#WeLDNs - Tuesday 18th September 2018 8:30pm (GMT Standard Time) NHS 10 Year Plan - Learning Disability and Autism

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This chat is guest hosted by @AWebster67 @jtrevmhn

Developing the long term plan for the NHS

The NHS has just celebrated its 70th birthday.

A lot has changed since it was created in 1948, and as a result the NHS is responding to changes in society that were never expected, let alone planned for, when it was established 70 years ago.

With the recent Government announcement of additional funding for the NHS we are able to plan for the next five years confident of guaranteed budget increases.

The NHS is now working on a plan setting out our ambitions for improvement over the next decade, and our plans to meet them over the five years of the funding settlement.  

Learning Disability and Autism are one of the key priorities set out in the ten year plan and we are looking for your help in developing this priority. Other areas within the ten year plan, such as improving cancer services and mental health services apply equally to people with a learning disability and / or autism, we encourage you to be thinking about these areas too, and you can use the online form available here to share you views.

We are meeting with lots of different people, gathering views, to help write the plan . As part of that process it is vital that all those who rely on and work in or alongside the NHS have the opportunity to contribute their ideas, experiences and insights.

The plan needs to be written as anadvanced draft by the end of September 2018, so we don’t have long.

You can find a discussion guide online by clicking here.

Some of the areas we will want to explore on the chat will include the following:

  1. What are the most important changes the NHS can make for people with autistic spectrum condition?
  2. What are the most important changes the NHS can make for people with a learning disability?
  3. What are the most important things that must happen for Children, and young people with a learning disability, autism or both and their families in the NHS?
  4. How should we decide on our priorities?
  5. Thinking about the current Transforming Care Programme and progress, what should we keep, change, increase or stop doing?





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 Chat Summary

 

Thirty years elapsed between the first UK wide policy strategy relating to people with learning disabilities and Valuing People in 2001, in this time we saw the a major shift from medicalised, institutional care to a greater focus on community living, where O’Brien’s service accomplishments (1992) characterised contemporary life for people with learning disabilities. Almost twenty years on from Valuing People, it is an appropriate time to reflect on what has changed, and what should change moving into the 2020’s?

This conversation has been prompted by NHS England’s focus on people with learning disabilities and/or autism as one of their four Clinical issues– others being Mental health,Cardio-Respiratory and Cancer for a ten year plan. It comes at a time when the three main current programmes – LeDeR, Improving Health and Lives / Public Health Observatory, Transforming Care – are due to close or complete in their current guises. As such this is an apposite to be involving and engaging everyone in considering what ought to happen next, to establish a vision for quality that can be shared across England and beyond.

The wide ranging consultation is not limited to people with learning disabilities and the other three areas for clinical focus, but also cross into life stages and improvement enablers, including workforce, digital care and research. Details for this can be found here


Polls 

Poll 1 indicated that while the majority self-identified as having a primarily professional interest in the chat, there was a group of family carers and people with autism. No-one identified as having a learning disability. WeLDNurses acknowledges the latter issue, and has grappled with this for sometime, we noted that there were those that had suggestions and ideas as to how work on this, we will be following these up. While we do not have comparative data we can say with a degree of certainty that new family carers and organisations joined the conversation last night based on the increase in followers. It was also observed that at least 10% of respondents would have ticked two boxes were that options available, as several self-identified‘professionals’ were also family carers, and or autistic.



While the ten year plan is primarily limited to England, Twitter is not bound by geography in this way, as such to understand that 73% of the respondent’s advised they reside in England was helpful. However, the transcript does not discriminate between those contributing from outside England and nor would we want to exclude their voices in this conversation, however conversations have been themed in the below blog, with specific contributions added as evidence.

Emerging from the chat were several themes that link to particular stakeholder groups, some that were pertinent to combinations of groups and one or two that were universal. This links with Poll 1 and the observation that many have more than one interest in this chat.

Language and World View 

A running question throughout the chat drew on our knowledge and appreciation of learning disability and autism in the broadest possible sense, a human view point, participants questioned whether use of language – Autistic Spectrum Condition/Disorder indicated a medical perspective that was not only unhelpful, but erroneous. This re-emerged later in the discussions as to whether the National Health Service - an organisation that primarily responds to people with physical and mental ill health – was the most appropriate to respond to issues that are not necessarily the domain of pathology and rehabilitation, while another suggestion was to make a direct link between the Transforming Care Programme and NHS England’s Personalised Care programme.

Aligned to this was a conversation about the notion of a universal solution, where specialist knowledge a skills would not be required. An example of the challenges, and frustrations of having a specialist tools could be elicited from the example of Richard Handley, who had a Healthcare Passport, but this was not to have a positive influence on his care and eventual; death.

Access & Adjustments in the mainstream

Many comments were made both by families and people with learning disabilities and autism, that their experience of using healthcare services was one of fear, anxiety and agitation. In particular high intensity, or low intensity and low predictability environments, Accident and Emergency and outpatients were picked out as places that caused the most concern, as they tended to be the front end of a pathway of care, but were not always attuned and attentive to attain enough information with which to work, which could cause delays in diagnosis.

Leverage and Legislation 

While most campaign documents, policy and evidence indicate the UK has enough legislation to uphold the rights of people with learning disabilities and/or autism, the question was rightly posed how we ensure that these frameworks are employed effectively and in the spirit of the law.

There was mention of the upcoming publication of the NHS Benchmarking’ s work which will ensure all NHS Trusts have an allocated Board member responsible for their organisations self-assessment against NHS Improvement’s Learning Disability Standards which will have learnt lessons from the previous regulators self-assessment standards.

Linked to this was participants role with influencing politicians and getting involved in local politics as a leverage and sustaining awareness.

Children and young people

Several parents and families talked of the issues and challenges of having their young people assessed appropriately, and within sufficient time; by way of an example one contributor identified a two year timescale for autism assessment from their local Children and Adolescent Mental Health Services. This was further compounded by the various concerns about the care and support that newly diagnosed children and their families can expect, there was clear recommendations for more opportunities for peer support and family advocacy being available.

Services and working together

Many parents and family carers articulated the challenges they faced in knowing what to expect from particular organisations and how they might work with other services that have a similar interest in the person and their care. Postural care was cited as an issue that was significantly dependent on several professionals representing different organisations working together, with the risks to individuals increasing without coordinating leadership.

Workforce, Education and Training

Much has been discussed about training the mainstream workforce in the previous months. The LeDeR Annual Report published some disappointingly familiar recommendations. Support for education and training among mainstream healthcare professionals has been spearheaded by parent carer and activist Paula McGowan, who’s autistic son Oliver died partly as a result of adjustments not being made for his autism. Education for mainstream healthcare professionals was previously required by the regulator, and clarity will be required as to how this education might be designed, implemented and evaluated and monitored.

Discussion relating to an evaluative publication of reasonable adjustments education targeted at mainstream professionals indicates that co-creating the package with local experts by experience, applying creative and experiential methods to engage professionals to be prepared to make adjustments is important.

Several participants indicated that the current workforce may well have transferable skills to manage the individual clinical issues, however there were concerns relating to the volume,and the current workforce in training. Consideration was also made to hybrid roles, like GP with Special Interest and Nurses with particular specialisms,with sufficient teaching skills.

Within this period of consultation,it will be vital to be planning new methods for enabling locally based person centred evaluation tools that enable comparison and contrast with other groups of patients in mainstream healthcare services, while also having a greater sensitivity to different groups enabling mainstream organisations to identify issues and respond to them.





