#UroOncInCharge - Thursday 15th April 2021 8pm (GMT Standard Time) Men’s health

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Hosted by WeNurses using #UroOncInCharge

This chat is guest hosted by @shiv_smith @Michelle_Barts @UroOncDan

Data suggests that men are not aware of health promotion surrounding checking themselves or signs of male cancer. There is low awareness for penile, testicular, and prostate cancers1. Working in urology we are aware that males are more likely to be diagnosed with bladder and renal cancers than females, for numerous reasons, risk taking behaviours2(smoking an example), working environment, obesity, alcohol intake are othersAwareness campaigns are run by the charities to raise awareness of ‘male’ cancers; Movember in November, along with European Association of Urology (EUA) on the 17th November, Orchid in September, Prostate Cancer UK have just started their awareness campaign ‘March the Month’.

Usually as a team we shy away from male campaigns as we do not like to discriminate against individuals who do not identify as male. However, you identify, cancer will not care!Cancer is not interested in gender identity or culture or age. If you have those bits this still will affect you so, please read on.Testicular cancer usually affects males between the age of 13 – 45, however, as previously stated cancer does not care about mutating in bodies older or younger than this common range. Prostate cancer normally affects those over the age of 60, again we know that sadly some men are much younger, with a small minority being under the age of 40! With regards to penile cancer the highest rates are within older males, over 75 years, yet over the past decade penile cancer cases have risenby about 7%, with incidence rates greater in the most deprived areas of the UK3.

Data would suggest that while prostate cancer gains several hits and interest, testicular cancer does not4. We need new approaches to increase male and public interest and awareness of male cancers.

References

1Collier, T., Smith, S., Greenwood, M. and Ng, K. (2020) Living with Advanced Hormone-Sensitive Prostate Cancer and Treatment with Abiraterone and Androgen Deprivation Therapy: The Patient, Nursing and Physician Perspective. (2020) Oncology and Therapy. Available online at: https://www.bing.com/search?q=Collier%2C+T.%2C+Smith%2C+S.%2C+Greenwood%2C+M.+and+Ng%2C+K.+(2020)+Living+with+Advanced+Hormone-Sensitive+Prostate+Cancer+and+Treatment+with+Abiraterone+and+Androgen+Deprivation+Therapy%3A+The+Patient%2C+Nursing+and+Physician+Perspective.+(2020)+Oncology+and+Therapy.&cvid=10039f9f2852435b81c7c1f0a0a88714&pglt=547&FORM=ANNTA1&PC=HCTS

2Saab, M., Reidy, M., Hegarty, J., O’Mahony, M., Murphy, M., Von Wagner, C. and Drummond, F. (2017) Men’s information-seeking behavior regarding cancer risk and screening: A meta-narrative -systematic review. Psycho-Oncology. 27 (2): 410-419.

3Cancer Research UK (2018) Penile cancer statistics. Available online at: Penile cancer statistics | Cancer Research UK

4Patel, M., Halpern, J., Desai, A., Keeter, M., Bennett, N. and Brannigan, R. (2020) Success of Prostate and Testicular Cancer Awareness Campaigns Compared to Breast Cancer Awareness Month According to Internet Search Volumes: A Googles Trends Analysis. Urology. 139: 64-70.

 

Question 1: What do you think stops men seeking advice?

Question 2: How can we improve male access to services? 

Question 3: Are there emotional / social factors that prevent males seeking support?

Question 4: Can we improve barriers to healthcare for men?

Question 5: How can we engage men to talk about healthcare? 

 

 

 

Uro-onc Clinical Nurse Specialist (CNS) team

Michelle Greenwood graduated from City University in 2008 and worked on a solid oncology ward at St Bart’s until 2010, moving into district nursing for 6 months after that. Then Michelle moved into a research sister role for urology oncology for 3 years followed by 7 months working in an Ocular Melanoma CNS role. In 2014 Michelle moved into the Uro-Onc CNS role taking over from Wendy Ansell, the first Macmillan Uro-Onc CNS in England. Within this role is an attached lead cancer Teenage, Young Adult (TYA) CNS role, as the germ cell practice incorporates 19 to 25 year olds, who may have additional care needs. Holds numerous courses including Physical Assessment and Clinical Reasoning and is due to start her MSc.

Shievon Smith graduated from London Southbank University 2002. Worked 6/12 on infection control ward at Whipps Cross Hospital then moved to Accident and Emergency on a staff nurse development programme late 2002. Gained her ‘E’ grade, then spent 2 years working for the Royal College of Nursing as an Assistant Officer at London region, then went back to A&E. In 2013 changed career to Urology then Uro-oncology in 2014. Graduated from The Royal Marsden school (UEA) in 2017 with a BSc (Hons) in Cancer Care. Joined St Bart’s to care of metastatic Uro-Onc patients later that same year.

Daniel Richardson graduated from University of Hertfordshire with a Psychology BSc in 2013. Then changed direction into nursing graduating from City University in 2017. Began his career at The Royal Marsden on a private male ward caring for surgical patients for urology and GI, caring for patients post bladder and prostate surgery, including pelvic exenterations. June 2020 joined the St Bart’s team to transition from surgical to metastatic Uro-Onc patient centred care, in a CNS training post.





