assessment by speech and language re swallowing and look at how we can met his nutrition needs |
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@SeanSaid_
06 October 2015 20:52
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@WeEOLC Conversation with Dan re options of care. Relieve symptoms. His views are part of dynamic process. Can change as go along. #weeolc |
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@WeEOLC
06 October 2015 20:52
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Yes, fabulous resources here http://t.co/FWzUMCJaJ3 #WeEOLC https://t.co/SMUGHF6GM3 |
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@WeEOLC
06 October 2015 20:52
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#WeEOLC #EBP RESOURCE Impact of ventilation on family carers http://t.co/cqTaIdhazM |
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@kind_curious
06 October 2015 20:53
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@plumjam61 there's some fabulous resources here #WeEOLC http://t.co/o35WwH90Zm |
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@londonbird23
06 October 2015 20:53
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RT @cstephenson523: @WeEOLC #WeEOLC Dan would need to have an assessment by speech and language re swallowing and look at how we can met hi… |
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@WeEOLC
06 October 2015 20:53
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What do others think here? #WeEOLC https://t.co/gxJjw0uN5Y |
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@LearnPEOLC
06 October 2015 20:53
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RT @WeEOLC: Yes, fabulous resources here http://t.co/FWzUMCJaJ3 #WeEOLC https://t.co/SMUGHF6GM3 |
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@WeNurses
06 October 2015 20:53
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Impact of ventilation on family carers http://t.co/cqTaIdhazM |
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@BridgetJohnst
06 October 2015 20:53
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RT @nursingbard: @plumjam61 there's some fabulous resources here #WeEOLC http://t.co/o35WwH90Zm |
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@Dr_Chi_Li
06 October 2015 20:53
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Impact of ventilation on family carers http://t.co/cqTaIdhazM |
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@WeLDnurses
06 October 2015 20:53
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RT @WeEOLC: Yes, fabulous resources here http://t.co/FWzUMCJaJ3 #WeEOLC https://t.co/SMUGHF6GM3 |
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@BridgetJohnst
06 October 2015 20:53
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Impact of ventilation on family carers http://t.co/cqTaIdhazM |
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@WeLDnurses
06 October 2015 20:53
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Impact of ventilation on family carers http://t.co/cqTaIdhazM |
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@WeEOLC
06 October 2015 20:54
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Please can you tweet ONE THING you've learnt tonight? #WeEOLC |
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@WeEOLC
06 October 2015 20:54
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Would Dan's Advance Decision be valid at this point? #WeEOLC |
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@WeNurses
06 October 2015 20:54
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RT @WeEOLC: What do others think here? #WeEOLC https://t.co/gxJjw0uN5Y |
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@WeNurses
06 October 2015 20:54
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RT @nursingbard: @plumjam61 there's some fabulous resources here #WeEOLC http://t.co/o35WwH90Zm |
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@Nicki_Haywood
06 October 2015 20:54
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@ShazzaHudson @WeEOLC absolutely from the point of diagnosis. #WeEOLC |
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@GillDickson0611
06 October 2015 20:54
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@Cgrimes3 @DrNeilPender and not just Dan but children+YP may need this planning too -see http://t.co/gFC1LJBdu5 as a great resource #WeEOLC |
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@LearnPEOLC
06 October 2015 20:54
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#WeEOLC @WeEOLC don't forget all to look for #WeEOLC #ebp RESOURCE in timeline for links to resources |
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@WeMHNurses
06 October 2015 20:54
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We haven't forgotten the daughter, have we? #WeEOLC Thinking about her future mental health. @WeEOLC |
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@AlresfordBear
06 October 2015 20:54
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@Dr_Chi_Li @BridgetJohnst And giving information when the service is not readily accessible as well. #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:54
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RT @AlresfordBear: @Dr_Chi_Li @BridgetJohnst And giving information when the service is not readily accessible as well. #WeEOLC |
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@lgoodbu
06 October 2015 20:54
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RT @Patient_Leader: @WeEOLC Ensure family who are primary carers have support they need/ask for #WeEOLC |