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 #WeLDNs transcript

 
@WeLDnurses
18 September 2018 20:30
Evening all. Welcome to tonight's important chat on the #10yearplan for learning disabilities and autism with @AWebster67 & @jtrevmhn. Please say hello to let us know you are joining in tonight. #weldns
@IanUnitt
18 September 2018 20:30
@WeLDnurses @AWebster67 @jtrevmhn Good evening all #WeLDNs
@WeLDnurses
18 September 2018 20:31
We've got some important questions this evening to help shape the plan. If you want your message to be heard, make sure you use #weldns in your tweets
@paularich1977
18 September 2018 20:31
Evening all! #WeLDNs
@Louise90999815
18 September 2018 20:31
@WeLDnurses @AWebster67 @jtrevmhn Louise from Newcastle #WeLDNs ??
@florenceella
18 September 2018 20:31
@WeLDnurses @AWebster67 @jtrevmhn Good evening all! Flo here, tonight waving from Stroud ???? #WeLDNs
@jtrevmhn
18 September 2018 20:31
Hi all, thanks for joining #weLDns
@WeLDnurses
18 September 2018 20:32
If you have some important evidence to contribute, a link or reference, please use #weldns and #ebp for extra prominence! Evidence is not restricted to academic papers, it can be blogs or other published material.
@AWebster67
18 September 2018 20:32
@WeLDnurses @jtrevmhn Good evening #WeLDNs ??
@dmarsden49
18 September 2018 20:32
@WeLDnurses @AWebster67 @jtrevmhn Hi all! Got a cuppa just in time #weldns https://t.co/1aoM7s4pqj
@WeLDnurses
18 September 2018 20:32
@Louise90999815 @AWebster67 @jtrevmhn Welcome! #weldns
@JamesRNLD
18 September 2018 20:32
@WeLDnurses @AWebster67 @jtrevmhn Hi all - James from Plymouth, chatting whilst watching #GBBO #WeLDNs
@dmarsden49
18 September 2018 20:32
RT @WeLDnurses: If you have some important evidence to contribute, a link or reference, please use #weldns and #ebp for extra prominence! E…
@SueBprof1
18 September 2018 20:32
@WeLDnurses @AWebster67 @jtrevmhn #weldns good evening!
@salsa442
18 September 2018 20:32
Hi all. Sal #lurking tonight from a theatre in Leicester #Cats #openingnight #WeLDNs
@WeLDnurses
18 September 2018 20:33
Due to the importance of tonight's chat, we are expecting many new tweeters & #weldns chatters. Look after yourself and others & we actively encourage those that want to watch whats going on #lovealurker #everyoneiswelcome
@WeLDnurses
18 September 2018 20:33
@AWebster67 @jtrevmhn Evening Anne! #weldns
@WeLDnurses
18 September 2018 20:33
@jtrevmhn Hey, John! #weldns
@IPenfold
18 September 2018 20:33
@WeLDnurses @AWebster67 @jtrevmhn #WeLDNs Hi everyone thank you for organising :-)
@ross_6479_RNLD
18 September 2018 20:33
RT @WeLDnurses: Due to the importance of tonight's chat, we are expecting many new tweeters & #weldns chatters. Look after yourself and oth…
@ross_6479_RNLD
18 September 2018 20:33
RT @WeLDnurses: If you have some important evidence to contribute, a link or reference, please use #weldns and #ebp for extra prominence! E…
@WeLDnurses
18 September 2018 20:34
We will be using some polls tonight, to find out a little more about who is engaging in tonight's #weldns chat.
@DanBeale1
18 September 2018 20:34
RT @jtrevmhn: Hi all, thanks for joining #weLDns
@DanBeale1
18 September 2018 20:34
RT @paularich1977: Evening all! #WeLDNs
@WeLDnurses
18 September 2018 20:34
@salsa442 We love a lurker! #weldns
@paularich1977
18 September 2018 20:34
RT @WeLDnurses: If you have some important evidence to contribute, a link or reference, please use #weldns and #ebp for extra prominence! E…
@WeLDnurses
18 September 2018 20:34
@SueBprof1 @AWebster67 @jtrevmhn Evening Sue! #weldns
@ross_6479_RNLD
18 September 2018 20:34
@WeLDnurses @AWebster67 @jtrevmhn Evening all, Ross here #Waves from up north #WeLDNs
@bayliss_j94
18 September 2018 20:34
Hello! @WeLDnurses @AWebster67 @jtrevmhn I’m Jane, I’m a Young Carer to my older sister with #autism #learningdifficulties #ocd #anxiety can’t wait to share views from the #youngcarer perspective of things #WeLDNs https://twitter.com/weldnurses/status/1042133656968605697
@WeLDnurses
18 September 2018 20:34
@JamesRNLD @AWebster67 @jtrevmhn Hi James, thanks for joining us #weldns
@florenceella
18 September 2018 20:34
@dmarsden49 @WeLDnurses @AWebster67 @jtrevmhn I’ve got fudge from Lyme Regis! #winning #WeLDNs
@dmarsden49
18 September 2018 20:34
RT @WeLDnurses: We will be using some polls tonight, to find out a little more about who is engaging in tonight's #weldns chat.
@WeLDnurses
18 September 2018 20:35
@IPenfold @AWebster67 @jtrevmhn Ian, thanks for joining the chat tonight! #weldns
@florenceella
18 September 2018 20:35
RT @WeLDnurses: Due to the importance of tonight's chat, we are expecting many new tweeters & #weldns chatters. Look after yourself and oth…
@GarryBowers
18 September 2018 20:35
RT @WeLDnurses: Due to the importance of tonight's chat, we are expecting many new tweeters & #weldns chatters. Look after yourself and oth…
@MichaelFullert3
18 September 2018 20:35
#WeLDNs Hi, Michael here as a clinician in a provider org and @PMLDlink
@WeLDnurses
18 September 2018 20:36
#WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@paularich1977
18 September 2018 20:36
RT @WeLDnurses: We will be using some polls tonight, to find out a little more about who is engaging in tonight's #weldns chat.
@WeLDnurses
18 September 2018 20:36
@bayliss_j94 @AWebster67 @jtrevmhn Perfect, thanks for attending, Jane, hope you find it useful #weldns
@florenceella
18 September 2018 20:36
We do indeed love a lurker! #WeLDNs https://twitter.com/WeLDnurses/status/1042134412119498752
@dmarsden49
18 September 2018 20:36
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@ross_6479_RNLD
18 September 2018 20:36
RT @WeLDnurses: We will be using some polls tonight, to find out a little more about who is engaging in tonight's #weldns chat.
@ross_6479_RNLD
18 September 2018 20:36
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@IanUnitt
18 September 2018 20:37
@WeLDnurses @bayliss_j94 @AWebster67 @jtrevmhn Make services more person-centred, increase the number of liaison nurses in clinical settings and ensure that any reasonable adjustments made are tailored rather than being token gestures. Quality autism training for all HCPs is also a must. #WeLDNs
@bayliss_j94
18 September 2018 20:37
@AWebster67 @WeLDnurses @jtrevmhn Thankyou! Can’t wait to join in and see others perspective on things- in terms of my sister I find learning disability’s are really hard in terms of managing other healthcare needs!! #WeLDNs
@carterjenny16
18 September 2018 20:37
@WeLDnurses Listen and speak to us don’t assume our behaviour is associated with being mentally ill #WeLDNs
@florenceella
18 September 2018 20:37
@bayliss_j94 @WeLDnurses @AWebster67 @jtrevmhn Looking forward to hearing your views! Thanks for joining us :) #WeLDNs
@paularich1977
18 September 2018 20:37
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@1985Deanne
18 September 2018 20:37
@WeLDnurses @AWebster67 @jtrevmhn Hi Deanne #mum to Amber #interested in improving things for all our children #WeLDNs
@paularich1977
18 September 2018 20:38
RT @carterjenny16: @WeLDnurses Listen and speak to us don’t assume our behaviour is associated with being mentally ill #WeLDNs
@dmarsden49
18 September 2018 20:38
@WeLDnurses In the first instance, having enough resource to be able to identify the condition as early as possible. #weldns #closetomyheart
@MichaelFullert3
18 September 2018 20:38
#WeLDNs often pple with autism need carefully planned desensitisation plans to feel less stressed with clinical contact or environments - less clinical holding @WeLDnurses
@bayliss_j94
18 September 2018 20:38
@IanUnitt @WeLDnurses @AWebster67 @jtrevmhn 100% all HCPs should be #learningdisability trained to make it a more supportive and understanding and consequently safer environment for people with LD’s #WeLDNs
@1985Deanne
18 September 2018 20:38
RT @carterjenny16: @WeLDnurses Listen and speak to us don’t assume our behaviour is associated with being mentally ill #WeLDNs
@JamesRNLD
18 September 2018 20:38
@WeLDnurses It would be great to see universal standards - anyone going in to any service would expect the same support, accessible information, use the same passport - rather than needing to look for different support in different places #WeLDNs
@CommunityLd
18 September 2018 20:38
@WeLDnurses Give them access to a specialist workforce rather than fitting into existing service provision e.g. If also have LD then send to LD service or higher functioning into MH or fall through service gaps #weldns
@carterjenny16
18 September 2018 20:39
@WeLDnurses Let us be ourselves with gifts and talants #WeLDNs
@LeanneHPatrick
18 September 2018 20:39
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@PBSN_Surrey
18 September 2018 20:39
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@AWebster67
18 September 2018 20:39
@IanUnitt @WeLDnurses @bayliss_j94 @jtrevmhn Can you say a bit more about the liaison services and how you see them? #weldns
@JohnBaker_Leeds
18 September 2018 20:39
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@1985Deanne
18 September 2018 20:39
@WeLDnurses Move to #totalcommunication methods so everyone can communicate needs. Listen to the person themselves, family and carers #WeLDNs
@WeLDnurses
18 September 2018 20:40
@1985Deanne @AWebster67 @jtrevmhn Evening Deanne, thanks for joining us. Did you catch the first question? #weldns
@CommunityLd
18 September 2018 20:40
@WeLDnurses When I say 'them' I mean 'us' #weldns
@WeLDnurses
18 September 2018 20:40
