#WeNurses - Tuesday 19th September 2017 8pm (GMT Standard Time) Myasthenia Gravis: Understanding and Managing

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Myasthenia is a rare autoimmune neuromuscular condition.  The cause of the autoimmune response is not clear.  The condition can affect any one from 0 to hundred.  The key features of the condition are fatigable muscle weakness of specific muscle groups.  Dr Hilton-Jones describes managing myasthenia as one of the most satisfying conditions as it can be treated.

Although myasthenia responds well to treatment one of the most challenging aspects of myasthenia is the impact of the condition on individuals.  Although some elements of muscle weakness may be readily obvious with eye lid ptosis, an inability to smile or neck weakness some aspects are not readily obvious.  The experience of fluctuating skeletal muscle weakness and fatigue is sometimes met with disbelief as one minute individuals were able to do things such as carry a suitcase and minutes later they are unable to do so.   In other instances, individuals are assumed to be drunk because they are slurring their words.

 

This twitter chat intends to raise awareness about these rare condition addressing difficulties experienced by individuals with myasthenia and those caring for them by

  • Explaining the physiology of myasthenia and defining the different types of myasthenia
  • Raising awareness of the impact of myasthenia on individuals
  • Exploring and explaining treatment strategies
  • Developing understanding regarding the unique and variable impacts of this condition
  • Considering the patient’s perspective

Ultimately enabling healthcare professionals to effectively support individuals with myasthenia and enable them to live well.

    

Key Articles

American Association of NeuroscienceNurses (2013) Care of the patient with myasthenia gravis, ANNN ClinicalPractice Guideline Series. http://www.myasthenia.org/LinkClick.aspx?fileticket=I2Imja5gU4s%3D&tabid=101

Hilton-Jones, D. (2007)  When the patient fails to respond totreatment: myasthenia gravis, Practical Neurology. 7(6), pp.405-11.

http://dx.doi.org/10.1136/jnnp.2007.134130

Hilton-Jones, D. andPalace, J. (2005) The Management of MyastheniaGravis.  Practical Neurology 5(1),pp.18-27.

http://dx.doi.org/10.1111/j.1474-7766.2005.00280x-

Sussman, J.,  Farrugia, M. E.,  Maddison, P., Hill, M., Leite, M.I. and, Hilton-Jones,D. (2015) Myasthenia gravis: Association of British Neurologists’; managementguidelines, Practical Neurology.15(3), pp.199-206.

http://dx.doi.org/10.1136/practicalneurol-2015-001126

Vincent, A., Palace, J. and Hilton-Jones D. (2001) Myasthenia gravis, Lancet

357(9274), pp2122–2128.

DOI: http://dx.doi.org/10.1016/S0140-6736(00)05186-2

   

About our guest host

Mary Quirke - "I am Mary Quirke a nurse with a working in neurosciences for nearly twenty years.  My clinical experience includes neurosurgery and neurology.  My professional passions include patient and staff safety, enhancing patient and staff experience and staff development.  To raise the awareness of neuroscience nursing and support the status of neuroscience nursing as a speciality I am also a Steering Committee member of the RCN Neuroscience forum and a committee member of the British Association of Neuroscience Nurses (BANN)."





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 Chat Summary

 

This chat provided a really good overview and understanding of Myasthenia Gravis.  The summary below shares the questions and the answers provided by those with expertise in the area:


QUESTION 1













QUESTION 2













QUESTION 3










QUESTION 4
















QUESTION 5













Thank you to all who took part in this discussion - in particular Mary Quirke (@quirke2000) who helped develop this discussion and was a brilliant expert in the room. 