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 #UroOncInCharge transcript

 
@AgencyNurse
15 April 2021 20:00
RT @sprod_karen: 2 minute warning for tonight’s tweetchat #UroOncInCharge https://twitter.com/wenurses/status/1382768210353750027
@WeNurses
15 April 2021 20:00
Evening all, thanks for joining us! Shiv, Dan & Michelle here via WeNurses and tonight's handle is again #UroOncInCharge Please remember to add this to your tweets so we can see you. Give us a wave or shout if you are joining ?? Lurking's ok too ???? https://t.co/dNg0rzM2o8
@AgencyNurse
15 April 2021 20:00
RT @WeNurses: Evening all, thanks for joining us! Shiv, Dan & Michelle here via WeNurses and tonight's handle is again #UroOncInCharge Plea…
@AgencyNurse
15 April 2021 20:01
hellooooo #urooncincharge
@shiv_smith
15 April 2021 20:01
@WeNurses #UroOncInCharge https://t.co/cOj8D4nowI
@WeNurses
15 April 2021 20:01
RT @AgencyNurse: hellooooo #urooncincharge
@WeNurses
15 April 2021 20:01
RT @shiv_smith: @WeNurses #UroOncInCharge https://t.co/cOj8D4nowI
@WeNurses
15 April 2021 20:02
#UroOncInCharge https://twitter.com/ethansgrumps/status/1382771111935479810
@AgencyNurse
15 April 2021 20:02
#UroOncInCharge https://twitter.com/ethansgrumps/status/1382771111935479810
@WeNurses
15 April 2021 20:02
Question 1: What do you think stops men seeking advice? #UroOncInCharge https://t.co/7T6iUiNkdY
@tanishawynx
15 April 2021 20:02
@WeNurses Hii???? #UroOncInCharge
@sprod_karen
15 April 2021 20:03
@WeNurses Hello. Attempting to join in on my mobile as I’m in the kitchen ??. See if I can keep up #UroOncInCharge https://t.co/pqY52VHWwy
@shiv_smith
15 April 2021 20:03
#UroOncInCharge https://twitter.com/michelle_barts/status/1382771327245938688
@UroOncDan
15 April 2021 20:03
RT @WeNurses: Evening all, thanks for joining us! Shiv, Dan & Michelle here via WeNurses and tonight's handle is again #UroOncInCharge Plea…
@WeNurses
15 April 2021 20:03
RT @sprod_karen: @WeNurses Hello. Attempting to join in on my mobile as I’m in the kitchen ??. See if I can keep up #UroOncInCharge https:/…
@WeNurses
15 April 2021 20:03
RT @tanishawynx: @WeNurses Hii???? #UroOncInCharge
@UroOncDan
15 April 2021 20:03
RT @WeNurses: Question 1: What do you think stops men seeking advice? #UroOncInCharge https://t.co/7T6iUiNkdY
@WeNurses
15 April 2021 20:04
@tanishawynx Yay \,hey again! Thanks for joining us again #UroOncInCharge
@lydia81400898
15 April 2021 20:04
Men’s health with @shiv_smith, @Michelle_Barts, @UroOncDan via #UroOncInCharge 15/04/2021 http://www.wecommunities.org/tweet-chats/chat-details/5650 via @WeNurses
@WeNurses
15 April 2021 20:04
@sprod_karen Excellent and welcome #UroOncInCharge
@ethansgrumps
15 April 2021 20:04
@WeNurses #UroOncInCharge that’s an easy one. We don’t know about #prostatecancer When I was dx’d age 60 I’d had no idea I could have requested a PSA test from age 50. If I’d been tested I wouldn’t have ended being dx’d incurable
@AgencyNurse
15 April 2021 20:04
Interesting question ... but perhaps being seen as vulnerable may have a part to play ? #UroOncInCharge https://twitter.com/WeNurses/status/1382771371936219139
@shiv_smith
15 April 2021 20:04
RT @lydia81400898: Men’s health with @shiv_smith, @Michelle_Barts, @UroOncDan via #UroOncInCharge 15/04/2021 http://www.wecommunities.org/tweet-chats/chat-details/5650 via @W…
@shiv_smith
15 April 2021 20:05
RT @tanishawynx: @WeNurses Hii???? #UroOncInCharge
@shiv_smith
15 April 2021 20:05
RT @WeNurses: Evening all, thanks for joining us! Shiv, Dan & Michelle here via WeNurses and tonight's handle is again #UroOncInCharge Plea…
@shiv_smith
15 April 2021 20:05
RT @sprod_karen: @WeNurses Hello. Attempting to join in on my mobile as I’m in the kitchen ??. See if I can keep up #UroOncInCharge https:/…
@UroOncDan
15 April 2021 20:05
@tj66spencer @WeNurses Agree. I remember feeling embarrassed when I went to my GP about GI issues. When I look back it seems silly because they’ve seen/heard it all before, and I’m a nurse so I should’ve known that! #UroOncInCharge
@shiv_smith
15 April 2021 20:05
RT @AgencyNurse: Interesting question ... but perhaps being seen as vulnerable may have a part to play ? #UroOncInCharge
@shiv_smith
15 April 2021 20:05
RT @ethansgrumps: @WeNurses #UroOncInCharge that’s an easy one. We don’t know about #prostatecancer When I was dx’d age 60 I’d had no idea…
@CraigDavidson85
15 April 2021 20:05
@WeNurses I think a lot of it is to do with societal conditioning. Particularly in the West of Scotland many men do not feel able or willing to open up about their health needs #UroOncInCharge
@tanishawynx
15 April 2021 20:05
@WeNurses From a mental health p-o-v, I think men don’t end up seeking advice due to a stigma of needing to be “manly” and always look like the strong person #UroOncInCharge
@WeNurses
15 April 2021 20:06
@tanishawynx Very good point here #UroOncInCharge
@CraigDavidson85
15 April 2021 20:06
@WeNurses Hello hello #UroOncInCharge
@AgencyNurse
15 April 2021 20:06
@WeNurses one thing i vividly remember from p2k sociology lectures was that 'women get sick & men die' ... wonder if that's still the case ... we do see lots more women in elderly care #UroOncInCharge
@WeNurses
15 April 2021 20:06
@CraigDavidson85 Thank you for joining Craig great to have you online #UroOncInCharge
@WeNurses
15 April 2021 20:07
@AgencyNurse Very interesting point as I recall those lectures #UroOncInCharge
@WeNurses
15 April 2021 20:07
RT @CraigDavidson85: @WeNurses Hello hello #UroOncInCharge
@shiv_smith
15 April 2021 20:08
RT @CraigDavidson85: @WeNurses Hello hello #UroOncInCharge
@shiv_smith
15 April 2021 20:08
RT @WeNurses: @tanishawynx Very good point here #UroOncInCharge
@ethansgrumps
15 April 2021 20:08
@tanishawynx @WeNurses #UroOncInCharge I’m not convinced about that entirely. When I do my awareness talks many men are easily convinced to get tested
@AgencyNurse
15 April 2021 20:08
@CraigDavidson85 @WeNurses yes good point - men seen as strong bread winners ..... showing any sort of 'weakness' can be a huge step #UroOncInCharge
@FeralMother44
15 April 2021 20:08
@WeNurses Pride, embarrassment, fear, that horrible phrase ‘just man up’ false info shared by other men, laziness, hoping it will just go away, google ‘dr’ #UroOncInCharge
@shiv_smith
15 April 2021 20:09
@CraigDavidson85 @WeNurses Culture could also have an impact #UroOncInCharge
@WeNurses
15 April 2021 20:09
RT @ethansgrumps: @tanishawynx @WeNurses #UroOncInCharge I’m not convinced about that entirely. When I do my awareness talks many men are e…
@UroOncDan
15 April 2021 20:09
@ethansgrumps @WeNurses Thus highlighting the importance of men’s health and health promotion, which is what you do so thank you! #UroOncInCharge
@AgencyNurse
15 April 2021 20:10
RT @ethansgrumps: @tanishawynx @WeNurses #UroOncInCharge I’m not convinced about that entirely. When I do my awareness talks many men are e…
