#WeComsers - Wednesday 12th August 2015 8pm (GMT Standard Time) Medical records access and understanding

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Hosted by WeCommissioners using #WeComsers

This chat is guest hosted by @NHSEnglandSI @amirhannan

During this chat @NHSIQ will lead a conversation around patient access to, and understanding of, medical records. 

A scheme operating in Haughton Thornley Medical Centres enables patients to have access to their medical records and understand how to use them, so that scale and pace access is stimulated within primary care.  

This tweet chat is aimed at commissioners, GPs, PNs, patients, primary and community care staff and we will be joined by Dr Amir Hannan from the centre.

By having access to their records, patients are more informed about their health condition and treatment, and in a better position to self-manage their health. Patients are involved in joint decision-making, are able to review past consultations and check details of their health ie tests, investigations and letters. They are active partners in their care, which increases their confidence in their treatment. The scheme has been replicated in a number of practices nearby.





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 #WeComsers transcript

 
@shevyuk
12 August 2015 20:00
RT @WeCommissioners: Thinking of joining tonight's chat.... PLEASE add #wecomsers to all your tweets, RTs & responses !! Thnx http://t.co/T…
@WeCommissioners
12 August 2015 20:00
Hello all! Please say hi and introduce yourselves as you arrive :) #wecomsers
@JenKenward
12 August 2015 20:00
RT @WeCommissioners: Thinking of joining tonight's chat.... PLEASE add #wecomsers to all your tweets, RTs & responses !! Thnx http://t.co/T…
@HealthUKTD
12 August 2015 20:00
RT @NHSIQ: Tweetchat at 8pm with #WeComsers - details here: http://t.co/cGp6nPpiYO
@amirhannan
12 August 2015 20:01
RT @WeCommissioners: Hello all! Please say hi and introduce yourselves as you arrive :) #wecomsers
@sm_partnership
12 August 2015 20:01
Hi I'm Lynne from the self management partnership #wecomsers
@ChedPatGroup
12 August 2015 20:01
RT @NHSIQ: An empowered patient - what do I need for my care? http://t.co/CH8Fug9PuP #WeComsers #LTCImp
@HealthUKTD
12 August 2015 20:02
RT @WeCommissioners: Thinking of joining tonight's chat.... PLEASE add #wecomsers to all your tweets, RTs & responses !! Thnx http://t.co/T…
@Northsn
12 August 2015 20:02
Hi I'm Sharon a Pts seeking direction from access to my records #wecomsers
@NHSEnglandSI
12 August 2015 20:03
@amirhannan What's your understanding of 'records access'? #WeComsers
@amirhannan
12 August 2015 20:03
RT @NHSIQ: @amirhannan What's your understanding of 'records access'? #WeComsers
@WeCommissioners
12 August 2015 20:03
Haughton Thornley MCs enables pts to access to their medical records&understand them - do you know of any similar schemes? #wecomsers
@NHSEnglandSI
12 August 2015 20:04
RT @WeCommissioners: Thinking of joining tonight's chat.... PLEASE add #wecomsers to all your tweets, RTs & responses !! Thnx http://t.co/T…
@amirhannan
12 August 2015 20:04
Q1) What's your understanding of 'records access'? #wecomsers
@sm_partnership
12 August 2015 20:04
@NorthSn me too! #wecomsers
@Northsn
12 August 2015 20:04
My local surgery were not open to the concept ??? #wecomsers
@amirhannan
12 August 2015 20:04
Let's get a shared understanding of what we mean by this. Can anybody describe what they understand this to mean? #wecomsers
@marciak87
12 August 2015 20:04
RT @WeCommissioners: Thinking of joining tonight's chat.... PLEASE add #wecomsers to all your tweets, RTs & responses !! Thnx http://t.co/T…
@davidcragg
12 August 2015 20:05
Not found a practice near me that gives access to records. Even getting access to my SCR seems impossible http://t.co/tLpyDo1HI5 #wecomsers
@WeCommissioners
12 August 2015 20:05
What's your understanding of 'records access'? Can your patients access their own records & in what detail? #wecomsers
@cumpstonarchive
12 August 2015 20:05
RT @NHSIQ: @amirhannan What's your understanding of 'records access'? #WeComsers
@NHSEnglandSI
12 August 2015 20:05
What's your understanding of patients having access to their records? #WeComsers
@GarethPresch
12 August 2015 20:05
RT @amirhannan: Q1) What's your understanding of 'records access'? #wecomsers
@GarethPresch
12 August 2015 20:06
RT @amirhannan: Let's get a shared understanding of what we mean by this. Can anybody describe what they understand this to mean? #wecomsers
@sm_partnership
12 August 2015 20:06
@NorthSn neither are mine! GP looked at me as of I'm from Mars when I asked for access to MY records #wecomsers
@amirhannan
12 August 2015 20:06
@NorthSn @sm_partnership Its ok - we will come to talk about how to overcome barriers But let's describe what it is first #wecomsers
@GarethPresch
12 August 2015 20:06
RT @WeCommissioners: Hello all! Please say hi and introduce yourselves as you arrive :) #wecomsers
@GarethPresch
12 August 2015 20:06
RT @WeCommissioners: Thinking of joining tonight's chat.... PLEASE add #wecomsers to all your tweets, RTs & responses !! Thnx http://t.co/T…
@BevMatthews_
12 August 2015 20:06
RT @WeCommissioners: What's your understanding of 'records access'? Can your patients access their own records & in what detail? #wecomsers
@WeCommissioners
12 August 2015 20:06
RT @sm_partnership: @NorthSn neither are mine! GP looked at me as of I'm from Mars when I asked for access to MY records #wecomsers
@GarethPresch
12 August 2015 20:07
@WeCommissioners @amirhannan delighted to join in #wecomsers ????important topic
@Northsn
12 August 2015 20:07
Why has Haughton Practice developed such a progressive system and other practice's are not even considering ?? #wecomsers
@WeCommissioners
12 August 2015 20:07
RT @NorthSn: Why has Haughton Practice developed such a progressive system and other practice's are not even considering ?? #wecomsers
@NHSEnglandSI
12 August 2015 20:07
RT @amirhannan: Let's get a shared understanding of what we mean by this. Can anybody describe what they understand this to mean? #wecomsers
@amirhannan
12 August 2015 20:07
@LasLynda remember to add #wecomsers
@NHSEnglandSI
12 August 2015 20:07
RT @sm_partnership: @NorthSn neither are mine! GP looked at me as of I'm from Mars when I asked for access to MY records #wecomsers
@Northsn
12 August 2015 20:08
RT @sm_partnership: @NorthSn neither are mine! GP looked at me as of I'm from Mars when I asked for access to MY records #wecomsers
@WeCommissioners
12 August 2015 20:08
@GarethPresch @amirhannan great to have you with us Gareth! #wecomsers
@gcwFFF
12 August 2015 20:08
RT @NHSIQ: Tweetchat TONIGHT 8pm-9pm - patients having access to records - please join us http://t.co/M36QLE7HVZ #WeComsers @amirhannan
@davidcragg
12 August 2015 20:08
But access is pointless without understanding, as professional athlete Eilish McColgan found out http://t.co/8FvueMAIjM #wecomsers
@HIC2016
12 August 2015 20:08
RT @NHSIQ: Tweetchat TONIGHT 8pm-9pm - patients having access to records - please join us http://t.co/M36QLE7HVZ #WeComsers @amirhannan
@louisebrady17
12 August 2015 20:08
@amirhannan @NorthSn @sm_partnership It's obtaining the information 'about me' & understanding to help manage health care #wecomsers
@WeCommissioners
12 August 2015 20:08
#wecomsers https://t.co/YEBUEXFLCi
@sm_partnership
12 August 2015 20:08
@amirhannan I think it's access to results and notes on GP computer I see what GP sees #wecomsers might be wrong?!?
@HIC2016
12 August 2015 20:08
@WeCommissioners @NHSIQ @amirhannan #RecordsAccessAndUnderstanding ????????https://t.co/r733qal9Cv #wecomsers
@Northsn
12 August 2015 20:08
Mine was exactly the same when I tried to explain the system he thought I was trying to sell him something ?? #wecomsers
@Northsn
12 August 2015 20:09
RT @HIC2016: @WeCommissioners @NHSIQ @amirhannan #RecordsAccessAndUnderstanding ????????https://t.co/r733qal9Cv #wecomsers
@GarethPresch
12 August 2015 20:09
RT @WeCommissioners: @GarethPresch @amirhannan great to have you with us Gareth! #wecomsers
@Northsn
12 August 2015 20:09
RT @sm_partnership: @amirhannan I think it's access to results and notes on GP computer I see what GP sees #wecomsers might be wrong?!?
@dr_shibley
12 August 2015 20:09
RT @amirhannan: Q1) What's your understanding of 'records access'? #wecomsers
@amirhannan
12 August 2015 20:09
@sm_partnership Gr8, you are describing what the patient can view. So it is results. what else in the notes are there? #wecomsers
@GarethPresch
12 August 2015 20:09
@WeCommissioners @amirhannan interested to know more from the patients perspective ????#partnershipoftrust #wecomsers
@bill_russell3
12 August 2015 20:09
#wecomsers lay person here, chair of PPG. Pts have not said they see access to MR as priority they want access to GPs
@ChedPatGroup
12 August 2015 20:09
RT @WeCommissioners: Thinking of joining tonight's chat.... PLEASE add #wecomsers to all your tweets, RTs & responses !! Thnx http://t.co/T…
@NHSEnglandSI
12 August 2015 20:09
How do you enable patients to access their records? @amirhannan #WeComsers
@Northsn
12 August 2015 20:09
RT @GarethPresch: @WeCommissioners @amirhannan interested to know more from the patients perspective ????#partnershipoftrust #wecomsers
@GarethPresch
12 August 2015 20:10
RT @HIC2016: @WeCommissioners @NHSIQ @amirhannan #RecordsAccessAndUnderstanding ????????https://t.co/r733qal9Cv #wecomsers
@davidcragg
12 August 2015 20:10
Access to results & notes without the ability to interpret & understand them is dangerous.I know from getting my hospital records #wecomsers
@bill_russell3
12 August 2015 20:10
#wecomsers but will ask the question in our patient survey this autumn
@Paul_BIMLtd
12 August 2015 20:10
RT @NorthSn: Why has Haughton Practice developed such a progressive system and other practice's are not even considering ?? #wecomsers
@NHSEnglandSI
12 August 2015 20:10
RT @bill_russell3: #wecomsers lay person here, chair of PPG. Pts have not said they see access to MR as priority they want access to GPs
@sm_partnership
12 August 2015 20:10
@amirhannan forgot #wecomsers
@ClareHelm2
12 August 2015 20:10
great #wecomsers chat tonight,glad to be involved.I have access to SystmOne but all I seem to have is the ability to book v far ahead appt..