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 #WeNurses transcript

 
@The_Pars
19 September 2017 20:00
Hello! From Glasgow #WeNurses https://twitter.com/wenurses/status/910216878785777669
@cherylwilson2
19 September 2017 20:00
RT @WeNurses: Hi everyone - welcome to #WeNurses Please tweet us a hello if you are joining is to talk about "Myasthenia Gravis…
@WeNurses
19 September 2017 20:00
Joining us tonight as our expert in the room is @quirke2000 #WeNurses
@quirke2000
19 September 2017 20:00
Welcome to the RCN Neuroscience Forum MG chat #wenurses
@AgencyNurse
19 September 2017 20:00
Hello Teresa here - checking in and saying hi :D #WeNurses
@Ismalia_S
19 September 2017 20:01
#wenurses hello ismalia here
@quirke2000
19 September 2017 20:01
Hello from Mary Quirke leading the chat#wenurses
@WeNurses
19 September 2017 20:01
Hi Mary - good to have you here #WeNurses https://twitter.com/quirke2000/status/910217049904963585
@AgencyNurse
19 September 2017 20:01
Ooooh i dont know - maybe someone on the chat does ? #WeNurses https://twitter.com/JeanetteBeer1/status/910209656672411648
@HannahSTN
19 September 2017 20:02
@quirke2000 Looking forward to it! #wenurses
@NeuroNurseForum
19 September 2017 20:02
#WeNurses hello from here
@cherylwilson2
19 September 2017 20:02
@WeNurses ???? #wenurses
@Ismalia_S
19 September 2017 20:02
RT @AgencyNurse: Ooooh i dont know - maybe someone on the chat does ? #WeNurses https://twitter.com/JeanetteBeer1/status/910209656672411648
@WeNurses
19 September 2017 20:02
Lets get started with QUESTION 1 What is myasthenia gravis? #WeNurses https://t.co/AUr3w522NH
@NeuroNurseForum
19 September 2017 20:02
RT @WeNurses: Hi Mary - good to have you here #WeNurses https://twitter.com/quirke2000/status/910217049904963585
@cherylwilson2
19 September 2017 20:02
RT @WeNurses: Joining us tonight as our expert in the room is @quirke2000 #WeNurses
@The_Pars
19 September 2017 20:03
I'm here to learn - I don't have any answers yet ?? #WeNurses https://twitter.com/agencynurse/status/910217325168689152
@quirke2000
19 September 2017 20:03
I have posted some questions on MG - do those interest tweeters? #wenurses
@Ismalia_S
19 September 2017 20:03
@HannahSTN @quirke2000 Hello hannah #WeNurses
@cherylwilson2
19 September 2017 20:03
RT @WeNurses: Lets get started with QUESTION 1 What is myasthenia gravis? #WeNurses https://t.co/AUr3w522NH
@quirke2000
19 September 2017 20:03
MG (myasthenia) is a reasonable rare neuromuscular conidtion #wenurses
@Ismalia_S
19 September 2017 20:03
RT @WeNurses: Lets get started with QUESTION 1 What is myasthenia gravis? #WeNurses https://t.co/AUr3w522NH
@AgencyNurse
19 September 2017 20:04
Great overview here from NHS Choices > http://www.nhs.uk/conditions/Myasthenia-gravis/Pages/Introduction.aspx #WeNurses #EBP https://t.co/PlmVc6V0Gj
@AgencyNurse
19 September 2017 20:04
@The_Pars i'm in the learning zone too tonight #WeNurses :D
@NeuroNurseForum
19 September 2017 20:04
RT @WeNurses: Lets get started with QUESTION 1 What is myasthenia gravis? #WeNurses https://t.co/AUr3w522NH
@juliet4200
19 September 2017 20:04
RT @WeNurses: Hi Mary - good to have you here #WeNurses https://twitter.com/quirke2000/status/910217049904963585
@HannahSTN
19 September 2017 20:04
@WeNurses I know that MG is a neuromuscular disease but not much else! #WeNurses
@cherylwilson2
19 September 2017 20:05
@WeNurses A long term condition causes muscle weakness #wenurses
@WeNurses
19 September 2017 20:05
Thanks Mary #WeNurses https://twitter.com/quirke2000/status/910217903286439939
@WeNurses
19 September 2017 20:05
RT @AgencyNurse: Great overview here from NHS Choices > http://www.nhs.uk/conditions/Myasthenia-gravis/Pages/Introduction.aspx #WeNurses #EBP https://t.co/PlmVc6V0Gj
@NeuroNurseForum
19 September 2017 20:05
@crazypapax2 @WeNurses Don't forger your #wenurses hashtag
@cherylwilson2
19 September 2017 20:05
RT @quirke2000: MG (myasthenia) is a reasonable rare neuromuscular conidtion #wenurses
@WeNurses
19 September 2017 20:05
RT @HannahSTN: @WeNurses I know that MG is a neuromuscular disease but not much else! #WeNurses
@WeNurses
19 September 2017 20:05
RT @cherylwilson2: @WeNurses A long term condition causes muscle weakness #wenurses
@NeuroNurseForum
19 September 2017 20:05
#WeNurses https://twitter.com/crazypapax2/status/910218018906673153
@The_Pars
19 September 2017 20:05
RT @AgencyNurse: Great overview here from NHS Choices > http://www.nhs.uk/conditions/Myasthenia-gravis/Pages/Introduction.aspx #WeNurses #EBP https://t.co/PlmVc6V0Gj
@NeuroNurseForum
19 September 2017 20:05
RT @quirke2000: MG (myasthenia) is a reasonable rare neuromuscular conidtion #wenurses
@AgencyNurse
19 September 2017 20:05
@cherylwilson2 @WeNurses have you ever nursed anyone with it Cheryl ? #WeNurses
@cherylwilson2
19 September 2017 20:05
RT @NeuroNurseForum: @crazypapax2 @WeNurses Don't forger your #wenurses hashtag
@juliet4200
19 September 2017 20:06
RT @NeuroNurseForum: We are getting ready for this. Are you? @KingsCollegeLon @myawareUK @quirke2000 @WeNurses #WeNurses https://t.co/Vv5F…
@quirke2000
19 September 2017 20:06
It is an autoimmune condition meaning antibodies in the body cause a problem at the junction between the muscle/nerve junction #wenurses
@Ismalia_S
19 September 2017 20:06
RT @WeNurses: Thanks Mary #WeNurses https://twitter.com/quirke2000/status/910217903286439939
@cherylwilson2
19 September 2017 20:06
@AgencyNurse @WeNurses No have you ? I had a colleague who's family member had MG #wenurses
@NeuroNurseForum
19 September 2017 20:06
RT @HannahSTN: @WeNurses I know that MG is a neuromuscular disease but not much else! #WeNurses
@NeuroNurseForum
19 September 2017 20:06
RT @cherylwilson2: @WeNurses A long term condition causes muscle weakness #wenurses
@AgencyNurse
19 September 2017 20:06
@cherylwilson2 @WeNurses no never ! #WeNurses
@NeuroNurseForum
19 September 2017 20:09
RT @quirke2000: Although relatively rare MG can be close to home #wenurses
@cherylwilson2
19 September 2017 20:09
RT @WeNurses: QUESTION 2 Who does myasthenia gravis affect? #WeNurses https://t.co/AVZhZqups6
@The_Pars
19 September 2017 20:09