RT @MichaelFullert3: #WeLDNs often pple with autism need carefully planned desensitisation plans to feel less stressed with clinical contac…
@JamesRNLD
18 September 2018 20:41
@CommunityLd @WeLDnurses Absolutely agree on specialist workforce - bit shouldn't they enable existing service provision to meet all needs, rather than seeing everyone themselves? #WeLDNs
@GeorgeJulian
18 September 2018 20:41
@WeLDnurses Sorry am late *waves hello* I’m not autistic but lots of ppl I know wld prefer to be called autistic not people with a ‘condition’ So I guess focusing on the person not the diagnosis would be my big one thing #Weldns #DeathByIndifference
@florenceella
18 September 2018 20:41
@JamesRNLD @WeLDnurses I agree! Universal standards could provide a unified approach so all health professionals are on the same page. #WeLDNs
@paularich1977
18 September 2018 20:41
@WeLDnurses an understanding that although a person is given the label of having autism, that it is a huge spectrum and what works for one person with autism works for them and may not be the same for another, a need to make person centred reasonable adjustments when needed #WeLDNs
@SueBprof1
18 September 2018 20:41
@WeLDnurses Ensure the workforce know about #autism and reasonable adjustments.The Autism Act and statuatory guidance are not checked in terms of compliance, if they were there may be better quality in service provision #weldns
@PBSN_Surrey
18 September 2018 20:41
@WeLDnurses @AWebster67 @jtrevmhn #WeLDNs #10yearplan Hello!
@dmarsden49
18 September 2018 20:41
@CommunityLd @WeLDnurses Do you think #RNLD's have a part to play here? #weldns
@LeanneHPatrick
18 September 2018 20:41
@WeLDnurses A basic level of education for all healthcare staff in learning disabilities. We're required to undertake online learning for a variety of things, this should be one of them. Too many staff feel they lack confidence in this area. #WeLDNs
@MichaelFullert3
18 September 2018 20:41
#WeLDNs people with autism with no learning disability still often experience being 'bounced' between mental health and ld services if they need additional support, need agencies to take responsibility - not wrangle over funding
@WeStudentNurse
18 September 2018 20:42
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@1985Deanne
18 September 2018 20:42
@GeorgeJulian @WeLDnurses Couldn't agree more with this and therefore focus on all health needs not just the #LD or #autism #that dosent kill people... #WeLDNs
@CommunityLd
18 September 2018 20:42
@dmarsden49 @WeLDnurses Yes totally! I think we are the profession that have the greatest skill set as we look at functioning across all domains which impacts on autistic people #weldns
@WeLDnurses
18 September 2018 20:42
@carterjenny16 Are there any adjustments that the NHS might want/need to think about, Jenny? #weldns
@florenceella
18 September 2018 20:43
@dmarsden49 @CommunityLd @WeLDnurses #RNLDs should share their skills/ knowledge and teach others in the #MDT #WeLDNs
@WeLDnurses
18 September 2018 20:43
@GeorgeJulian Welcome, George! #weldns
@CommunityLd
18 September 2018 20:44
@JamesRNLD @WeLDnurses I think all professions need upskilling e.g. Adult nurses for physical health. But you wouldn't ask an adult nurse to treat a mental health problem so why shouldn't autistic people have access to autism specialist services? #weldns
@AWebster67
18 September 2018 20:44
@CommunityLd @WeLDnurses What does that specialist workforce look like? #WeLDns
@bayliss_j94
18 September 2018 20:44
@AWebster67 @IanUnitt @WeLDnurses @jtrevmhn I find liaison services are very hit and miss...places like A&E are really hard for my sister the lack of control, busyness & often change w/ no definite answers is a nightmare, esp HCPs expecting things to be done instantly when she needs time to process to understand #WeLDNs
@WeLDnurses
18 September 2018 20:44
@PBSN_Surrey @AWebster67 @jtrevmhn Hi! Welcome to the #weldns #10yearplan chat!
@florenceella
18 September 2018 20:44
@LeanneHPatrick @WeLDnurses I definitely agree! Who should be responsible for offering the training? #WeLDNs
@WeLDnurses
18 September 2018 20:44
RT @MichaelFullert3: #WeLDNs people with autism with no learning disability still often experience being 'bounced' between mental health an…
@MichaelFullert3
18 September 2018 20:44
@AWebster67 @IanUnitt @WeLDnurses @bayliss_j94 @jtrevmhn I see hospital services with good liaison resource and much improved experiences for pple, anidoctally less premature discharge and fuller investigation and treatment #WeLDNs
@carterjenny16
18 September 2018 20:45
@WeLDnurses Don’t assume I don’t know what my Disabilities are and how I deal with them. Give me time and it’s ok to ask what my age is #WeLDNs
@GeorgeJulian
18 September 2018 20:45
@CommunityLd @dmarsden49 @WeLDnurses Don’t mean to be contrary (well ok just a little) but I think family carers are the profession with the greatest skill set, much enhanced when working with awesome #WeLDNs
@Triciahandley
18 September 2018 20:45
@bayliss_j94 @IanUnitt @WeLDnurses @AWebster67 @jtrevmhn #WeLDns I think we need a new role of physician in Autism and LD to support individuals with multiple co morbidities and complex presentations - will give essential continuity and I belief ??hospital admissions attendances
@JamesRNLD
18 September 2018 20:46
@florenceella @dmarsden49 @CommunityLd @WeLDnurses Is there sometimes an issue of commissioning? Our acute liaison service support adults with a learning disability but not autism (where no learning disability). However in Paediatrics I work with both #WeLDNs
@WeLDnurses
18 September 2018 20:46
#WeLDNs Question 2 - What are the most important changes the NHS can make for people with a learning disability?
@GeorgeJulian
18 September 2018 20:46
@leoniedelt @1985Deanne @WeLDnurses You’re much better placed to join this convo than me Jen but it gets me, even committed well intentioned people are still viewing thru the medical lens. It’s life not a condition #weldns
@WeLDnurses
18 September 2018 20:46
RT @florenceella: @dmarsden49 @CommunityLd @WeLDnurses #RNLDs should share their skills/ knowledge and teach others in the #MDT #WeLDNs
@WeLDnurses
18 September 2018 20:46
RT @AWebster67: @CommunityLd @WeLDnurses What does that specialist workforce look like? #WeLDns
@LeanneHPatrick
18 September 2018 20:46
@florenceella @WeLDnurses I think LD Nurses could absolutely be commissioned in developing this! Online is likely easier to role out as a very basic foundation of knowledge #WeLDNs
@IanUnitt
18 September 2018 20:46
@WeLDnurses Whether a person has ASD or a Learning Disability, services need to be tailored to individual need. PERSON-CENTRED, PERSON-CENTRED, PERSON-CENTRED. #WeLDNs
@CommunityLd
18 September 2018 20:46
@AWebster67 @WeLDnurses Same as a learning disability team but designed for autism specific #weldns
@LeanneHPatrick
18 September 2018 20:46
RT @WeLDnurses: #WeLDNs Question 2 - What are the most important changes the NHS can make for people with a learning disability?
@paularich1977
18 September 2018 20:47
RT @WeLDnurses: #WeLDNs Question 2 - What are the most important changes the NHS can make for people with a learning disability?
@carterjenny16
18 September 2018 20:48
@WeLDnurses Listen and talk to them yes they may have limited capacity but that doesn’t mean that they don’t know how there Disability effects them #weLDNS
@MichaelFullert3
18 September 2018 20:48
@WeLDnurses #WeLDNs There’s no reference to the complex needs of pple with profound and multiple learning disabilities despite average age of death 41yrs #LeDeR
@florenceella
18 September 2018 20:48
@WeLDnurses All trusts should offer autism specific training #WeLDNs
@Louise90999815
18 September 2018 20:48
RT @AWebster67: @CommunityLd @WeLDnurses What does that specialist workforce look like? #WeLDns
@JohnBaker_Leeds
18 September 2018 20:48
RT @WeLDnurses: #WeLDNs Question 2 - What are the most important changes the NHS can make for people with a learning disability?
@WeLDnurses
18 September 2018 20:48
George, all views are valued here, pleased do not think your statement is - in any way - controversial. #weldns https://twitter.com/GeorgeJulian/status/1042137439211597825
@bayliss_j94
18 September 2018 20:48
@LeanneHPatrick @WeLDnurses As a #youngcarer to my sister with #autism and #learningdifficulties 100%! Pts with #autism require extra support in dealing w/ examinations during OP appts or if having to be admitted onto a ward - let them have a family member with them, explain what is happening when #WeLDNs
@AWebster67
18 September 2018 20:48
RT @MichaelFullert3: @WeLDnurses #WeLDNs There’s no reference to the complex needs of pple with profound and multiple learning disabilities…
@JamesRNLD
18 September 2018 20:49
@Triciahandley @bayliss_j94 @IanUnitt @WeLDnurses @AWebster67 @jtrevmhn Interesting I heard @dominicslowie at a recent conference talking about #LeDeR and interesting opportunities for GPs to develop specialism in Learning Disability to support post transition to adulthood #WeLDNs
@GeorgeJulian
18 September 2018 20:49
@WeLDnurses View the person as a person, their lives like ours, yours or mine. Work with people, their families, friends and allies. Listen and be honest, no spin, no PR, no gloss just honest #weldns
@Louise90999815
18 September 2018 20:49
@AWebster67 @WeLDnurses @CommunityLd I would like to see an autism specialist in my area as there is little support in our area #WeLDns ??
@WeLDnurses
18 September 2018 20:49