@WeNurses
15 April 2021 20:11
@ethansgrumps @tanishawynx That's good to hear Tony however, feedback in hospitals, clinic and wards is of not raising concerns especially for those with lumps on the testis or penis #testicularcancer #penilecancer #UroOncInCharge
@sprod_karen
15 April 2021 20:11
@WeNurses Also access to services ie the feeling men can’t take time off work. GP opening times. Maybe also afraid of what might be wrong #UroOncInCharge
@Michelle_Barts
15 April 2021 20:11
@shiv_smith @CraigDavidson85 @WeNurses What about the impact of age? #UroOncInCharge
@CraigDavidson85
15 April 2021 20:12
@ethansgrumps @WeNurses @tanishawynx Maybe that goes to show that positive role modelling goes a long way in men’s health. Also, having someone with similar shared lived experience may encourage other men to open up #UroOncInCharge
@AgencyNurse
15 April 2021 20:12
@sprod_karen @WeNurses i also wonder if men come into contact with as many health messages as women .... changed in recent years with campaigns such a movember etc #UroOncInCharge
@WeNurses
15 April 2021 20:13
Question 2: How can we improve male access to services? #UroOncInCharge https://t.co/l1rCEmPmiD
@ethansgrumps
15 April 2021 20:13
@WeNurses @tanishawynx #UroOncInCharge very different where lumps and bumps are concerned. PCa is more invisible until it’s too late
@WeNurses
15 April 2021 20:13
#UroOncInCharge https://twitter.com/sprod_karen/status/1382773063847133184
@WeNurses
15 April 2021 20:13
RT @shiv_smith: @CraigDavidson85 @WeNurses Culture could also have an impact #UroOncInCharge
@UroOncDan
15 April 2021 20:13
RT @WeNurses: Question 2: How can we improve male access to services? #UroOncInCharge https://t.co/l1rCEmPmiD
@AgencyNurse
15 April 2021 20:13
#UroOncInCharge https://twitter.com/CliveSpindley/status/1382773838182805511
@Itsontheball
15 April 2021 20:13
@WeNurses ?? #UroOncInCharge
@shiv_smith
15 April 2021 20:13
RT @ethansgrumps: @WeNurses @tanishawynx #UroOncInCharge very different where lumps and bumps are concerned. PCa is more invisible until it…
@shiv_smith
15 April 2021 20:13
RT @WeNurses: Question 2: How can we improve male access to services? #UroOncInCharge https://t.co/l1rCEmPmiD
@shiv_smith
15 April 2021 20:14
RT @Michelle_Barts: @shiv_smith @CraigDavidson85 @WeNurses What about the impact of age? #UroOncInCharge
@sondrawomen
15 April 2021 20:14
RT @WeNurses: Question 2: How can we improve male access to services? #UroOncInCharge https://t.co/l1rCEmPmiD
@sprod_karen
15 April 2021 20:14
#UroOncInCharge https://twitter.com/wenurses/status/1382773999327969297
@ethansgrumps
15 April 2021 20:14
@CraigDavidson85 @WeNurses @tanishawynx #UroOncInCharge yes that may well be but the lived experience of someone with my story is a powerful convincer
@shiv_smith
15 April 2021 20:14
Excellent point #UroOncInCharge https://twitter.com/feralmother44/status/1382772924298502144
@FeralMother44
15 April 2021 20:14
RT @WeNurses: Question 1: What do you think stops men seeking advice? #UroOncInCharge https://t.co/7T6iUiNkdY
@AgencyNurse
15 April 2021 20:14
Really interested to hear peoples thoughts on this #UroOncInCharge https://twitter.com/WeNurses/status/1382773999327969297
@WeNurses
15 April 2021 20:15
RT @Michelle_Barts: @shiv_smith @CraigDavidson85 @WeNurses What about the impact of age? #UroOncInCharge
@Stuart4Lees
15 April 2021 20:15
@WeNurses I think many men, myself included, just don’t genuinely believe there’s anything seriously wrong enough to warrant seeing the GP or getting advice? #UroOncInCharge
@CraigDavidson85
15 April 2021 20:15
@Michelle_Barts @shiv_smith @WeNurses Generally, I think men my age are more likely to open up to healthcare professionals than the older generation, again to do with societal conditioning. We’ve seen great public health awareness campaigns encouraging men to talk about their mental & physical health #UroOncInCharge
@AgencyNurse
15 April 2021 20:16
#UroOncInCharge https://twitter.com/barry578/status/1382774517257408519
@Fifer4Indy
15 April 2021 20:16
RT @WeNurses: Question 2: How can we improve male access to services? #UroOncInCharge https://t.co/l1rCEmPmiD
@Fifer4Indy
15 April 2021 20:16
RT @WeNurses: Question 1: What do you think stops men seeking advice? #UroOncInCharge https://t.co/7T6iUiNkdY
@WeNurses
15 April 2021 20:16
@Michelle_Barts @shiv_smith @CraigDavidson85 As you know Michelle age barriers are a massive issue what works for older individuals might not suit younger teenage, young adults #TYA or those with #LearningDisability #UroOncInCharge
@CraigDavidson85
15 April 2021 20:16
@ethansgrumps @WeNurses @tanishawynx Oh, I absolutely agree which is why I am so in favour of patient peer support groups #UroOncInCharge
@shiv_smith
15 April 2021 20:16
RT @ethansgrumps: @tanishawynx @WeNurses #UroOncInCharge I’m not convinced about that entirely. When I do my awareness talks many men are e…
@AgencyNurse
15 April 2021 20:17
@WeNurses husband says open after work and at weekends ... but also says this would be the same for anyone male or female #UroOncInCharge
@sprod_karen
15 April 2021 20:17
@lydia81400898 @shiv_smith @WeNurses Welcome and hello! Reply to the questions and add #UroOncInCharge to each tweet so we can see your comments ??
@sondrawomen
15 April 2021 20:17
RT @WeNurses: Evening all, thanks for joining us! Shiv, Dan & Michelle here via WeNurses and tonight's handle is again #UroOncInCharge Plea…
@AgencyNurse
15 April 2021 20:17
RT @shiv_smith: Excellent point #UroOncInCharge https://twitter.com/feralmother44/status/1382772924298502144
@WeNurses
15 April 2021 20:18
@AgencyNurse A very good point and this is something we have discussed as a team unfortunately some of the services close so we would need a business case #UroOncInCharge
@shiv_smith
15 April 2021 20:18
RT @sprod_karen: @lydia81400898 @shiv_smith @WeNurses Welcome and hello! Reply to the questions and add #UroOncInCharge to each tweet so…
@Ushert
15 April 2021 20:18
RT @ethansgrumps: @WeNurses #UroOncInCharge that’s an easy one. We don’t know about #prostatecancer When I was dx’d age 60 I’d had no idea…
@shiv_smith
15 April 2021 20:18
@sprod_karen @lydia81400898 @WeNurses Thanks Karen x #UroOncInCharge
@WeNurses
15 April 2021 20:19
RT @sprod_karen: @lydia81400898 @shiv_smith @WeNurses Welcome and hello! Reply to the questions and add #UroOncInCharge to each tweet so…
@WeNurses
15 April 2021 20:19
@lydia81400898 @sprod_karen @shiv_smith Hey Lydia, say what you wish and add the hashtag #UroOncInCharge
@shiv_smith
15 April 2021 20:19
RT @WeNurses: @lydia81400898 @sprod_karen @shiv_smith Hey Lydia, say what you wish and add the hashtag #UroOncInCharge
@CraigDavidson85
15 April 2021 20:20
@WeNurses Not exclusive to men, but we need primary care services that are more work hours friendly, patient peer support groups are essential to aid in sharing lived experiences to encourage opening up, and targeted public health campaigning #UroOncInCharge