@HealthUKTD
12 August 2015 20:10
RT @sm_partnership: @NorthSn neither are mine! GP looked at me as of I'm from Mars when I asked for access to MY records #wecomsers
@amirhannan
12 August 2015 20:11
So we are talking about patients being able to view their records. All their electronic health records. Not just parts of it. #wecomsers
@ClareHelm2
12 August 2015 20:11
..would love to see my actual records as I sometimes think my GP has a different picture of my health than I have.. ! #wecomsers
@Northsn
12 August 2015 20:11
@amirhannan how do you give results feedback understanding to your Pts #wecomsers
@NHSEnglandSI
12 August 2015 20:11
RT @ClareHelm2: great #wecomsers chat tonight,glad to be involved.I have access to SystmOne but all I seem to have is the ability to book v…
@amirhannan
12 August 2015 20:11
This also means not starting from a certain date. It means everything. However practices can choose to limit what they share #wecomsers
@sillyoldjen
12 August 2015 20:11
@WeCommissioners #wecomsers hello,I'm Jenny:patient experience, brain injury survivor, victim of med record/data errors/medical lies coverup
@NHSEnglandSI
12 August 2015 20:11
RT @bill_russell3: #wecomsers but will ask the question in our patient survey this autumn
@Paul_BIMLtd
12 August 2015 20:11
@WeCommissioners @NorthSn Haughton Practice has engaged patients as partners for many years - trust nds to be built #wecomsers
@louisebrady17
12 August 2015 20:12
@WeCommissioners We have Pt's with full access 2 their records supported by staff team #wecomsers
@CallowLesley
12 August 2015 20:12
#wecomsers having access is the 1st step what do we then do with that @NHSIQ
@davidcragg
12 August 2015 20:12
I've seen all my GP/Hospital records on the system whilst with my DSN. Eye opening. Just wish I was "allowed" to do it myself #wecomsers
@CLASHgroup
12 August 2015 20:12
RT @NHSIQ: @amirhannan What's your understanding of 'records access'? #WeComsers
@BevMatthews_
12 August 2015 20:12
RT @louisebrady17: @WeCommissioners We have Pt's with full access 2 their records supported by staff team #wecomsers
@anetto
12 August 2015 20:12
@amirhannan Yes, and not dumbed down and simplified unless that is your choice as a patient #wecomsers
@bill_russell3
12 August 2015 20:12
#wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@StephenGulli
12 August 2015 20:12
#wecomsers It's being able to interpret the information to avoid panic/harm/confusion that's important.
@amirhannan
12 August 2015 20:12
Q2) having access is the 1st step what do we then do with that? #wecomsers
@NHSEnglandSI
12 August 2015 20:12
RT @CallowLesley: #wecomsers having access is the 1st step what do we then do with that @NHSIQ
@ClareHelm2
12 August 2015 20:12
RT @bill_russell3: #wecomsers lay person here, chair of PPG. Pts have not said they see access to MR as priority they want access to GPs
@Northsn
12 August 2015 20:12
RT @amirhannan: Q2) having access is the 1st step what do we then do with that? #wecomsers
@sm_partnership
12 August 2015 20:13
@davidcragg hence understanding #wecomsers
@ClareHelm2
12 August 2015 20:13
very good point - there will be different levels of ability to interpret! #wecomsers https://t.co/XVIPvixdR6
@NHSEnglandSI
12 August 2015 20:13
@louisebrady17 @WeCommissioners How do you achieve this? #WeComsers
@amirhannan
12 August 2015 20:13
If patients can view their records, what next? Surely they need to understand what the records mean? For who and why? #wecomsers
@BevMatthews_
12 August 2015 20:13
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@JonathanO_QI
12 August 2015 20:13
It would make sense to provide access to full records not parts of. Would suggest something to hide? #wecomsers
@StephenGulli
12 August 2015 20:13
RT @ClareHelm2: very good point - there will be different levels of ability to interpret! #wecomsers https://t.co/XVIPvixdR6
@Paul_BIMLtd
12 August 2015 20:13
Right, @bill_russell3 - after GP access is sorted tho comes things like access to records - and could be part of same solution? #wecomsers
@docneilb
12 August 2015 20:13
#wecomsers My surgery continues to offer full records access http://t.co/E8JvTMg3sW
@LasLynda
12 August 2015 20:13
RT @ClareHelm2: very good point - there will be different levels of ability to interpret! #wecomsers https://t.co/XVIPvixdR6
@stuartberry1
12 August 2015 20:13
RT @amirhannan: Q1) What's your understanding of 'records access'? #wecomsers
@louisebrady17
12 August 2015 20:13
@LasLynda @amirhannan @NorthSn @sm_partnership Yes.. ppl tell me that's really useful #wecomsers
@StephenGulli
12 August 2015 20:14
@ClareHelm2 #wecomsers https://t.co/BaDLOk0hLh
@amirhannan
12 August 2015 20:14
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@amirhannan
12 August 2015 20:14
RT @Jonathan_180: It would make sense to provide access to full records not parts of. Would suggest something to hide? #wecomsers
@WeCommissioners
12 August 2015 20:14
RT @StephenGulli: @ClareHelm2 #wecomsers https://t.co/BaDLOk0hLh
@davidcragg
12 August 2015 20:14
@sm_partnership shorthand is a particular issue pts face in understanding notes #wecomsers
@JonathanO_QI
12 August 2015 20:14
Bigger issue for me is quality of clinical documentation. Not always coherent and written in a helpful way for a lay person #wecomsers
@StephenGulli
12 August 2015 20:14
#wecomsers If people can get in to see same clinician easily do they need access to own records?
@sm_partnership
12 August 2015 20:14
@amirhannan I would read through and hope to see record of appointments and shared decisions #wecomsers
@bill_russell3
12 August 2015 20:14
@NHSIQ @louisebrady17 @WeCommissioners #wecomsers it takes time, lots of time something HCPs dont have
@NHSEnglandSI
12 August 2015 20:14
RT @StephenGulli: #wecomsers It's being able to interpret the information to avoid panic/harm/confusion that's important.
@CallowLesley
12 August 2015 20:14
How can we support that #wecomsers @NHSIQ https://t.co/gQPaeIOzH7
@anetto
12 August 2015 20:14
. @bill_russell3 First things first - If you have no doctor or can't get appointment, there are no records. #wecomsers
@NHSEnglandSI
12 August 2015 20:15
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@GarethPresch
12 August 2015 20:15
RT @CallowLesley: How can we support that #wecomsers @NHSIQ https://t.co/gQPaeIOzH7
@NHSEnglandSI
12 August 2015 20:15
What do we mean by "understanding" in relation to records access? #WeComsers
@DanielBayley80
12 August 2015 20:15
@amirhannan record access is a very small part of what is needed. We need ownership and transactional services. #wecomsers
@amirhannan
12 August 2015 20:15
issues about shorthand, quality of recod keeping, how to interpret info, time. Will we understand it? #wecomsers
@GarethPresch
12 August 2015 20:15
RT @amirhannan: Q2) having access is the 1st step what do we then do with that? #wecomsers
@CallowLesley
12 August 2015 20:15
You are just ask your GP #wecomsers @NHSIQ https://t.co/w3qp8gmxsL
@NHSEnglandSI
12 August 2015 20:15
RT @CallowLesley: How can we support that #wecomsers @NHSIQ https://t.co/gQPaeIOzH7
@ClareHelm2
12 August 2015 20:15
for me,i'd like to be able to see how often I've attended & y; to help me manage my own conditions better #wellnessnotillness #wecomsers
@NHSEnglandSI
12 August 2015 20:15
RT @bill_russell3: @NHSIQ @louisebrady17 @WeCommissioners #wecomsers it takes time, lots of time something HCPs dont have
@JonathanO_QI
12 August 2015 20:15
Understanding of the records for me comes from understanding processes. Why did someone do what they did and document it that way #wecomsers
@Paul_BIMLtd
12 August 2015 20:15
Yes, @davidcragg @sm_partnership - is a difference between 'seeing' records and 'understanding' them - nd to go for the latter! #wecomsers
@GarethPresch
12 August 2015 20:16
RT @Jonathan_180: It would make sense to provide access to full records not parts of. Would suggest something to hide? #wecomsers
@GarethPresch
12 August 2015 20:16
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@sillyoldjen
12 August 2015 20:16
@WeCommissioners #wecomsers access to ALL info about ourstate of health & ALL records=NONE removed, edited, kept hidden= open, honest, equal
@louisebrady17
12 August 2015 20:16
@NHSIQ @WeCommissioners ask patient's if they would like & we work together 2 develop knowledge understanding & skills #Wecomsers
@sm_partnership
12 August 2015 20:16
@LasLynda @louisebrady17 @amirhannan @NorthSn its U.S. Who join everything up Us And the GP #wecomsers
@NHSEnglandSI
12 August 2015 20:16
RT @amirhannan: issues about shorthand, quality of recod keeping, how to interpret info, time. Will we understand it? #wecomsers
@davidcragg
12 August 2015 20:16
@CallowLesley @NHSIQ I did ask, they set me up on the system but still can only do prescriptions and appointments :( #wecomsers
@stuartberry1
12 August 2015 20:16
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@GarethPresch
12 August 2015 20:16
RT @louisebrady17: @LasLynda @amirhannan @NorthSn @sm_partnership Yes.. ppl tell me that's really useful #wecomsers
@NHSEnglandSI
12 August 2015 20:16
RT @amirhannan: Q2) having access is the 1st step what do we then do with that? #wecomsers
@bill_russell3
12 August 2015 20:16
#wecomsers much data, certainly the confirmed part of MR, is entered as codes! The text equivalent of those codes is mega medical jargon
@amirhannan
12 August 2015 20:16
@davidcragg @sm_partnership Here is what we produce for patients to 4 abbreviations http://t.co/58iXZ6Fpa2 #wecomsers
@louisebrady17
12 August 2015 20:17
@bill_russell3 @NHSIQ @WeCommissioners 1/ it takes minutes to switch on #wecomsers
@BevMatthews_
12 August 2015 20:17
RT @amirhannan: issues about shorthand, quality of recod keeping, how to interpret info, time. Will we understand it? #wecomsers
@GarethPresch
12 August 2015 20:17
@louisebrady17 @LasLynda @amirhannan @NorthSn @sm_partnership #patient access will improve quality of life??????#WeComsers
@anetto
12 August 2015 20:17
@CallowLesley @NHSIQ It is often a case of having other doctors see the records, not just the patient. #wecomsers
@WeCommissioners
12 August 2015 20:17
@amirhannan what percentage of your patients do access their records regularly? #wecomsers
@WeCommissioners
12 August 2015 20:17
RT @davidcragg: @sm_partnership shorthand is a particular issue pts face in understanding notes #wecomsers
@T1Buta
12 August 2015 20:17
RT @davidcragg: Just 1hr to the start of a fantastic chat about access to records & understanding. Use hashtag #WeComsers http://t.co/DzsYy…
@amirhannan
12 August 2015 20:17
RT @sm_partnership: @LasLynda @louisebrady17 @amirhannan @NorthSn its U.S. Who join everything up Us And the GP #wecomsers
@BevMatthews_
12 August 2015 20:17
RT @sm_partnership: @amirhannan I would read through and hope to see record of appointments and shared decisions #wecomsers