#WeLDNs Poll Question 1 - I joined tonight's #10yearplan chat because I...
@WeLDnurses
18 September 2018 20:49
If you'd like to say anything more about your answer, please reply below! #weldns
@ross_6479_RNLD
18 September 2018 20:49
@WeLDnurses Making services that are accessible and meet the needs, not passing between services or saying their needs don’t meet the ‘service provision’ #WeLDNs
@irisbenson100
18 September 2018 20:49
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@irisbenson100
18 September 2018 20:49
RT @carterjenny16: @WeLDnurses Let us be ourselves with gifts and talants #WeLDNs
@florenceella
18 September 2018 20:50
@WeLDnurses Especially as #RNLDs we get most of our information and knowledge from the families/ carers #WeLDNs #sharingiscaring
@bayliss_j94
18 September 2018 20:50
@GeorgeJulian @CommunityLd @dmarsden49 @WeLDnurses Thankyou!! Often HCPs see us #youngcarers & older #carers too as a pain rather than a help when actually we know our loved ones best & often deal with a lot more complex health needs on a daily basis than you realise #WeLDNs
@carterjenny16
18 September 2018 20:50
@WeLDnurses Or contain medication they can feel pain and that’s via there Behaviour #weLDNS
@GeorgeJulian
18 September 2018 20:50
@WeLDnurses Gawd no, not controversial but I know I can be a pain in the arse, constantly banging the same drum. Long history of, and respect for #weldns
@dmarsden49
18 September 2018 20:50
RT @WeLDnurses: #WeLDNs Question 2 - What are the most important changes the NHS can make for people with a learning disability?
@CommunityLd
18 September 2018 20:51
@bayliss_j94 @GeorgeJulian @dmarsden49 @WeLDnurses Partnership working is key #weldns
@Louise90999815
18 September 2018 20:51
RT @WeLDnurses: Due to the importance of tonight's chat, we are expecting many new tweeters & #weldns chatters. Look after yourself and oth…
@bayliss_j94
18 September 2018 20:52
@ross_6479_RNLD @WeLDnurses This is the most frustrating thing ever!! Sooo often services try to pass my sister off between pillar and post all so no one takes any responsibility leaving it all to fall to me #weldns #autism
@carterjenny16
18 September 2018 20:52
@WeLDnurses It’s a bit sad we have got not many people with Learning Disabilities joining #WeLDNs
@GeorgeJulian
18 September 2018 20:52
@florenceella @WeLDnurses I think the good people do, the people who are likely to be here and engaging with #weldns but I think there are still some people/trusts with stinkingingly poor attitudes towards families and carers #weldns
@Louise90999815
18 September 2018 20:52
RT @WeLDnurses: George, all views are valued here, pleased do not think your statement is - in any way - controversial. #weldns https://t.c…
@AWebster67
18 September 2018 20:52
RT @carterjenny16: @WeLDnurses It’s a bit sad we have got not many people with Learning Disabilities joining #WeLDNs
@paularich1977
18 September 2018 20:53
@WeLDnurses Never make assumptions about their understanding, they should be at the centre of all conversations regarding their health care. Appointment letters could be sent out in an easy read format to make sure people do not miss appointments or vital screening #WeLDNs
@CommunityLd
18 September 2018 20:53
@WeLDnurses Mandated access through legislation to have access to a learning disability nurse e.g. Liaison etc and mandatory training for all Health professionals #weldns
@bayliss_j94
18 September 2018 20:53
@CommunityLd @GeorgeJulian @dmarsden49 @WeLDnurses Definitely! #weldns
@PBSN_Surrey
18 September 2018 20:53
@WeLDnurses #weLDns #LTPConversations Joint commissioning. Local #PBS intensive support teams. Empowering families.
@dmarsden49
18 September 2018 20:53
@bayliss_j94 @LeanneHPatrick @WeLDnurses How do we ensure that NHS services are prepared correctly to make these adjustments? #weldns
@florenceella
18 September 2018 20:53
@WeLDnurses Where to start! Ensure basic training on LD for ALL staff in the NHS, highlight the importance of listening (to families, to LDNs), being aware of passports and communication profiles (and reading them), asking Qs if help is needed! #WeLDNs
@JamesRNLD
18 September 2018 20:53
@CommunityLd @WeLDnurses But we're not treating the autism - we're viewing the presenting need, whether physical or mental, in the context of an autism diagnosis #WeLDNs
@MichaelFullert3
18 September 2018 20:53
@WeLDnurses #WeLDNs let’s see some reference to working closely with pple and their families on excellent 24hr postural support, strong focus on good comm Physio, OT, SLT etc - and enhanced GP service. Less neg attitudes in hospital, too quick to jump to dnacpr and write pple off
@Louise90999815
18 September 2018 20:53
@WeLDnurses I think family centred care and peer support is the way forward?? I talk to parents and professionals about Autism and its effect on toilet training #WeLDns #boglady??
@GeorgeJulian
18 September 2018 20:53
None of the below, because I’m a human and I’m fed up of my fellow humans dying 30 years prematurely because society doesn’t care enough to change things - it’s very personal, not professional #weldns https://twitter.com/WeLDnurses/status/1042138594670985216
@AWebster67
18 September 2018 20:54
@carterjenny16 @WeLDnurses How can we get more people with a learning disability and more autistic people involved in these sorts of chats Jenny? Value your ideas on this. #weLDNS
@Triciahandley
18 September 2018 20:54
@WeLDnurses #WeLDns do what we should be doing already but measures of success should be from people with LD and families - we know care should person centred - use health Passport (make it universal it’s great for most of hospital population ) recognise critical role families Carers
@AWebster67
18 September 2018 20:54
RT @MichaelFullert3: @WeLDnurses #WeLDNs let’s see some reference to working closely with pple and their families on excellent 24hr postura…
@dmarsden49
18 September 2018 20:54
@carterjenny16 @WeLDnurses It is Jenny. #weldns
@WeLDnurses
18 September 2018 20:55
RT @MichaelFullert3: @WeLDnurses #WeLDNs let’s see some reference to working closely with pple and their families on excellent 24hr postura…
@florenceella
18 September 2018 20:55
@GeorgeJulian @WeLDnurses That’s something that definitely needs to change! #WeLDNs
@CommunityLd
18 September 2018 20:55
@JamesRNLD @WeLDnurses Learning disability teams support development of skills whether behaviour, social, daily living. Should autistic people not have access to the same? #weldns
@dmarsden49
18 September 2018 20:55
RT @WeLDnurses: #WeLDNs Poll Question 1 - I joined tonight's #10yearplan chat because I...
@1985Deanne
18 September 2018 20:55
RT @MichaelFullert3: @WeLDnurses #WeLDNs let’s see some reference to working closely with pple and their families on excellent 24hr postura…
@SueBprof1
18 September 2018 20:55
@WeLDnurses Involve people in service development and employ people as LD advisors or Peer support workers. They are invaluable! #weldns
@GeorgeJulian
18 September 2018 20:55
@Triciahandley @WeLDnurses Think it’s a cracking idea to make ‘solutions’ universal, so people aren’t seen as special or different, so the system has to flex and bend to accommodate difference not individuals #weldns ??
@Louise90999815
18 September 2018 20:55
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@dmarsden49
18 September 2018 20:55
RT @Triciahandley: @WeLDnurses #WeLDns do what we should be doing already but measures of success should be from people with LD and familie…
@paularich1977
18 September 2018 20:56
@GeorgeJulian @florenceella @WeLDnurses I'm a student LD nurse, but one thing thats highlighted heavily during our lectures is that families are the expert in the person with a learning disability or autism. A lot of information can be gained to assist the person. It's this partnership working thats vital #WeLDNs
@ross_6479_RNLD
18 September 2018 20:56
@WeLDnurses I’ve had my daughter denied services because mental health wasn’t her primary need, but how do they define someone’s mental wellbeing in the context of autism? #weldns
@MichaelFullert3
18 September 2018 20:56
@AWebster67 @WeLDnurses #WeLDNs not all adults (postcode issue) have access to good Physio input etc, get v basic equipment and specialist input = reduced QoL and life expectancy. We pay in an area for enhanced GP service, makes such a difference
@WeStudentNurse
18 September 2018 20:56
RT @WeLDnurses: #WeLDNs Poll Question 1 - I joined tonight's #10yearplan chat because I...
@WeStudentNurse
18 September 2018 20:57
RT @WeLDnurses: #WeLDNs Question 2 - What are the most important changes the NHS can make for people with a learning disability?
@AWebster67
18 September 2018 20:57
@Triciahandley @WeLDnurses How do you get people to “do what they should be doing already? “ much of this is good practice/legislation /been talked about for years (eg person centred) what would make it a consistent reality? #WeLDns
@JamesRNLD
18 September 2018 20:57
@CommunityLd @WeLDnurses I guess it comes back to a tiered approach again - everyone should expect to be able to access universal services, but they are supported by specialist services who provide (ideally) targeted care to prevent crisis and promote wellbeing #WeLDNs
@carterjenny16
18 September 2018 20:57
@AWebster67 @WeLDnurses Lots of self advocacy Groups have Twitter accounts but unsure about how many with Autism and or Learning Disabilities and have to remember not everyone is encouraged to have a Twitter account and people can be actively encouraged not too #weLDNS