Same here - aware of friend / colleague with #MG but never in a nursing capacity #WeNurses https://twitter.com/agencynurse/status/910218674363076609
@NeuroNurseForum
19 September 2017 20:09
RT @WeNurses: QUESTION 2 Who does myasthenia gravis affect? #WeNurses https://t.co/AVZhZqups6
@cherylwilson2
19 September 2017 20:10
@WeNurses Any one of any age ? #wenurses
@AgencyNurse
19 September 2017 20:10
@Ismalia_S @cherylwilson2 @WeNurses always good to learn though as you never know ! #WeNurses
@quirke2000
19 September 2017 20:10
As MG is an autoimmune condition individuals with autoimmune conditions such as diabetes are more likely to be diagnosised #wenurses
@AgencyNurse
19 September 2017 20:10
@LeaBasra @WeNurses have a read down the #WeNurses stream - lots of fab info :D
@Ismalia_S
19 September 2017 20:10
I guess it's because it's a rare condition #WeNurses https://twitter.com/LeaBasra/status/910219243349774339
@HannahSTN
19 September 2017 20:10
@WeNurses The people I've worked with as a CSW who've had it have ranged in age from early 20s up to 80s #wenurses
@quirke2000
19 September 2017 20:11
@cherylwilson2 @WeNurses At any age#wenurses
@WeNurses
19 September 2017 20:11
wow ... so quite a broad spectrum then #wenurses https://twitter.com/quirke2000/status/910219239184850948
@Ismalia_S
19 September 2017 20:11
@AgencyNurse And @myawareUK website also #wenurses
@quirke2000
19 September 2017 20:11
Although those with autoimmune conditions are more prone we do not know why individuals get it #wenurses
@cherylwilson2
19 September 2017 20:11
Goodness me 103 #wenurses ???? https://twitter.com/quirke2000/status/910219239184850948
@LeaBasra
19 September 2017 20:12
@AgencyNurse @WeNurses I will be doing a lot of lerking on tonights chat to learn about this condition #WeNurses
@NeuroNurseForum
19 September 2017 20:12
RT @quirke2000: MG can affect anyone from 0 to 103 - some one recently diagnosised #wenurses
@cherylwilson2
19 September 2017 20:12
RT @WeNurses: wow ... so quite a broad spectrum then #wenurses https://twitter.com/quirke2000/status/910219239184850948
@NeuroNurseForum
19 September 2017 20:12
#wenurses https://t.co/1q0KpCIzv6
@quirke2000
19 September 2017 20:12
Where did you work as a CSW Hannah? #wenurses
@mrsrolfe2
19 September 2017 20:12
@WeNurses Most common in women under 40 or men over 60 but can happen in any age #WeNurses
@NeuroNurseForum
19 September 2017 20:13
RT @HannahSTN: @WeNurses The people I've worked with as a CSW who've had it have ranged in age from early 20s up to 80s #wenurses
@cherylwilson2
19 September 2017 20:13
RT @mrsrolfe2: @WeNurses Most common in women under 40 or men over 60 but can happen in any age #WeNurses
@The_Pars
19 September 2017 20:13
Wow. Definitely new info to me. #WeNurses https://twitter.com/quirke2000/status/910219547826933760
@quirke2000
19 September 2017 20:13
it is becoming more evident whether there is more of it or it is being better diagnosised #wenurses
@Ismalia_S
19 September 2017 20:14
@quirke2000 is diabetes the predominantly risk factor for people with MG? #WeNurses https://twitter.com/quirke2000/status/910219547826933760
@HannahSTN
19 September 2017 20:14
@quirke2000 An acute neurology unit, so although rare it seemed prevalent on there due to the distance people travelled! #wenurses
@cherylwilson2
19 September 2017 20:14
RT @quirke2000: it is becoming more evident whether there is more of it or it is being better diagnosised #wenurses
@NeuroNurseForum
19 September 2017 20:14
RT @Ismalia_S: @AgencyNurse And @myawareUK website also #wenurses
@NeuroNurseForum
19 September 2017 20:14
RT @quirke2000: Although those with autoimmune conditions are more prone we do not know why individuals get it #wenurses
@WeNurses
19 September 2017 20:14
Interesting #wenurses https://twitter.com/quirke2000/status/910220371038785536
@AgencyNurse
19 September 2017 20:14
RT @The_Pars: Wow. Definitely new info to me. #WeNurses https://twitter.com/quirke2000/status/910219547826933760
@WeNurses
19 September 2017 20:14
RT @The_Pars: Wow. Definitely new info to me. #WeNurses https://twitter.com/quirke2000/status/910219547826933760
@NeuroNurseForum
19 September 2017 20:14
RT @LeaBasra: @AgencyNurse @WeNurses I will be doing a lot of lerking on tonights chat to learn about this condition #WeNurses
@WeNurses
19 September 2017 20:15
RT @mrsrolfe2: @WeNurses Most common in women under 40 or men over 60 but can happen in any age #WeNurses
@NeuroNurseForum
19 September 2017 20:15
RT @mrsrolfe2: @WeNurses Most common in women under 40 or men over 60 but can happen in any age #WeNurses
@AgencyNurse
19 September 2017 20:15
@LeaBasra @WeNurses lurkers always welcome :D #WeNurses
@SueWoodward_KCL
19 September 2017 20:15
RT @WeNurses: Lets get started with QUESTION 1 What is myasthenia gravis? #WeNurses https://t.co/AUr3w522NH
@NeuroNurseForum
19 September 2017 20:15
RT @The_Pars: Wow. Definitely new info to me. #WeNurses https://twitter.com/quirke2000/status/910219547826933760
@AgencyNurse
19 September 2017 20:15
RT @Ismalia_S: @AgencyNurse And @myawareUK website also #wenurses
@NeuroNurseForum
19 September 2017 20:15
RT @quirke2000: it is becoming more evident whether there is more of it or it is being better diagnosised #wenurses
@quirke2000
19 September 2017 20:15
no diabetes is not a common risk factor but an example of a autoimmune condition as arthritis or lupus #wenurses
@cherylwilson2
19 September 2017 20:15
RT @WeNurses: Interesting #wenurses https://twitter.com/quirke2000/status/910220371038785536
@WeNursesToo
19 September 2017 20:15
RT @HannahSTN: @WeNurses The people I've worked with as a CSW who've had it have ranged in age from early 20s up to 80s #wenurses
@cherylwilson2
19 September 2017 20:16
RT @quirke2000: no diabetes is not a common risk factor but an example of a autoimmune condition as arthritis or lupus #wenurses
@WeNurses
19 September 2017 20:16
Some more interesting info #wenurses https://twitter.com/quirke2000/status/910219547826933760
@KarenPilson
19 September 2017 20:16
@WeNurses I nursed a patient with myasthenia gravis in 2nd year, I had never heard of it before then - great topic to focus on ?? #WeNurses
@AgencyNurse
19 September 2017 20:16