@JonathanO_QI
12 August 2015 20:17
Should access be supervised? Ability to explain and answer questions. It's a bit like me looking under the bonnet of my car 1/2 #wecomsers
@Northsn
12 August 2015 20:17
RT @sm_partnership: @LasLynda @louisebrady17 @amirhannan @NorthSn its U.S. Who join everything up Us And the GP #wecomsers
@WeCommissioners
12 August 2015 20:17
RT @anetto: @CallowLesley @NHSIQ It is often a case of having other doctors see the records, not just the patient. #wecomsers
@Northsn
12 August 2015 20:18
RT @anetto: @CallowLesley @NHSIQ It is often a case of having other doctors see the records, not just the patient. #wecomsers
@Paul_BIMLtd
12 August 2015 20:18
Challenge for GPs, @AmirHannan is to ensure records are understandable by that patient: part of trusting, respectful relationship #wecomsers
@stuartberry1
12 August 2015 20:18
RT @anetto: @CallowLesley @NHSIQ It is often a case of having other doctors see the records, not just the patient. #wecomsers
@sm_partnership
12 August 2015 20:18
@StephenGulli trouble is many of us see many different consultants/ AHPs. I try to stick to 1 GP #wecomsers
@davidcragg
12 August 2015 20:18
RT @amirhannan: @davidcragg @sm_partnership Here is what we produce for patients to 4 abbreviations http://t.co/58iXZ6Fpa2 #wecomsers
@anetto
12 August 2015 20:18
How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@stuartberry1
12 August 2015 20:18
RT @amirhannan: @davidcragg @sm_partnership Here is what we produce for patients to 4 abbreviations http://t.co/58iXZ6Fpa2 #wecomsers
@DanielBayley80
12 August 2015 20:18
@Paul_BIMLtd @davidcragg @sm_partnership is shorthand universal? If patients cant understand I'd bet other health pros cant to. #wecomsers
@louisebrady17
12 August 2015 20:18
@bill_russell3 @NHSIQ @WeCommissioners 2supporting knowledge & Ed & increasing quality of information is ongoing! #WeComsers
@amirhannan
12 August 2015 20:18
@sm_partnership @StephenGulli continuity is important as you build up a long term relationship #wecomsers
@HealthUKTD
12 August 2015 20:18
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@JonathanO_QI
12 August 2015 20:18
I know it's an engine and it makes the car go. But I'm not sure of the exact workings. 2/2 #wecomsers
@jimmie_vanagon
12 August 2015 20:19
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@anetto
12 August 2015 20:19
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@Northsn
12 August 2015 20:19
In relation to writing up notes for future disclosure understanding will GP need further training regarding any risk factors ?? #wecomsers
@NHSEnglandSI
12 August 2015 20:19
RT @anetto: @CallowLesley @NHSIQ It is often a case of having other doctors see the records, not just the patient. #wecomsers
@StephenGulli
12 August 2015 20:19
@sm_partnership Wonder if that's where confusion may arise aswell if different clinicians document different opinions? #wecomsers
@JonathanO_QI
12 August 2015 20:19
Oops. I'm Jonathan and I'm an improvement advisor #wecomsers
@Northsn
12 August 2015 20:19
RT @Jonathan_180: Oops. I'm Jonathan and I'm an improvement advisor #wecomsers
@CallowLesley
12 August 2015 20:19
RT @amirhannan: @davidcragg @sm_partnership Here is what we produce for patients to 4 abbreviations http://t.co/58iXZ6Fpa2 #wecomsers
@sm_partnership
12 August 2015 20:19
@StephenGulli and what makes MY heart sink is another pen and another piece of paper! I want ALL my noes in 1 place #wecomsers
@ClareHelm2
12 August 2015 20:19
@Jonathan_180 This is a good idea but where would resource come from to support? I often ask in appt but takes up their time! #wecomsers
@amirhannan
12 August 2015 20:19
@NorthSn What GP training is needed. Remember as patients you have a right to b able to see your records any way #wecomsers
@davidcragg
12 August 2015 20:19
@DanielBayley80 @Paul_BIMLtd @sm_partnership I think a lot of notes are/have been written without thinking others might view them #wecomsers
@Northsn
12 August 2015 20:20
RT @amirhannan: @NorthSn What GP training is needed. Remember as patients you have a right to b able to see your records any way #wecomsers
@LasLynda
12 August 2015 20:20
RT @louisebrady17: @WeCommissioners We have Pt's with full access 2 their records supported by staff team #wecomsers
@ClareHelm2
12 August 2015 20:20
#wecomsers https://t.co/9pTf78Du4V
@anetto
12 August 2015 20:20
Record keeping might require more sensitivity. Patients don't like being called somewhat obese, or catastrophizers #wecomsers
@NHSEnglandSI
12 August 2015 20:20
Great film from patient's point of view of being empowered with their records and understanding them http://t.co/CH8Fug9PuP #WeComsers
@DanielBayley80
12 August 2015 20:20
@Jonathan_180 the point is you CAN look under your bonnet. #wecomsers
@HealthUKTD
12 August 2015 20:20
RT @anetto: @CallowLesley @NHSIQ It is often a case of having other doctors see the records, not just the patient. #wecomsers
@LasLynda
12 August 2015 20:21
RT @amirhannan: @NorthSn What GP training is needed. Remember as patients you have a right to b able to see your records any way #wecomsers
@louisebrady17
12 August 2015 20:21
@bill_russell3 @NHSIQ @WeCommissioners This is ongoing with or without access- access helps 2 enhance #WeComsers
@Paul_BIMLtd
12 August 2015 20:21
Decoding acronyms is part of it; nd links to info on what the *full* words mean - challenge to explain in lay language? #wecomsers
@Lagedor49
12 August 2015 20:21
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@StephenGulli
12 August 2015 20:21
@sm_partnership #wecomsers Integrated IT...It's the future! ??
@BevMatthews_
12 August 2015 20:21
RT @anetto: @CallowLesley @NHSIQ It is often a case of having other doctors see the records, not just the patient. #wecomsers
@JonathanO_QI
12 August 2015 20:21
@ClareHelm2 that's the barrier. But would absolutely add value #wecomsers
@WeCommissioners
12 August 2015 20:21
true, you can look even if you don't understand what you see & you can decide what to do w/ what you see! #wecomsers https://t.co/6qVzHFIXCO
@amirhannan
12 August 2015 20:21
@ClareHelm2 @Jonathan_180 Good question. We will come to resources later. Many needed and different for people #wecomsers
@BevMatthews_
12 August 2015 20:21
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@Lagedor49
12 August 2015 20:21
RT @Jonathan_180: It would make sense to provide access to full records not parts of. Would suggest something to hide? #wecomsers
@amirhannan
12 August 2015 20:21
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@davidcragg
12 August 2015 20:21
@CallowLesley @NHSIQ will keep trying with every visit. I'm not giving up :) #wecomsers
@sm_partnership
12 August 2015 20:21
@StephenGulli exactly I am the lynchpin in my health- holding it all together day in day out & having access will help me #wecomsers
@V6_6MMA
12 August 2015 20:21
@NHSIQ @amirhannan @WeCommissioners Will arrange for it to be uploaded to our public website http://t.co/A6IonA5j9j #wecomsers
@louisebrady17
12 August 2015 20:21
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@Northsn
12 August 2015 20:22
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@cumpstonarchive
12 August 2015 20:22
RT @amirhannan: @davidcragg @sm_partnership Here is what we produce for patients to 4 abbreviations http://t.co/58iXZ6Fpa2 #wecomsers
@NHSEnglandSI
12 August 2015 20:22
RT @louisebrady17: @bill_russell3 @NHSIQ @WeCommissioners 1/ it takes minutes to switch on #wecomsers
@anetto
12 August 2015 20:22
@Paul_BIMLtd Had no trouble finding definitions for any term once I had a computer, a long time ago #wecomsers
@coffeemommy
12 August 2015 20:22
Absolutely yes. MY body, MY health, MY records! (I should be able to add to them as well, TYVM) #wecomsers https://t.co/82JLj1f4Cs
@bill_russell3
12 August 2015 20:22
#wecomsers PS I have done coding & summarising in General Practice and searched MR for clinical audit etc
@Lagedor49
12 August 2015 20:22
RT @amirhannan: issues about shorthand, quality of recod keeping, how to interpret info, time. Will we understand it? #wecomsers
@amirhannan
12 August 2015 20:22
What sources can patients use to help them understand their records? #wecomsers
@WeCommissioners
12 August 2015 20:22
RT @anetto: Record keeping might require more sensitivity. Patients don't like being called somewhat obese, or catastrophizers #wecomsers
@Northsn
12 August 2015 20:22
That's what I meant Louise ! Laymen terms reflective of consultation #wecomsers
@sm_partnership
12 August 2015 20:22
@StephenGulli YES!!! #wecomsers
@Lagedor49
12 August 2015 20:22
RT @CallowLesley: How can we support that #wecomsers @NHSIQ https://t.co/gQPaeIOzH7
@JonathanO_QI
12 August 2015 20:22
@DanielBayley80 agree! But access without understanding or indeed context can lead to problems. Just ask my old Ford Focus... #wecomsers
@Paul_BIMLtd
12 August 2015 20:22
@DanielBayley80 @davidcragg @sm_partnership Not sure shorthand necessarily universal within a single practice, let alone wider! #wecomsers
@amirhannan
12 August 2015 20:23
If you do not understand something, who or what do you turn to? #wecomsers
@amirhannan
12 August 2015 20:23
@NorthSn @Paul_BIMLtd @DanielBayley80 @davidcragg @sm_partnership So as a patient u can inform us & we add to the list! #wecomsers
@CallowLesley
12 August 2015 20:23
RT @anetto: Record keeping might require more sensitivity. Patients don't like being called somewhat obese, or catastrophizers #wecomsers
@NHSEnglandSI
12 August 2015 20:23
RT @davidcragg: @CallowLesley @NHSIQ will keep trying with every visit. I'm not giving up :) #wecomsers
@WeCommissioners
12 August 2015 20:23
RT @coffeemommy: Absolutely yes. MY body, MY health, MY records! (I should be able to add to them as well, TYVM) #wecomsers https://t.co/82…
@coffeemommy
12 August 2015 20:23
Exactly @anetto &, if I have access, I can start a convo that lends itself to clarification as needed. #wecomsers https://t.co/e753KrKML0
@anetto
12 August 2015 20:23
I hear too many health professionals saying patients don't know enough. Where do you think we are? Same planet #wecomsers
@BevMatthews_
12 August 2015 20:23
RT @coffeemommy: Absolutely yes. MY body, MY health, MY records! (I should be able to add to them as well, TYVM) #wecomsers https://t.co/82…
@Paul_BIMLtd
12 August 2015 20:23
RT @anetto @Paul_BIMLtd Had no trouble finding definitions for any term once I had a computer, a long time ago #wecomsers
@NHSEnglandSI
12 August 2015 20:23
RT @louisebrady17: @WeCommissioners We have Pt's with full access 2 their records supported by staff team #wecomsers
@WeCommissioners
12 August 2015 20:24
What sources can patients use to help them understand their records? #wecomsers
@louisebrady17
12 August 2015 20:24
RT @coffeemommy: Absolutely yes. MY body, MY health, MY records! (I should be able to add to them as well, TYVM) #wecomsers https://t.co/82…