@dmarsden49
18 September 2018 20:57
@JamesRNLD @CommunityLd @WeLDnurses Good point, my daughter was telling me at dinner tonight about some of the scary things she's encountered online about 'treatment' for autistic spectrum condition #weldns
@GwenMoulster
18 September 2018 20:57
RT @MichaelFullert3: @WeLDnurses #WeLDNs let’s see some reference to working closely with pple and their families on excellent 24hr postura…
@WeLDnurses
18 September 2018 20:58
#WeLDNs Question 3 - What are the most important things that must happen for Children, and young people with a learning disability, autism or both and their families in the NHS?
@GeorgeJulian
18 September 2018 20:58
@paularich1977 @florenceella @WeLDnurses Pleased to hear it Paula, hope the cultures you end up working in feel the same (and/or respond to your influence) ;) #weldns
@LeanneHPatrick
18 September 2018 20:58
This sounds wonderful #WeLDNs https://twitter.com/Louise90999815/status/1042138098434560002
@1985Deanne
18 September 2018 20:58
RT @WeLDnurses: #WeLDNs Question 3 - What are the most important things that must happen for Children, and young people with a learning dis…
@bayliss_j94
18 September 2018 20:58
@dmarsden49 @LeanneHPatrick @WeLDnurses Mandatory LDN training is a start but it’d help to come from someone with a LD or loved ones - show HCPs an appt/Ward from the point of view of a #learningdisability the fear of the unknown/lack of continuity/familiarity is hard for my sister as she needs to know/plan #weldns
@CommunityLd
18 September 2018 20:58
@JamesRNLD @WeLDnurses Totally agree mate. But I know a few people who can't function with everyday life and have no access to support beyond charities etc #weldns
@LeanneHPatrick
18 September 2018 20:58
RT @WeLDnurses: #WeLDNs Question 3 - What are the most important things that must happen for Children, and young people with a learning dis…
@LeanneHPatrick
18 September 2018 20:58
RT @WeLDnurses: #WeLDNs Poll Question 1 - I joined tonight's #10yearplan chat because I...
@WeLDnurses
18 September 2018 20:59
@GeorgeJulian Thank you for clarifying, George. #weldns
@IPenfold
18 September 2018 20:59
@WeLDnurses #WeLDNs The system is so complex that it can be very difficult for families 2 know what help is available & how best 2 advocate for their loved ones. Access to a named care coordinator would help immensely both to liaise with families & organise appropriate support/interventions.
@SueBprof1
18 September 2018 20:59
@AWebster67 @Triciahandley @WeLDnurses Check their compliance through CQC perhaps?! The LD Improvement Standards may help with some, but unless monitored these good practices/legislations they fall past the wayside #weldns
@samabdulla
18 September 2018 21:00
RT @WeLDnurses: #WeLDNs Question 3 - What are the most important things that must happen for Children, and young people with a learning dis…
@AWebster67
18 September 2018 21:00
RT @Triciahandley: @WeLDnurses #WeLDns do what we should be doing already but measures of success should be from people with LD and familie…
@JamesRNLD
18 September 2018 21:00
@CommunityLd @WeLDnurses And I would never argue that they shouldn't be accessing the support they need when they need it #WeLDNs
@Louise90999815
18 September 2018 21:00
RT @WeLDnurses: #WeLDNs Question 3 - What are the most important things that must happen for Children, and young people with a learning dis…
@1985Deanne
18 September 2018 21:00
@WeLDnurses Listen to us as #parent carers and our children #personalise our childrens care around them and their needs. Ask us what #matterstous #work together dont make us co ordinate you all as HCPS #WeLDNs
@LeanneHPatrick
18 September 2018 21:00
@WeLDnurses Both. My daughter is autistic and learning disabled. I'm also a student mental health nurse and meet people with learning disabilities who also have mental health difficulties. Relevant to all branches of nursing. #WeLDNs
@samabdulla
18 September 2018 21:00
@WeLDnurses Non Learning disability services taking them, their careers and families seriously would be start #weldns
@GeorgeJulian
18 September 2018 21:00
@AWebster67 @Triciahandley @WeLDnurses IMO some consequences for breaking the law. I’m serious too, for too long people’s human rights have been violated with zero consequence and much apathy #weldns
@carterjenny16
18 September 2018 21:00
@WeLDnurses The isn’t enough in this area but Halton Speak up self advocacy group and Warrington Speak up have young people involved with self advocacy #weLDNS
@bayliss_j94
18 September 2018 21:01
@jtrevmhn @ross_6479_RNLD @WeLDnurses My local hospitals recently got passports which are good - help in terms of prep to talk through appt/surgery with my sister & to explain her difficulties - however I’m pretty sure a lot of HCPs don’t even pay attention to them & don’t quite understand the impact of a LD #weLDNS
@paularich1977
18 September 2018 21:01
@WeLDnurses When my daughter was diagnosed with a learning disability and ADHD, we had very little information, just sent on our way with a diagnosis. Signposting to any other services available would help. #WeLDNs
@paularich1977
18 September 2018 21:01
RT @WeLDnurses: #WeLDNs Question 3 - What are the most important things that must happen for Children, and young people with a learning dis…
@BartsAbility
18 September 2018 21:01
RT @Triciahandley: @WeLDnurses #WeLDns do what we should be doing already but measures of success should be from people with LD and familie…
@BartsAbility
18 September 2018 21:01
RT @WeLDnurses: #WeLDNs Question 2 - What are the most important changes the NHS can make for people with a learning disability?
@CommunityLd
18 September 2018 21:01
@dmarsden49 @JamesRNLD @WeLDnurses Some of the 'cures' through bleach etc are sick. But some parents could be desperate enough to seek them #weldns
@samabdulla
18 September 2018 21:01
@WeLDnurses Should read carers obvs #weldns
@JamesRNLD
18 September 2018 21:01
@dmarsden49 @CommunityLd @WeLDnurses I wonder whether this is more evident because there isn't enough information with a good evidence out there - I often signpost to @ResearchAutism for this reason #WeLDNs #EBP
@CommunityLd
18 September 2018 21:02
@JamesRNLD @WeLDnurses You're just making a very balanced argument ??#weldns
@GeorgeJulian
18 September 2018 21:02
@SueBprof1 @AWebster67 @Triciahandley @WeLDnurses Let’s not forget also how easy it is to ‘perform’ compliance when beneath the surface it’s dire, worth checking the HSE prosecution of @Southern_NHSFT for more on that #weldns #JusticeforLB
@1985Deanne
18 September 2018 21:02
@WeLDnurses Also offer better support early on #avoid crisis #better dosgnois around ASD and better post diagnosis support for families. Ensure support available around #behaviour #communication #WeLDNs
@samabdulla
18 September 2018 21:02
@paularich1977 @WeLDnurses Work at point of diagnosis is so key. #weldns
@seventiesbird
18 September 2018 21:02
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@GwenMoulster
18 September 2018 21:02
RT @samabdulla: @WeLDnurses Non Learning disability services taking them, their careers and families seriously would be start #weldns
@jimgblair
18 September 2018 21:02
RT @jtrevmhn: Hi all, thanks for joining #weLDns
@Freedom71573997
18 September 2018 21:02
RT @WeLDnurses: #WeLDNs Question 1 - What are the most important changes the NHS can make for people with autistic spectrum condition?
@LeanneHPatrick
18 September 2018 21:03
@WeLDnurses Not having to fight to find out what support and local provision is available. I want there to be comprehensive local resources that all services and schools can share with families. #WeLDNs
@GeorgeJulian
18 September 2018 21:03
@bayliss_j94 @jtrevmhn @ross_6479_RNLD @WeLDnurses At @HandleyInquest it was crystal clear that Richard had engaged with every initiative and it didn’t save his life; his passport was utterly pointless #weldns
@florenceella
18 September 2018 21:03
@WeLDnurses Effective transition teams in place to cover the gap between child to adult in community services/ schools/ respite etc #WeLDNs
@CommunityLd
18 September 2018 21:04
@Louise90999815 @dmarsden49 @JamesRNLD @WeLDnurses It's so worrying #weldns
@nellyfletch71
18 September 2018 21:04
RT @Triciahandley: @WeLDnurses #WeLDns do what we should be doing already but measures of success should be from people with LD and familie…
@MichaelFullert3
18 September 2018 21:04
@WeLDnurses #weLDNS Actively listen to the person, their family and any other close support
@paularich1977
18 September 2018 21:04
@florenceella @WeLDnurses Maybe community teams should be for all ages to have a consistent team in place to support through other transitions. #WeLDNs
@GeorgeJulian
18 September 2018 21:04
@samabdulla @WeLDnurses Altho I long for the day when young learning disabled people have careers too Sam, keep up with your ambitious standards ?? #weldns
@IPenfold
18 September 2018 21:05
@WeLDnurses #WeLDNs Please fix CAMHS. Overstretched services and waiting lists of to 2 -3 years unless you are high priority (Hampshire) means that it's often not fit for purpose. This is setting people up to fail and then costing more to repair the damage.
@debolu101
18 September 2018 21:05
@WeLDnurses Once diagnosed with Autism there’s little follow up. Everything is a fight, a fight for services, for referrals, therapies. Too many gaps & differences around the UK, pockets of excellence. #WeLDns
@bayliss_j94
18 September 2018 21:05