@AgencyNurse
15 April 2021 20:20
@CraigDavidson85 @Michelle_Barts @shiv_smith @WeNurses I still see reluctance to access healthcare in my sons (20 & 22)... but admittedly some of that is due to the frustration that millenials feel at not being able to access things online and straight away #UroOncInCharge
@ethansgrumps
15 April 2021 20:20
@WeNurses Would be a good starting point if we could educate some GP’s better and make sure none simply refuse PSA tests #UroOncInCharge
@shiv_smith
15 April 2021 20:20
@AgencyNurse @WeNurses This is why our support group is after hours & a drop in as you can group without pressure #UroOncInCharge @Michelle_Barts @UroOncDan
@AgencyNurse
15 April 2021 20:20
yup - this #UroOncInCharge https://twitter.com/WeNurses/status/1382774849194622976
@shiv_smith
15 April 2021 20:20
RT @AgencyNurse: #UroOncInCharge
@shiv_smith
15 April 2021 20:21
RT @AgencyNurse: Really interested to hear peoples thoughts on this #UroOncInCharge
@AgencyNurse
15 April 2021 20:21
@shiv_smith @WeNurses @Michelle_Barts @UroOncDan wow ace idea #UroOncInCharge
@sprod_karen
15 April 2021 20:21
#UroOncInCharge #menshealth https://twitter.com/craigdavidson85/status/1382775745114742786
@WeNurses
15 April 2021 20:21
RT @AgencyNurse: @shiv_smith @WeNurses @Michelle_Barts @UroOncDan wow ace idea #UroOncInCharge
@AgencyNurse
15 April 2021 20:21
@myGP_app @sprod_karen @WeNurses thanks for sharing will take a look #UroOncInCharge
@WeNurses
15 April 2021 20:21
RT @AgencyNurse: yup - this #UroOncInCharge
@AgencyNurse
15 April 2021 20:22
RT @sprod_karen: #UroOncInCharge #menshealth https://twitter.com/craigdavidson85/status/1382775745114742786
@WeNurses
15 April 2021 20:22
@ethansgrumps Absolutely Tony health promotional the way #UroOncInCharge
@sprod_karen
15 April 2021 20:22
@myGP_app @AgencyNurse @WeNurses Thank you, will take a look after the chat or I won’t keep up #UroOncInCharge
@CraigDavidson85
15 April 2021 20:23
@AgencyNurse @Michelle_Barts @shiv_smith @WeNurses Yeah I agree. The way primary care services are arranged fitting strict working hours is not ideal. It would be great to find out why they’re reluctant. Maybe we need to target school aged boys not to be embarrassed to discuss their health issues. A societal shift #UroOncInCharge
@AgencyNurse
15 April 2021 20:23
welcome - and never too late :D #UroOncInCharge https://twitter.com/UCAREoxford/status/1382776393516388354
@andy_gabriel
15 April 2021 20:23
Completely agree here. Just had 8 men on a new support #prostatecancer group for the first time. In no time, they're talking about hot flushes, and then ED, pump clinics, etc. None of them would have been comfortable to do that outside of the safe meeting space. #UroOncInCharge https://twitter.com/CraigDavidson85/status/1382774880869961737
@NRCUK
15 April 2021 20:24
@WeNurses 1. Proactively communicate with those at risk (though this is against @NHSEngland data policy) 2. Make it easier to engage with NHS via tech 3. Not block access to help via GPs with an 8:30am lottery call, too late by 8:31 4. Be open more 5. Same for women! #UroOncInCharge
@UroOncDan
15 April 2021 20:24
@shiv_smith @AgencyNurse @WeNurses @Michelle_Barts Support groups help get men talking about their health and has health promotion benefits #UroOncInCharge
@WeNurses
15 April 2021 20:24
@CraigDavidson85 @AgencyNurse @Michelle_Barts @shiv_smith Some charities are providing education but I wonder if other HCPs should be doing this? #UroOncInCharge
@WeNurses
15 April 2021 20:24
#UroOncInCharge https://twitter.com/winn_on_health/status/1382776465264115715
@AgencyNurse
15 April 2021 20:24
@CraigDavidson85 @Michelle_Barts @shiv_smith @WeNurses i'm not sure it's embarrassment (speaking as a mum here and don't know any evidence) perhaps more not wanting to bother anyone #UroOncInCharge
@WeNurses
15 April 2021 20:25
@Winn_on_Health @ethansgrumps Perhaps family history of CaP, genetics, black #BAME risk #UroOncInCharge
@ethansgrumps
15 April 2021 20:25
@Winn_on_Health @WeNurses Some of them don’t appear to be up to date on the latest #prostatecancer diagnostic pathway and are stuck with old thinking that PSA tests are not good but that’s cos they think of them as diagnostic tests rather than indicator tests #UroOncInCharge
@andy_gabriel
15 April 2021 20:25
There's a serious problem with the advice GP's get from @rcgp, which is out of date. #UroOncInCharge https://twitter.com/ethansgrumps/status/1382775878040584196
@AgencyNurse
15 April 2021 20:26
@WeNurses @CraigDavidson85 @Michelle_Barts @shiv_smith there is a huge role here for making every contact count #UroOncInCharge
@WeNurses
15 April 2021 20:26
Question 3: Are there emotional / social factors that prevent males seeking support? #UroOncInCharge https://t.co/KP24796YIq
@AgencyNurse
15 April 2021 20:26
wow that sounds almost revolutionary !! #UroOncInCharge https://twitter.com/firogers3/status/1382777259342323715
@aimzjordan
15 April 2021 20:26
Hi! Maybe have travelling awareness/assessment hubs at workplaces predominantly men work? Such as building sites, office blocks carparks for certain employers etc. That way men can pop in on their way home/break? Cups of tea and biscuits to get them in the door! #UroOncInCharge
@Michelle_Barts
15 April 2021 20:26
@Stuart4Lees @WeNurses @shiv_smith @CraigDavidson85 Suspect they mainly attend to ask the questions the men won’t ask #UroOncInCharge
@WeNurses
15 April 2021 20:27
@firogers3 @CraigDavidson85 @AgencyNurse @Michelle_Barts @shiv_smith @WeSchoolNurses @SAPHNAsharonOBE Very sad this is no longer funded Fiona, thank you for joining the chat #UroOncInCharge
@AgencyNurse
15 April 2021 20:27
RT @WeNurses: Question 3: Are there emotional / social factors that prevent males seeking support? #UroOncInCharge https://t.co/KP24796YIq
@WeNurses
15 April 2021 20:27
#UroOncInCharge https://twitter.com/Stuart4Lees/status/1382777149195702277
@WeNurses
15 April 2021 20:27
#UroOncInCharge https://twitter.com/UCAREoxford/status/1382776923663794177
@LeanneHPatrick
15 April 2021 20:27
@WeNurses There's a strong message that men should just get on with things unless something is gravely wrong, so we can't be all that surprised when this is what happens. Deviations from this are seen as weakness or being a "worrier". #UroOncInCharge
@UroOncDan
15 April 2021 20:27
@CraigDavidson85 @WeNurses Agreed. Accessibility is key. #UroOncInCharge
@WeNurses
15 April 2021 20:27
#UroOncInCharge https://twitter.com/UCAREoxford/status/1382776393516388354
@Michelle_Barts
15 April 2021 20:27
RT @WeNurses: Question 3: Are there emotional / social factors that prevent males seeking support? #UroOncInCharge https://t.co/KP24796YIq
@WeNurses
15 April 2021 20:27