@bill_russell3
12 August 2015 20:24
@ingridbrindle #wecomsers Test results definitely need explanation, even for HCPs :-)
@Northsn
12 August 2015 20:24
Surely partnership of trust is essential #wecomsers
@davidcragg
12 August 2015 20:24
@amirhannan I turned to the twitter community with my hospital records. Learnt that a circle wasn't a bullet point it meant NOT! #wecomsers
@sm_partnership
12 August 2015 20:24
@amirhannan @NorthSn @Paul_BIMLtd @DanielBayley80 @davidcragg I would hope we do it together in partnership.#wecomsers
@louisebrady17
12 August 2015 20:24
RT @davidcragg: @sm_partnership shorthand is a particular issue pts face in understanding notes #wecomsers
@HealthLeadDoc
12 August 2015 20:24
RT @Jonathan_180: It would make sense to provide access to full records not parts of. Would suggest something to hide? #wecomsers
@HealthUKTD
12 August 2015 20:24
RT @amirhannan: @davidcragg @sm_partnership Here is what we produce for patients to 4 abbreviations http://t.co/58iXZ6Fpa2 #wecomsers
@amirhannan
12 August 2015 20:24
If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@Northsn
12 August 2015 20:24
RT @amirhannan: If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@anetto
12 August 2015 20:24
My health record has errors based on a glimpse. How can I get good care with inaccurate records? #wecomsers
@dr_shibley
12 August 2015 20:25
RT @amirhannan: If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@NHSEnglandSI
12 August 2015 20:25
RT @amirhannan: @NorthSn What GP training is needed. Remember as patients you have a right to b able to see your records any way #wecomsers
@WeCommissioners
12 August 2015 20:25
RT @amirhannan: If you do not understand something, who or what do you turn to? #wecomsers
@NHSEnglandSI
12 August 2015 20:25
RT @amirhannan: @davidcragg @sm_partnership Here is what we produce for patients to 4 abbreviations http://t.co/58iXZ6Fpa2 #wecomsers
@sillyoldjen
12 August 2015 20:25
@amirhannan @GarethPresch #wecomsers records written with/for OPEN access. OUR med info, OUR records, done TOGETHER, checked often 4 errors
@Paul_BIMLtd
12 August 2015 20:25
RT @amirhannan If patients do not understand test results then they can ask clinician and also use http://t.co/tUZ0TPeR03 #wecomsers
@NHSEnglandSI
12 August 2015 20:25
RT @bill_russell3: #wecomsers much data, certainly the confirmed part of MR, is entered as codes! The text equivalent of those codes is me…
@BevMatthews_
12 August 2015 20:25
RT @bill_russell3: #wecomsers much data, certainly the confirmed part of MR, is entered as codes! The text equivalent of those codes is me…
@bill_russell3
12 August 2015 20:25
#wecomsers I am not against the idea of access to MR its just I think #wepatients have other priorities
@NHSEnglandSI
12 August 2015 20:25
What is the difference between data, information and knowledge? #WeComsers
@ingridbrindle
12 August 2015 20:25
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@cumpstonarchive
12 August 2015 20:25
RT @amirhannan: If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@DanielBayley80
12 August 2015 20:25
@Jonathan_180 why are health records "special" ? you COULD remove your radiator cap when your engine is hot. bad for your health! #wecomsers
@sm_partnership
12 August 2015 20:26
@Paul_BIMLtd @DanielBayley80 @davidcragg surely I would understand the notes abt my health?after I live with it every day #wecomsers
@coffeemommy
12 August 2015 20:26
Yo, empowered patients. Get thee to #wecomsers chat! NEED your input on patient access to OWN health records. STAT! cc: #bcsm #hcldr #HITsm
@louisebrady17
12 August 2015 20:26
@StephenGulli @WeCommissioners @ClareHelm2 This is explicitly discussed & negotiated from outset #WeComsers
@BevMatthews_
12 August 2015 20:26
RT @amirhannan: If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@sillyoldjen
12 August 2015 20:26
@sm_partnership @amirhannan #wecomsers and opinions justified: MUST stand up to logic/reasoning. NO diagnoses w'out CORRECT tests/info, ever
@anetto
12 August 2015 20:26
@bill_russell3 What prioritiy can a patient have that is more important than their health? #wecomsers
@Northsn
12 August 2015 20:26
What is more priority than managing your own records ??? Empowered and shared decision #wecomsers
@Paul_BIMLtd
12 August 2015 20:26
@amirhannan Important to help some patients with next steps in finding/understanding info - nds to be part of overall approach #wecomsers
@ClareHelm2
12 August 2015 20:26
@amirhannan the internet...friends, family, colleagues,in the case of my records I would turn to GP/nurse if I was concerned #wecomsers
@GeoffCardwell
12 August 2015 20:26
RT @sm_partnership: @amirhannan I would read through and hope to see record of appointments and shared decisions #wecomsers
@ClareHelm2
12 August 2015 20:26
#wecomsers https://t.co/cagrSUHYGK
@BevMatthews_
12 August 2015 20:26
RT @bill_russell3: @ingridbrindle #wecomsers Test results definitely need explanation, even for HCPs :-)
@LinGrahamRay1
12 August 2015 20:27
RT @NHSIQ: What is the difference between data, information and knowledge? #WeComsers
@GarethPresch
12 August 2015 20:27
RT @amirhannan: If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@amirhannan
12 August 2015 20:27
Family are also a very useful resource as well as pharmacist and others in the community #wecomsers
@davidcragg
12 August 2015 20:27
@bill_russell3 as a pt with an LTC access to my records & results is a very high priority to help me manage my condition better #wecomsers
@sm_partnership
12 August 2015 20:27
RT @sillyoldjen: @sm_partnership @amirhannan #wecomsers and opinions justified: MUST stand up to logic/reasoning. NO diagnoses w'out CORREC…
@louisebrady17
12 August 2015 20:27
@StephenGulli @WeCommissioners @ClareHelm2 shared agreements & discussions have 2 take place 4 #WeComsers
@Paul_BIMLtd
12 August 2015 20:27
RT @sm_partnership @DanielBayley80 @davidcragg surely I would understand the notes abt my health?after I live with it every day #wecomsers
@Northsn
12 August 2015 20:27
I believe that managing my MR is my medical priority ! Taking personal responsibility for my own care and condition #wecomsers
@amirhannan
12 August 2015 20:27
Self help groups e.g. @diabetesUK and voluntary sector also have a great role to play #wecomsers
@sillyoldjen
12 August 2015 20:27
@CallowLesley @GarethPresch @NHSIQ #wecomsers records are OURhistory& outcomes(IF noted as should) plus history of docs' good/bad judgements
@anetto
12 August 2015 20:28
RT @amirhannan: Self help groups e.g. @diabetesUK and voluntary sector also have a great role to play #wecomsers
@coffeemommy
12 August 2015 20:28
What Next?! Patients actually begin to contextualize own health. Empowerment & accountability can follow! #wecomsers https://t.co/QM4y32ASgb
@sillyoldjen
12 August 2015 20:28
@anetto @CallowLesley @NHSIQ #wecomsers WE must ALWAYS see what's being shared with whom & OK it, PURPOSE? Mega harm when errors passed on.
@Northsn
12 August 2015 20:28
As Pts we also have a personal responsibility to manage and evolve . #wecomsers
@bill_russell3
12 August 2015 20:28
@anetto Determinants of health are smoking, drinking, diet, exercise, housing, education, having a job etc Not access to MR #wecomsers :-)
@DanielBayley80
12 August 2015 20:28
@sm_partnership @Paul_BIMLtd @davidcragg & often understand your condition better too! NHS has superiority complex sometimes? #wecomsers
@CallowLesley
12 August 2015 20:28
RT @amirhannan: Self help groups e.g. @diabetesUK and voluntary sector also have a great role to play #wecomsers
@NHSEnglandSI
12 August 2015 20:28
RT @sillyoldjen: @CallowLesley @GarethPresch @NHSIQ #wecomsers records are OURhistory& outcomes(IF noted as should) plus history of docs' g…
@amirhannan
12 August 2015 20:29
@anetto @diabetesUK We direct patients to our #Diabetes Care page http://t.co/Pdnn4mbqLc #wecomsers
@anetto
12 August 2015 20:29
A move toward self management can save money and time for all. Patients need to be empowered #wecomsers
@NHSEnglandSI
12 August 2015 20:29
RT @amirhannan: Family are also a very useful resource as well as pharmacist and others in the community #wecomsers
@davidcragg
12 August 2015 20:29
@sm_partnership @Paul_BIMLtd @DanielBayley80 want to take a look at mine & explain? Even consultants can't understand some things #wecomsers
@NHSEnglandSI
12 August 2015 20:29
RT @amirhannan: If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@Northsn
12 August 2015 20:29
RT @coffeemommy: What Next?! Patients actually begin to contextualize own health. Empowerment & accountability can follow! #wecomsers https…
@NHSEnglandSI
12 August 2015 20:29
RT @amirhannan: What sources can patients use to help them understand their records? #wecomsers
@NHSEnglandSI
12 August 2015 20:29
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@Northsn
12 August 2015 20:29
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@ClareHelm2
12 August 2015 20:29
@amirhannan I was going to say, online networks with same condition eg #mumsnet #ourd #wecomsers
@amirhannan
12 August 2015 20:29
@anetto watch the video we provide which helps patients to understand http://t.co/OVO1HfjaI3 @lisaSaysthis #wecomsers
@NHSEnglandSI
12 August 2015 20:29
RT @sillyoldjen: @anetto @CallowLesley @NHSIQ #wecomsers WE must ALWAYS see what's being shared with whom & OK it, PURPOSE? Mega harm when …
@GarethPresch
12 August 2015 20:30
@sillyoldjen @CallowLesley @NHSIQ establish a partnership of trust #togetherwecan #wecomsers
@LasLynda
12 August 2015 20:30
RT @amirhannan: @anetto @diabetesUK We direct patients to our #Diabetes Care page http://t.co/Pdnn4mbqLc #wecomsers
@BevMatthews_
12 August 2015 20:30
RT @sillyoldjen: @CallowLesley @GarethPresch @NHSIQ #wecomsers records are OURhistory& outcomes(IF noted as should) plus history of docs' g…
@JonathanO_QI
12 August 2015 20:30
What impact will duty of candor have? A person centred approach to medical records? #wecomsers
@Northsn
12 August 2015 20:30
RT @Jonathan_180: What impact will duty of candor have? A person centred approach to medical records? #wecomsers
@BevMatthews_
12 August 2015 20:30
RT @Jonathan_180: What impact will duty of candor have? A person centred approach to medical records? #wecomsers
@WeCommissioners
12 August 2015 20:30
RT @anetto: A move toward self management can save money and time for all. Patients need to be empowered #wecomsers
@amirhannan
12 August 2015 20:30
Remember #SoMe has a very important role now in disseminating knowledge so that others can learn 2 #wecomsers
@LasLynda
12 August 2015 20:30
RT @ClareHelm2: @amirhannan I was going to say, online networks with same condition eg #mumsnet #ourd #wecomsers
@bill_russell3
12 August 2015 20:30
@davidcragg #wecomsers Great. Glad it works for you. As I said I am not against it. Soon there will not be a GP near you.