Have physical health HCPs understand what it’s like to have a #learningdisability & how much more daunting it makes already pot scary things...value there loved ones input we know them best but it’s also important to remember there humans too, talk to them to understand #weldns https://twitter.com/WeLDnurses/status/1042140703806181376
@SueBprof1
18 September 2018 21:05
@GeorgeJulian @AWebster67 @Triciahandley @WeLDnurses @Southern_NHSFT Point taken, but at the moment there is no accountability for not providing what should be routine #weldns
@dmarsden49
18 September 2018 21:05
@bayliss_j94 @LeanneHPatrick @WeLDnurses There should be a report being published as part of #idhekss on education of healthcare professionals by people with learning disabilities appearing soon at https://ldcop.org.uk/ #weldns @GeorgeMatuska
@WeLDnurses
18 September 2018 21:05
RT @IPenfold: @WeLDnurses #WeLDNs The system is so complex that it can be very difficult for families 2 know what help is available & how b…
@JamesRNLD
18 September 2018 21:05
@WeLDnurses I think help to navigate all the services, processes and lingo! For me, I feel support should be there based on need in every service (I know it should be, but I'm regularly told that support can't be offered until a diagnosis is made!) #WeLDNs
@GwenMoulster
18 September 2018 21:06
@WeLDnurses #WeLDNs make sure early diagnosis is available, followed by person centred approaches and interventions. Joined up care and support for families, stop making families fight for everything.
@GwenMoulster
18 September 2018 21:06
RT @IPenfold: @WeLDnurses #WeLDNs The system is so complex that it can be very difficult for families 2 know what help is available & how b…
@dmarsden49
18 September 2018 21:06
@SueBprof1 @AWebster67 @Triciahandley @WeLDnurses I understand the Improvement standards monitoring system is due to to be published very soon with @NHSBenchmarking #weldns
@huntanne
18 September 2018 21:06
@AWebster67 @Triciahandley @WeLDnurses #weLDNs I think we have to win hearts and minds by increasing contact between people with learning disabilities and autism & carers, every day mixing and relationships rather than artificial training sessions in classrooms, share a task, an experience, see the reality and the joy
@bayliss_j94
18 September 2018 21:06
@GeorgeJulian @jtrevmhn @ross_6479_RNLD @WeLDnurses @HandleyInquest I’m so sorry to hear this!! Yep I agree although helpful #carerspassports don’t solve everything and are only as good as the HCP who takes the time to read them & actually get to know the patient! #weldns
@Louise90999815
18 September 2018 21:07
RT @WeLDnurses: #WeLDNs Question 2 - What are the most important changes the NHS can make for people with a learning disability?
@paularich1977
18 September 2018 21:07
@AWebster67 @WeLDnurses Perhaps this is something that could be incorporated into the school nursing role to a certain extent #weLDNs
@GeorgeJulian
18 September 2018 21:07
@SueBprof1 @AWebster67 @Triciahandley @WeLDnurses @Southern_NHSFT I absolutely agree and think some places exploit that, in health and social care, just not sure if new standards will change that (feels like a system response without teeth - can’t argue against it but not sure will help without consequences) #weldns
@IanUnitt
18 September 2018 21:07
RT @GwenMoulster: @WeLDnurses #WeLDNs make sure early diagnosis is available, followed by person centred approaches and interventions. Join…
@paularich1977
18 September 2018 21:08
RT @GwenMoulster: @WeLDnurses #WeLDNs make sure early diagnosis is available, followed by person centred approaches and interventions. Join…
@MelinaS45
18 September 2018 21:08
@WeLDnurses Sorry #WeLDNs
@dmarsden49
18 September 2018 21:08
@IPenfold @WeLDnurses Here, Here. #weldns
@SueBprof1
18 September 2018 21:08
@dmarsden49 @AWebster67 @Triciahandley @WeLDnurses @NHSBenchmarking Great news! Look forward to seeing it #weldns
@WeLDnurses
18 September 2018 21:08
RT @huntanne: @AWebster67 @Triciahandley @WeLDnurses #weLDNs I think we have to win hearts and minds by increasing contact between people w…
@carterjenny16
18 September 2018 21:08
@WeLDnurses People with Learning Disabilities and or Autism can be family Carers too the NHS needs to understand this #weLDNS
@GwenMoulster
18 September 2018 21:08
@paularich1977 @florenceella @WeLDnurses #WeLDNs community teams used to work with all ages so transition had far less impact.
@WeLDnurses
18 September 2018 21:08
@GwenMoulster Welcome Gwen, didn't notice you creep in! #weldns
@samabdulla
18 September 2018 21:08
@GeorgeJulian @WeLDnurses Wouldn’t that we wonderful, all that magical esteem that comes from working and a wage, pfft I’m talking crazy. #weldns
@GeorgeJulian
18 September 2018 21:08
@bayliss_j94 @jtrevmhn @ross_6479_RNLD @WeLDnurses @HandleyInquest I raise it Jane because I think often people feel if someone had a passport (he did), if they went for health checks (he did), if he had an engaged and loving family (he did) that somehow that’s enough, but sometimes the passport/check etc leads to a more general apathy #weldns
@IPenfold
18 September 2018 21:08
@WeLDnurses #WeLDNs Access to ongoing joined up care is also vital. No one wants to take responsibility. :-( Support must be organised around each person with teams working together.
@jimgblair
18 September 2018 21:08
RT @WeLDnurses: #WeLDNs Question 3 - What are the most important things that must happen for Children, and young people with a learning dis…
@WeStudentNurse
18 September 2018 21:09
RT @WeLDnurses: #WeLDNs Question 3 - What are the most important things that must happen for Children, and young people with a learning dis…
@Louise90999815
18 September 2018 21:09
@LeanneHPatrick @WeLDnurses There is also a free course for HCP run by NAS about women and girls with autism??#weLDNS
@paularich1977
18 September 2018 21:09
RT @GwenMoulster: @paularich1977 @florenceella @WeLDnurses #WeLDNs community teams used to work with all ages so transition had far less im…
@AWebster67
18 September 2018 21:09
@GwenMoulster @WeLDnurses How can families be better supported/ respected as partners ? Survey recently by @bustogether showed huge impact on families own health . #WeLDns
@GeorgeJulian
18 September 2018 21:09
@samabdulla @WeLDnurses And I love you for it, keep at it.... #weldns
@CommunityLd
18 September 2018 21:09
@WeLDnurses Early diagnostic services joined up with education services. Maybe even making Education Healthcare Plans life long rather than stopping at 25 #weldns
@lynnewalsall
18 September 2018 21:09
RT @GwenMoulster: @WeLDnurses #WeLDNs make sure early diagnosis is available, followed by person centred approaches and interventions. Join…
@JohnBaker_Leeds
18 September 2018 21:09
RT @WeLDnurses: #WeLDNs Question 3 - What are the most important things that must happen for Children, and young people with a learning dis…
@LeanneHPatrick
18 September 2018 21:09
RT @Louise90999815: @LeanneHPatrick @WeLDnurses There is also a free course for HCP run by NAS about women and girls with autism??#weLDNS
@bayliss_j94
18 September 2018 21:09
@dmarsden49 @LeanneHPatrick @WeLDnurses @GeorgeMatuska That’s great!! Great to see work is being done to help support and protect people with #learningdisabilities - so often the true impact is dismissed or the lack of communication/understanding seen as not trying when actually they just need things explained more simply #weldns
@paularich1977
18 September 2018 21:10
@GwenMoulster @florenceella @WeLDnurses What was the rationale for changing? The therapeutic relationship that an RNLD builds with not only the person with a learning disability but also their families is so important #WeLDNs
@GwenMoulster
18 September 2018 21:10
RT @samabdulla: @paularich1977 @WeLDnurses Work at point of diagnosis is so key. #weldns
@paularich1977
18 September 2018 21:10
RT @samabdulla: @paularich1977 @WeLDnurses Work at point of diagnosis is so key. #weldns
@WeLDnurses
18 September 2018 21:10
RT @IPenfold: @WeLDnurses #WeLDNs Access to ongoing joined up care is also vital. No one wants to take responsibility. :-( Support must be…
@samabdulla
18 September 2018 21:11
@CommunityLd @WeLDnurses Proper transition planning rather than acting suprised at adulthood? #WeLDns
@JamesRNLD
18 September 2018 21:11
@WeLDnurses Has anyone come across Early Symptomatic Syndromes Eliciting Neurodevelopmental Clinical Examinations (ESSENCE)? I believe it originates in Sweden, and has a focus on need with no neurodevelopmental diagnosis made before 7 years old #WeLDNs
@WeLDnurses
18 September 2018 21:11
Have you got a link for this #ebp #weldns https://twitter.com/Louise90999815/status/1042143533661151233
@GeorgeJulian
18 September 2018 21:11
@carterjenny16 @WeLDnurses Yes yes yes, spot on Jenny, because people are bigger than their ‘presenting condition’ #weldns
@PBSN_Surrey
18 September 2018 21:11
@WeLDnurses Early identification of children at risk of behaviours that challenge and rapid response. Training Health Visitors, Paediatricians and GPs. #Weldns #LTPConversations
@WeLDnurses
18 September 2018 21:11
#WeLDNs Poll Question 2 - where are you joining the chat from tonight?
@WeLDnurses
18 September 2018 21:11
If you'd like to elaborate on your answer please reply below. #weldns
@Louise90999815
18 September 2018 21:11
RT @WeLDnurses: Have you got a link for this #ebp #weldns https://twitter.com/Louise90999815/status/1042143533661151233
@WeLDnurses
18 September 2018 21:12
#WeLDNs Question 4 - How should we decide on our priorities?
@CommunityLd
18 September 2018 21:12