RT @quirke2000: no diabetes is not a common risk factor but an example of a autoimmune condition as arthritis or lupus #wenurses
@NeuroNurseForum
19 September 2017 20:17
RT @quirke2000: no diabetes is not a common risk factor but an example of a autoimmune condition as arthritis or lupus #wenurses
@quirke2000
19 September 2017 20:17
yes Hannah often the case bread and butter in neurology otherwise rare and that is the problem ensuring the best care #wenurses
@WeNurses
19 September 2017 20:17
Thanks Karen - have you come across anyone with it since ? #WeNurses https://twitter.com/KarenPilson/status/910221082380177415
@SueWoodward_KCL
19 September 2017 20:17
RT @WeNurses: Hi everyone - welcome to #WeNurses Please tweet us a hello if you are joining is to talk about "Myasthenia Gravis…
@SueWoodward_KCL
19 September 2017 20:17
RT @Ismalia_S: @AgencyNurse And @myawareUK website also #wenurses
@SueWoodward_KCL
19 September 2017 20:17
RT @HannahSTN: @WeNurses I know that MG is a neuromuscular disease but not much else! #WeNurses
@SueWoodward_KCL
19 September 2017 20:18
RT @WeNurses: wow ... so quite a broad spectrum then #wenurses https://twitter.com/quirke2000/status/910219239184850948
@SueWoodward_KCL
19 September 2017 20:18
RT @cherylwilson2: @WeNurses A long term condition causes muscle weakness #wenurses
@SueWoodward_KCL
19 September 2017 20:18
RT @WeNurses: Some more great info here #WeNurses https://twitter.com/quirke2000/status/910218490359029760
@SueWoodward_KCL
19 September 2017 20:18
RT @quirke2000: Although relatively rare MG can be close to home #wenurses
@quirke2000
19 September 2017 20:18
Thanks Karen as its presentation is not obvious MG patients symptoms can be discounted #wenurses
@SueWoodward_KCL
19 September 2017 20:18
RT @WeNurses: Joining us tonight as our expert in the room is @quirke2000 #WeNurses
@HannahSTN
19 September 2017 20:18
@quirke2000 May be an interesting topic for my dissertation to focus on perhaps? #wenurses
@SueWoodward_KCL
19 September 2017 20:18
RT @quirke2000: it is becoming more evident whether there is more of it or it is being better diagnosised #wenurses
@cherylwilson2
19 September 2017 20:18
@KarenPilson @WeNurses Did you nurse them because this condition or something else ? #wenurses
@SueWoodward_KCL
19 September 2017 20:18
RT @Ismalia_S: @quirke2000 is diabetes the predominantly risk factor for people with MG? #WeNurses https://twitter.com/quirke2000/status/910219547826933760
@SueWoodward_KCL
19 September 2017 20:18
RT @WeNurses: QUESTION 2 Who does myasthenia gravis affect? #WeNurses https://t.co/AVZhZqups6
@WeNurses
19 September 2017 20:18
Are you ready for QUESTION 3 ? Here it is > How is myasthenia gravis diagnosed? #WeNurses https://t.co/KjaLBHY0eT
@SueWoodward_KCL
19 September 2017 20:18
RT @WeNurses: Hi Mary - good to have you here #WeNurses https://twitter.com/quirke2000/status/910217049904963585
@Ismalia_S
19 September 2017 20:19
@quirke2000 Are there any particular conditions that you see more prevalent in people with MG? #WeNurses
@SueWoodward_KCL
19 September 2017 20:19
RT @NeuroNurseForum: We are getting ready for this. Are you? @KingsCollegeLon @myawareUK @quirke2000 @WeNurses #WeNurses https://t.co/Vv5F…
@quirke2000
19 September 2017 20:19
Where did you meet the patient Karen? #wenurses
@WeNurses
19 September 2017 20:19
#WeNurses #EBP https://twitter.com/AgencyNurse/status/910220702233526275
@NeuroNurseForum
19 September 2017 20:19
RT @quirke2000: Thanks Karen as its presentation is not obvious MG patients symptoms can be discounted #wenurses
@SueWoodward_KCL
19 September 2017 20:19
RT @quirke2000: no diabetes is not a common risk factor but an example of a autoimmune condition as arthritis or lupus #wenurses
@NeuroNurseForum
19 September 2017 20:19
RT @HannahSTN: @quirke2000 May be an interesting topic for my dissertation to focus on perhaps? #wenurses
@cherylwilson2
19 September 2017 20:19
RT @WeNurses: Are you ready for QUESTION 3 ? Here it is > How is myasthenia gravis diagnosed? #WeNurses https://t.co/KjaLBHY0eT
@WeNurses
19 September 2017 20:19
Good question #wenurses https://twitter.com/Ismalia_S/status/910221707151101954
@quirke2000
19 September 2017 20:20
There is no link I am afraid just if you have one autoimmune condition you are likely to have another #wenurses
@NeuroNurseForum
19 September 2017 20:20
@HannahSTN @quirke2000 Good idea!! And @quirke2000 can be a good source of information #WeNurses
@The_Pars
19 September 2017 20:20
Which leads the question regarding gold standard for care? #MG #WeNurses https://twitter.com/quirke2000/status/910221246947872768
@GenCulture
19 September 2017 20:20
RT @The_Pars: Which leads the question regarding gold standard for care? #MG #WeNurses https://twitter.com/quirke2000/status/910221246947872768
@SueWoodward_KCL
19 September 2017 20:20
@wenurses MG causes muscle fatigue that gets worse over the course of the day #WeNurses
@NeuroNurseForum
19 September 2017 20:20
RT @WeNurses: Are you ready for QUESTION 3 ? Here it is > How is myasthenia gravis diagnosed? #WeNurses https://t.co/KjaLBHY0eT
@NeuroNurseForum
19 September 2017 20:21
RT @WeNurses: Good question #wenurses https://t.co/vLUmgRPPeB
@NeuroNurseForum
19 September 2017 20:21
RT @quirke2000: There is no link I am afraid just if you have one autoimmune condition you are likely to have another #wenurses
@quirke2000
19 September 2017 20:21
Diagnosising MG consists of three elements the clinical exam, a blood test and +/-neurophysiological tests #wenurses
@WeNurses
19 September 2017 20:21
Thanks Sue - thats really useful to know #wenurses https://twitter.com/SueWoodward_KCL/status/910222138954657792
@cherylwilson2
19 September 2017 20:21
@WeNurses Bloods MRI #wenurses
@WeNurses
19 September 2017 20:21
RT @quirke2000: Diagnosising MG consists of three elements the clinical exam, a blood test and +/-neurophysiological tests #wenurses
@georgeinsoutham
19 September 2017 20:21
@WeNurses #WeNurses learnt about this as 2nd year st on district ns placement. knew one person with MG. Most hcp un… https://twitter.com/i/web/status/910222425744343046
@Ismalia_S
19 September 2017 20:22
@The_Pars Postcode lottery across the country for so many conditions #WeNurses
@AgencyNurse