@sm_partnership
12 August 2015 20:30
@amirhannan @NorthSn so how do we convince our GP practice and what do we ask for #wecomsers
@Northsn
12 August 2015 20:31
Empowered PTs will be happier Pts ! #wecomsers
@CallowLesley
12 August 2015 20:31
@ingridbrindle @davidcragg @NHSIQ Love this idea #wecomsers
@amirhannan
12 August 2015 20:31
@sm_partnership @NorthSn by demonstrating u r capable of accessing your records and understanding them 2. Education is key #wecomsers
@Northsn
12 August 2015 20:31
RT @bill_russell3: @davidcragg #wecomsers Great. Glad it works for you. As I said I am not against it. Soon there will not be a GP near y…
@hawkspringH
12 August 2015 20:31
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@BevMatthews_
12 August 2015 20:31
RT @NorthSn: Empowered PTs will be happier Pts ! #wecomsers
@CallowLesley
12 August 2015 20:31
RT @sillyoldjen: @anetto @CallowLesley @NHSIQ #wecomsers WE must ALWAYS see what's being shared with whom & OK it, PURPOSE? Mega harm when …
@hawkspringH
12 August 2015 20:31
RT @amirhannan: What sources can patients use to help them understand their records? #wecomsers
@Paul_BIMLtd
12 August 2015 20:31
RT @Jonathan_180 What impact will duty of candor have? A person centred approach to medical records? #wecomser #wecomsers
@bill_russell3
12 August 2015 20:32
#wecomsers what a sunset! look out of your windows everyone
@Northsn
12 August 2015 20:32
RT @bill_russell3: #wecomsers what a sunset! look out of your windows everyone
@amirhannan
12 August 2015 20:32
@sm_partnership @NorthSn It is important for patients to be able to show their understanding prior to getting access to records #wecomsers
@NHSEnglandSI
12 August 2015 20:32
RT @amirhannan: Remember #SoMe has a very important role now in disseminating knowledge so that others can learn 2 #wecomsers
@ChedPatGroup
12 August 2015 20:32
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@NHSEnglandSI
12 August 2015 20:32
RT @amirhannan: Self help groups e.g. @diabetesUK and voluntary sector also have a great role to play #wecomsers
@BevMatthews_
12 August 2015 20:32
RT @amirhannan: Remember #SoMe has a very important role now in disseminating knowledge so that others can learn 2 #wecomsers
@louisebrady17
12 August 2015 20:32
@WeCommissioners not google! trusted information from HCP's supplemented with additional information e.g http://t.co/ZgIP75n8Wj #wecomsers
@HealthUKTD
12 August 2015 20:32
RT @amirhannan: If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@HealthUKTD
12 August 2015 20:32
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@flamencobug
12 August 2015 20:32
RT @amirhannan: If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@sm_partnership
12 August 2015 20:32
@amirhannan @NorthSn arghh..I thought it should be obvious with me going in and asking the questions I do! #wecomsers
@abrewi3010
12 August 2015 20:33
@coffeemommy @amirhannan improved medical literacy rate & med curiosity follows for both patient & doc #wecomsers
@amirhannan
12 August 2015 20:33
@sm_partnership @NorthSn We have therefore developed an explicit consent process http://t.co/nYU3YLPg2b #wecomsers
@DanielBayley80
12 August 2015 20:33
@sm_partnership @amirhannan @NorthSn Educate them. my GP practice manager was ill informed about basics of IG. #wecomsers
@SP_Duckworth
12 August 2015 20:33
@anetto Only if it is resourced properly in terms of support. @WeCommissioners #wecomsers
@davidcragg
12 August 2015 20:33
@bill_russell3 I believe access&understanding to records can reduce "burden" on GPs & free up solts for people that need to see #wecomsers
@Steve_Rafferty1
12 August 2015 20:33
RT @NorthSn: As Pts we also have a personal responsibility to manage and evolve . #wecomsers
@WeCommissioners
12 August 2015 20:33
RT @louisebrady17: @WeCommissioners We have Pt's with full access 2 their records supported by staff team #wecomsers
@CallowLesley
12 August 2015 20:33
RT @anetto: A move toward self management can save money and time for all. Patients need to be empowered #wecomsers
@Northsn
12 August 2015 20:33
Society is evolving Pts must too . Ppl must take more responsibility to manage own conditions . No more spoon feeding #wecomsers
@Northsn
12 August 2015 20:33
RT @anetto: A move toward self management can save money and time for all. Patients need to be empowered #wecomsers
@sm_partnership
12 August 2015 20:33
@amirhannan @NorthSn can we do a test? *joking* #wecomsers
@Northsn
12 August 2015 20:34
RT @sm_partnership: @amirhannan @NorthSn can we do a test? *joking* #wecomsers
@CallowLesley
12 August 2015 20:34
RT @coffeemommy: Absolutely yes. MY body, MY health, MY records! (I should be able to add to them as well, TYVM) #wecomsers https://t.co/82…
@WeCommissioners
12 August 2015 20:34
#wecomsers https://t.co/uTQLU04EhI
@amirhannan
12 August 2015 20:34
@sm_partnership @NorthSn This process has been shared with very many people, bodies, organisations and scrutinised #wecomsers
@bill_russell3
12 August 2015 20:34
@davidcragg #wecomsers Not if they need to ask for explanations Depends on population Not all like you or me We are all different
@anetto
12 August 2015 20:35
"empowerment philosophy" https://t.co/xWlKX62vqM Diabetes care #wecomsers
@Paul_BIMLtd
12 August 2015 20:35
RT @amirhannan @sm_partnership @NorthSn This process has been shared with very many people, bodies, organisations and scrutinised #wecomsers
@abrewi3010
12 August 2015 20:35
@amirhannan @sm_partnership @NorthSn no, it's key that HC establishes trust so patient believes a higher quality of life is poss #wecomsers
@amirhannan
12 August 2015 20:35
@sm_partnership @NorthSn You can see what info we provide for patients to decide here http://t.co/1Sm3Gq1HWu #wecomsers
@BevMatthews_
12 August 2015 20:35
We are just over halfway through tonight's tweet chat, great discussions, looking for some good solutions too #wecomsers
@WeCommissioners
12 August 2015 20:35
Great to have so many of you with us tonight, please don't forget #wecomsers ! http://t.co/RJ1xw3Mmkd
@Northsn
12 August 2015 20:35
Yes Pts must be helped and assisted in transition but once accepted it will be welcomed . New always resisted ! #wecomsers
@sm_partnership
12 August 2015 20:35
@amirhannan @NorthSn how do we as patients activated enough to join this tweetchat share it? #wecomsers
@louisebrady17
12 August 2015 20:35
RT @WeCommissioners: #wecomsers https://t.co/uTQLU04EhI
@sillyoldjen
12 August 2015 20:35
@DanielBayley80 @sm_partnership @Paul_BIMLtd @davidcragg #wecomsers is it only ME who hates the word CONDITION? Am I wrong to? Views?
@Anna32Baker
12 August 2015 20:35
RT @amirhannan: If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@bill_russell3
12 August 2015 20:35
@ingridbrindle #wecomsers Why do we need consultants haematologists then?
@NHSEnglandSI
12 August 2015 20:36
The storify should be available tomorrow - will hashtag #WeComsers so you can find it
@drterryhudsen
12 August 2015 20:36
@amirhannan Agree. Also need to ensure no coersion by 3rd party to see eg abusive partner. How does that affect whats in notes? #wecomsers
@davidcragg
12 August 2015 20:36
@bill_russell3 that's why it should be access and UNDERSTANDING, you can't just do access. Access only is doomed to failure #wecomsers
@sillyoldjen
12 August 2015 20:36
@coffeemommy #wecomsers no: accountability doesn't follow sadly, I thought that before, I was WRONG. Often NOBODY accountable, shocking.
@BevMatthews_
12 August 2015 20:36
RT @sm_partnership: @amirhannan @NorthSn how do we as patients activated enough to join this tweetchat share it? #wecomsers
@louisebrady17
12 August 2015 20:37
@CallowLesley @bill_russell3 @NHSIQ @WeCommissioners Yes it is Education, health literacy & being able 2 apply information #wecomsers
@WeCommissioners
12 August 2015 20:37
@louisebrady17 most would probably still be tempted by google though right? How do you change that #culture?! #wecomsers
@sm_partnership
12 August 2015 20:37
@amirhannan I'm taking it to the next PRG meeting! Hey @nhsbarnsleyccg are you listening to this? #wecomsers
@SP_Duckworth
12 August 2015 20:37
@adrianplunkett Exactly. If they unintelligible, compile better records. @NHSIQ @amirhannan #wecomsers
@GeoffCardwell
12 August 2015 20:37
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@NHSEnglandSI
12 August 2015 20:37
RT @sillyoldjen: @DanielBayley80 @sm_partnership @Paul_BIMLtd @davidcragg #wecomsers is it only ME who hates the word CONDITION? Am I wrong…
@BevMatthews_
12 August 2015 20:37
RT @sm_partnership: @amirhannan I'm taking it to the next PRG meeting! Hey @nhsbarnsleyccg are you listening to this? #wecomsers
@MKWUG1
12 August 2015 20:37
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@drterryhudsen
12 August 2015 20:37
@Jonathan_180 #wecomsers What if something needs protecting: from spouse, insurance company asking for details? Need to safeguard ur notes.