@samabdulla @WeLDnurses Yes, early intervention saves money in long term. #weldns
@samabdulla
18 September 2018 21:12
@GwenMoulster @paularich1977 @florenceella @WeLDnurses NHS lothian still does but still has issues at other services. Suddenly the safety of structures school becomes (overwhelming) choice #weLDNS
@ross_6479_RNLD
18 September 2018 21:12
RT @WeLDnurses: #WeLDNs Question 4 - How should we decide on our priorities?
@LeanneHPatrick
18 September 2018 21:12
RT @WeLDnurses: #WeLDNs Poll Question 2 - where are you joining the chat from tonight?
@carterjenny16
18 September 2018 21:12
@dmarsden49 @WeLDnurses @SueBprof1 @AWebster67 @Triciahandley @NHSBenchmarking Is this easy to understand? Self advocacy Groups should be involved and paid for helping #weLDNS
@LeanneHPatrick
18 September 2018 21:12
RT @WeLDnurses: #WeLDNs Question 4 - How should we decide on our priorities?
@JamesRNLD
18 September 2018 21:13
@samabdulla @CommunityLd @WeLDnurses But how will we know when to expect adulthood? If only there was some simple numeric way to work it out! #WeLDNs
@dmarsden49
18 September 2018 21:13
@JamesRNLD @WeLDnurses No, have you got a link, James? #weldns
@LeanneHPatrick
18 September 2018 21:13
@WeLDnurses Co-production with people who are autistic, learning disabled or both and their families and carers. #WeLDNs
@GwenMoulster
18 September 2018 21:13
@paularich1977 @florenceella @WeLDnurses #WeLDNs it was the philosophy that a child is a child first, therefore children's services should lead child health initiatives. In reality since that change there have never been sufficient resources to provide the more specialized intervention needed.
@dmarsden49
18 September 2018 21:14
@WeLDnurses I live in Kent. #weldns
@IanUnitt
18 September 2018 21:14
@WeLDnurses Talk to the people affected and their families and carers – what are their priorities? Surely their priorities are more important than ours? #WeLDNs
@dmarsden49
18 September 2018 21:14
RT @WeLDnurses: #WeLDNs Question 4 - How should we decide on our priorities?
@florenceella
18 September 2018 21:14
@IPenfold @WeLDnurses Working with your #MDT and sharing info/ knowledge and identifying a coordinator who’s responsible is key to continuous and effective care #WeLDNs
@lynnewalsall
18 September 2018 21:14
RT @WeLDnurses: #WeLDNs Question 4 - How should we decide on our priorities?
@dmarsden49
18 September 2018 21:14
RT @WeLDnurses: #WeLDNs Poll Question 2 - where are you joining the chat from tonight?
@bayliss_j94
18 September 2018 21:14
@PBSN_Surrey @WeLDnurses Don’t presume that everyone with a #LearningDisability is a safeguarding issue - it not only adds to the stress of the pt but also there loved ones who are having to juggle a lot as it is! Also not all #learningdisabilities involve ‘at risk’ behaviours #WeLDNs
@IanUnitt
18 September 2018 21:14
RT @WeLDnurses: #WeLDNs Question 4 - How should we decide on our priorities?
@CommunityLd
18 September 2018 21:15
@JamesRNLD @samabdulla @WeLDnurses It's the silo and fragmented nature of health education and local government. As schools become academies away from council control there is no incentive to take on costly support for young people. Health not interested as education #weldns
@JohnBaker_Leeds
18 September 2018 21:15
RT @WeLDnurses: #WeLDNs Question 4 - How should we decide on our priorities?
@MichaelFullert3
18 September 2018 21:15
@WeLDnurses #weLDNS we know the main causes of premature deaths, focus on these with better multi agency working with pple and their families, improved early intervention and comm health support, with more knowledgeable and welcoming hospital services
@CommunityLd
18 September 2018 21:15
@GeorgeJulian @samabdulla @WeLDnurses That's why nurses need to be politicians #weldns
@Louise90999815
18 September 2018 21:15
RT @WeLDnurses: #WeLDNs Question 4 - How should we decide on our priorities?
@coley__x
18 September 2018 21:15
@WeLDnurses Northampton #weLDNs ??
@paularich1977
18 September 2018 21:16
@GwenMoulster @florenceella @WeLDnurses if it stays at sepearte teams then RNLDs should be incorporated in that team, this would aid with early intervention in behaviours that challenge, expertise in epilepsy, the benefits are endless #WeLDNs
@huntanne
18 September 2018 21:16
RT @MichaelFullert3: @WeLDnurses #weLDNS we know the main causes of premature deaths, focus on these with better multi agency working with…
@lynnewalsall
18 September 2018 21:16
Evening all sorry I'm late. Surely we are guided by the individuals needs #WeLDNs https://twitter.com/WeLDnurses/status/1042144226203430912
@JamesRNLD
18 September 2018 21:16
@dmarsden49 @WeLDnurses There is some info at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3886270/ #WeLDNs #EBP
@GwenMoulster
18 September 2018 21:16
@paularich1977 @florenceella @WeLDnurses #WeLDNs some children I worked with were then unable to get specialist services except through school and we picked them up again as adults, by which time their families were often becoming desperate for help.
@dmarsden49
18 September 2018 21:16
@carterjenny16 @WeLDnurses @SueBprof1 @AWebster67 @Triciahandley @NHSBenchmarking We've done an easy to read version and one of the experts by experience has painted his expeirences as a member of the teaching team. We'd like them to be able to tell their stories too, perhaps as a podcast? #weldns
@GeorgeJulian
18 September 2018 21:16
@CommunityLd @samabdulla @WeLDnurses Yup #weldns and learning disabled people for parliament..... gets my vote
@florenceella
18 September 2018 21:17
@IanUnitt @WeLDnurses Love this Ian! Person centred is the way forward #WeLDNs
@WeLDnurses
18 September 2018 21:17
RT @MichaelFullert3: @WeLDnurses #weLDNS we know the main causes of premature deaths, focus on these with better multi agency working with…
@carterjenny16
18 September 2018 21:17
@WeLDnurses Coproduction needs to be real and done right otherwise it becomes tockenistic. @Pers_Care needs to be involved in this because we can’t get people out without the resources they are developing #weLDNS or even better put the 2 separate departments together #WeLDNS
@JamesRNLD
18 September 2018 21:17
@LeanneHPatrick @WeLDnurses This - we should decide on the priorities - individuals and their families should #WeLDNs
@SueBprof1
18 September 2018 21:17
@WeLDnurses #weldns Talking to people who use services. If my GP asked, I would tell him how to make things better in the surgery. Why should it be any different for people with LD or autism? There are enough case studies of where things go wrong for people, do we ever really learn/improve?
@WeLDnurses
18 September 2018 21:18
Great #weldns #ebp Thanks James! https://twitter.com/JamesRNLD/status/1042145389154127874
@PBSN_Surrey
18 September 2018 21:18
@IPenfold @WeLDnurses Families should be able to access better co-ordinated support. Both nationally and locally, in partnership with education and children’s social care. . #WeLDNs #LTPConversations
@Louise90999815
18 September 2018 21:18
RT @SueBprof1: @WeLDnurses #weldns Talking to people who use services. If my GP asked, I would tell him how to make things better in the su…
@IanUnitt
18 September 2018 21:18
RT @MichaelFullert3: @WeLDnurses #weLDNS we know the main causes of premature deaths, focus on these with better multi agency working with…
@bayliss_j94
18 September 2018 21:18
@WeLDnurses Ask the patient what’s important to them!! Yes having a #learningdisability means extra needs but they still know what’s best for them/how best they cope in what can be very daunting situations #weldns
@CommunityLd
18 September 2018 21:18
@GeorgeJulian @samabdulla @WeLDnurses I encourage everyone to canvass their MP to raise issues like tonight #weldns
@GeorgeJulian
18 September 2018 21:18
@MichaelFullert3 @WeLDnurses Completely agree Michael, wish someone somewhere would drive change based on what we know from #leder and #cipold and #JusticeforLB and #mazars etc etc etc #weldns
@lynnewalsall
18 September 2018 21:18
RT @MichaelFullert3: @WeLDnurses #weLDNS we know the main causes of premature deaths, focus on these with better multi agency working with…
@carterjenny16
18 September 2018 21:19
@dmarsden49 @WeLDnurses @SueBprof1 @AWebster67 @Triciahandley @NHSBenchmarking Podcasts are not accessible to everyone it’s better to go to local self advocacy groups #weLDNS
@paularich1977
18 September 2018 21:19
@GwenMoulster @florenceella @WeLDnurses completely agree, I always believe RNLDs should be within schools too as a school nurse will tend to mianly support with health needs #WeLDNs
@WeLDnurses
18 September 2018 21:19
@dmarsden49 @carterjenny16 @SueBprof1 @AWebster67 @Triciahandley @NHSBenchmarking Can you share this when it's ready? Could we interest you in hosting a chat? http://www.wecommunities.org/tweet-chats/host-a-chat #weldns
@lynnewalsall
18 September 2018 21:19
RT @JamesRNLD: @dmarsden49 @WeLDnurses There is some info at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3886270/ #WeLDNs #EBP
@florenceella
18 September 2018 21:19
@WeLDnurses Using reports such as #LEDER we can identify priorities #WeLDNs
@GeorgeJulian
18 September 2018 21:19
@CommunityLd @samabdulla @WeLDnurses I wrote my MP a blog post about #leder it’s here if you’re interested http://www.georgejulian.co.uk/2018/05/11/when-is-a-world-first-not-a-world-first/ #weldns
@paularich1977
18 September 2018 21:20
RT @florenceella: @WeLDnurses Using reports such as #LEDER we can identify priorities #WeLDNs
@WeStudentNurse