19 September 2017 20:22
RT @The_Pars: Which leads the question regarding gold standard for care? #MG #WeNurses https://t.co/3BWsxOIUrv
@NeuroNurseForum
19 September 2017 20:22
RT @SueWoodward_KCL: @wenurses MG causes muscle fatigue that gets worse over the course of the day #WeNurses
@WeNurses
19 September 2017 20:22
RT @georgeinsoutham: @WeNurses #WeNurses learnt about this as 2nd year st on district ns placement. knew one person with MG. Most hcp unlik…
@quirke2000
19 September 2017 20:22
The blood test looks for antibodies to the nerve/muscle junction called acetylcholine antibodies or MUSK #wenurses
@NeuroNurseForum
19 September 2017 20:22
Welcome to our chair @SueWoodward_KCL ?? #WeNurses
@NeuroNurseForum
19 September 2017 20:23
RT @quirke2000: Diagnosising MG consists of three elements the clinical exam, a blood test and +/-neurophysiological tests #wenurses
@The_Pars
19 September 2017 20:23
RT @quirke2000: The blood test looks for antibodies to the nerve/muscle junction called acetylcholine antibodies or MUSK #wenurses
@cherylwilson2
19 September 2017 20:23
RT @quirke2000: The blood test looks for antibodies to the nerve/muscle junction called acetylcholine antibodies or MUSK #wenurses
@WeNurses
19 September 2017 20:23
Thanks Mary - lots of info being shared this evening #WeNurses https://twitter.com/quirke2000/status/910222654069714946
@quirke2000
19 September 2017 20:23
Indeed welcome Sue #wenurses
@Ismalia_S
19 September 2017 20:23
Which blood tests Mary? #WeNurses https://twitter.com/quirke2000/status/910222280453771264
@NeuroNurseForum
19 September 2017 20:24
RT @georgeinsoutham: @WeNurses #WeNurses learnt about this as 2nd year st on district ns placement. knew one person with MG. Most hcp un…
@quirke2000
19 September 2017 20:24
MRI is not used to diagnosis MG but we undertake a CT chest to look for a tumour on the thymus that can be associated with MG #wenurses
@NeuroNurseForum
19 September 2017 20:24
RT @quirke2000: The blood test looks for antibodies to the nerve/muscle junction called acetylcholine antibodies or MUSK #wenurses
@AgencyNurse
19 September 2017 20:25
Can Myasthenia Gravis be cured ... or is it something that people have to live with ? Sounds very debilitating #wenurses
@The_Pars
19 September 2017 20:25
And are there and 'tells' or physical signs or symptoms of #MG #WeNurses ?
@NeuroNurseForum
19 September 2017 20:25
@crazypapax2 #wenurses https://twitter.com/quirke2000/status/910218728767401984
@princessandtoad
19 September 2017 20:26
@WeNurses It affects me #WeNurses #MG welcome to my world
@AgencyNurse
19 September 2017 20:26
@The_Pars googling and tweeting here Greg ... great info here > http://www.nhs.uk/conditions/Myasthenia-gravis/Pages/Introduction.aspx#symptoms #wenurses #ebp https://t.co/oAuXnb9YyF
@NeuroNurseForum
19 September 2017 20:27
RT @The_Pars: And are there and 'tells' or physical signs or symptoms of #MG #WeNurses ?
@WeNurses
19 September 2017 20:27
#wenurses ... ahhhh interesting https://twitter.com/KarenPilson/status/910223680399081472
@The_Pars
19 September 2017 20:27
RT @AgencyNurse: @The_Pars googling and tweeting here Greg ... great info here > http://www.nhs.uk/conditions/Myasthenia-gravis/Pages/Introduction.aspx#symptoms #wenurses #ebp https://t.co/oAuXnb…
@quirke2000
19 September 2017 20:27
yes as Sue stated it is muscle weakness that fatigues on activity and recovers with rest #WeNurses
@HannahSTN
19 September 2017 20:27
RT @quirke2000: Diagnosising MG consists of three elements the clinical exam, a blood test and +/-neurophysiological tests #wenurses
@NeuroNurseForum
19 September 2017 20:28
@AgencyNurse @The_Pars Side note: Just reminded me of the article you posted today about SoMe and healthcare info #WeNurses
@cherylwilson2
19 September 2017 20:28
RT @princessandtoad: @WeNurses It affects me #WeNurses #MG welcome to my world
@MsBlinn
19 September 2017 20:28
@quirke2000 Is thymoma a cause or a result? #WeNurses
@NeuroNurseForum
19 September 2017 20:28
RT @princessandtoad: @WeNurses It affects me #WeNurses #MG welcome to my world
@quirke2000
19 September 2017 20:28
Welcome princess toad #wenurses
@HannahSTN
19 September 2017 20:29
Good to know!! #wenurses https://twitter.com/karenpilson/status/910223680399081472
@paton_catie
19 September 2017 20:29
RT @AgencyNurse: In just under an hours time via #WeNurses https://twitter.com/wenurses/status/910201892168495104
@quirke2000
19 September 2017 20:29
Karen what to you mean about the contrast? #wenurses
@NeuroNurseForum
19 September 2017 20:29
Why is it? @quirke2000 #wenurses https://twitter.com/KarenPilson/status/910223680399081472
@NeuroNurseForum
19 September 2017 20:29
RT @WeNurses: #wenurses ... ahhhh interesting https://twitter.com/KarenPilson/status/910223680399081472
@cherylwilson2
19 September 2017 20:29
RT @quirke2000: Welcome princess toad #wenurses
@princessandtoad
19 September 2017 20:29
@quirke2000 Thank you sorry I’m late was stuck on the M6 #wenurses
@MsBlinn
19 September 2017 20:29
@quirke2000 Is thymoma a cause or a result? #WeNurses (I'll wake up yet!)
@AgencyNurse
19 September 2017 20:29
RT @quirke2000: yes as Sue stated it is muscle weakness that fatigues on activity and recovers with rest #WeNurses
@WeNurses
19 September 2017 20:29
RT @quirke2000: yes as Sue stated it is muscle weakness that fatigues on activity and recovers with rest #WeNurses
@NeuroNurseForum
19 September 2017 20:30
RT @quirke2000: yes as Sue stated it is muscle weakness that fatigues on activity and recovers with rest #WeNurses
@MsBlinn
19 September 2017 20:30
RT @WeNurses: #wenurses ... ahhhh interesting https://twitter.com/KarenPilson/status/910223680399081472
@quirke2000
19 September 2017 20:30
Well thymomas are associated with MG but do not cause it you can have a thymoma and not have MG #wenurses
@The_Pars
19 September 2017 20:30
RT @princessandtoad: @WeNurses It affects me #WeNurses #MG welcome to my world
@WeNurses
19 September 2017 20:30
great question ... perhaps one @quirke2000 can help with ? #wenurses https://twitter.com/MsBlinn/status/910224057156739073
@NeuroNurseForum
19 September 2017 20:30
RT @quirke2000: Well thymomas are associated with MG but do not cause it you can have a thymoma and not have MG #wenurses