@Paul_BIMLtd
12 August 2015 20:37
RT @davidcragg: @bill_russell3 that's why it should be access & UNDERSTANDING, you can't just do access. #wecomsers
@CallowLesley
12 August 2015 20:37
just looking at the record will not necessarily help (unless the patient looks at it and gets help to understand it #wecomsers@NHSIQ
@drterryhudsen
12 August 2015 20:38
RT @bill_russell3: #wecomsers essential to increase health literacy amongst population as a whole for a whole range of reasons
@amirhannan
12 August 2015 20:38
It's a 2 step process 4 access to records.Get your PIN NUMBERS & COMPLETE QUESTIONNAIRE http://t.co/1Sm3Gq1HWu #wecomsers
@nhsbarnsleyccg
12 August 2015 20:38
RT @sm_partnership: @amirhannan I'm taking it to the next PRG meeting! Hey @nhsbarnsleyccg are you listening to this? #wecomsers
@DanielBayley80
12 August 2015 20:38
@davidcragg @bill_russell3 Record not just access or understanding either. It has to provide utility to be of value. #wecomsers
@WeCommissioners
12 August 2015 20:38
RT @sm_partnership: @amirhannan I'm taking it to the next PRG meeting! Hey @nhsbarnsleyccg are you listening to this? #wecomsers
@Northsn
12 August 2015 20:38
Exactly !when police logs were to be disclosed it was a hell of a job to re educate but now seen as norm and accountable #wecomsers
@sillyoldjen
12 August 2015 20:38
@LasLynda @sm_partnership @amirhannan #wecomsers YES! but have you ever TRIED to? Docs' opinions trump ourKNOWLEDGE.Musthave 'expert' say it
@WeCommissioners
12 August 2015 20:38
RT @drterryhudsen: @Jonathan_180 #wecomsers What if something needs protecting: from spouse, insurance company asking for details? Need to …
@sm_partnership
12 August 2015 20:38
@sillyoldjen @DanielBayley80 @Paul_BIMLtd @davidcragg definitely not! You are you and I am me #wecomsers
@CallowLesley
12 August 2015 20:38
RT @NHSIQ: The storify should be available tomorrow - will hashtag #WeComsers so you can find it
@WeCommissioners
12 August 2015 20:38
RT @FoxHedgehog: @adrianplunkett Exactly. If they unintelligible, compile better records. @NHSIQ @amirhannan #wecomsers
@amirhannan
12 August 2015 20:38
We find patients can complete the questionnaire in 2 minutes so can be done during the consultation itself #wecomsers
@BevMatthews_
12 August 2015 20:39
RT @amirhannan: We find patients can complete the questionnaire in 2 minutes so can be done during the consultation itself #wecomsers
@louisebrady17
12 August 2015 20:39
@WeCommissioners through discussion, education and development of health literacy & digital literacy skills #wecomsers
@anetto
12 August 2015 20:39
RT @amirhannan: We find patients can complete the questionnaire in 2 minutes so can be done during the consultation itself #wecomsers
@NHSEnglandSI
12 August 2015 20:39
RT @drterryhudsen: @Jonathan_180 #wecomsers What if something needs protecting: from spouse, insurance company asking for details? Need to …
@davidcragg
12 August 2015 20:39
@sillyoldjen @DanielBayley80 @sm_partnership @Paul_BIMLtd you'd prefer? I talked abt language of diabetes http://t.co/T2fhiEByr0 #wecomsers
@SP_Duckworth
12 August 2015 20:39
@louisebrady17 What's wrong with Google? It's the most accessed site in OPD clinic rooms. And not by patients! @WeCommissioners #wecomsers
@lilacstarflower
12 August 2015 20:39
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@louisebrady17
12 August 2015 20:39
RT @FoxHedgehog: @adrianplunkett Exactly. If they unintelligible, compile better records. @NHSIQ @amirhannan #wecomsers
@Northsn
12 August 2015 20:39
RT @louisebrady17: @WeCommissioners through discussion, education and development of health literacy & digital literacy skills #wecomsers
@Bexmoxon
12 August 2015 20:39
RT @anetto: How can patients feel enabled for shared decision making without access to their own information? #wecomsers
@LasLynda
12 August 2015 20:39
RT @amirhannan: We find patients can complete the questionnaire in 2 minutes so can be done during the consultation itself #wecomsers
@amirhannan
12 August 2015 20:39
Important to bring it up during the consultation because clinician can explain why it may be beneficial and invite patient say so #wecomsers
@sillyoldjen
12 August 2015 20:40
@dr_shibley @amirhannan @GarethPresch #wecomsers yes and height (mine was left as at age 12-ish. AND dates inpatient.AND oh, edited out bits
@dr_shibley
12 August 2015 20:40
RT @sillyoldjen: @dr_shibley @amirhannan @GarethPresch #wecomsers yes and height (mine was left as at age 12-ish. AND dates inpatient.AND o…
@WeCommissioners
12 August 2015 20:40
RT @sillyoldjen: @DanielBayley80 @sm_partnership @Paul_BIMLtd @davidcragg #wecomsers is it only ME who hates the word CONDITION? Am I wrong…
@NHSEnglandSI
12 August 2015 20:40
RT @amirhannan: It's a 2 step process 4 access to records.Get your PIN NUMBERS & COMPLETE QUESTIONNAIRE http://t.co/1Sm3Gq1HWu #wecomsers
@NHSEnglandSI
12 August 2015 20:40
RT @amirhannan: We find patients can complete the questionnaire in 2 minutes so can be done during the consultation itself #wecomsers
@Paul_BIMLtd
12 August 2015 20:40
Thx @davidcragg - glanced at blog but will read later #wecomsers
@amirhannan
12 August 2015 20:40
@NorthSn @FoxHedgehog @louisebrady17 @WeCommissioners Important 2 know when 2 trust google and when not #wecomsers
@bill_russell3
12 August 2015 20:40
This is more interesting than my MR #wecomsers http://t.co/x2zlb2NkFw
@Northsn
12 August 2015 20:41
doctors will become familiar with new system . Pts will become empowered expectations will be managed and Ppl will think for them #wecomsers
@BevMatthews_
12 August 2015 20:41
RT @bill_russell3: This is more interesting than my MR #wecomsers http://t.co/x2zlb2NkFw
@sm_partnership
12 August 2015 20:41
@NHSIQ @sillyoldjen @DanielBayley80 @Paul_BIMLtd @davidcragg just call me Lynne..it's who I am - who I've been for last 55 years #wecomsers
@JonathanO_QI
12 August 2015 20:41
@drterryhudsen always exceptions I accept that. before access do we need justification that informs what you get to see #WeComsers
@amirhannan
12 August 2015 20:41
If patients can view their records and link it to trusted information to help them understand it then they get knowledge #wecomsers
@sillyoldjen
12 August 2015 20:42
@FoxHedgehog @WeCommissioners @adrianplunkett @NHSIQ @amirhannan #wecomsers docs are TAUGHT/EXAMINED (I hope) about record-keeping? Ignore?
@CallowLesley
12 August 2015 20:42
HOW CAN WE MOVE THIS UP THE CENTRAL AGENDA #wecomsers@@NHSEngland
@NHSEnglandSI
12 August 2015 20:42
and @amirhannan what do you mean by informed and empowered? #WeComsers
@SP_Duckworth
12 August 2015 20:42
@amirhannan Sure, but if people are better consulted their need for it reduces. @NorthSn @louisebrady17 @WeCommissioners #wecomsers
@Northsn
12 August 2015 20:42
Disclosure is the same whether digital or not that does not change that's statute ! #wecomsers
@amirhannan
12 August 2015 20:42
@Jonathan_180 @drterryhudsen Adequate consent means justification not required. Just complete questionnaire which demonstrates #wecomsers
@NHSEnglandSI
12 August 2015 20:42
RT @sillyoldjen: @dr_shibley @amirhannan @GarethPresch #wecomsers yes and height (mine was left as at age 12-ish. AND dates inpatient.AND o…
@BevMatthews_
12 August 2015 20:42
RT @amirhannan: @NorthSn @FoxHedgehog @louisebrady17 @WeCommissioners Important 2 know when 2 trust google and when not #wecomsers
@HealthUKTD
12 August 2015 20:42
RT @drterryhudsen: @Jonathan_180 #wecomsers What if something needs protecting: from spouse, insurance company asking for details? Need to …
@HealthUKTD
12 August 2015 20:42
RT @sillyoldjen: @DanielBayley80 @sm_partnership @Paul_BIMLtd @davidcragg #wecomsers is it only ME who hates the word CONDITION? Am I wrong…
@sm_partnership
12 August 2015 20:42
@FoxHedgehog @louisebrady17 @WeCommissioners not JUST patients? #wecomsers
@V6_6MMA
12 August 2015 20:43
RT @amirhannan: If patients do not understand test results then they can ask the clinician and also use http://t.co/9ToBfZ6Vlj #wecomsers
@BevMatthews_
12 August 2015 20:43
RT @sillyoldjen: @DanielBayley80 @sm_partnership @Paul_BIMLtd @davidcragg #wecomsers is it only ME who hates the word CONDITION? Am I wrong…
@DanielBayley80
12 August 2015 20:43
@WeCommissioners I like the idea of crowd sourcing health advice ...ask a group rather than an expert type of philosophy #wecomsers
@sillyoldjen
12 August 2015 20:43
@WeCommissioners @louisebrady17 #wecomsers sadly NHS info has MEGA holes/errors = no different. I found info net NEVER even mentioned by NHS
@louisebrady17
12 August 2015 20:43
@amirhannan @NorthSn @FoxHedgehog @WeCommissioners That's why assessment of health literacy Key #wecomsers
@Northsn
12 August 2015 20:43
RT @louisebrady17: @amirhannan @NorthSn @FoxHedgehog @WeCommissioners That's why assessment of health literacy Key #wecomsers
@amirhannan
12 August 2015 20:43
How can we improve this up the central agenda. Easy - show it works, ppl want it and improves quality / safety / reduces costs #wecomsers
@davidcragg
12 August 2015 20:43
Amen! Person first #wecomsers https://t.co/QgLHvjpw3E
@Init4Health
12 August 2015 20:44
@amirhannan #wecomsers but knowledge is power & many don't want pts to have that much. NB 2 have EHR but alas for many still on paper.
@V6_6MMA
12 August 2015 20:44
RT @WeCommissioners: What sources can patients use to help them understand their records? #wecomsers
@NHSEnglandSI
12 August 2015 20:44
Fabulous chat tonight... and lots of questions about records access and understanding.... it's a very emotive subject #WeComsers
@JonathanO_QI
12 August 2015 20:44
A few key questions for me when pondering change are, how can I make it easier and so what - what difference will it make #wecomsers
@WeCommissioners
12 August 2015 20:44
RT @davidcragg: Amen! Person first #wecomsers https://t.co/QgLHvjpw3E
@bill_russell3
12 August 2015 20:44
#wecomsers soon there wont be any GPs anyway so who will hold our MR then?
@sm_partnership
12 August 2015 20:44
@amirhannan @NorthSn @FoxHedgehog @louisebrady17 @WeCommissioners that's why self-management progs help teach ppl how 2 use sites #wecomsers
@amirhannan
12 August 2015 20:44
@Bev_J_Matthews To do this we need to raise #HealthLiteracy for all and engage others 2 help 2 #wecomsers
@AlresfordBear
12 August 2015 20:45
@bill_russell3 Industry. And award ceremonies. #wecomsers
@amirhannan
12 August 2015 20:45
We need to work with our own practices - staff as well as management team and Patient Participation Groups to help change culture #wecomsers
@CLASHgroup
12 August 2015 20:45
RT @amirhannan: We find patients can complete the questionnaire in 2 minutes so can be done during the consultation itself #wecomsers
@CallowLesley
12 August 2015 20:45
RT @amirhannan: @Bev_J_Matthews To do this we need to raise #HealthLiteracy for all and engage others 2 help 2 #wecomsers
@WeCommissioners
12 August 2015 20:45
We agree! Great involvement, thanks for joining us for it :) #teameffort #guesthosts #communityledchat #wecomsers https://t.co/TTGyt3Vq4e
@sm_partnership
12 August 2015 20:45
RT @FoxHedgehog: @adrianplunkett Exactly. If they unintelligible, compile better records. @NHSIQ @amirhannan #wecomsers
@amirhannan
12 August 2015 20:46
This has been our experience as more and more patients have signed up. We have focused on ensuring all groups r supported #wecomsers
@CLASHgroup
12 August 2015 20:46
RT @amirhannan: @sm_partnership @NorthSn You can see what info we provide for patients to decide here http://t.co/1Sm3Gq1HWu #wecomsers
@bill_russell3
12 August 2015 20:46
too many ppl think digital will solve the problems of underfunding of health & social care #wecomsers it is part of solution not all of it
@Northsn
12 August 2015 20:46
RT @bill_russell3: too many ppl think digital will solve the problems of underfunding of health & social care #wecomsers it is part of solu…
@JonathanO_QI
12 August 2015 20:46
E health records are a worry for me. What will the patient get from tick boxes on a screen? Technology overtaking competence #wecomsers
@horizonsnhs
12 August 2015 20:46
RT @amirhannan: .@r_jassi7 @allyc375 @theedgenhs TY. It is gr8. We have many pts enjoying this. Join twetchat @ 8pm #wecomsers #edgetalks
@louisebrady17
12 August 2015 20:46
RT @bill_russell3: too many ppl think digital will solve the problems of underfunding of health & social care #wecomsers it is part of solu…
@WeCommissioners
12 August 2015 20:46
Please don't forget #wecomsers thanks Steve! https://t.co/D6A0EH7Uro
@Paul_BIMLtd
12 August 2015 20:46
RT @amirhannan We nd to work w our own practices - staff & management team & Patient Participation Groups to help change culture #wecomsers
@amirhannan
12 August 2015 20:46
Currently 38% of our patients have #RecordsAccessAndUnderstanding http://t.co/haxs3CPGOq #wecomsers
@drterryhudsen
12 August 2015 20:46
@anetto #wecomsers. Resources are what is needed. Time for records to be in a patient friendly way so can be understood are helpful.