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@kesleeman
06 October 2015 20:54
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@WeEOLC just got in! Sorry to miss #WeEOLC chat :( |
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@WeEOLC
06 October 2015 20:54
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#WeEOLC #EBP RESOURCE Symptom prevalence in neurological conditions http://t.co/kXEHSLnkxx |
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@LynneBowers2
06 October 2015 20:55
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#WeEOLC https://t.co/BtFY6KrxrE |
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@LearnPEOLC
06 October 2015 20:55
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RT @nursingbard: @plumjam61 there's some fabulous resources here #WeEOLC http://t.co/o35WwH90Zm |
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@LearnPEOLC
06 October 2015 20:55
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@nursingbard @plumjam61 TY @EricaBorgstrom #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:55
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@WeEOLC @cstephenson523 Also how he can eat and drink and communicate effectively and pleasurably - not just a matter of sustenance… #WeEOLC |
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@Dr_Chi_Li
06 October 2015 20:55
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Symptom prevalence in neurological conditions http://t.co/kXEHSLnkxx |
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@WeLDnurses
06 October 2015 20:55
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Symptom prevalence in neurological conditions http://t.co/kXEHSLnkxx |
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@LynneBowers2
06 October 2015 20:55
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#WeEOLC @mndassoc ?? https://t.co/HQgtg47K7D |
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@Patient_Leader
06 October 2015 20:55
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@WeEOLC Ensure he is pain free, even if giving painkillers that could bring his death sooner! #WeEOLC |
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@WeEOLC
06 October 2015 20:56
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yes - Important to think long term re bereavement support - helpful resources http://t.co/q20iZ8lw3T #WeEOLC https://t.co/EtYVPlVzjm |
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@WeNurses
06 October 2015 20:56
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We hope we havent #WeEOLC Is there a role for School Nurses here too ? @WeSchoolNurses ? https://t.co/6eyPzychLJ |
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@WeGPNs
06 October 2015 20:56
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Yes we found useful info for general practice @mndassoc #WeEOLC Apologies late to chat. https://t.co/qmJYFFV7rY |
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@BridgetJohnst
06 October 2015 20:56
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RT @WeEOLC: #WeEOLC #EBP RESOURCE Symptom prevalence in neurological conditions http://t.co/kXEHSLnkxx |
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@salsa442
06 October 2015 20:56
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@pragmaticnurse @WeNurses Including them wherever possible,using total communication to support their expression of preference etc #WeEOLC |
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@Gray3Gray
06 October 2015 20:56
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@WeEOLC @cstephenson523 but not to the point where choice is taken away, minimise risk but support comfort #WeEOLC |
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@cstephenson523
06 October 2015 20:56
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@WeEOLC #WeEOLC Lack of motivation to eat also due to deterioration in his condition could be low in mood |
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@D_McKH
06 October 2015 20:56
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@cstephenson523 @WeEOLC #WeEOLC yes and how to get meds in (crush / liquids). |
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@melja14
06 October 2015 20:56
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@WeEOLC @cstephenson523 what are Dan's thoughts and wishes? Are they the same as previously? #weeolc |
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@LearnPEOLC
06 October 2015 20:56
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@kesleeman @WeEOLC #WeEOLC ???? |
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@BridgetJohnst
06 October 2015 20:56
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RT @learnhospice: #WeEOLC @WeEOLC don't forget all to look for #WeEOLC #ebp RESOURCE in timeline for links to resources |
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@WeLDnurses
06 October 2015 20:56
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So much great evidence being shared tonight by #WeEOLC that could be so easily applied to those with complex physical health needs and LD |
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@BridgetJohnst
06 October 2015 20:56
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RT @Nicki_Haywood: @ShazzaHudson @WeEOLC absolutely from the point of diagnosis. #WeEOLC |
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@WeNurses
06 October 2015 20:56
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Some brilliant #EBP and resources being shared via #WeEOLC tonight https://t.co/RbMj3lKLw6 |
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@salsa442
06 October 2015 20:56