@princessandtoad
19 September 2017 20:30
@AgencyNurse @WeNurses I’ve learnt I have to live with and won’t let it dictate my life #wenurses
@RashidaWhiteman
19 September 2017 20:30
RT @princessandtoad: @AgencyNurse @WeNurses I’ve learnt I have to live with and won’t let it dictate my life #wenurses
@AgencyNurse
19 September 2017 20:31
RT @quirke2000: Well thymomas are associated with MG but do not cause it you can have a thymoma and not have MG #wenurses
@cherylwilson2
19 September 2017 20:31
Hello #weLDNs also on #wenurses chat too ???????? https://twitter.com/weldnurses/status/910224523697561600
@NeuroNurseForum
19 September 2017 20:31
No excuses! Joking ?? #WeNurses https://t.co/xBKnUN8rgB
@Ismalia_S
19 September 2017 20:32
Any reason for this relation @quirke2000 ? #WeNurses https://t.co/vvmwKiQqo3
@SueWoodward_KCL
19 September 2017 20:32
RT @WeNurses: great question ... perhaps one @quirke2000 can help with ? #wenurses https://twitter.com/MsBlinn/status/910224057156739073
@AgencyNurse
19 September 2017 20:32
@princessandtoad @WeNurses thats a great approach .. what would be your words of wisdom for nurses re myasthenia gravis ? #wenurses
@SueWoodward_KCL
19 September 2017 20:32
RT @WeNurses: Are you ready for QUESTION 3 ? Here it is > How is myasthenia gravis diagnosed? #WeNurses https://t.co/KjaLBHY0eT
@NeuroNurseForum
19 September 2017 20:32
RT @WeNurses: great question ... perhaps one @quirke2000 can help with ? #wenurses https://twitter.com/MsBlinn/status/910224057156739073
@SueWoodward_KCL
19 September 2017 20:32
RT @princessandtoad: @WeNurses It affects me #WeNurses #MG welcome to my world
@WeNurses
19 September 2017 20:33
RT @Ismalia_S: Any reason for this relation @quirke2000 ? #WeNurses https://twitter.com/quirke2000/status/910224546275500032
@NeuroNurseForum
19 September 2017 20:33
Stories of those with the condition are always a great learning tool #WeNurses https://twitter.com/AgencyNurse/status/910225140595789831
@NeuroNurseForum
19 September 2017 20:33
RT @princessandtoad: @AgencyNurse @WeNurses I’ve learnt I have to live with and won’t let it dictate my life #wenurses
@quirke2000
19 September 2017 20:34
The only link is that the thymus is involved in the development of the immune system and MG is an autoimmune condition #wenurses
@NeuroNurseForum
19 September 2017 20:35
The relation between a thymoma and Myasthenia Gravis #wenurses https://twitter.com/quirke2000/status/910225479575236608
@princessandtoad
19 September 2017 20:35
@SueWoodward_KCL @WeNurses My favourite gadget is my electric toothbrush #simplethings #wenurses
@AgencyNurse
19 September 2017 20:35
Thats worth knowing - thank you #wenurses https://twitter.com/princessandtoad/status/910225468644872193
@quirke2000
19 September 2017 20:36
In terms of gold standard of care Myaware the MG charity is working on this #wenurses
@SueWoodward_KCL
19 September 2017 20:36
RT @princessandtoad: @SueWoodward_KCL @WeNurses My favourite gadget is my electric toothbrush #simplethings #wenurses
@AgencyNurse
19 September 2017 20:36
RT @quirke2000: In terms of gold standard of care Myaware the MG charity is working on this #wenurses
@WeNurses
19 September 2017 20:36
RT @quirke2000: In terms of gold standard of care Myaware the MG charity is working on this #wenurses
@princessandtoad
19 September 2017 20:36
@quirke2000 @AgencyNurse @WeNurses Thank you Mary. #wenurses a lot don’t understand #MG & try to push you before your meds have kicked in.
@princessandtoad
19 September 2017 20:36
@SueWoodward_KCL @WeNurses If only #wenurses
@The_Pars
19 September 2017 20:36
RT @princessandtoad: @quirke2000 @AgencyNurse @WeNurses Thank you Mary. #wenurses a lot don’t understand #MG & try to push you before your…
@SueWoodward_KCL
19 September 2017 20:36
#wenurses MG affects the simplest of activities https://twitter.com/suewoodward_kcl/status/910226109379366918
@quirke2000
19 September 2017 20:37
Yes good advice we encourage patients to look at strategies/gadgets to make life easily and converse their muscle strenght #wenurses
@HannahSTN
19 September 2017 20:37
@princessandtoad @quirke2000 @AgencyNurse @WeNurses Good to know!! Thank you for sharing :) #wenurses
@SueWoodward_KCL
19 September 2017 20:37
RT @WeNurses: Thanks Sue - thats really useful to know #wenurses https://twitter.com/SueWoodward_KCL/status/910222138954657792
@WeNursesToo
19 September 2017 20:37
Here is the link to the MyAware website > https://www.myaware.org/ #WeNurses #ebp https://t.co/qDbI1EEPe1
@princessandtoad
19 September 2017 20:37
@HannahSTN @quirke2000 @AgencyNurse @WeNurses No problem. #WeNurses
@AgencyNurse
19 September 2017 20:37
RT @princessandtoad: @quirke2000 @AgencyNurse @WeNurses Thank you Mary. #wenurses a lot don’t understand #MG & try to push you before your…
@WeNurses
19 September 2017 20:37
RT @princessandtoad: @quirke2000 @AgencyNurse @WeNurses Thank you Mary. #wenurses a lot don’t understand #MG & try to push you before your…
@NeuroNurseForum
19 September 2017 20:37
RT @princessandtoad: @SueWoodward_KCL @WeNurses My favourite gadget is my electric toothbrush #simplethings #wenurses
@SueWoodward_KCL
19 September 2017 20:38
RT @Ismalia_S: Any reason for this relation @quirke2000 ? #WeNurses https://twitter.com/quirke2000/status/910224546275500032
@quirke2000
19 September 2017 20:38
The signs and symptoms of MG may not be obvious - there may be obvious facial weakness/eye closure #wenurses
@AgencyNurse
19 September 2017 20:38
RT @quirke2000: The signs and symptoms of MG may not be obvious - there may be obvious facial weakness/eye closure #wenurses
@WeNurses
19 September 2017 20:38
RT @quirke2000: The signs and symptoms of MG may not be obvious - there may be obvious facial weakness/eye closure #wenurses
@SueWoodward_KCL
19 September 2017 20:38
RT @WeNurses: Thanks Mary - lots of info being shared this evening #WeNurses https://twitter.com/quirke2000/status/910222654069714946
@NeuroNurseForum
19 September 2017 20:38
RT @WeNursesToo: Here is the link to the MyAware website > https://www.myaware.org/ #WeNurses #ebp https://t.co/qDbI1EEPe1
@SueWoodward_KCL
19 September 2017 20:38