RT @sprod_karen: @myGP_app @AgencyNurse @WeNurses Thank you, will take a look after the chat or I won’t keep up #UroOncInCharge
@sprod_karen
15 April 2021 20:28
@myGP_app @AgencyNurse @WeNurses I’ve written things down and given a piece of paper to the receptionist. Not because I’m embarrassed, or bothered about telling the receptionist. It’s the polite nod when you spot one of your neighbours #UroOncInCharge
@WeNurses
15 April 2021 20:28
#UroOncInCharge https://twitter.com/BoaduMagdaline/status/1382776290202296324
@CraigDavidson85
15 April 2021 20:28
This is what my dissertation of the “lived experiences of men who have sex with men” featured heavily. MSM have specific needs differing from their heterosexual peers. Tailored patient peer support is so important for all @WeNurses #UroOncInCharge https://twitter.com/andy_gabriel/status/1382776666334842885
@ethansgrumps
15 April 2021 20:28
@WeNurses @Winn_on_Health I’ve heard of GP’s refusing men in risk groups who have a family history of #prostatecancer a PSA blood test! #UroOncInCharge
@WeNurses
15 April 2021 20:28
@BoaduMagdaline @shiv_smith @Michelle_Barts @UroOncDan Do you think this is slowly changing? #UroOncInCharge
@WeNurses
15 April 2021 20:28
RT @AgencyNurse: @myGP_app @sprod_karen @WeNurses thanks for sharing will take a look #UroOncInCharge
@WeNurses
15 April 2021 20:29
#UroOncInCharge https://twitter.com/myGP_app/status/1382776058068492289
@BoaduMagdaline
15 April 2021 20:29
@WeNurses @shiv_smith @Michelle_Barts @UroOncDan Socio-demographic factors can be a reason why men feel reluctant to see their GPs. Research has shown that men who live "outside of a major city" are less likely to seek medical support. #UroOncInCharge
@Winn_on_Health
15 April 2021 20:29
@WeNurses I'm coming late to the Chat: Is there strong. consistent evidence that access to services needs to be improved for men? -Which cohorts of me? -Where are they? -What are they telling us holds them back? #UroOncInCharge
@CraigDavidson85
15 April 2021 20:29
@AgencyNurse @Michelle_Barts @shiv_smith @WeNurses I wonder if that’s exclusive to boys or if younger women feel the same @FeministRCN #UroOncInCharge
@LeanneHPatrick
15 April 2021 20:29
@WeNurses Getting the messaging right about screening and seeking healthcare will help but we need to address the context of men's shame and the wider social narratives before we we will see a really significant change #UroOncInCharge
@sprod_karen
15 April 2021 20:30
#UroOncInCharge https://twitter.com/urooncdan/status/1382776791933325314
@UroOncDan
15 April 2021 20:30
@WeNurses My GP made people wait outside to book an appointment if they wanted one the same day (pre Covid), either that or you had to phone between 8-8:30am. Sometimes it’s just impossible to get an appointment. #UroOncInCharge
@shiv_smith
15 April 2021 20:31
@CraigDavidson85 @WeNurses I can’t wait to see this published! As a team we try to not use #menshealth so we do not exclude #LGBTQ groups #Trans especially #UroOncInCharge
@sprod_karen
15 April 2021 20:31
#UroOncInCharge https://twitter.com/andy_gabriel/status/1382776666334842885
@AgencyNurse
15 April 2021 20:31
@CraigDavidson85 @Michelle_Barts @shiv_smith @WeNurses @FeministRCN well as the mum of 14 year old girl too she most definitely talks about everything that is wrong ! #UroOncInCharge (again no evidence - just a mum tweet)
@WeNurses
15 April 2021 20:31
@sprod_karen @myGP_app @AgencyNurse Agree! #UroOncInCharge
@WeNurses
15 April 2021 20:31
RT @UroOncDan: @CraigDavidson85 @WeNurses Agreed. Accessibility is key. #UroOncInCharge
@WeNurses
15 April 2021 20:31
@LeanneHPatrick Great example #UroOncInCharge
@aimzjordan
15 April 2021 20:31
@WeNurses Yes, definitely the fear of what they might discover? It's one of those if you don't look you won't find kind of situations for most men I imagine ?? #UroOncInCharge
@NRCUK
15 April 2021 20:32
@CraigDavidson85 @AgencyNurse @Michelle_Barts @shiv_smith @WeNurses Not embarrassment - if they can’t do it via a phone then clearly it can’t be that important. You still have to go to your GP to set up digital access to prove who you are, but don’t need to prove who you are to visit them. Perverse money driven risk/barriers #UroOncInCharge
@CraigDavidson85
15 April 2021 20:32
@Stuart4Lees @WeNurses @Michelle_Barts @shiv_smith Another feature or my dissertation on “lived experiences of prostate cancer for men who have sex with men”. While heterosexual men very often attend with their spouses/partners, many MSM felt their partners were unwelcome by HCPs. We need to think of all men #UroOncInCharge
@AgencyNurse
15 April 2021 20:32
oh wow really ! #UroOncInCharge https://twitter.com/BoaduMagdaline/status/1382778082583584771
@CraigDavidson85
15 April 2021 20:32
@firogers3 @WeNurses @AgencyNurse @Michelle_Barts @shiv_smith @WeSchoolNurses @SAPHNAsharonOBE That’s a real pity #UroOncInCharge
@lydia81400898
15 April 2021 20:32
@WeNurses I think government initiatives such as tv/ radio adverts are a great way to raise awareness. I think once people have seen these types of health promotion they are more likely to take any symptom they have more seriously and seek help #UroOncInCharge
@WeNurses
15 April 2021 20:33
@aimzjordan Yes, these are great ideas. Michelle & Shiv had discussions with a taxi company.....still awaiting their go ahead sadly but this will be great!! #UroOncInCharge
@UCAREoxford
15 April 2021 20:33
@WeNurses Older generation don’t want to ‘bother’ the doctor. It’s going to go away. It’s part of aging anyway etc #UroOncinCharge
@ethansgrumps
15 April 2021 20:33
@LeanneHPatrick @WeNurses They think I’d had #prostatecancer for 10 years when I was diagnosed incurable aged 60. I’d had no symptoms. Until we screen properly this will continue #UroOncInCharge
@shiv_smith
15 April 2021 20:33
RT @ethansgrumps: @CraigDavidson85 @WeNurses @tanishawynx #UroOncInCharge yes that may well be but the lived experience of someone with my…
@SimonMDLord
15 April 2021 20:33
@WeNurses Perhaps the issue lies in education. Men need to be more aware of changes in their bodies and feel more at home consulting 1y care earlier. Late diagnosis of Ca is far greater in men w obvious poorer outcomes. #UroOncInCharge
@WeNurses
15 April 2021 20:33
RT @AgencyNurse: wow that sounds almost revolutionary !! #UroOncInCharge https://twitter.com/firogers3/status/1382777259342323715
@CraigDavidson85
15 April 2021 20:34
@shiv_smith @WeNurses I am trying my best. Ask @MarkHayter1. Just have so much going on #UroOncInCharge
@CraigDavidson85
15 April 2021 20:34
@AgencyNurse @Michelle_Barts @shiv_smith @WeNurses @FeministRCN Think we need to get digging for some evidence!! #UroOncInCharge
@ethansgrumps
15 April 2021 20:34
@aimzjordan @WeNurses @ProstateUK do that using volunteer speakers like me but we can’t access everywhere #UroOncInCharge
@LeanneHPatrick
15 April 2021 20:34