@sillyoldjen
12 August 2015 20:46
@davidcragg @WeCommissioners @amirhannan #wecomsers and when docs note heart sounds/neuro tests = we don't know their abbreviations/code!
@louisebrady17
12 August 2015 20:46
@bill_russell3 agree! #wecomsers
@JonathanO_QI
12 August 2015 20:46
RT @WeCommissioners: We agree! Great involvement, thanks for joining us for it :) #teameffort #guesthosts #communityledchat #wecomsers htt…
@WeCommissioners
12 August 2015 20:47
Please don't forget #wecomsers on all your tweets! thanks https://t.co/y2WQXHzFH9
@Northsn
12 August 2015 20:47
The funding will stay the same but ppl will be more educated and empowered promoting partnership of trust and self worth #wecomsers
@amirhannan
12 August 2015 20:47
This is not a numbers game but nice to see people respond when right support is put in place #wecomsers
@NHSEnglandSI
12 August 2015 20:47
What is required to roll out records access and understanding? @amirhannan #WeComsers
@GMFRS_PeteOR
12 August 2015 20:47
@NHSIQ #wecomsers maybe we can start by trusting people with their own information then maybe they'll trust us to share it responsibly ??
@drterryhudsen
12 August 2015 20:47
#wecomsers Great examples about of patient owned records, with access issued to clinicians - different way round but works well. ?the future
@Northsn
12 August 2015 20:47
RT @GMFRS_PeteOR: @NHSIQ #wecomsers maybe we can start by trusting people with their own information then maybe they'll trust us to share i…
@ingridbrindle
12 August 2015 20:47
@davidcragg @CallowLesley @NHSIQ #wecomsers
@amirhannan
12 August 2015 20:47
Q4) So what support do you think practices need to enable #RecordsAccessAndUnderstanding to be rolled out in your area? #wecomsers
@amirhannan
12 August 2015 20:47
RT @GMFRS_PeteOR: @NHSIQ #wecomsers maybe we can start by trusting people with their own information then maybe they'll trust us to share i…
@JonathanO_QI
12 August 2015 20:48
I feel an experiment coming on. I may request access to my own notes to test out the current process in Scottish NHS #wecomsers
@LasLynda
12 August 2015 20:48
RT @drterryhudsen: @Jonathan_180 #wecomsers What if something needs protecting: from spouse, insurance company asking for details? Need to …
@anetto
12 August 2015 20:48
@bill_russell3 All the blame goes to the patient or circumstances then. Surely the health system can help improve health! #wecomsers
@JonathanO_QI
12 August 2015 20:48
RT @drterryhudsen: @anetto #wecomsers. Resources are what is needed. Time for records to be in a patient friendly way so can be understood …
@amirhannan
12 August 2015 20:48
@GMFRS_PeteOR @NHSIQ Exactly, It starts with #PartnershipOfTrust. Caring enough to share what we know with you. Not limiting #wecomsers
@bill_russell3
12 August 2015 20:48
#wecomsers the internet has given credence to uninformed opinion
@Northsn
12 August 2015 20:48
RT @bill_russell3: #wecomsers the internet has given credence to uninformed opinion
@Paul_BIMLtd
12 August 2015 20:48
Yes, @AmirHannan, #PPGs @patientparticip can be force for change & shld be part of the solution; one way of finding patient voice #wecomsers
@KellyLMcKevitt
12 August 2015 20:48
RT @bill_russell3: too many ppl think digital will solve the problems of underfunding of health & social care #wecomsers it is part of solu…
@WeCommissioners
12 August 2015 20:48
What support do practices need to enable a scheme like this to be rolled out in your area? #wecomsers
@davidcragg
12 August 2015 20:48
@GMFRS_PeteOR @NHSIQ no care.data discussion tonight please. You'll get my BP too high :) #wecomsers
@BevMatthews_
12 August 2015 20:48
RT @amirhannan: @Bev_J_Matthews To do this we need to raise #HealthLiteracy for all and engage others 2 help 2 #wecomsers
@amirhannan
12 August 2015 20:49
@bill_russell3 Not necessarily uniinformed. We need to learn to critically appraise the info or know where trusted info can be #wecomsers
@NHSEnglandSI
12 August 2015 20:49
RT @amirhannan: Currently 38% of our patients have #RecordsAccessAndUnderstanding http://t.co/haxs3CPGOq #wecomsers
@DanielBayley80
12 August 2015 20:49
@Jonathan_180 good luck. my experience was dreadful, but i did demand they email my yahoo address too, to test them! #wecomsers
@judegoddard
12 August 2015 20:49
RT @NHSIQ: Fabulous chat tonight... and lots of questions about records access and understanding.... it's a very emotive subject #WeComsers
@CallowLesley
12 August 2015 20:49
RT @WeCommissioners: Please don't forget #wecomsers thanks Steve! https://t.co/D6A0EH7Uro
@amirhannan
12 August 2015 20:49
@bill_russell3 Your doctor or nurse can help with the but so can other trusted sources that I have described earlier #wecomsers
@anetto
12 August 2015 20:49
Healthcare, according to @WHO should be closer to a stewardship model #wecomsers
@Hootvox
12 August 2015 20:49
@NHSIQ @amirhannan There's website coming that allows public to control their own medical records, like a Facebook? Poss vehicle? #WeComsers
@sm_partnership
12 August 2015 20:50
RT @GMFRS_PeteOR: @NHSIQ #wecomsers maybe we can start by trusting people with their own information then maybe they'll trust us to share i…
@Paul_BIMLtd
12 August 2015 20:50
Q4: Role for #PPGs to support practice & challenge to get systems and patient support right #wecomsers
@WeCommissioners
12 August 2015 20:50
RT @Paul_BIMLtd: Q4: Role for #PPGs to support practice & challenge to get systems and patient support right #wecomsers
@bill_russell3
12 August 2015 20:50
@amirhannan Now not many HCPs & commissioners can do critical appraisal let alone patients #wecomsers
@WeCommissioners
12 August 2015 20:50
RT @bill_russell3: @amirhannan Now not many HCPs & commissioners can do critical appraisal let alone patients #wecomsers
@amirhannan
12 August 2015 20:50
@bill_russell3 We built the practice-based web portal http://t.co/IgiyzOTrgG with @griffglen to easily signpost to trusted info #wecomsers
@NHSEnglandSI
12 August 2015 20:50
RT @GMFRS_PeteOR: @NHSIQ #wecomsers maybe we can start by trusting people with their own information then maybe they'll trust us to share i…
@DanielBayley80
12 August 2015 20:50
@WeCommissioners Training and education.... IG, caldicott and DPA. Email is okay!! Paper is not safer!! #wecomsers
@sm_partnership
12 August 2015 20:51
@GMFRS_PeteOR @amirhannan @NHSIQ this is why I say you can use my data when I can see it too #wecomsers #caredata
@Northsn
12 August 2015 20:51
Take it to your practice as I have ! Show what it can do and take a vested interest in developing your practice by involvement #wecomsers
@louisebrady17
12 August 2015 20:51
RT @Paul_BIMLtd: Q4: Role for #PPGs to support practice & challenge to get systems and patient support right #wecomsers
@NHSEnglandSI
12 August 2015 20:51
RT @amirhannan: This is not a numbers game but nice to see people respond when right support is put in place #wecomsers
@amirhannan
12 August 2015 20:51
So besides having trust, what else do you think is needed for patients to have #RecordsAccessAndUnderstanding. Let's describe it #wecomsers
@Mphasto
12 August 2015 20:51
RT @NHSIQ: What is required to roll out records access and understanding? @amirhannan #WeComsers
@JonathanO_QI
12 August 2015 20:51
Practices need a knowledge of current protocols and the freedom to change their processes to make access easier and meaningful #wecomsers
@GMFRS_PeteOR
12 August 2015 20:51
RT @sm_partnership: @GMFRS_PeteOR @amirhannan @NHSIQ this is why I say you can use my data when I can see it too #wecomsers #caredata
@NHSEnglandSI
12 August 2015 20:51
RT @WeCommissioners: What support do practices need to enable a scheme like this to be rolled out in your area? #wecomsers
@katewarriner
12 August 2015 20:51
PHR and ensuring patients and professionals have access to the information they need is a core part of #DigitalHL @HealthyLvpool #wecomsers
@louisebrady17
12 August 2015 20:52
@Paul_BIMLtd @WeCommissioners This is key! our PPG support others #wecomsers
@anetto
12 August 2015 20:52
@drterryhudsen As long as patient friendly does not mean 2 levels of records. Want real facts, not the "pat on the head" facts #wecomsers
@amirhannan
12 August 2015 20:52
@Jonathan_180 Yes - that's right. Need to be less prescriptive and allow practice to develop but using principles we describe #wecomsers
@amirhannan
12 August 2015 20:52
RT @louisebrady17: @Paul_BIMLtd @WeCommissioners This is key! our PPG support others #wecomsers
@JonathanO_QI
12 August 2015 20:52
I think resources used should be simple. Smart phones etc are great tools but get the process working with people first #wecomsers
@sm_partnership
12 August 2015 20:52
@amirhannan training! My GP doesn't even know it's possible! #wecomsers and anyway why would I want/need to?