RT @georgeinsoutham: @WeNurses #WeNurses learnt about this as 2nd year st on district ns placement. knew one person with MG. Most hcp un…
@WeNurses
19 September 2017 20:38
RT @princessandtoad: @SueWoodward_KCL @WeNurses My favourite gadget is my electric toothbrush #simplethings #wenurses
@quirke2000
19 September 2017 20:38
Its important to listen to the patient #wenurses
@NeuroNurseForum
19 September 2017 20:38
RT @SueWoodward_KCL: #wenurses MG affects the simplest of activities https://twitter.com/suewoodward_kcl/status/910226109379366918
@NeuroNurseForum
19 September 2017 20:38
RT @princessandtoad: @quirke2000 @AgencyNurse @WeNurses Thank you Mary. #wenurses a lot don’t understand #MG & try to push you before your…
@NeuroNurseForum
19 September 2017 20:39
RT @quirke2000: In terms of gold standard of care Myaware the MG charity is working on this #wenurses
@quirke2000
19 September 2017 20:39
Thanks for adding in the link great resource #wenurses
@SueWoodward_KCL
19 September 2017 20:39
@WeNurses #wenurses MG also affects communication - smiling difficult and people perceived as miserable erroneously
@NeuroNurseForum
19 September 2017 20:39
RT @quirke2000: The signs and symptoms of MG may not be obvious - there may be obvious facial weakness/eye closure #wenurses
@princessandtoad
19 September 2017 20:39
@WeNursesToo This is a great website and they are a great support with all #wenurses #mg they are a great team @myawareUK
@SueWoodward_KCL
19 September 2017 20:40
RT @princessandtoad: @WeNursesToo This is a great website and they are a great support with all #wenurses #mg they are a great team @myawar…
@WeNurses
19 September 2017 20:40
QUESTION 4 How is myasthenia gravis treated? #wenurses https://t.co/i2JiJK2bWg
@NeuroNurseForum
19 September 2017 20:40
RT @SueWoodward_KCL: @WeNurses #wenurses MG also affects communication - smiling difficult and people perceived as miserable erroneously
@SueWoodward_KCL
19 September 2017 20:40
RT @quirke2000: The signs and symptoms of MG may not be obvious - there may be obvious facial weakness/eye closure #wenurses
@SueWoodward_KCL
19 September 2017 20:40
RT @WeNursesToo: Here is the link to the MyAware website > https://www.myaware.org/ #WeNurses #ebp https://t.co/qDbI1EEPe1
@SueWoodward_KCL
19 September 2017 20:40
RT @HannahSTN: @princessandtoad @quirke2000 @AgencyNurse @WeNurses Good to know!! Thank you for sharing :) #wenurses
@The_Pars
19 September 2017 20:40
RT @princessandtoad: @WeNursesToo This is a great website and they are a great support with all #wenurses #mg they are a great team @myawar…
@NeuroNurseForum
19 September 2017 20:40
Everytime in any condition #WeNurses https://twitter.com/quirke2000/status/910226642001203201
@princessandtoad
19 September 2017 20:40
@SueWoodward_KCL @WeNurses I get this one a lot of why don’t you smile so I have to explain #MG #wenurses
@SueWoodward_KCL
19 September 2017 20:40
RT @WeNurses: QUESTION 4 How is myasthenia gravis treated? #wenurses https://t.co/i2JiJK2bWg
@quirke2000
19 September 2017 20:40
As MG affects speech individuals slur their words and can be thought as drunk #wenurses
@NeuroNurseForum
19 September 2017 20:40
RT @princessandtoad: @WeNursesToo This is a great website and they are a great support with all #wenurses #mg they are a great team @myawar…
@WeNurses
19 September 2017 20:40
This is quite important to realise #wenurses https://twitter.com/SueWoodward_KCL/status/910226823895764992
@WeNurses
19 September 2017 20:43
#wenurses https://twitter.com/KarenPilson/status/910227566639894529
@AgencyNurse
19 September 2017 20:43
RT @WeNurses: QUESTION 4 How is myasthenia gravis treated? #wenurses https://t.co/i2JiJK2bWg
@quirke2000
19 September 2017 20:43
Yes MG can progress - individuals can present with ocular/eye symptoms and then generalise to proximal muscle groups #wenurses
@The_Pars
19 September 2017 20:43
Which can be a dangerous conclusion to jump to ... #MG #WeNurses https://twitter.com/quirke2000/status/910227181128814592
@SueWoodward_KCL
19 September 2017 20:44
RT @NeuroNurseForum: Tell us about the treatment duration and possible side effects #WeNurses https://twitter.com/quirke2000/status/910227386922422273
@AgencyNurse
19 September 2017 20:44
RT @The_Pars: Which can be a dangerous conclusion to jump to ... #MG #WeNurses https://twitter.com/quirke2000/status/910227181128814592
@quirke2000
19 September 2017 20:45
Mestinon is great but as it improves the nerve/muscle transmission/ muscle contraction individuals can experience bowel symptoms #wenurses
@Ismalia_S
19 September 2017 20:46
How about long-term and prognosis? #WeNurses https://twitter.com/quirke2000/status/910227949860921345
@AgencyNurse
19 September 2017 20:47
@princessandtoad yes i can see that ... hard for all to experience. Is the support out there for people and families to access ? #wenurses
@MsBlinn
19 September 2017 20:47
@Ismalia_S @quirke2000 Yes, is it a progressive condition whether using meds or not? #WeNurses
@WeNurses
19 September 2017 20:48
some good news #wenurses https://twitter.com/quirke2000/status/910228907886080001
@NeuroNurseForum
19 September 2017 20:48
RT @quirke2000: yes the family need support it can affect everyone #wenurses
@The_Pars
19 September 2017 20:49
RT @quirke2000: Essentially the good thing about MG is that it is treatable and can be managed #wenurses
@SueWoodward_KCL
19 September 2017 20:51
Thanks @quirke2000 #WeNurses https://twitter.com/quirke2000/status/910229606174806016
@quirke2000
19 September 2017 20:51
Yes going back to treatment to treat the cause relatively quickly we use steroids to dampen down the antibodies #wenurses
@WeNurses
19 September 2017 20:52
RT @quirke2000: Yes going back to treatment to treat the cause relatively quickly we use steroids to dampen down the antibodies #wenurses
@Ismalia_S
19 September 2017 20:52
@SueWoodward_KCL @quirke2000 I'm interested in knowing the answer for this one also #WeNurses
@NeuroNurseForum
19 September 2017 20:52
RT @princessandtoad: @AgencyNurse There is @myawareUK who will support family #wenurses
@NeuroNurseForum
19 September 2017 20:52
RT @WeNurses: QUESTION 5 How can nurses effectively care for individuals with myasthenia gravis and the wider support network? #wenurses…