18 September 2018 21:20
RT @WeLDnurses: #WeLDNs Question 4 - How should we decide on our priorities?
@WeStudentNurse
18 September 2018 21:20
RT @WeLDnurses: #WeLDNs Poll Question 2 - where are you joining the chat from tonight?
@GeorgeJulian
18 September 2018 21:20
@florenceella @WeLDnurses Thing is we had #cipold over 5yrs ago, what’s happened since? Some of govt response to #leder is recycled (badly), think we need to aim higher #weldns
@WeLDnurses
18 September 2018 21:21
#WeLDNs Question 5 - Thinking about the current Transforming Care Programme and progress, what should we keep, change, increase or stop doing?
@JamesRNLD
18 September 2018 21:21
@LeanneHPatrick @WeLDnurses That was totally meant to say 'we shouldn't - individuals should'! #WeLDNs
@LeanneHPatrick
18 September 2018 21:21
RT @WeLDnurses: #WeLDNs Question 5 - Thinking about the current Transforming Care Programme and progress, what should we keep, change, inc…
@Louise90999815
18 September 2018 21:22
RT @huntanne: @AWebster67 @Triciahandley @WeLDnurses #weLDNs I think we have to win hearts and minds by increasing contact between people w…
@MichaelFullert3
18 September 2018 21:22
@GeorgeJulian @WeLDnurses #weLDNS Need at local level less disjointed working, we’re all too busy being busy and getting nowhere fast. Closer local connections with singular focus, is what’s required - proper collaboration
@florenceella
18 September 2018 21:22
@WeLDnurses We do love #EBP ! #WeLDNs
@carterjenny16
18 September 2018 21:23
@WeLDnurses @Pers_Care Headed up by @JamesCSanderson and @rayjjames #weLDNS
@lynnewalsall
18 September 2018 21:23
RT @WeLDnurses: #WeLDNs Question 5 - Thinking about the current Transforming Care Programme and progress, what should we keep, change, inc…
@WeStudentNurse
18 September 2018 21:23
RT @WeLDnurses: #WeLDNs Question 5 - Thinking about the current Transforming Care Programme and progress, what should we keep, change, inc…
@florenceella
18 September 2018 21:23
@GeorgeJulian @WeLDnurses This is a very good point! How/ what can be done to aim higher? #WeLDNs
@AWebster67
18 September 2018 21:23
RT @LeanneHPatrick: @WeLDnurses Co-production with people who are autistic, learning disabled or both and their families and carers. #WeLDNs
@Louise90999815
18 September 2018 21:23
@huntanne @WeLDnurses @AWebster67 @Triciahandley I work with parents learning from them as much as they learn from me! I share my parent tips on my blog #howtopottytrain.com #weLDNS #bogblogger??
@ross_6479_RNLD
18 September 2018 21:24
@WeLDnurses I think we need to see greater priority on improving/increasing community services and place some importance on Children and Young People, whilst I agree with reducing beds there needs to be appropriate provision so that when it’s needed it’s accessible #WeLDNs
@dmarsden49
18 September 2018 21:24
RT @WeLDnurses: #WeLDNs Question 5 - Thinking about the current Transforming Care Programme and progress, what should we keep, change, inc…
@Louise90999815
18 September 2018 21:24
RT @IPenfold: @WeLDnurses #WeLDNs The system is so complex that it can be very difficult for families 2 know what help is available & how b…
@johnwalsh88
18 September 2018 21:24
RT @WeLDnurses: #WeLDNs Question 2 - What are the most important changes the NHS can make for people with a learning disability?
@Louise90999815
18 September 2018 21:24
@IPenfold @WeLDnurses @IPSEAcharity is a good resource ??#WeLDNS
@paedsnursebeth
18 September 2018 21:24
@WeLDnurses I’m a student paeds nurse but also sibling of CYP with autism/LD so see this from two perspectives. I would like to see better continuity and joining up in care between health, social services and education. Transition, like for all CYP, is particularly pertinent. #WeLDNs
@GwenMoulster
18 September 2018 21:24
RT @IPenfold: @WeLDnurses #WeLDNs Access to ongoing joined up care is also vital. No one wants to take responsibility. :-( Support must be…
@florenceella
18 September 2018 21:25
@WeLDnurses Improved community support to continue to minimise need for hosp admission and ensuring that all HCPs in the community have basic awareness and skills for LD/autism #WeLDNs
@carterjenny16
18 September 2018 21:25
@ross_6479_RNLD @WeLDnurses Agreed #weLDNS
@bayliss_j94
18 September 2018 21:25
@WeLDnurses THINK FAMILY - are there other young people involved who may be supporting the person w/ #learningdisability - it’s always been my ‘normal’ as my sisters older but I ended up taking on the emotional support & been a #youngcarer since 8yrs old but only recognised at 15 #WeLDNs
@WeLDnurses
18 September 2018 21:26
@paedsnursebeth Welcome, Beth, your dual perspective and views are very much valued. #weldns
@DrUmeshPrabhu
18 September 2018 21:26
RT @IPenfold: @WeLDnurses #WeLDNs The system is so complex that it can be very difficult for families 2 know what help is available & how b…
@GwenMoulster
18 September 2018 21:26
RT @MichaelFullert3: @WeLDnurses #weLDNS we know the main causes of premature deaths, focus on these with better multi agency working with…
@IPenfold
18 September 2018 21:26
@WeLDnurses #WeLDNs Carry on listening to those with lived experience at the engagement events, talk to the LD nurses & the likes of CBF, advocacy & support organisations such as Contact/HFT/DRUK to find out where the biggest problems are then provide the resources to meet the need. #simples
@GwenMoulster
18 September 2018 21:26
RT @huntanne: @AWebster67 @Triciahandley @WeLDnurses #weLDNs I think we have to win hearts and minds by increasing contact between people w…
@coley__x
18 September 2018 21:26
@WeLDnurses Basic awareness, further community support and increase the support to prevent hospital admissions.. however having the support & knowledge if admissions are needed.. #weLDNs ??
@Louise90999815
18 September 2018 21:27
@paedsnursebeth @MichaelFullert3 @WeLDnurses I totally agree we are just working with adult service to look at our transition policy ??#WeLDNS
@AWebster67
18 September 2018 21:27
@IanUnitt @WeLDnurses Hi Ian, who do you mean when you say expert witnesses? Families and people with a learning disability or autistic people? #weLDns
@WeLDnurses
18 September 2018 21:27
RT @IPenfold: @WeLDnurses #WeLDNs Carry on listening to those with lived experience at the engagement events, talk to the LD nurses & the l…
@florenceella
18 September 2018 21:27
RT @IPenfold: @WeLDnurses #WeLDNs Carry on listening to those with lived experience at the engagement events, talk to the LD nurses & the l…
@huntanne
18 September 2018 21:27
@florenceella @GeorgeJulian @WeLDnurses #weLDNS we need to employ leaders with a ‘can-do’ attitude & the will & authority to make the health of people with learning disabilities and autism their priority
@LeanneHPatrick
18 September 2018 21:27
@WeLDnurses I think provision of workforce development really is a key area. Not enough specialist staff and not enough basic knowledge for non specialist staff. Big factor in #HealthInequalities #WeLDNs
@THELDNURSE
18 September 2018 21:28
RT @SueBprof1: @WeLDnurses #weldns Talking to people who use services. If my GP asked, I would tell him how to make things better in the su…
@carterjenny16
18 September 2018 21:28
@WeLDnurses Less focus on bed numbers more focus on building community based support and getting the community ready to get people out and far more attention on early intervention and Prevention #weLDNS
@AWebster67
18 September 2018 21:28
RT @huntanne: @florenceella @GeorgeJulian @WeLDnurses #weLDNS we need to employ leaders with a ‘can-do’ attitude & the will & authority to…
@lynnewalsall
18 September 2018 21:28
RT @huntanne: @florenceella @GeorgeJulian @WeLDnurses #weLDNS we need to employ leaders with a ‘can-do’ attitude & the will & authority to…
@JohnBaker_Leeds
18 September 2018 21:28
RT @WeLDnurses: #WeLDNs Question 5 - Thinking about the current Transforming Care Programme and progress, what should we keep, change, inc…
@florenceella
18 September 2018 21:28
@jtrevmhn @WeLDnurses I think that having a dedicated transition team would allow for a much smoother and continuous provision of care #WeLDNs
@GeorgeJulian
18 September 2018 21:28
@huntanne @florenceella @WeLDnurses I’m still not sure why government responsibility for learning disabled people got moved into the #nhs tbh; doesn’t help view people as people, as opposed to ‘ill’ #weldns
@Reach_Asist
18 September 2018 21:29
RT @IPenfold: @WeLDnurses #WeLDNs Carry on listening to those with lived experience at the engagement events, talk to the LD nurses & the l…
@coley__x
18 September 2018 21:29
@bayliss_j94 @WeLDnurses It’s always important to recognise the wider family and offering them support. I am a carer for my brother & now a ld nurse. Offering the emotional support is key to not only individual but family and having the know how to do this is key #weLDNs ??
@WeLDnurses
18 September 2018 21:29
RT @huntanne: @florenceella @GeorgeJulian @WeLDnurses #weLDNS we need to employ leaders with a ‘can-do’ attitude & the will & authority to…
@GeorgeJulian
18 September 2018 21:29
@huntanne @florenceella @WeLDnurses I also think that leadership needs to include learning disabled people, actually include them not one person on a board or exec group either but as full time employees #weldns
@WeLDnurses
18 September 2018 21:30
Thanks for all your contributions this evening, to @NHSEngland @AWebster67 & @jtrevmhn for hosting, and @paularich1977 for helping coordinate tonight's #weldns chat




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