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RT @WeMHNurses: We haven't forgotten the daughter, have we? #WeEOLC Thinking about her future mental health. @WeEOLC |
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@WeEOLC
06 October 2015 20:57
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Pain in #MND often related to poor positioning - need to try non-pharmacological options 1st #WeEOLC https://t.co/HTrNSdXWwO |
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@johnwalsh88
06 October 2015 20:57
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RT @LynneBowers2: #WeEOLC https://t.co/BtFY6KrxrE |
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@WeEOLC
06 October 2015 20:57
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#WeEOLC #EBP RESOURCE Breathlessness meaning http://t.co/Y8vCBi6jMM |
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@BridgetJohnst
06 October 2015 20:57
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RT @WeEOLC: yes - Important to think long term re bereavement support - helpful resources http://t.co/q20iZ8lw3T #WeEOLC https://t.co/EtY… |
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@BridgetJohnst
06 October 2015 20:57
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RT @WeNurses: We hope we havent #WeEOLC Is there a role for School Nurses here too ? @WeSchoolNurses ? https://t.co/6eyPzychLJ |
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@WeMHNurses
06 October 2015 20:57
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@WeNurses @WeSchoolNurses yes there is. #WeEOLC |
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@LynneBowers2
06 October 2015 20:57
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RT @WeEOLC: yes - Important to think long term re bereavement support - helpful resources http://t.co/q20iZ8lw3T #WeEOLC https://t.co/EtY… |
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@Patient_Leader
06 October 2015 20:57
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RT @WeLDnurses: So much great evidence being shared tonight by #WeEOLC that could be so easily applied to those with complex physical healt… |
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@WeEOLC
06 October 2015 20:57
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Important point - have his wishes changed? If he still has capacity his ADRT is not valid #WeEOLC https://t.co/pdolxXWbgR |
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@BridgetJohnst
06 October 2015 20:57
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RT @WeNurses: Some brilliant #EBP and resources being shared via #WeEOLC tonight https://t.co/RbMj3lKLw6 |
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@salsa442
06 October 2015 20:57
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RT @WeLDnurses: So much great evidence being shared tonight by #WeEOLC that could be so easily applied to those with complex physical healt… |
|
@Dr_Chi_Li
06 October 2015 20:57
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RT @WeEOLC: Pain in #MND often related to poor positioning - need to try non-pharmacological options 1st #WeEOLC https://t.co/HTrNSdXWwO |
|
@BridgetJohnst
06 October 2015 20:57
|
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RT @WeEOLC: Pain in #MND often related to poor positioning - need to try non-pharmacological options 1st #WeEOLC https://t.co/HTrNSdXWwO |
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@LearnPEOLC
06 October 2015 20:57
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@WeEOLC we've nearly finished!! Time to reflect & signpost to next chat? @heblau @BridgetJohnst #WeEOLC |
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@ross_6479_RNLD
06 October 2015 20:58
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RT @WeLDnurses: So much great evidence being shared tonight by #WeEOLC that could be so easily applied to those with complex physical healt… |
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@LynneBowers2
06 October 2015 20:58
|
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RT @WeLDnurses: So much great evidence being shared tonight by #WeEOLC that could be so easily applied to those with complex physical healt… |
|
@WeEOLC
06 October 2015 20:58
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Please can you tweet ONE THING you've learnt tonight? #WeEOLC https://t.co/EtYVPmdaaU |
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@JoyWharton1
06 October 2015 20:58
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@WeEOLC #weEOLC kicks in if Dan has lost capacity, if he has capacity he can express his current wishes |
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@PennyFawthrop
06 October 2015 20:58
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@WeEOLC Importance of the therapeutic relationship in life-limiting conditions. Understanding is key #WeEOLC |
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@ShazzaHudson
06 October 2015 20:58
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RT @Nicki_Haywood: @ShazzaHudson @WeEOLC absolutely from the point of diagnosis. #WeEOLC |
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@PhilBallRN
06 October 2015 20:58
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RT @nursingbard: This is so important and often avoided #WeEOLC https://t.co/gqt8Downot |
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@LearnPEOLC
06 October 2015 20:58
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RT @WeLDnurses: So much great evidence being shared tonight by #WeEOLC that could be so easily applied to those with complex physical healt… |