@quirke2000
19 September 2017 20:53
If individuals are in crisis/need a boost whilst steroids work with use treatments to manage antibodies - IVIG or Plasma exchange#wenurses
@The_Pars
19 September 2017 20:53
And are there specific research priorities and any public health considerations relevant to #MG ? #WeNurses https://twitter.com/wenurses/status/910229276166942722
@WeNurses
19 September 2017 20:53
RT @The_Pars: And are there specific research priorities and any public health considerations relevant to #MG ? #WeNurses https://t.co/cnx…
@MsBlinn
19 September 2017 20:53
@SueWoodward_KCL @princessandtoad @quirke2000 Yes, are higher IvIG levels worse? #WeNurses
@SueWoodward_KCL
19 September 2017 20:53
RT @princessandtoad: @quirke2000 @MsBlinn And I admit I still push myself to do more #wenurses
@quirke2000
19 September 2017 20:54
IVIG is a blood product made up of antibodies from donors and this infusion is used to mop up the antibodies causing the MG #wenurses
@NeuroNurseForum
19 September 2017 20:54
RT @SueWoodward_KCL: @princessandtoad @MsBlinn @quirke2000 Does everyone know what IVIG stands for? Intravenous immunoglobulin #WeNurses Ca…
@quirke2000
19 September 2017 20:55
there is a lot of research going on - particularly looking at the cause a real priority though is growing instance in the elderly #wenurses
@NeuroNurseForum
19 September 2017 20:55
RT @quirke2000: Yes going back to treatment to treat the cause relatively quickly we use steroids to dampen down the antibodies #wenurses
@SueWoodward_KCL
19 September 2017 20:55
@The_Pars Need more public awareness definitely @The_Pars Did you see the bus stop poster campaign last year or maybe year before? #WeNurses
@AgencyNurse
19 September 2017 20:55
wow ... any hunches as to why ? #wenurses https://t.co/FpU7cmLlDe
@HannahSTN
19 September 2017 20:55
Very interesting - I've heard of IVIG but never really thought about what it actually is #wenurses https://t.co/pG9mLaZmRp
@NeuroNurseForum
19 September 2017 20:55
RT @The_Pars: And are there specific research priorities and any public health considerations relevant to #MG ? #WeNurses https://t.co/cnx…
@AgencyNurse
19 September 2017 20:55
RT @HannahSTN: Very interesting - I've heard of IVIG but never really thought about what it actually is #wenurses https://t.co/pG9mLaZmRp
@WeNurses
19 September 2017 20:55
RT @HannahSTN: Very interesting - I've heard of IVIG but never really thought about what it actually is #wenurses https://t.co/pG9mLaZmRp
@SueWoodward_KCL
19 September 2017 20:56
RT @HannahSTN: Very interesting - I've heard of IVIG but never really thought about what it actually is #wenurses https://t.co/pG9mLaZmRp
@MsBlinn
19 September 2017 20:56
@WeNurses Look, listen, learn to make services that provide good care and support #WeNurses
@SueWoodward_KCL
19 September 2017 20:56
RT @MsBlinn: @SueWoodward_KCL @princessandtoad @quirke2000 Yes, are higher IvIG levels worse? #WeNurses
@SueWoodward_KCL
19 September 2017 20:56
RT @The_Pars: And are there specific research priorities and any public health considerations relevant to #MG ? #WeNurses https://t.co/cnx…
@SueWoodward_KCL
19 September 2017 20:56
RT @Ismalia_S: @SueWoodward_KCL @quirke2000 I'm interested in knowing the answer for this one also #WeNurses
@WeNurses
19 September 2017 20:57
3 mins left to tonights #wenurses Any final thoughts / points re myasthenia gravis ?? https://t.co/mMxDdimAVw
@quirke2000
19 September 2017 20:57
It is useful while the key treatment steriods work #wenurses
@WeNurses
19 September 2017 20:57
RT @MsBlinn: @WeNurses Look, listen, learn to make services that provide good care and support #WeNurses
@MsBlinn
19 September 2017 20:57
@quirke2000 @SueWoodward_KCL @princessandtoad Yes #WeNurses
@princessandtoad
19 September 2017 20:57
@quirke2000 That’s how I explain it. But it’s only a short term fix for me. I have it every 10-12 weeks #wenurses #mg
@SueWoodward_KCL
19 September 2017 20:57
@quirke2000 have we talked about when thymectomy might be indicated? What's the latest research here? #WeNurses
@SueWoodward_KCL
19 September 2017 20:58
RT @princessandtoad: @quirke2000 That’s how I explain it. But it’s only a short term fix for me. I have it every 10-12 weeks #wenurses #mg
@quirke2000
19 September 2017 20:58
Remember the patient will know their MG #wenurses
@Ismalia_S
19 September 2017 20:58
I guess with the development of genomics there will be a lot more coming out about MG #wenurses https://twitter.com/quirke2000/status/910230805116522497
@SueWoodward_KCL
19 September 2017 20:58
RT @quirke2000: Remember the patient will know their MG #wenurses
@HannahSTN
19 September 2017 20:58
I feel like I have learnt quite a lot within the hour, which I can build on, and perhaps look at possible dissertation topics! #wenurses
@SueWoodward_KCL
19 September 2017 20:58
RT @Ismalia_S: I guess with the development of genomics there will be a lot more coming out about MG #wenurses https://t.co/1yAcSsBjwy
@cherylwilson2
19 September 2017 20:59
RT @SueWoodward_KCL: @princessandtoad @MsBlinn @quirke2000 Does everyone know what IVIG stands for? Intravenous immunoglobulin #WeNurses…
@SueWoodward_KCL
19 September 2017 20:59
@quirke2000 Couldn't agree more #ExpertPatient and we need to listen to them #wenurses
@NeuroNurseForum
19 September 2017 20:59
RT @WeNurses: 3 mins left to tonights #wenurses Any final thoughts / points re myasthenia gravis ?? https://t.co/mMxDdimAVw
@quirke2000
19 September 2017 20:59
Indeed that will be the way forward but no genetic link identified currently apart form the autoimmune link #wenurses
@NeuroNurseForum
19 September 2017 20:59
RT @MsBlinn: @WeNurses Look, listen, learn to make services that provide good care and support #WeNurses
@cherylwilson2
19 September 2017 20:59
RT @WeNurses: 3 mins left to tonights #wenurses Any final thoughts / points re myasthenia gravis ?? https://t.co/mMxDdimAVw
@The_Pars
19 September 2017 20:59
I've Never seen any public Heath campaigns - hence the question. Will google after this session #WeNurses #MG https://twitter.com/suewoodward_kcl/status/910230850918338561




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