@Northsn
12 August 2015 20:52
Practice's like mine are so busy that something new is daunting ! Contact practice managers and alert them to system #wecomsers
@KellyLMcKevitt
12 August 2015 20:52
RT @bill_russell3: #wecomsers the internet has given credence to uninformed opinion
@amirhannan
12 August 2015 20:52
So trust, knowledge of protocols, processes. Anything else needed to make this happen? #wecomsers
@Paul_BIMLtd
12 August 2015 20:52
RT @amirhannan RT @louisebrady17: @Paul_BIMLtd @WeCommissioners This is key! our PPG support others #wecomsers
@BevMatthews_
12 August 2015 20:53
RT @amirhannan: So trust, knowledge of protocols, processes. Anything else needed to make this happen? #wecomsers
@louisebrady17
12 August 2015 20:53
@Jonathan_180 @WeCommissioners Practices have the freedom to do this & develop it with PPG's too #wecomsers
@amirhannan
12 August 2015 20:53
Practices need an active PPG to provide patient voice #wecomsers
@Northsn
12 August 2015 20:53
RT @amirhannan: Practices need an active PPG to provide patient voice #wecomsers
@CallowLesley
12 August 2015 20:53
@amirhannan Needs willing clinicians #wecomsers
@BevMatthews_
12 August 2015 20:53
RT @amirhannan: Practices need an active PPG to provide patient voice #wecomsers
@amirhannan
12 August 2015 20:53
What do you think practice staff need for this? #wecomsers
@DanielBayley80
12 August 2015 20:53
@amirhannan a rocket up the .... #wecomsers
@NHSEnglandSI
12 August 2015 20:53
#WeComsers - an empowered patient - @amirhannan http://t.co/CH8FugrqTp
@NHSEnglandSI
12 August 2015 20:53
RT @drterryhudsen: @anetto #wecomsers. Resources are what is needed. Time for records to be in a patient friendly way so can be understood …
@JonathanO_QI
12 August 2015 20:54
@amirhannan the will to change! Go with the willing and the rest will follow #WeComsers
@amirhannan
12 August 2015 20:54
@DanielBayley80 The rocket will come. What sort of rocket would really help practices? What motivates them? #wecomsers
@CallowLesley
12 August 2015 20:54
@amirhannan clinicians willing to develop online relationship alongside traditional models of care #wecomsers
@WeCommissioners
12 August 2015 20:54
RT @CallowLesley: @amirhannan clinicians willing to develop online relationship alongside traditional models of care #wecomsers
@WeCommissioners
12 August 2015 20:54
RT @Jonathan_180: @amirhannan the will to change! Go with the willing and the rest will follow #WeComsers
@amirhannan
12 August 2015 20:54
@Jonathan_180 Where does the will to change come from? Where should it be? What helps? #wecomsers
@NHSEnglandSI
12 August 2015 20:54
RT @amirhannan: What do you think practice staff need for this? #wecomsers
@sm_partnership
12 August 2015 20:54
We should try it @nhsbarnsleyccg . You can practise with me #wecomsers https://t.co/aJyorNamOS
@amirhannan
12 August 2015 20:54
RT @CallowLesley: @amirhannan clinicians willing to develop online relationship alongside traditional models of care #wecomsers
@bill_russell3
12 August 2015 20:54
#wecomsers I was at a service users meeting and we discussed use of tablets etc - an aging population finds it difficult to use tech now
@NHSEnglandSI
12 August 2015 20:54
RT @amirhannan: Practices need an active PPG to provide patient voice #wecomsers
@BevMatthews_
12 August 2015 20:54
RT @bill_russell3: too many ppl think digital will solve the problems of underfunding of health & social care #wecomsers it is part of solu…
@docmdmartin
12 August 2015 20:55
@amirhannan #wecomsers feedback is the oxygen for adoption and improvement - from both clinicians, patients and carers?
@drterryhudsen
12 August 2015 20:55
@anetto Friendly = understandable & useful to patient. #wecomsers
@amirhannan
12 August 2015 20:55
@CallowLesley If clinicians and managers do not engage then patients will move elsewhere. We can see that here on this tweet chat #wecomsers
@CTO1ChipNagel
12 August 2015 20:55
RT @bill_russell3: #wecomsers the internet has given credence to uninformed opinion
@louisebrady17
12 August 2015 20:55
RT @CallowLesley: @amirhannan clinicians willing to develop online relationship alongside traditional models of care #wecomsers
@amirhannan
12 August 2015 20:55
RT @drterryhudsen: @anetto Friendly = understandable & useful to patient. #wecomsers
@JonathanO_QI
12 August 2015 20:55
@louisebrady17 @WeCommissioners appreciate that. having the ability & exercising that ability are often not mutually exclusive #wecomsers
@anetto
12 August 2015 20:55
@sillyoldjen Agree Ultimately unable to do that myself as well. Was looking for study where more knowledge no help. System behind #wecomsers
@ingridbrindle
12 August 2015 20:55
@bill_russell3 #wecomsers Absolutely and having access to personal information is part of that health literacy journey
@BevMatthews_
12 August 2015 20:56
RT @bill_russell3: #wecomsers I was at a service users meeting and we discussed use of tablets etc - an aging population finds it difficult…
@davidcragg
12 August 2015 20:56
After designers were challenged to reimagine the pt health record some excellent examples were shared http://t.co/ZQe1M6wrP0 #wecomsers
@Northsn
12 August 2015 20:56
Believe it or not an aging population engage more with digital concept than 16 _24 years and that's a fact ! #wecomsers
@amirhannan
12 August 2015 20:56
@drterryhudsen @anetto what if it could be useful to the practice too? Do you think that would help? #wecomsers
@NHSEnglandSI
12 August 2015 20:56
RT @CallowLesley: @amirhannan clinicians willing to develop online relationship alongside traditional models of care #wecomsers
@BevMatthews_
12 August 2015 20:56
RT @amirhannan: @drterryhudsen @anetto what if it could be useful to the practice too? Do you think that would help? #wecomsers
@bill_russell3
12 August 2015 20:56
#wecomsers maybe current <40's may be different until their fingers 7 thumbs dont work? PS someone has to argue against idea LOL
@NHSEnglandSI
12 August 2015 20:56
RT @CallowLesley: @amirhannan Needs willing clinicians #wecomsers
@NHSEnglandSI
12 August 2015 20:56
RT @Jonathan_180: @amirhannan the will to change! Go with the willing and the rest will follow #WeComsers
@WeCommissioners
12 August 2015 20:56
Coming to the end of another great chat - we'd love to know, what will you take away from the conversation tonight? #wecomsers
@docmdmartin
12 August 2015 20:56
@bill_russell3 #wecomsers If you give control then individuals can decide who will support them - intergenerational support happens
@BevMatthews_
12 August 2015 20:57
RT @Jonathan_180: @amirhannan the will to change! Go with the willing and the rest will follow #WeComsers
@docmdmartin
12 August 2015 20:57
RT @NorthSn: Believe it or not an aging population engage more with digital concept than 16 _24 years and that's a fact ! #wecomsers
@CallowLesley
12 August 2015 20:57
RT @amirhannan: Practices need an active PPG to provide patient voice #wecomsers
@Northsn
12 August 2015 20:57
Dual partnership of digital and non will see the transistion develop over time . #wecomsers
@NHSEnglandSI
12 August 2015 20:57
RT @docmdmartin: @bill_russell3 #wecomsers If you give control then individuals can decide who will support them - intergenerational suppor…
@NHSEnglandSI
12 August 2015 20:57
RT @ingridbrindle: @bill_russell3 #wecomsers Absolutely and having access to personal information is part of that health literacy journey
@NHSEnglandSI
12 August 2015 20:57
RT @drterryhudsen: @anetto Friendly = understandable & useful to patient. #wecomsers
@BevMatthews_
12 August 2015 20:57
RT @ingridbrindle: @bill_russell3 #wecomsers Absolutely and having access to personal information is part of that health literacy journey
@amirhannan
12 August 2015 20:57
OK - I will drop a bombshell then. This is not FREE. It will cost practices to do this and change and process requests. Needs £ #wecomsers
@MJohnA01
12 August 2015 20:57
RT @Jonathan_180: @amirhannan the will to change! Go with the willing and the rest will follow #WeComsers
@CallowLesley
12 August 2015 20:57
@amirhannan The patience to try #wecomsers
@CallowLesley
12 August 2015 20:58
RT @drterryhudsen: @anetto Friendly = understandable & useful to patient. #wecomsers
@drterryhudsen
12 August 2015 20:58
@docmdmartin @bill_russell3 #wecomsers Good examples about of patient owned records - access issued to clinicians - works well. ?the future
@sm_partnership
12 August 2015 20:58
@amirhannan it's all part of patient activation and I thought that was on the agenda of @NHSEngland and the 5yr4ward thingy #wecomsers
@amirhannan
12 August 2015 20:58
Practices will need to look at the info they provide and develop locally developed material with their staff & PPG #wecomsers
@Paul_BIMLtd
12 August 2015 20:58
@WeCommissioners Importance of listening to the patient voice, esp when getting enthusiastic about a change! Nds to not exclude #wecomsers
@louisebrady17
12 August 2015 20:58
@WeCommissioners happy to share a practice nurse perspective 12 months experience.. novice but learning & seeing benefits #wecomsers
@HealthUKTD
12 August 2015 20:58
RT @CallowLesley: @amirhannan clinicians willing to develop online relationship alongside traditional models of care #wecomsers
@HealthUKTD
12 August 2015 20:58
RT @Jonathan_180: @amirhannan the will to change! Go with the willing and the rest will follow #WeComsers
@NHSEnglandSI
12 August 2015 20:58
We will produce a storify of tonight's chat and this will be available tomorrow - will tweet with tonight's hashtag #WeComsers
@GarethPresch
12 August 2015 20:58
@WeCommissioners @DrUmeshPrabhu @amirhannan #accesstorecords will improve quality of life for patients #wecomsers
@BevMatthews_
12 August 2015 20:58
RT @NHSIQ: We will produce a storify of tonight's chat and this will be available tomorrow - will tweet with tonight's hashtag #WeComsers
@MJohnA01
12 August 2015 20:58
RT @ingridbrindle: @bill_russell3 #wecomsers Absolutely and having access to personal information is part of that health literacy journey
@WeCommissioners
12 August 2015 20:59
RT @NHSIQ: We will produce a storify of tonight's chat and this will be available tomorrow - will tweet with tonight's hashtag #WeComsers
@CallowLesley
12 August 2015 20:59
@WeCommissioners Not giving up I feel sorry for my GP #wecomsers
@NHSEnglandSI
12 August 2015 20:59
RT @sm_partnership: @GMFRS_PeteOR @amirhannan @NHSIQ this is why I say you can use my data when I can see it too #wecomsers #caredata
@sillyoldjen
12 August 2015 20:59
@LasLynda @davidcragg @sm_partnership #wecomsers YES: docs should ALWAYS warn of/note risks/harms from meds but VERY RARELY do= BAD practice
@amirhannan
12 August 2015 20:59
Also the solutions that are developed need to be co-produced with patients together and not done to them #wecomsers
@MJohnA01
12 August 2015 20:59
RT @NHSIQ: We will produce a storify of tonight's chat and this will be available tomorrow - will tweet with tonight's hashtag #WeComsers
@bill_russell3
12 August 2015 20:59
@docmdmartin #wecomsers I don't have kids increasingly common issue Twitter users not representative of population
@Northsn
12 August 2015 20:59
I've taken away a passion and purpose of both Pts and Proff to work together develop trust as foster a future to empower Pts . #wecomsers
@DrUmeshPrabhu
12 August 2015 20:59
RT @GarethPresch: @WeCommissioners @DrUmeshPrabhu @amirhannan #accesstorecords will improve quality of life for patients #wecomsers
@anetto
12 August 2015 20:59
@amirhannan @drterryhudsen Maybe co-creation would be the answer. Dr, staff, patients together. #wecomsers




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