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@AlunAngela
06 October 2015 20:58
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#WeEOLC revisit his thoughts on life sustaining treatments.PEG,CPAP,AB. Offer practical solutions via AHP,s |
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@BridgetJohnst
06 October 2015 20:58
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RT @learnhospice: @WeEOLC we've nearly finished!! Time to reflect & signpost to next chat? @heblau @BridgetJohnst #WeEOLC |
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@DrNeilPender
06 October 2015 20:58
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#WeEOLC One thing I have learnt tonight from this Twitter chat is that my point of view on complex situations rarely fits into 140 chara... |
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@LearnPEOLC
06 October 2015 20:58
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@WeLDnurses #WeEOLC definitely |
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@AgencyNurse
06 October 2015 20:58
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such a brilliant discussion - learnt loads and now have lots to read thank you team #WeEOLC May need to reflect on this via #MyWe - #CPD |
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@SeanSaid_
06 October 2015 20:58
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@WeEOLC There is also his bereavement for a life not yet lived. #Dan #WeEOLC |
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@londonbird23
06 October 2015 20:58
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RT @JoyWharton1: @WeEOLC #weEOLC kicks in if Dan has lost capacity, if he has capacity he can express his current wishes |
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@WeLDnurses
06 October 2015 20:58
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RT @WeEOLC: Please can you tweet ONE THING you've learnt tonight? #WeEOLC https://t.co/EtYVPmdaaU |
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@Dr_Chi_Li
06 October 2015 20:59
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.@WeEOLC Thanks for hosting a GREAT tweet chat! Join #PallANZ chat Thursday Oct 8th “Hidden Lives” Details: http://t.co/pdIB3w2QN0 #WeEOLC |
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@cstephenson523
06 October 2015 20:59
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@londonbird23 @WeEOLC #WeEOLC even if Dan had requested no interventions, I think I would always revisit and give him the options |
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@Dr_Chi_Li
06 October 2015 20:59
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@melja14 @WeEOLC @cstephenson523 Good point. Goal posts often move as people live with and adapt to their illness & approach death #WeEOLC |
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@WeEOLC
06 October 2015 20:59
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Hoping you'll join us at the next chat - Tues 1st December, on "Do Not Resuscitate" Orders #DNACPR #WeEOLC |
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@wendyjpitt61
06 October 2015 20:59
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Collaboration #WeEOLC |
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@BridgetJohnst
06 October 2015 20:59
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RT @DrNeilPender: #WeEOLC One thing I have learnt tonight from this Twitter chat is that my point of view on complex situations rarely fits… |
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@WeNurses
06 October 2015 20:59
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RT @WeEOLC: Please can you tweet ONE THING you've learnt tonight? #WeEOLC https://t.co/EtYVPmdaaU |
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@BridgetJohnst
06 October 2015 20:59
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RT @AgencyNurse: such a brilliant discussion - learnt loads and now have lots to read thank you team #WeEOLC May need to reflect on thi… |
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@WeEOLC
06 October 2015 20:59
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Wow - amazing chat. What is the KEY word for you? #WeEOLC |
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@WeEOLC
06 October 2015 20:59
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RT @wendyjpitt61: Collaboration #WeEOLC |
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@WeMHNurses
06 October 2015 20:59
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@DrNeilPender yes. You are not alone in this! #WeEOLC |
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@WeEOLC
06 October 2015 20:59
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#WeEOLC #EBP RESOURCE NICE guidance - non-invasive ventilation in MND http://t.co/OSw35wah97 |
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@BridgetJohnst
06 October 2015 20:59
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RT @WeEOLC: Hoping you'll join us at the next chat - Tues 1st December, on "Do Not Resuscitate" Orders #DNACPR #WeEOLC |
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@LearnPEOLC
06 October 2015 20:59
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RT @PennyFawthrop: @WeEOLC Importance of the therapeutic relationship in life-limiting conditions. Understanding is key #WeEOLC |
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@WeEOLC
06 October 2015 20:59
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RT @SeanSaid_: @WeEOLC There is also his bereavement for a life not yet lived. #Dan #WeEOLC |
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