@aimzjordan @WeNurses Mobile screening particularly important for teaching travelling communities who may not be able to access healthcare via traditional means. #UroOncInCharge
@WeNurses
15 April 2021 20:34
@lydia81400898 Excellent points Lydia #UroOncInCharge
@NRCUK
15 April 2021 20:35
@WeNurses No - it’s more about the impact on their time. Many remain the bread winners and the thought of time ofd and financial impact of being ill is burdensome. We will have to wait a generation or two before those most at risk (over 50s?) aren’t significant earners? #UroOncInCharge
@Winn_on_Health
15 April 2021 20:35
@ethansgrumps @WeNurses In the practice of medicine (& nursing) we find a great deal of variation in many areas: (It's also found in many other aspects of professional life). #UroOncInCharge
@UroOncDan
15 April 2021 20:35
@WeNurses I think progress is being made. Social media and TV etc are helping. #ItsASin for example has had a big impact on a lot of people to get tested for HIV as per articles I’ve read about it. #UroOncInCharge
@AgencyNurse
15 April 2021 20:36
At school i clearly remember the girls all been taken out of class to have the period talk ...the boys just carried on with class ... ok i am quite old now and hope things have changed but perhaps a wasted opportunity that we are seeing the repercussions of now ? #UroOncInCharge
@WeNurses
15 April 2021 20:36
@CraigDavidson85 @Stuart4Lees @Michelle_Barts @shiv_smith This needs to change! Tons of work completed by @RainbowNHSBadge which has started to improve this (we hope!) #UroOncInCharge
@LeanneHPatrick
15 April 2021 20:36
@ethansgrumps @WeNurses Yes I agree, that's an important point. Early detection is key and screening should be robust first and foremost. #UroOncInCharge
@Shaun_LDNurse
15 April 2021 20:36
@WeNurses Hmmm... I’m not sure on this. I’d have to check the literature, but in my experience regardless of gender [or any other characteristic] people who experience health anxiety, or choose not to engage with health promotion, are reluctantly #UroOncInCharge #WeNurses
@AgencyNurse
15 April 2021 20:37
@CraigDavidson85 @Michelle_Barts @shiv_smith @WeNurses @FeministRCN yes indeed - would be interested to know #UroOncInCharge
@andy_gabriel
15 April 2021 20:37
Many GP's still refer to this 8 year old graphic, which is way out of date today, what with implementation of PROMIS and improved risk stratification. This misunderstanding costs lives unnecessarily. #UroOncInCharge https://twitter.com/Winn_on_Health/status/1382776465264115715 https://t.co/NR4FETVPg0
@WeNurses
15 April 2021 20:37
Question 4: Can we improve barriers to healthcare for men? #UroOncInCharge https://t.co/zntHAl9Toi
@WeNurses
15 April 2021 20:38
#UroOncInCharge https://twitter.com/stuart4lees/status/1382778399094153220
@AgencyNurse
15 April 2021 20:38
interesting to know and yes could be a combination of factors #UroOncInCharge https://twitter.com/Stuart4Lees/status/1382780080137629701
@sprod_karen
15 April 2021 20:38
#UroOncInCharge https://twitter.com/wenurses/status/1382780087372820484
@samabdulla
15 April 2021 20:38
@AgencyNurse I don’t think we have moved past that, and the separation and othering of education is a real problem IMO. #UroOncInCharge
@SimonMDLord
15 April 2021 20:38
@AgencyNurse @WeNurses @sprod_karen Generally nen have far fewer 1y interactions in their 20s/30s than women so are less used to talking about needs/changes. I'm certain that education has to improve. I was really only aware of PCa after my father's benign prostate issues. #UroOncInCharge
@CraigDavidson85
15 April 2021 20:38
Another feature of my dissertation on “lived experiences of prostate cancer for men who have sex with men”. While heterosexual men often attend with their spouses/partners, many MSM felt their partners were unwelcome by HCPs. We need to think of all men @WeNurses #UroOncInCharge https://twitter.com/stuart4lees/status/1382777149195702277
@WeNurses
15 April 2021 20:39
#UroOncInCharge https://twitter.com/firogers3/status/1382780432610168838
@WeNurses
15 April 2021 20:39
#UroOncInCharge https://twitter.com/Stuart4Lees/status/1382780080137629701
@Winn_on_Health
15 April 2021 20:39
@WeNurses I wish I knew! From work I did in the 80s research indicated that men didn't like to see themselves as 'ill'. If I was involved in this work again I would definitely be delving into 'why' that might be the case. Sadly I/we didn't back then. #UroOncInCharge
@UroOncDan
15 April 2021 20:40
@Winn_on_Health @WeNurses Through experience working in the testicular cancer clinic, I’ve spoken to some lads who told me they noticed a lump on their testis but ignored it because assumed it was nothing, couldn’t access their GP during COVID or even felt embarrassed. #UroOncInCharge
@WeNurses
15 April 2021 20:40
@UroOncDan Very good point Dan! #UroOncInCharge
@UroOncDan
15 April 2021 20:40
RT @WeNurses: Question 3: Are there emotional / social factors that prevent males seeking support? #UroOncInCharge https://t.co/KP24796YIq
@shiv_smith
15 April 2021 20:41
Excellent point Leanne! #UroOncInCharge https://twitter.com/leannehpatrick/status/1382779477126680578
@ethansgrumps
15 April 2021 20:41
@WeNurses Similar answer to one of my previous ones in that some GP’s are barriers to early diagnosis #UroOncInCharge
@samabdulla
15 April 2021 20:41
It’s been said a few times by @CraigDavidson85 buy a major societal shift in “men’s behaviour” is need. Toxic ideas of masculinity need to be broken down #UroOncInCharge https://twitter.com/wenurses/status/1382780087372820484
@WeNurses
15 April 2021 20:41
RT @ethansgrumps: @aimzjordan @WeNurses @ProstateUK do that using volunteer speakers like me but we can’t access everywhere #UroOncInCharge
@Shaun_LDNurse
15 April 2021 20:42
@WeNurses From a #Nursing perspective one element of making services more accessible, IMO, is making the profession more aware and knowledgeable of specific issues and concerns relevant to that population and this starts in education [where it’s lacking] - #UroOncInCharge.
@FeralMother44
15 April 2021 20:42
@AgencyNurse @CraigDavidson85 @Michelle_Barts @shiv_smith @WeNurses @FeministRCN As Mum to a 16 yro lad they do the opposite often asks almost for a friend when he means himself, or he’d heard or seen somewhere - then the “Ye, ye, ye,” shutdown when he’s heard enough I’ve always encouraged being open to chatting but peer influence is strong #UroOncInCharge
@BoaduMagdaline
15 April 2021 20:42
@WeNurses @shiv_smith @Michelle_Barts @UroOncDan I think it is gradually changing. However, more needs to done with respect to health promotion. #UroOncInCharge
@lydia81400898
15 April 2021 20:42
@WeNurses I assist in cystoscopy and one of the biggest barriers is the possible prognosis of cancer. I have known both male and females repeatedly cancel appointments over this fear. However a really good consultation with the patient helps to avoid this. #UroOncInCharge
@AgencyNurse
15 April 2021 20:42
@samabdulla I must make a point of asking the teenager in the house if things have changed ... i hope that mens health is covered more these days ... but ignoring for so many years has surely had an impact (no evidence only observation) #UroOncInCharge
@CraigDavidson85
15 April 2021 20:42
@WeNurses I think a lot of men still feel the need to be seen as being “strong”, to not “complain” or be seen as a “trouble”. Leads to increased mortality as things are detected later. I think recent public health initiatives are improving things but more needs to be done #UroOncInCharge
@WeNurses
15 April 2021 20:42
RT @ethansgrumps: @WeNurses Similar answer to one of my previous ones in that some GP’s are barriers to early diagnosis #UroOncInCharge
@Winn_on_Health
15 April 2021 20:43
@UroOncDan @WeNurses It would be enlightening to look at pre- and post COVID comparisons of patient rationale for: -Ignoring signs -abilities to secure appointments ... and we defintiely need to look at this in the era of eConsultations and Remote consults. #UroOncInCharge
@AgencyNurse
15 April 2021 20:43
@SimonMDLord @WeNurses @sprod_karen interesting to know thank you #UroOncInCharge
@samabdulla
15 April 2021 20:44
@AgencyNurse I’d love to think we will to a point where we have young people learning about their own and each other sex based health needs #UroOncInCharge
@aimzjordan
15 April 2021 20:44
@WeNurses Improve? Yes! Health Education is key. Targeted ads on facebook/instagram rather than seeing clothing company ads ?? TV ads! Ads on the tv in gp surgeries too? Which might prompt them to ask whilst already in the building rather than having to make a specific appt #UroOncInCharge
@AgencyNurse
15 April 2021 20:44
@FeralMother44 @CraigDavidson85 @Michelle_Barts @shiv_smith @WeNurses @FeministRCN yes have seen this pattern with our two older sons too #UroOncInCharge
@UCAREoxford
15 April 2021 20:44
@WeNurses Are they also driven to seek help by wife partner etc #UroOncInCharge
@UroOncDan
15 April 2021 20:44
RT @WeNurses: Question 4: Can we improve barriers to healthcare for men? #UroOncInCharge https://t.co/zntHAl9Toi
@andy_gabriel
15 April 2021 20:45
Takeup by BME is low, combined with their double risk of #prostatecancer. This means they are dx'd later stage with less good outcomes. Cultural issues a big thing. There has been some success taking screening into their own communities, and drop-in, not booked. #UroOncInCharge https://twitter.com/Winn_on_Health/status/1382778112002375688
@AgencyNurse
15 April 2021 20:45
@samabdulla with you 100% on that one #UroOncInCharge
@WeNurses
15 April 2021 20:45
@FeralMother44 @AgencyNurse @CraigDavidson85 @Michelle_Barts @shiv_smith @FeministRCN Great point Sarah, if you are open with your children at a young age they grow up being able to discuss concerns Issues historically have been highlighted due to men not being able to express these opinions due to peer / family influence #UroOncInCharge
@Winn_on_Health
15 April 2021 20:45
@UroOncDan @WeNurses And it would be useful to discern why other patients sought assistance/advice #UroOncInCharge
@CraigDavidson85
15 April 2021 20:46
@WeNurses Early health education to school children, public health education on men’s health issues, such as testicular and prostate cancer etc., earlier screening to decrease morbidity and mortality rates #UroOncInCharge
@NRCUK
15 April 2021 20:46
I absolutely love chats like #UroOncInCharge ?????? So many folks tweeting with so much passion for ground up change, BUT: Until NHS modernises, changing the fundamental building blocks and moves to prevention and outcome based commissioning, very little will change #keeptrying https://t.co/TEuIlcGrQb
@UroOncDan
15 April 2021 20:46
@WeNurses I think some people are afraid to discuss their health. When some people hear cancer, they assume death. They don’t see a curative side. So if there’s something wrong, I suspect there’s people out there who become too anxious to get get checked in case it’s bad. #UroOncInCharge
@WeNurses
15 April 2021 20:47
@Winn_on_Health @UroOncDan We have just audited our Germ cell practice and the #TesticularCancer diagnosis appear to be very similar, not sure that's the case for other cancers including in #Urology #UroOncInCharge
@FeralMother44
15 April 2021 20:47
@AgencyNurse @CraigDavidson85 @Michelle_Barts @shiv_smith @WeNurses @FeministRCN Happy to look on youtube 1st before asking parents sometimes - so I wonder if that’s the younger equivalent, of asking Dr. Google rather than at GP’s? #UroOncInCharge
@WeNurses
15 April 2021 20:47
#UroOncInCharge https://twitter.com/FeralMother44/status/1382781596189794308
@WeNurses
15 April 2021 20:47
RT @AgencyNurse: @SimonMDLord @WeNurses @sprod_karen interesting to know thank you #UroOncInCharge
@WeNurses
15 April 2021 20:47
#UroOncInCharge https://twitter.com/Stuart4Lees/status/1382781743216922625
@Winn_on_Health
15 April 2021 20:48
@andy_gabriel Sadly this 'take-up' situation issomething we have seen repeated in many medical scenarios, and during the SARS-CoV-2 pandemic. #UroOncInCharge
@WeNurses
15 April 2021 20:49
@Stuart4Lees @CraigDavidson85 @Michelle_Barts @shiv_smith We see a number of same sex couples and a few #Trans individuals. They are open with us & it is refreshing to be able to support them #UroOncInCharge
@WeNurses
15 April 2021 20:49
RT @UCAREoxford: @WeNurses Are they also driven to seek help by wife partner etc #UroOncInCharge
@Shaun_LDNurse
15 April 2021 20:49
@WeNurses If we are to start at one of [many] sources it’ll mean overhauling pre-reg #Nursing education so specific-population health actually features properly and substantial [e.g. gender (etc) male health, female health, trans health (etc)]. #UroOncInCharge
@AgencyNurse
15 April 2021 20:49
Interesting discussion between me and Mr C on the couch here .... women seem to have more permission to talk about health in society than men #UroOncInCharge
@shiv_smith
15 April 2021 20:50
Last question Question 5: How can we engage men to talk about healthcare? #UroOncInCharge
@shiv_smith
15 April 2021 20:50
RT @shiv_smith: Last question Question 5: How can we engage men to talk about healthcare? #UroOncInCharge
@CraigDavidson85
15 April 2021 20:50
@WeNurses We need to change societal issues/norms of toxic masculinity. It harms not only women. But clearly affects men’s health too. Men need to feel that they are able to open up and not worry about their masculinity being bruised #UroOncInCharge
@Winn_on_Health
15 April 2021 20:51
@WeNurses @UroOncDan If I'm reading this correctly you'resSuggesting that the SARS-CoV-2 outbreak isn't a significantly contributing factor to appointment hesitancy ... Pl correct me if I'm wrong. #UroOncInCharge
@UroOncDan
15 April 2021 20:51
@aimzjordan @WeNurses Great idea. For example ads for men informing them of the importance of checking their testis once a month, and how to do it for a example. Break that stigma! #UroOncInCharge
@shiv_smith
15 April 2021 20:51
@AgencyNurse That’s interesting as someone working with & empowering men I have a different view. Pink £ defo streets ahead though #UroOncInCharge
@WeNurses
15 April 2021 20:51
RT @Winn_on_Health: @UroOncDan @WeNurses And it would be useful to discern why other patients sought assistance/advice #UroOncInCharge
@NRCUK
15 April 2021 20:52
@samabdulla @CraigDavidson85 I don’t think masculinity could be any more confusing right now if it tried to be! I often say there is no way I would want to be a young man these days #UroOncInCharge
@WeNurses
15 April 2021 20:52
@Winn_on_Health @UroOncDan Its a mixed bag some people present early with small lumps on the testis others have a testicle the size of a small football #UroOncInCharge
@firogers3
15 April 2021 20:52
@AgencyNurse @WeNurses @CraigDavidson85 @Michelle_Barts @shiv_smith @FeministRCN When it’s was Men’s health a teenage boy asked me why isn’t it called men and boys? Who cares about us? #UroOncInCharge
@AgencyNurse
15 April 2021 20:53
@shiv_smith I think that there are great strides being made but in some araes mens health is still playing catchup #UroOncInCharge
@AgencyNurse
15 April 2021 20:53
@firogers3 @WeNurses @CraigDavidson85 @Michelle_Barts @shiv_smith @FeministRCN yes absolutely ! #UroOncInCharge
@shiv_smith
15 April 2021 20:53
#UroOncInCharge https://twitter.com/michelle_barts/status/1382784005800607750
@Winn_on_Health
15 April 2021 20:54
@WeNurses I'm sure we can lower barriers to males seeking healthcare. Vitally we need to discern: What doesn't work for whom and why. (#RealistEvaluation) This will help us redesign services, processes, pathways & communications to males. #UroOncInCharge
@CraigDavidson85
15 April 2021 20:54
How sad is this! Things need to be different for men who have sex with men diagnosed with prostate cancer & other diseases. We know patients can become numb when hearing information & need both emotional support & someone to ask the questions they forget @WeNurses #UroOncInCharge https://twitter.com/stuart4lees/status/1382781743216922625
@Michelle_Barts
15 April 2021 20:54
RT @shiv_smith: Last question Question 5: How can we engage men to talk about healthcare? #UroOncInCharge
@shallyscarlet
15 April 2021 20:54
@CraigDavidson85 @WeNurses Hello #UroOncInCharge
@shiv_smith
15 April 2021 20:54
@Michelle_Barts @Winn_on_Health @WeNurses @UroOncDan Yes I’m stating a fact that we have not seen bigger tumours or increased numbers of metastatic disease which we had hypotheses we would #UroOncInCharge
@aimzjordan
15 April 2021 20:55
@Shaun_LDNurse @WeNurses In regards to this I don't seem to remember learning anything about men's health in university? Perhaps teaching student nurses and medical students would also be a great start! The more we know the more we can share and educate our patients #UroOncInCharge
@UroOncDan
15 April 2021 20:55
RT @shiv_smith: Last question Question 5: How can we engage men to talk about healthcare? #UroOncInCharge
@NRCUK
15 April 2021 20:55
@samabdulla @CraigDavidson85 On one hand we are equal in gender, or there is no gender and then we have a tweetchat acknowledging that a different and more impactful approach to a specific gender is needed - I’m pretty wise but totally confused, my teenage brain would explode today! #UroOncInCharge
@SimonMDLord
15 April 2021 20:55
@WeNurses @Stuart4Lees @CraigDavidson85 @Michelle_Barts @shiv_smith What about a named & trained men's health practitioner (nurse or GP) in each 1y care practice? My GP practice has at least one GP whose bio says she's interested in women's health. #UroOncInCharge eg: https://www.goringwoodcotemedicalpractice.nhs.uk/about-us/our-staff/doctors/
@WeNurses
15 April 2021 20:55
RT @shiv_smith: Last question Question 5: How can we engage men to talk about healthcare? #UroOncInCharge
@Winn_on_Health
15 April 2021 20:55
@Michelle_Barts @WeNurses @UroOncDan Which suggests that service hesitancy has another (Non SARS-CoV-2) basis, in this cohort of patients at least. #UroOncInCharge
@sprod_karen
15 April 2021 20:56
@samabdulla @AgencyNurse Perhaps with boys also receiving the HPV vaccine that will change #UroOncInCharge
@Winn_on_Health
15 April 2021 20:56
@shiv_smith @Michelle_Barts @WeNurses @UroOncDan Thanks. Always good for me to clarify my understanding! #UroOncInCharge
@WeNurses
15 April 2021 20:57
@NRCUK @samabdulla @CraigDavidson85 And why it is so difficult or easy to exclude through gender bias #UroOncInCharge
@shallyscarlet
15 April 2021 20:57
@WeNurses #UroOncInCharge always good for partners to check their partners testes too. I check my hubbys all the time?? and he doesn't seem to mind
@WeNurses
15 April 2021 20:57
@aimzjordan @Shaun_LDNurse Great point Amy! #UroOncInCharge
@WeNurses
15 April 2021 20:57
RT @shallyscarlet: @CraigDavidson85 @WeNurses Hello #UroOncInCharge
@WeNurses
15 April 2021 20:57
RT @AgencyNurse: @firogers3 @WeNurses @CraigDavidson85 @Michelle_Barts @shiv_smith @FeministRCN yes absolutely ! #UroOncInCharge
@WeNurses
15 April 2021 20:58
RT @shallyscarlet: @WeNurses #UroOncInCharge always good for partners to check their partners testes too. I check my hubbys all the time?? a…
@ethansgrumps
15 April 2021 20:58
@shiv_smith @WeNurses We need to encourage more men to be open about their diagnosis, vocal about awareness. It’s defo changing, particularly on Twitter but it’s tough as some men don’t want to be open which we have to respect #UroOncInCharge
@CraigDavidson85
15 April 2021 20:58
@NRCUK @samabdulla My take is we need to acknowledge toxic masculinity is a problem, teach both boys and girls this is unacceptable. We must all be treated equally and safely regardless of sex and gender. But there are specific sex related issues based on genitalia @WeNurses #UroOncInCharge
@WeNurses
15 April 2021 20:58
#UroOncInCharge https://twitter.com/aimzjordan/status/1382785384111869953
@FeralMother44
15 April 2021 20:59
@NRCUK @WeNurses @samabdulla @CraigDavidson85 My 16 yros says his ADHD brain, often feels like this, trying to make sense of peer and health issues - you’d be in good company! #UroOncInCharge
@AgencyNurse
15 April 2021 20:59
I wonder if there are as many touch points with healthcare in mens lives as there are in womens lives ? Genuine question #UroOncInCharge
@andy_gabriel
15 April 2021 20:59
The Gay/Bi men are more open right from the start in LGBTQ+ #prostatecancer support groups too. There's also no pussyfooting around language, whereas in the mainly straight support groups, folks are less sure which words to use. #UroOncInCharge https://twitter.com/WeNurses/status/1382783048761085954




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